7

votes

Hack my non-weight loss - I have celiac, PCOS and possible thyroid problems and possible MS :(

Answered on August 19, 2014
Created February 24, 2012 at 3:52 PM

Hello all! I know a lot of you know a lot more than I do. I'm hoping someone can help. How knowledgeable some of you are astounds me!

I started paleo after being diagnosed with PCOS on august 7 2011 and was so excited. I had always been very overweght and my belly had always looked like I was pregnant despite not overeating and exercising for years. So I started paleo. I (female) went from 200 pounds at 5'8" to lowest of 176 in about 6 months. I hoped to keep on going, but the numbers started to go up. I had kept on stalling at 183 and to get to 176 I had to drink 2 shakes a day instead of meals (can't remember the name, but theyre ok for Paleo, vitamin filled) and then a paleo dinner. It is, even after paleo, still a little pregnant looking. Alittle less so, but I still look fat. Size 14, 12 on a very good day.

Then about 6 weeks ago I was diagnosed with celiac, which is fine bc Paleo is pretty much fine for people with Celiac.

I started eating normal paleo food again (not shakes 2x a day instead of food) and now hover between 184-187. for someone who is 5'8, this is WAAAAYYYY too much. Very, very frustrating. I was swimming every day too for at least 1/2 hour and walking for about 40 minutes a day. Most of the fat is around my waist (very PCOS). I've been that way since I was a kid :(

My doctor says my thyroid is on the low end of normal and says this must be why I can't lose weight. he's the first doctor who wants to do something about thyroid. Vitamin D levels are also extremely low. (BTW, I was told a few months ago I might even have MS.) He told me to take one gram of nature throid daily. i started 2 days ago and we'll see if i lose weight or feel better. in the past i was diagnosed with bipolar II (which went away after eating paleo, i'm told bipolar II can be likened to blood sugar highs and lows, which PCOSers have), definitely have been severaly depressed and always have had dry skin. Anemic too (common with celiacs). I dont have lupus or hashimoto's. always exhausted. dry skin.

here are my thyroid #s free T4 1.07 (says range is .83-1.62) free T3 2.9 (range 2.5-4.3) vitamin d - 25.5 (range 32-100) - i know very, very low

I feel like a human lab experiment. I dont know what else I can do to lose the weight. I have grown to hate my body as I have worked so hard for years to see no results. It has adversely affected my social life and self-esteem a lot.

Paleo seemed so promising and now it just seems useless. I do eat a lot of steamed broccoli and cabbage, which maybe slows the thyroid. But I'm supposed to havea lot of veggies because it raises sex hormone binding globulin, which helps flush out testosterone (with people with too mcuh PCOS have too much of). Paleo helped regulate my period so now I get it every 34-37 days. Which still seems not often enough.

I had tried metformin but that's when MS like problems started happening - we though it was becasue it strips you of vitmain b12 but that turned out not to be it. and metformin didnt help me lose weight.

could adrenals be overloaded??? I dont know what else to change or if I should even stick with Paleo anymore, though it seems as though with PCOS and CEliac I dont have much of a choice. should i be a zero carber? but dont i need carbs for thyroid and Sex hrmone binding globulin? i feel like i have no energy. my skin is getting dryer for some reason and i'm more tired and sad than usual lately.

Sample day: breakfast: eggs with onions, brocolli or spinach, butter lunch: lamb with nothing on it, brcolli and peppers and onions dinner: hamburger meat with turmeric, garlic, cinnamon, and a salad with olive oil

Sorry for the whining nature of this post. Really. I am just at rock bottom and I don't know what to do. I want to lose weight for once and for all. And I want energy and not to feel like a walking corpse. I am praying for a break through. Anyone have ANY thoughts? i am happy to answer any questions. I am amazed by how much knowledge some of you have. Thank you

A2cec60e836de2d9dbe43d456cac2dab

(146)

on September 25, 2012
at 01:12 PM

thank you, I JUST read this! i will check out Kharrazian!

94480caec9fbbaacc386d86a45efa720

(1007)

on June 21, 2012
at 04:17 PM

KC - as a fellow celiac I think you're getting some great suggestions here and I just want to add that it may take more time. Keep an eye on thyroid levels since they may improve the longer you are gluten-free - 6 weeks is not very long at all. I have slowly but steadily lost weight since my celiac diagnosis doing a paleo diet. You may wish to poke around here: http://glutenfreeandbeyond.org/forum/index.php searching for thyroid info. good luck!

A2cec60e836de2d9dbe43d456cac2dab

(146)

on March 02, 2012
at 01:06 AM

Wow, sounds frustrating. But I'm glad you finally got to the right dosage! Here are some natural remedies for PCOS http://www.earthclinic.com/CURES/polycystic_ovary_syndrome.html a few people said taking apple cider vinegar (has to be the kind with the mother) helped them get their period regularly again -- which i assume would make you more fertile ;) and they also recommmend teas and stuff. Although it sounds like y're better bc you had a baby! Congrats!! I'm going to try an organic futon, sounds Great - everyone's saying they feel better on the floor or close to it ;)

6120c989fd5b69f42a0834b69b87955b

(24553)

on March 01, 2012
at 09:21 PM

They did make me take one more blood test between 1 grain and 1 1/2, and then 1 1/2 to 2 grains. I think it was a couple months before we got the dosage to a point where it really helped, and then the bump up to 2 was to try and improve my fertility. We switched to an organic futon right after we had our baby, and it made a world of difference for me.

A2cec60e836de2d9dbe43d456cac2dab

(146)

on March 01, 2012
at 03:45 PM

I just wrote another thread on mattressses, you might want to check it out. Sometimes the little changes can change our life - I'm hoping changing mattresses will do it! You are in an inspiratoin, thank god for this forum :)

A2cec60e836de2d9dbe43d456cac2dab

(146)

on March 01, 2012
at 03:44 PM

I'm glad you didn't give up. See that one experience you had with the naturopath would make me say "ok, I'm never seeing you again." did she even say she was sorry or admit she was wrong? she screwed with your life! So it didnt take you too long to figure out what you needd for meds. I am on one grain and feel slightly better. So they dont make you take a blood test before increasing your dose? Things I should ask my doc I guess. Yes the Autoimmune epidemic is great. Talks about chemicals in everything -- and why AI diseases are growing exponentially.

A2cec60e836de2d9dbe43d456cac2dab

(146)

on March 01, 2012
at 03:42 PM

OH man, that made me LAUGH - you could grow a wicked goatee! Yep, PCOS is missed all the time. My biggest regret is not pushing harder for tests - I wasted my whole life being insecure about my body. Every year I would go to a different doc and they would say the same thing. Nothing is wrong with you. HOw wrong they were. I wish I had been as tenacious as I am now and approach the probem with full force, try 100 different docs if need be. I have a great doctor in NYC if you want to know his name. Fratellone. Anyway I guess the key is to accept, not be angry, but still be tenacious!!!

6120c989fd5b69f42a0834b69b87955b

(24553)

on March 01, 2012
at 05:50 AM

...think it was her idea. I'm going to have to check out the Autoimmune Epidemic, I'm trying to understand this from every angle possible. If your anger is what motivates you, use it! I think my diagnosis was slowed down because I didn't get angry enough and push for more tests. I wonder if belly dancing shimmying might useful for moving lymphatic fluid around too. I've got at least one more myofascial appointment, but I think I'm going to have to start doing ball and foam roller treatments at home because it is super pricey.

6120c989fd5b69f42a0834b69b87955b

(24553)

on March 01, 2012
at 05:30 AM

...process. I was extra frustrated because I had walked into that same ND's office over a year earlier with concerns about thyroid and PCOS, which she immediately blew off and warned me about the dangers of self-diagnosis and didn't want to test for either because she just wanted me to lose weight first, only to come back with my lab work a year later, with this big "Ta da! I think I know what is wrong with you." I think it was almost 8 years after noticing that I could grow a pretty wicked goatee that I could get anyone to do the right labs, and even then I had to wait for my doc to...

6120c989fd5b69f42a0834b69b87955b

(24553)

on March 01, 2012
at 05:23 AM

Sounds like your doc might have the right idea with the Nature-throid, I was taking the Armour mostly before the reformulation, and down to 1/2 grain by the time it was reformulated. Maybe I didn't notice a difference on or off it because it wasn't working at all. I'm trying to remember back to the beginning, and I think it took a dosage increase before I started to feel better. They started me really low 1/2 grain, and I didn't start to feel better until I got up to 1 1/2 grains, and once I got up to that dosage it was only 3 days before I started to feel better. Truly a frustrating...

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 29, 2012
at 02:41 PM

BTW, am reading a great book called the Autoimmune Epidemic. So far, it's shocking. You might want to read it! I love your responses and thanks so much for sharing your experience...please let me know how your thyroid experience went! Also, the thing you say about the lymph/massage is written about in THE FAT FLUSH series. She also mentions getting a small rebounder )like a mini trapoline) to move it around :)

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 29, 2012
at 02:37 PM

Ok good to know, thank you :)

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 29, 2012
at 02:37 PM

BTW, am reading a great book called the Autoimmune Response. So far, it's shocking. You might want to read it! I love your responses and thanks so much for sharing your experience...please let me know how your thyroid experience went!

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 29, 2012
at 02:35 PM

Am on Nature-throid.I heard for some, Armour is better. I dont know, it's new to me. How long did your Armour take to kick in? It's great that you love yourself! Self-loathing isn't helpful, but I do feel that way. I'm angry at my body. It's probaly not feasible to be superthing, but...being tenacious led me to not accept that nothing was wrong with my body as all docs were telling me - and to finally find out I have PCOs, and celiac and to start paleo. At least small losses have come. I'm hoping for more improvement. It does take its toll though, that's for sure...

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 29, 2012
at 02:32 PM

Yeah, I'd bet they had PCOS. It tends to be genetic (I think) =A lot of peopel have PCOS and dont know it, I read somewhere it takes avergae 10 years before people get diagnosed. It's one of the most missed diagnoses. I think my mom and grandma had it (bnoth had trouble conceiving, missed periods) but never even heard of it until I told them I had it :) I just got metal fillings removed a few days ago, all the really bad stuff happened months ago. Haven't noticed anything since fillings were removed. The thyroid meds also started only a few days ago.

6120c989fd5b69f42a0834b69b87955b

(24553)

on February 28, 2012
at 12:47 AM

You're right maybe my predecessors did have PCOS too, hadn't thought much about that. They had so many kids that I was thinking it was something new, but they also got hitched earlier in the old days and PCOS doesn't cause infertility early on. I admire your tenacity, but that battle isn't for me. I watched my mom and her mom fight so hard to be thin, and it looked like it took too much of a toll on their spirits and productivity, I refuse to have my potential co-opted by self loathing. As long as I feel strong and healthy, and can walk without my thighs chafing in the summer, I'm good.

6120c989fd5b69f42a0834b69b87955b

(24553)

on February 28, 2012
at 12:36 AM

Did things get worse around the time you got your fillings removed? I've heard the removal process can release a lot of mercury, and it can take a lot of time to clear from the system. That's a bummer about the NAC, I think I remember you mentioning the blood sugar crash on another thread, scary. Did you mention that your doctor was putting you on a supplement for thyroid stuff? With that kind of neuropathy and fatigue I'd be pushing for at least a trial of Armour to see if things got better. I was so out of it I couldn't drive for a while without real thyroid meds.

5e5ff249c9161b8cd96d7eff6043bc3a

(4713)

on February 27, 2012
at 10:21 PM

It's pretty far from either, and if you have autoimmune stuff you need to avoid that kind of crap like the plague. Eat whole foods.

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 27, 2012
at 07:12 PM

then i got off metformn soon after, i lost all feeling in legs, arms, feet, hands. started stuttering. chronically exhausted for months, trouble walking, trouble balancing. starting taking b12 again and things started impriving. except now both hands are still numb. im still exhausted all the time. i also have pinched nerves and just did a metal detox. would love to know why im tired all the time, but that's another issue. i still care about the weight ;)

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 27, 2012
at 07:11 PM

then i got off the met. soon after, i lose all feeling in legs, arms, feet, and hands. soon after started stuttering. chronically exhausted for months, trouble walking, trouble balancing. starting taking b12 again and things started impriving. except now both hands are still numb. im still exhausted all the time. i also have pinched nerves and just did a metal detox. would love to know why im tired all the time, but that's another issue. i still care about the weight ;)

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 27, 2012
at 07:09 PM

I'm checking out those links, thanks! No history of MS. Most people I meet who have been diagnose with MS, years later they find out they had lyme or it was metal toxicity. so im very leery of the MS diagnosis. plus i have what less than 5% of peopel with MS have - 3 active spine lesions, none on the brain. i think something else is going on. it started (i wrote below before, so forgive the dual post) when my metformin dosage was ramped up to 1000g (or mg?)...i couldnt feel 4th or 5th fingers. read this was due to metformin depleting vit b12.

6670b38baf0aae7f4d8ac2463ddc37c0

(3946)

on February 27, 2012
at 05:23 PM

When most people go VLC they experience an adjustment from burning carbs to burning fat, which can result in low energy. Most people who stick it out come out the other side feeling great. Some people never adjust and they feel better with higher carbs. If you are hell bent on losing weight, I would give VLC some time.

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 27, 2012
at 05:09 PM

and i'm trying more carbs via muscle milk )is that paleo, or healthy?) i dont know. we'll see what happens :)

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 27, 2012
at 05:08 PM

now i can feel my legs, but my hands are both really numb and i'm still chronically tired. i just did a metal detox with DMSA and got my fillings removed. damn if only i could get insurance to cover a tanning bed. your story sounds exactly like mine. dont you wish you could havea supermodel body? you have found acceptance. i wont give up ;) i want to be THIN, i remember how good it feels (i was thin for one year of my life). your family might have been large bc they had PCOS too, same symptoms as you ;) thanks so much for everything you wrote...

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 27, 2012
at 05:07 PM

I loved your answer. I used to go tanning and I felt AMAZING but then was afraid for skin cancer. NIce to meet someone who is going through the same thing. NAC made me faint and sweat and go to the ER, basically blood sugar crashed to low-I didn't slowly adjust to it, just took one normal sized dose stupidly. MS symptoms - after metformin dosage was raised (supposed ot strip you of b12), i couldnt feel arms, legs, feet, hands, slurring speech, exhausted, trouble balancing. they found 3 spine lesions. no brain. so it doesnt look too bad. i have pinched nerves too so that could be it.

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 27, 2012
at 05:02 PM

It does help, I hear people on this site mentioning crossfit all the time, I'll look into it (don't know what it is). Exercising - I used to do it a lot harder and more often but got so frustrated because I really wouldn't see results after a lot of work. Haven't tried crossfit though. Maybe that's the magic key...

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 27, 2012
at 05:00 PM

Wow, inspiring that you found your way. I really don't know much about celiac. I'm thinking coconut oil makes me fat (me personally, I know it's great for others). Your diet sounds great, I'm told not to eat dairy. Just got an allergy test and I hope that helps ;) I will try elimiating and adding in more foods...

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 27, 2012
at 04:57 PM

Since starting a low carb version of paleo initially I had tons of energy,now I have none. the only fruit i had (seldomly) was blueberries.I just bought muscle milk -19g carbs per serving (A LOT, but i thought i'd try it anyway) I had a little bit more energy. The sweetness tastes great and I'm pretty sure it may cause some sort of insulin spike then a sweet craving, but...so far it hasnt caused weight gain. Or loss. I'm wondering if I feel bad a lot from not having enough fruit, not enough carbs, is that possible? I know people say to cut out fruit and nuts when trying to lose weight...

D10ca8d11301c2f4993ac2279ce4b930

(5242)

on February 25, 2012
at 05:23 PM

Also remember healing takes time. I hope that you are able to lose the weight you want to lose but getting back to a healthy state is more important! And once you get there it'll be much easier to lose weight. But it took time to get sick so it'll take time to get well! I'd continue working with your doctor but also find a good chinese herbalist / acupuncturist. They are pretty bomb digity with complex diagnostic problems.

518bce04b12cd77741237e1f61075194

(11577)

on February 25, 2012
at 02:15 AM

I'm confused by the "MS like problems"- do you have the genetic history? Other females in your family diagnosed? Your doctor should be able to give a relatively definitive diagnoses after a series of tests, my friend just went through the testing b/c her mother and sister have MS, and she said it was pretty definitive that she does not have it.

Cbb1134f8e93067d1271c97bb2e15ef6

on February 25, 2012
at 12:08 AM

http://www.umm.edu/patiented/articles/what_symptoms_of_hypothyroidism_000038_3.htm

6670b38baf0aae7f4d8ac2463ddc37c0

(3946)

on February 24, 2012
at 11:44 PM

KC-try losing the fruit altogether (eat berries if you MUST have it) and going for a small amount of sweet potato. Bananas are very high in sugar!

Cbb1134f8e93067d1271c97bb2e15ef6

on February 24, 2012
at 08:58 PM

http://www.askthelowcarbexperts.com/2012/02/7-the-long-term-effects-of-the-high-carb-sad-diet-dr-cate-shanahan/

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 24, 2012
at 07:27 PM

Thanks very very much, printing it out now :)

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 24, 2012
at 07:27 PM

WONDERFUL, will do. Thank you so much, very helpful. No more peps!

5e5ff249c9161b8cd96d7eff6043bc3a

(4713)

on February 24, 2012
at 06:13 PM

You'd also have to cut out the peppers. I understand it's not easy, but with your current health I think your priority should be that. My breakfast strategy is to cook too much for dinner and eat the leftovers for breakfast, with some variation of Mark Sisson's big ass salad for lunch. I think that's pretty sustainable. If you're still having trouble, check out Chris Kresser's personal paleo code. It includes a meal generator and gives you a guide for an elimination and add back in way of eating.

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 24, 2012
at 05:40 PM

Thanks. I'm taking supplements up to wazoo and nothing seems to help, but I will check out those forums. From my initial research on thyroid, it seems as though I'm not having enough carbs, but as I wrote in a response to someone else's comments below - anything other than low carb is bad for PCOS, but too low carb is bad for thyroid. That's my main quandry. but thanks for telling me about those forums, I didn't know about them...

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 24, 2012
at 05:39 PM

and good point about paleo being good for overall health. It's just that maybe I don't know enough about how much carbs I need. If I even have a a banana my stomach puffs out for days. Too much sugar for me. Maybe I should up my low-glycemic fruit intake (I do hve blueberries a lot) and see if that helps...

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 24, 2012
at 05:37 PM

Yes, I've read a little about that and will reread it- all I would have to do at this point would be to take out eggs and nuts. Oh, no alcohol. I hardly have any but I guess this has to be strict. really, I dont know what the ! to eat at this point. Can't have anything wheaty, or eggs for breakfast with Wolf's protocol, can't have fruit on their own bc too much sugar? Maybe fruit with meat for breakfast? THx for your advice...

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 24, 2012
at 05:35 PM

Thanks, I am starting to eat a little more carbs. For PCOS even medium-hight carbs are bad bc of insulin resistance, for thyroid i read low carbs are bad! AAAARG! Hahahaha. So confused

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 24, 2012
at 05:34 PM

Thank you for your generous response :)

D31a2a2d43191b15ca4a1c7ec7d03038

(4134)

on February 24, 2012
at 04:08 PM

Hi, KC. I'm sorry the challenges are rough ones. There are quite a few ladies at the low carb forums with PCOS, celiac, etc. Low Carb Friends and Active Low-Carber Forums are the two largest. They discuss effective use of limiting carbs, taking supplements such as inositol, magnesium, and such, among other things. I wish you all the best. :) I wi

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10 Answers

13
0bc6cbb653cdc5e82400f6da920f11eb

(19235)

on February 24, 2012
at 05:06 PM

It sounds like you have a lot on your plate. I am not a doctor but these are some thoughts:

Focus on your health and fixing that rather than weight loss. If you can fix some of the health issues I expect you will find it a lot easier to lose weight.

Coeliac disease

To fix the damage caused by this you need to be really strict about avoiding all gluten including being very careful about cross contamination in the kitchen and when eating out. It will take time to start to repair the harm coeliac disease can cause.

Anemia

Get the anemia treated and your iron levels up to normal. Being anemic can make you feel pretty bad on its own.

Thyroid

Keep doing what you are doing and working with your doctor to sort this out. If it is an issue then you might find large benefits from correcting it.

Vitamin D

Get a good vitamin D supplement and take it for 3 months and then get retested.

Poly Cystic Ovarian Syndrome

I know this can cause all kinds of problems and is a whole issue on it's own. There have been a few questions here before about it.

Deficiencies

If is quite common to be deficient in vitamins and minerals if you have coeliac disease. You might find it helpful to take some dietary supplements to correct these. Paul Jaminet has a good page on recommended supplements that you may find useful. The selenium and iodine in particular may be worth checking out if you have thyroid problems.

Diet

This is very individual. I can't give any specific advice and it sounds like you are eating quite well. However it may be helpful to eat a wider range of foods to get as many nutrients as possible.

This could include fish and seafood, organ meat such as liver or pate and root vegetables.

People will give you all kinds of advise based on what has worked for them. Don't be afraid to find out what works for you.

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 24, 2012
at 05:34 PM

Thank you for your generous response :)

D10ca8d11301c2f4993ac2279ce4b930

(5242)

on February 25, 2012
at 05:23 PM

Also remember healing takes time. I hope that you are able to lose the weight you want to lose but getting back to a healthy state is more important! And once you get there it'll be much easier to lose weight. But it took time to get sick so it'll take time to get well! I'd continue working with your doctor but also find a good chinese herbalist / acupuncturist. They are pretty bomb digity with complex diagnostic problems.

10
531db50c958cf4d5605ee0c5ae8a57be

on February 25, 2012
at 01:52 AM

My turning point occurred after eliminating 100% of the seed oils. Not sure how much, if any, you're getting. I don't count olive oil among the nasty stuff, just canola and the like that gets in there with the occasional cheat celiac convenience foods.

Also should note that most of us celiacs have multiple intolerances. The idea that eliminating gluten lets you do a victory dance is, quite frankly, bullshit. A horrific myth. As others have said, dietary stuff is highly individual. One must find one's own answer to the question, "what the fuck am I going to eat today."

Sorry for the cussing. I'm amped up.

For the record, I have come damn near to solving my dietary ills and it took me four years. There were periods of stasis along the way. This is normal. Elimination diets are key to self-understanding. Keep your mind open. There are foods that I really really like that I can't eat. Period. I'm past that.

95% of my diet is comprised of the following: grassfed beef, Japanese sweet potatoes, red wine, parmesan cheese, heavy cream. I also have kombucha and Greek yogurt. I think it's delicious but people tell me I'm limited...

Keep fighting to find the answers. You absolutely can solve this! And will with persistence over time.

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 27, 2012
at 05:00 PM

Wow, inspiring that you found your way. I really don't know much about celiac. I'm thinking coconut oil makes me fat (me personally, I know it's great for others). Your diet sounds great, I'm told not to eat dairy. Just got an allergy test and I hope that helps ;) I will try elimiating and adding in more foods...

3
6120c989fd5b69f42a0834b69b87955b

(24553)

on February 25, 2012
at 11:09 AM

I feel for you, and your frustration, I don't have all of the health challenges you do, but I have PCOS, anemia, adrenal issues, chronically low D (better with supplements, but never great), and I did have hypothyroidism (I may still, but it is in that sub-clinical grey area and seems to be controlled okay through supplements and diet). I've got that same belly, I've looked pregnant since I was 8 years old. Sooo much fun when kids ask if there is a baby in there. It sucks that you are feeling lousy still, more tweaking, more time, and a lot of patience are probably your best bet.

Eating within a paleo template makes me feel a whole lot better, and seems to have stopped the ballooning process, but in and of itself, it also isn't turning me into lanky supermodel no matter which version I've tried so far, and that is okay with me because these are serious health problems that aren't going to disappear quickly, I'm trying to rebuild my body with better ingredients than I used for the first 30 years of my life, and I'm okay if that takes years, as long as I'm seeing some progress in the right direction.

On the BMI front you are kicking my butt, I'm several inches shorter and several pounds heavier if that is any consolation, but I feel better than I ever have, so I'm not complaining. This is the body I've got to work with and that's that. Doing a reality check for what I can expect to look like eating wholesome food and being physically active it has been helpful to look through really old family photos. I think we have been roped into this myth that in the old days people weren't overweight...bull pucky! There is a lot variety in those photos, the same variety I see in my family today, they ate whole foods, worked hard, and a lot of them were massive.

You are going to have to do your own tweaks to see what works for you, but personally, I make the most progress when I go with more red meat and less of the other stuff. Your diet looks pretty solid though. I've dropped most poultry, olive oil, nuts, and cut back on fruit. Bacon still makes the occasional appearance, but I don't eat it most days. Eggs seem to be problematic for some reason for me and make me feel listless, headachy, and annoyed so I try to do meat instead for breakfast most days. Trying to stuff myself with veggies also makes me feel gross and bloated, so I try to go for the most bang for my buck with a little seaweed, unsweetened powdered green drinks a few times per week, bitter greens like dandelion, and fistfuls of fresh herbs like parsley and cilantro. Fermented salty things like kim chi and sauerkraut are also kinder to my belly. And I know the eyes will be rolling out there, due to my repetition on this, but broth is freakin' magic and makes my belly a little flatter, it is also a good medium for getting enough salt. Are you getting enough raw salt like grey salt, Celtic Sea Salt, or Himalayan pink salt? I go all zombie-like and feel like dookie without sufficient salt.

What is your environment like? Stress, light pollution, noise pollution, air pollution, plastics, etc. One of the downsides of PCOS seems to be being more sensitive to endocrine disruption than others to things like this. You certainly can't control everything, but I think it is worth at least taking a survey of the stressors in your life to see which can be improved without adding to your stress level further.

The other thing with being more sensitive to external stressors is that it causes magnesium wasting, so with PCOS extra care needs to be taken to keep magnesium levels up (I prefer transdermally with Epsom Salt baths and Magnesium Oil so as not to interfere with digestion, but if for some reason you need it, mag makes a good laxative too).

I'm becoming more of a believer in the usefulness of bodywork like massage, lymphatic massage, acupuncture, myofascial work, and even saunas and alternating temperatures in the shower (not sure if it is a detox thing, squidging the lymphatic fluid around, or just increasing circulation to speed up the healing process, but it feels like it is helping). It is right on the edge of woo in my opinion, but castor oil packs (or just rubbing castor oil on my tummy) do seem to decrease the bloat when I remember to use them.

As far as low carb causing thyroid issues, I've read several interesting theories about LC hypothyroidism either simply being an adaptation to down regulating digestion (slow and steady, longetivity enthusiasts point to this as a good thing) or that it might be caused by having too much omega 6 either in the diet or in the body's fat stores. Heck if I know whether either of those is true, but I'm looking into them. I also wonder how much of people developing low thyroid and losing hair on low carb is from releasing toxins and hormones that were stored in body fat. I had some weird hair loss thing going on for a while, and thought it might be thyroid but it was tied to the anemia, taking Thorne Ferrasorb and eating a little more liver I was able to stop that and turn it around.

And...I might be turning myself into a baked potato, and I don't know how much it is actually augmenting my vitamin D levels, but dragging my butt down the tanning salon, and using the beds that actually have UVB bulbs every week or two is making a world of difference in my outlook on life. Sunlight is crazy important from what I've read about MS, so that might be something to consider too. What are your MS type symptoms? From what I've read there are some crossover symptoms with B12 deficiency or heavy metal toxicity and MS. N-Acetyl-Cysteine (NAC) can do what metformin was doing and may help with neuropathy from heavy metal build up if that is an issue.

Sorry about the rambling novel length answer, but I spend a lot of time trying to figure these things out for myself, so it all kind of pours out given the opportunity. I hope some of this is useful.

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 27, 2012
at 05:07 PM

I loved your answer. I used to go tanning and I felt AMAZING but then was afraid for skin cancer. NIce to meet someone who is going through the same thing. NAC made me faint and sweat and go to the ER, basically blood sugar crashed to low-I didn't slowly adjust to it, just took one normal sized dose stupidly. MS symptoms - after metformin dosage was raised (supposed ot strip you of b12), i couldnt feel arms, legs, feet, hands, slurring speech, exhausted, trouble balancing. they found 3 spine lesions. no brain. so it doesnt look too bad. i have pinched nerves too so that could be it.

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 27, 2012
at 05:08 PM

now i can feel my legs, but my hands are both really numb and i'm still chronically tired. i just did a metal detox with DMSA and got my fillings removed. damn if only i could get insurance to cover a tanning bed. your story sounds exactly like mine. dont you wish you could havea supermodel body? you have found acceptance. i wont give up ;) i want to be THIN, i remember how good it feels (i was thin for one year of my life). your family might have been large bc they had PCOS too, same symptoms as you ;) thanks so much for everything you wrote...

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 29, 2012
at 02:32 PM

Yeah, I'd bet they had PCOS. It tends to be genetic (I think) =A lot of peopel have PCOS and dont know it, I read somewhere it takes avergae 10 years before people get diagnosed. It's one of the most missed diagnoses. I think my mom and grandma had it (bnoth had trouble conceiving, missed periods) but never even heard of it until I told them I had it :) I just got metal fillings removed a few days ago, all the really bad stuff happened months ago. Haven't noticed anything since fillings were removed. The thyroid meds also started only a few days ago.

6120c989fd5b69f42a0834b69b87955b

(24553)

on February 28, 2012
at 12:36 AM

Did things get worse around the time you got your fillings removed? I've heard the removal process can release a lot of mercury, and it can take a lot of time to clear from the system. That's a bummer about the NAC, I think I remember you mentioning the blood sugar crash on another thread, scary. Did you mention that your doctor was putting you on a supplement for thyroid stuff? With that kind of neuropathy and fatigue I'd be pushing for at least a trial of Armour to see if things got better. I was so out of it I couldn't drive for a while without real thyroid meds.

6120c989fd5b69f42a0834b69b87955b

(24553)

on February 28, 2012
at 12:47 AM

You're right maybe my predecessors did have PCOS too, hadn't thought much about that. They had so many kids that I was thinking it was something new, but they also got hitched earlier in the old days and PCOS doesn't cause infertility early on. I admire your tenacity, but that battle isn't for me. I watched my mom and her mom fight so hard to be thin, and it looked like it took too much of a toll on their spirits and productivity, I refuse to have my potential co-opted by self loathing. As long as I feel strong and healthy, and can walk without my thighs chafing in the summer, I'm good.

6120c989fd5b69f42a0834b69b87955b

(24553)

on March 01, 2012
at 05:50 AM

...think it was her idea. I'm going to have to check out the Autoimmune Epidemic, I'm trying to understand this from every angle possible. If your anger is what motivates you, use it! I think my diagnosis was slowed down because I didn't get angry enough and push for more tests. I wonder if belly dancing shimmying might useful for moving lymphatic fluid around too. I've got at least one more myofascial appointment, but I think I'm going to have to start doing ball and foam roller treatments at home because it is super pricey.

A2cec60e836de2d9dbe43d456cac2dab

(146)

on March 01, 2012
at 03:44 PM

I'm glad you didn't give up. See that one experience you had with the naturopath would make me say "ok, I'm never seeing you again." did she even say she was sorry or admit she was wrong? she screwed with your life! So it didnt take you too long to figure out what you needd for meds. I am on one grain and feel slightly better. So they dont make you take a blood test before increasing your dose? Things I should ask my doc I guess. Yes the Autoimmune epidemic is great. Talks about chemicals in everything -- and why AI diseases are growing exponentially.

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 29, 2012
at 02:37 PM

BTW, am reading a great book called the Autoimmune Response. So far, it's shocking. You might want to read it! I love your responses and thanks so much for sharing your experience...please let me know how your thyroid experience went!

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 29, 2012
at 02:41 PM

BTW, am reading a great book called the Autoimmune Epidemic. So far, it's shocking. You might want to read it! I love your responses and thanks so much for sharing your experience...please let me know how your thyroid experience went! Also, the thing you say about the lymph/massage is written about in THE FAT FLUSH series. She also mentions getting a small rebounder )like a mini trapoline) to move it around :)

A2cec60e836de2d9dbe43d456cac2dab

(146)

on March 01, 2012
at 03:42 PM

OH man, that made me LAUGH - you could grow a wicked goatee! Yep, PCOS is missed all the time. My biggest regret is not pushing harder for tests - I wasted my whole life being insecure about my body. Every year I would go to a different doc and they would say the same thing. Nothing is wrong with you. HOw wrong they were. I wish I had been as tenacious as I am now and approach the probem with full force, try 100 different docs if need be. I have a great doctor in NYC if you want to know his name. Fratellone. Anyway I guess the key is to accept, not be angry, but still be tenacious!!!

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 29, 2012
at 02:35 PM

Am on Nature-throid.I heard for some, Armour is better. I dont know, it's new to me. How long did your Armour take to kick in? It's great that you love yourself! Self-loathing isn't helpful, but I do feel that way. I'm angry at my body. It's probaly not feasible to be superthing, but...being tenacious led me to not accept that nothing was wrong with my body as all docs were telling me - and to finally find out I have PCOs, and celiac and to start paleo. At least small losses have come. I'm hoping for more improvement. It does take its toll though, that's for sure...

6120c989fd5b69f42a0834b69b87955b

(24553)

on March 01, 2012
at 05:23 AM

Sounds like your doc might have the right idea with the Nature-throid, I was taking the Armour mostly before the reformulation, and down to 1/2 grain by the time it was reformulated. Maybe I didn't notice a difference on or off it because it wasn't working at all. I'm trying to remember back to the beginning, and I think it took a dosage increase before I started to feel better. They started me really low 1/2 grain, and I didn't start to feel better until I got up to 1 1/2 grains, and once I got up to that dosage it was only 3 days before I started to feel better. Truly a frustrating...

6120c989fd5b69f42a0834b69b87955b

(24553)

on March 01, 2012
at 05:30 AM

...process. I was extra frustrated because I had walked into that same ND's office over a year earlier with concerns about thyroid and PCOS, which she immediately blew off and warned me about the dangers of self-diagnosis and didn't want to test for either because she just wanted me to lose weight first, only to come back with my lab work a year later, with this big "Ta da! I think I know what is wrong with you." I think it was almost 8 years after noticing that I could grow a pretty wicked goatee that I could get anyone to do the right labs, and even then I had to wait for my doc to...

A2cec60e836de2d9dbe43d456cac2dab

(146)

on March 01, 2012
at 03:45 PM

I just wrote another thread on mattressses, you might want to check it out. Sometimes the little changes can change our life - I'm hoping changing mattresses will do it! You are in an inspiratoin, thank god for this forum :)

6120c989fd5b69f42a0834b69b87955b

(24553)

on March 01, 2012
at 09:21 PM

They did make me take one more blood test between 1 grain and 1 1/2, and then 1 1/2 to 2 grains. I think it was a couple months before we got the dosage to a point where it really helped, and then the bump up to 2 was to try and improve my fertility. We switched to an organic futon right after we had our baby, and it made a world of difference for me.

A2cec60e836de2d9dbe43d456cac2dab

(146)

on March 02, 2012
at 01:06 AM

Wow, sounds frustrating. But I'm glad you finally got to the right dosage! Here are some natural remedies for PCOS http://www.earthclinic.com/CURES/polycystic_ovary_syndrome.html a few people said taking apple cider vinegar (has to be the kind with the mother) helped them get their period regularly again -- which i assume would make you more fertile ;) and they also recommmend teas and stuff. Although it sounds like y're better bc you had a baby! Congrats!! I'm going to try an organic futon, sounds Great - everyone's saying they feel better on the floor or close to it ;)

3
Cd94a899106115be390cf12816d30a25

on February 24, 2012
at 05:41 PM

I also suffer from a very severe case of PCOS and have also been told that my weight was going to be a struggle my entire life. In the past year i have lost 60 lbs. due to paleo and crossfit. The level of exercise you are doing may be enough for someone with a "normal" functioning body but some of us like you and i need to push it to the next level to get the same results. Im not saying crossfit is for everyone but maybe find someway to step up your physical activity level. Even if its just turning those walks into jogs or stepping up the distance every week. Even doing some free weights twice a week. Also a little blurb off the crossfit/paleo stuff. You mentioned regulating your hormones. I take a very low level of birth control to help regulate that and my periods. That i think has also helped my weight loss because it has given my body some consistency. Hope this helps (:

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 27, 2012
at 05:02 PM

It does help, I hear people on this site mentioning crossfit all the time, I'll look into it (don't know what it is). Exercising - I used to do it a lot harder and more often but got so frustrated because I really wouldn't see results after a lot of work. Haven't tried crossfit though. Maybe that's the magic key...

1
8508fec4bae4a580d1e1b807058fee8e

on May 10, 2012
at 04:03 PM

There are people with receptor and other problems of the thyroid that have NORMAL TSH but borderline or abnormal one or more of the following tests so you must have these checked:

Total T4 (TT4) AND Free T4 (FT4)

Resin T3 Uptake (T3U/T7/T3RU) AND Free T3 (FT3)

Reverse T3 (rT3)

Thyroid Peroxidase Antibodies (TPOAb) AND Thryoglobulin Antibodies (TGB Ab)

Thyroid-Stimulating Immunoglobins (TSI) AND TSH stimulating Antibodies (TSAb)

If you have negative to all the thyroid antibodies hen I would supplement with iodine and selenium. You can do 150 mcg (micrograms) of selenium daily but iodine slowly increase. For example week 1 take daily 150 mcg (micrograms) of kelp (iodine), week 2 take 300 mcg daily, week 3 take daily 450 mcg, week 4 take daily 600 mcg. Most people without any antibodies to thyroid function (no sign of Hashimoto's autoimmune thyroid) will do well with 600 mcg to 1 gram (1000 micrograms) of kelp a day.

You should work with a functional/holistic practitioner who supports Paleo and can track and order the bloodwork/hormone panels. Do not try to do this yourself. You need help, but understand the science behind it.

Also read 2 books: Kharrazian discusses PCOS, thyroid, Vitamin D deficiency, and celiac being connected!

Why Do I Still Have Thyroid Symptoms? When My Lab Tests Are Normal: A Revolutionary Breakthrough In Understanding Hashimoto's Disease and Hypothyroidism by Dr. Datis Kharrazian, DHSc, DC, MS, MNeuroSci, FAACP, DACBN, DABCN, DIBAK, CNS - chiropractic doctor

AND

Iodine: Why you need it, Why you can't live without it by Dr. David Brownstein, MD Chris Kresser, a licensed acupuncturist, (also Paleo) has written a lot on thyroid/iodine, among many other topics on blogposts. He works with clients in his office and through Skype/phone.

For more Paleo Diet hacks: Are people curing hypothyroid??? - PaleoHacks.com http://paleohacks.com/questions/106904/are-people-curing-hypothyroid#ixzz1uTzNmOCY

http://paleohacks.com/questions/111727/have-you-had-a-possible-iodine-and-or-selenium-deficiency-or-symptoms-of-it-on#axzz1uTx1OXzu

Despite being generally a stimulant, caffeine (examples: coffee, tea, cola, chocolate) acts on thyroid function as a suppressant. Indeed some studies on rats suggest that excess caffeine in conjunction with a lack of iodine may promote the formation of thyroid cancers. Masterjohn recommends no more then 5 servings of goitrogens/week and Kresser no more then 3-6 servings/week for anyone with thyroid issues. Paul Jaminet, Chris Masterjohn, and Chris Kresser have written well on this.

http://www.westonaprice.org/basics/bearers-of-the-cross Fermentation makes soy goitrogens worse! http://blog.cholesterol-and-health.com/2010/10/fermentation-does-not-neutrailize.html

https://s3.amazonaws.com/ppccontent/PPCGoitrogen.pdf

A2cec60e836de2d9dbe43d456cac2dab

(146)

on September 25, 2012
at 01:12 PM

thank you, I JUST read this! i will check out Kharrazian!

1
F1b39d4f620876330312f4925bd51900

(4090)

on February 24, 2012
at 06:49 PM

You could go on a pro-thyroid version of Paleo. Here is a link. Its Ray Peat's diet ideas all summed up really, by Lita Lee, who is much like him. That can maybe help jump start the process.

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 24, 2012
at 07:27 PM

Thanks very very much, printing it out now :)

1
5e5ff249c9161b8cd96d7eff6043bc3a

(4713)

on February 24, 2012
at 05:04 PM

You might want to look into Robb Wolf's autoimmune protocol and trying that strict for 30 days and see if you have some improvements. Adversely, you could also try the PHD approach of adding back in some carbs (600ish cal a day) and see if you feel better that way.

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 24, 2012
at 05:37 PM

Yes, I've read a little about that and will reread it- all I would have to do at this point would be to take out eggs and nuts. Oh, no alcohol. I hardly have any but I guess this has to be strict. really, I dont know what the ! to eat at this point. Can't have anything wheaty, or eggs for breakfast with Wolf's protocol, can't have fruit on their own bc too much sugar? Maybe fruit with meat for breakfast? THx for your advice...

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 24, 2012
at 07:27 PM

WONDERFUL, will do. Thank you so much, very helpful. No more peps!

5e5ff249c9161b8cd96d7eff6043bc3a

(4713)

on February 24, 2012
at 06:13 PM

You'd also have to cut out the peppers. I understand it's not easy, but with your current health I think your priority should be that. My breakfast strategy is to cook too much for dinner and eat the leftovers for breakfast, with some variation of Mark Sisson's big ass salad for lunch. I think that's pretty sustainable. If you're still having trouble, check out Chris Kresser's personal paleo code. It includes a meal generator and gives you a guide for an elimination and add back in way of eating.

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 27, 2012
at 05:09 PM

and i'm trying more carbs via muscle milk )is that paleo, or healthy?) i dont know. we'll see what happens :)

5e5ff249c9161b8cd96d7eff6043bc3a

(4713)

on February 27, 2012
at 10:21 PM

It's pretty far from either, and if you have autoimmune stuff you need to avoid that kind of crap like the plague. Eat whole foods.

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 29, 2012
at 02:37 PM

Ok good to know, thank you :)

1
6670b38baf0aae7f4d8ac2463ddc37c0

(3946)

on February 24, 2012
at 04:58 PM

Hi KC, I don't have much advice to give, but wanted to say hang in there, things will get better! First, please remember that Paleo is not just for weight loss, and while you might not be losing weight due to hormones and other factors, it is still the healthiest way of eating, so don't give up on it. Second, remember that VLC and even LC can exacerbate low thyroid problems. I would start by concentrating on getting the Vitamin D up and upping your carbs just a little bit, even if it's only a once a week re-feed.

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 24, 2012
at 05:39 PM

and good point about paleo being good for overall health. It's just that maybe I don't know enough about how much carbs I need. If I even have a a banana my stomach puffs out for days. Too much sugar for me. Maybe I should up my low-glycemic fruit intake (I do hve blueberries a lot) and see if that helps...

6670b38baf0aae7f4d8ac2463ddc37c0

(3946)

on February 24, 2012
at 11:44 PM

KC-try losing the fruit altogether (eat berries if you MUST have it) and going for a small amount of sweet potato. Bananas are very high in sugar!

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 24, 2012
at 05:35 PM

Thanks, I am starting to eat a little more carbs. For PCOS even medium-hight carbs are bad bc of insulin resistance, for thyroid i read low carbs are bad! AAAARG! Hahahaha. So confused

A2cec60e836de2d9dbe43d456cac2dab

(146)

on February 27, 2012
at 04:57 PM

Since starting a low carb version of paleo initially I had tons of energy,now I have none. the only fruit i had (seldomly) was blueberries.I just bought muscle milk -19g carbs per serving (A LOT, but i thought i'd try it anyway) I had a little bit more energy. The sweetness tastes great and I'm pretty sure it may cause some sort of insulin spike then a sweet craving, but...so far it hasnt caused weight gain. Or loss. I'm wondering if I feel bad a lot from not having enough fruit, not enough carbs, is that possible? I know people say to cut out fruit and nuts when trying to lose weight...

6670b38baf0aae7f4d8ac2463ddc37c0

(3946)

on February 27, 2012
at 05:23 PM

When most people go VLC they experience an adjustment from burning carbs to burning fat, which can result in low energy. Most people who stick it out come out the other side feeling great. Some people never adjust and they feel better with higher carbs. If you are hell bent on losing weight, I would give VLC some time.

0
Eb4082d5a671109f5e615f0a9f7562c9

on June 21, 2012
at 05:12 AM

I also have the same PCOS. I took Dr Surabhi jain Nutri well program. it was excellent. You can also try

-1
52508b3f0788691b4702c78455ad0c8f

on July 11, 2012
at 11:38 AM

Typically the code 503 services a small place although with good people. If perhaps you are showing interest to find out what regions have been served using this code, it is simple to find an area code index chart. Certainly there you will see that this particular area code 503 is in fact for seashore regions exclusively. And also for the regions far from the beaches it's put in place area codes 458.

Couple of the largest cities and towns in Oregon happen to be taken care of with this sort of area code. As an example, these specific areas are usually: Salem, Portland, Tillamook, and Astoria. Right before April, '08, this unique area code was arranging the counties of Clatsop and also Tillamook. During the time the telephone coverage involving code 503 has been overlaid by making use of area signal 971.

If you get mysterious telephone calls that originated in this kind of area code, i.e. area code 503 it's probable they are coming from bigger towns and cities, even though you can simply at least make certain that they're from the north west of the state. Learning the area code, it is usually much more surely that you're going to figure out the caller's identity. You will probably make an effort to just remember just about any close family plus associates just who are in this particular location for certain.

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