Here is what I have tried and has failed. As you can tell, I am desperate at this point. Most of these helped a little bit, but the symptoms did not go away completely, ever:
- Paleo diet since September (including lots of coconut oil regularly)
- Several months of the Standard Carb Diet
- Avoiding all sugar for several months
- Raw Milk Kefir for a few months (no noticeable benefit)
- Various probiotics (multiple brands, no benefit)
- Fermented sauerkraut (no noticeable benefit)
- Mastic gum + Monolaurin (significantly suppresses h. pylori seemingly but does not make it go away)
- Yeast fighters (helpful for suppressing a yet recurrent yeast infection
- Ginger tea for several months(somewhat helpful)
- L-glutamine powder (questionable benefit)
- L-theanine (helpful for anxiety)
- SAM-e (incredibly helpful for sleep, difference between typical 4 hours and 6-9 hours of sleep!! :) although it does seem as to increase indigestion)
- Raw Apple Cider Vinegar (Bragg's) (helps against yeast, but only temporarily) tried for several months
- Oregano Oil (temporarily beneficial against h pylori but increases anxiety incredibly and makes sleep difficult. hence, counterproductive)
- Ox Bile (necessary for any fat digestion)
- Digestive enzyme mix (helpful)
- 14 day antibiotic regimen (triple therapy) resulted in decreased sleep overtime yet decreased skin rashes, with a total about 60% net symptom reduction. Yet, after the regimen, skin rashes returned. I went to monolaurin + mastic gum for symptom suppression, yet was not as effective as the antibiotics were, even though the antibiotics in themselves did not end my overgrowth
- Grapefruit seed extract (no noticeable benefit)
- Kelp (iodine) (no noticeable benefit)
- Vitamin C and HCL no benefit, just acid reflux
ALL of these problems started developing after I took deoxycycline when I was 14 years old (five years ago). Did it cause liver damage??????? What do I do?????? I fix the problem and I end the overgrowth, right?
ANY suggestions???? I have tried almost everything, I NEED help before I develop a stomach ulcer lol seriously h. pylori as I understand contributes to 80-90% of stomach ulcers....
I take about 10 supplements twice a day in order to suppress many symptoms as to allow partial functioning in my life.
Thank you!!! $1 million to anyone who can END the suffering lol :)
As to answer some questions... I took a Metametrix test several months ago to confirm the overgrowth. The symptoms of the overgrowth still reside which is why I still complain. Which include: Anxiety, constipation, skin rashes, insomnia, stomach cramping, itchy ear canal and anus.
asked byOwen (134)
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on May 28, 2013
at 12:04 PM
To echo others, have you been retested for H. pylori after the antibiotic treatment? Such antibiotic treatments are almost always effective. I don't see the point in worrying about ulcers and taking stuff like mastic gum if indeed your H. pylori infection is gone.
Let me share with my my experience. I suffered years with IBS and mild duodenal ulcers. Going Paleo/SCD was able to make things 70% better. I was then diagnosed with H. pylori. After antibiotics I was retested and was given the all clear. It took about six more weeks for everything to settle down and my IBS to (almost) vanish. Unfortunately I still develop ulcers. Taking ranitine (generic Zantac) twice daily keeps enough of a lid on gastric acid production to prevent ulcers. [Sometimes older folks are prone to developing ulcers. There might be a genetic angle to it.]
So get retested for H. pylori. Stick with Paleo (..actually SCD works best for me). Give your system a break for a few weeks from all your supplementing. If you are still in bad shape then revisit your gastroenterologist. Something else is wrong. Once you get a firm diagnosis you'll be able to devise a new plan of attack.
on May 28, 2013
at 04:27 AM
Maybe talk to your doctor about Sequential therapy.
To test an alternative approach to H. pylori eradication, investigators in South Korea conducted a prospective, single-blind, randomized study in which 409 treatment-naive adults with H. pylori infection received either sequential therapy (pantoprazole 40 mg and amoxicillin 1 g, each twice daily for 5 days, followed by pantoprazole 40 mg, clarithromycin 500 mg, and metronidazole 500 mg) twice daily for the next 5 days or standard triple therapy (pantoprazole 40 mg, amoxicillin 1 g, and clarithromycin 500 mg) twice daily for 14 days. Eradication was determined by a urea breath test performed at least 4 weeks after the end of therapy.
The eradication rate was higher with sequential therapy than with standard triple therapy in both the intent-to-treat analysis (85.9% vs. 75.0%; P=0.006) and the per-protocol analysis (92.6% vs. 85.0%; P=0.019). Adverse events were similar between groups. The authors concluded that, in Korea, 10-day sequential therapy provides a higher eradication rate than 14-day triple therapy and might be a first-line treatment for H. pylori infection in the future
Possibly using tetracycline hcl instead of metronidazole. (http://www.medscape.com/viewarticle/460038)
Or there's always.. Poop implants.
on June 02, 2014
at 06:08 PM
Has anyone had water retention with h phylori and inability to lose weight? Thyroid is fine as well as stool test but haven t tried apple cider first. Triple therapy didn t work on me
on July 16, 2013
at 06:57 PM
I know gluten intolerance/sensitivity seems like the latest health 'fad', but I would strongly suggest looking at Dr. Jeffery Osborne's website. Often gluten-sensitive people are casein sensitive (protein found in milk) as well. His knowledge is cutting edge-- he is looking at celiac disease and gut/other issues through a completely different lens. If you're really frustrated and miserable it might be worth a look-see.
on June 08, 2013
at 04:34 AM
Have you been tested for Lyme (Borrelia) spirochetes or other tick-borne illnesses? Regular serum antibody-tests are useless for finding it, but it can be found through some Labs. Where are you located?
on May 29, 2013
at 03:42 AM
I too had h pylori and my gastro doc told me I will always test postive for it since I once had it. I went through two rounds of the antibiotic/ppi's to get rid of it. I later read articles through google that said you can treat h pylori with pepto bismo.
on May 28, 2013
at 07:17 AM
Okay, so let's try figuring this out.
Your H. Pylori keeps returning, right? By the way, do you think it keeps returning because you have the symptoms or because you actually take some test to verify it?
It is important that you know 100% for sure you have H. Pylori, it is not just your guess.
If you 100% SURE BASED ON THE TEST that you have it, there are multiple things you can do:
Number 1. H. Pylori thrives in acidic environment. How to reduce your stomach acidity? Some people suggest for drinking tons of water (and by tons it means no more than 16 cups per day, and not in one sitting - you can die from drinking too much water too soon).
The constant flow of water (one half a cup every 30 minutes) will keep your stomach less acidic. From what I have read, you need to do it for 2-3 days.
However, this was from a person who had only H. Pylori listed as a medical problem. You might have others.
so Number 2. Have you been tested by parasites/dysbiosis? If H. Pylori keeps coming back because something creates the perfect environment for it, you need to figure out the cause. Could you possibly take a comprehensive stool sample and let us know what exactly is going on?
Number 3. If you have tried both 1 and 2 from the above, I have another option as well. But you need to know the results for #2 first.
H.Pylori THRIVES IN ACIDIC ENVIRONMENT. You have to lower your stomach acidity to kill it.
Most doctors recommend combining PPIs and antibiotics. I am not a doctor but I would like to warn you against it. PPIs cause more harm than good.
I don't know where to read the other question that you have mentioned, but try reducing your acidic environment by the water treatment I got from some website. Some people suggest adding a clove of crushed garlic to water.
However, I suspect that you have other things going on besides H.Pylory. If you want, you can write to my email and I can tell you what helped me (even though I did not have H. Pylori, the treatment is very similar). By the way, the treatment is working - I am so happy!
on May 28, 2013
at 05:34 AM
I find it strange that considering the amount of things you have tried, you don't say anything about coconut oil, which should be one of the first things that come into mind when you look at this community, coconut oil is, well, you know, so popular :)
Indeed, amongst its possible reported benefits, it seems that is able to fight h. pylori, see this link: http://www.hailmerry.com/blog/2011/05/coconut-oil-kills-the-bacteria-that-causes-ulcers/
Since you have tried anything I guess it's worth a try, frankly if the antibiotics couldn't make anything for you... have you retested for the bacteria? Are you sure you still have it and cannot be related to other derivative problem like any food intolerance or damaged gut?
BTW, I'd keep trying with apple cider vinegar and in general anything that can rise your stomach acid levels, this link has some info suggesting Vitamin C, licorice, hot spices and Betaine HCL between others.