0

votes

TMJ, RA and weight gain

Answered on August 19, 2014
Created May 12, 2011 at 5:32 PM

This is a follow up to m post yesterday about Rheumatoid Arthritis. My wife also has severe TMJ. She had the surgery that was supposed to correct it, but it didn't heal right or something because she now has different pain. Her jaw no longer locks open but she takes massive pain meds. Since she can't eat much solid food she is also underweight, eliminating another TMJ surgery, like joint replacement as an option. She is willing to get allergy tested and eliminate foods that may be triggering the RA. The problem is how does she gain weight if she can't eat fibrous veggies and carbs?

A3bb2c70384b0664a933b45739bac32c

(951)

on May 13, 2011
at 06:45 PM

My insurance does not cover the TMJ. It covers the pain management because it can be submitted as arthritis.

A3bb2c70384b0664a933b45739bac32c

(951)

on May 13, 2011
at 06:39 PM

This is one thing I worry about. She had an injury many years ago and the pain meds kept her down. I think the same thing may be happening now, too, but she cannot function well without them.

7e746be2f0e550a8cd7df881322ae705

(18701)

on May 13, 2011
at 05:17 PM

Hey Kamal, sorry to stalk you to an answer, but I would really appreciate if you could email me. sherpamelissa at gmail dot com I wanted to discuss something with you, please.

06d21b99c58283ce575e36c4ecd4a458

(9948)

on May 12, 2011
at 09:29 PM

Olivia, what problems are caused by too much Vit D3? I read a case where a patient was taking 500,000IU per day, due to a compounding pharmacy/lab error..susposed to be 50,000IU over 6 months and the patient only complained of irritability.

7d0c3ea9bf8be00b93e6433d8f125ac3

(7540)

on May 12, 2011
at 09:23 PM

Agreed. Vitamin D is very important and while it's harder to overdose on than many other vitamins, I'm not a fan of blindly supplementing large amounts of anything, especially based on advice from laypeople. And "very important" =/= cure-all for absolutely everything. Too much D CAN cause problems, believe it or not, and you cannot know 100% that it will actually help.

06d21b99c58283ce575e36c4ecd4a458

(9948)

on May 12, 2011
at 09:05 PM

Kim, how did you know you were not absorbing the Vit D3? And how did you know it was building up in the body? What were the symptoms that cause you to first believe it was building up in your body? Do you go out in the sun 30min a day? In all my reading I have never come across anyone with adverse reactions to Vit D3. I have seen that Calif lifeguards, after a summer season, test at 135 to 150 ng/mL serum with no adverse consequences. Dr K wants his patients to be at 70 to 100ng/mL.

06d21b99c58283ce575e36c4ecd4a458

(9948)

on May 12, 2011
at 09:03 PM

Kim, how did you know you were not absorbing the Vit D3? And how did you know it was building up in the body? What were the symptoms that cause you to first believe it was building up in your body? Do you go out in the sun 30min a day? In all my reading I have never come across anyone with adverse reactions to Vit D3. I have seen that Calif lifeguards, after a summer season, test at 135 to 150 ng/mL serum with no adverse consequences.

B4ec9ce369e43ea83f06ee645169cee0

on May 12, 2011
at 08:39 PM

Dexter... I've noticed you say this on many posts. This is good advice but I'd also caution people to first get their levels checked. And then it's required to get them checked again some time later. If people take vit D that is not absorbed it can build up in the body. This happened to me and I am laying off the vitD until I can get my GI system working better to absorb the supplements.

1fc9c11cf23b2f62ac78979de933ad83

(2435)

on May 12, 2011
at 07:05 PM

Started writing before I saw the dairy allergy. Can she handle cream? If so you could give her hot ganache to drink. That'll pack on some pounds...

1fc9c11cf23b2f62ac78979de933ad83

(2435)

on May 12, 2011
at 07:03 PM

Mashed sweet potatoes loaded with butter, whole milk Greek yogurt, you can slip veggies into smoothies enhanced with fats and fruits. Mashed potatoes with butter, cheese, and cream. Carby foods are good for gaining weight. Cook rice with lots of butter, in chicken stock instead of water (don't forget salt). I've been trying to put weight on my toddler. Slip in more calories wherever you can. An extra tablespoon of butter, coconut oil, olive oil. Surprisingly easy to do.

A3bb2c70384b0664a933b45739bac32c

(951)

on May 12, 2011
at 06:59 PM

The surgery was several years ago, so I would suspect infection is unlikely. Her best option regarding that is joint replacement, but she has to gain weight first.

A3bb2c70384b0664a933b45739bac32c

(951)

on May 12, 2011
at 06:56 PM

Thanks these are some good suggestions. She could probably do semi-solids. Unfortunately, she is lactose intolerant and, I suspect, casein allergic. We may try goat milk, I seem to remember her saying she can tolerate it. It would take some getting used to, though

Medium avatar

(5136)

on May 12, 2011
at 05:50 PM

i'd want to first make sure the pain she's having now is not due to a post surgical infection or anything. i'm sometimes surprised at how limited follow up is for certain procedures when relatives discuss their experiences.

  • A3bb2c70384b0664a933b45739bac32c

    asked by

    (951)
  • Views
    2.4K
  • Last Activity
    1040D AGO
Frontpage book

Get FREE instant access to our Paleo For Beginners Guide & 15 FREE Recipes!

4 Answers

1
21fd060d0796fdb8a4a990441e08eae7

(24543)

on May 12, 2011
at 07:28 PM

Watch out for hyperalgesia (more pain) caused by massive pain meds. Typically, it takes a while, but is always a cause for concern. Perhaps even moreso than addiction. If you or your wife or doctor are at all concerned, you can substitute some of the opioid medication for non-opioid stuff, like Ultram.

A3bb2c70384b0664a933b45739bac32c

(951)

on May 13, 2011
at 06:39 PM

This is one thing I worry about. She had an injury many years ago and the pain meds kept her down. I think the same thing may be happening now, too, but she cannot function well without them.

7e746be2f0e550a8cd7df881322ae705

(18701)

on May 13, 2011
at 05:17 PM

Hey Kamal, sorry to stalk you to an answer, but I would really appreciate if you could email me. sherpamelissa at gmail dot com I wanted to discuss something with you, please.

1
Fa9f340eddbad9a544184c688fa4dcdd

(6433)

on May 12, 2011
at 05:47 PM

First of all, I'm sorry to hear that your wife is in such a rough position; I can't imagine how difficult daily life must be for both of you.

Fibrous veggies (although nutritionally rich) are not necessary for weight gain, and will probably hinder it by providing bulk over calories. There are plenty of easy to eat, Paleo-friendly liquid foods which will help your wife get back to a healthy weight;

-Fruit smoothies with added dairy/coconut cream for fat or a raw egg/yoghurt/aspartame-free protein powder for protein

-Rice porridge

-Tea/coffee/cocoa with lots of heavy cream, and sweetened with dextrose powder (a fructose free carbohydrate)

-Cream of leek and potato soup or any other root vegetable based cream soup (preferably made with nutrient rich bone broth)

-Bone broths enriched with egg yolks and cream

-Milkshakes made with good quality melted ice cream

-Sweet or savoury custards

-Sweet or savoury jellies which are unset (gelatine protein is great for those with arthritis)

-Dairy/coconut/rice/almond milk

How would your wife find easy to eat semi-solids like nut butters or pureed potatoes with poached eggs on top?

1fc9c11cf23b2f62ac78979de933ad83

(2435)

on May 12, 2011
at 07:03 PM

Mashed sweet potatoes loaded with butter, whole milk Greek yogurt, you can slip veggies into smoothies enhanced with fats and fruits. Mashed potatoes with butter, cheese, and cream. Carby foods are good for gaining weight. Cook rice with lots of butter, in chicken stock instead of water (don't forget salt). I've been trying to put weight on my toddler. Slip in more calories wherever you can. An extra tablespoon of butter, coconut oil, olive oil. Surprisingly easy to do.

1fc9c11cf23b2f62ac78979de933ad83

(2435)

on May 12, 2011
at 07:05 PM

Started writing before I saw the dairy allergy. Can she handle cream? If so you could give her hot ganache to drink. That'll pack on some pounds...

A3bb2c70384b0664a933b45739bac32c

(951)

on May 12, 2011
at 06:56 PM

Thanks these are some good suggestions. She could probably do semi-solids. Unfortunately, she is lactose intolerant and, I suspect, casein allergic. We may try goat milk, I seem to remember her saying she can tolerate it. It would take some getting used to, though

0
7f7069fc4d8d2456cec509d0f9e9bb34

(865)

on May 12, 2011
at 11:46 PM

Has she tried neuromuscular therapy for the TMJ? I good therapist can release the muscles and take her out of alot of pain. Also make the scarring less restrictive and normalize the connective tissue. I would exhaust any avenue before joint replacement. In what area of the country do you live?

A3bb2c70384b0664a933b45739bac32c

(951)

on May 13, 2011
at 06:45 PM

My insurance does not cover the TMJ. It covers the pain management because it can be submitted as arthritis.

0
06d21b99c58283ce575e36c4ecd4a458

(9948)

on May 12, 2011
at 07:08 PM

She should also be supplementing with Vit D3 so her immune system will be fully functional ahead of going in for another TMJ surgery. 5000IU a day at least.

7d0c3ea9bf8be00b93e6433d8f125ac3

(7540)

on May 12, 2011
at 09:23 PM

Agreed. Vitamin D is very important and while it's harder to overdose on than many other vitamins, I'm not a fan of blindly supplementing large amounts of anything, especially based on advice from laypeople. And "very important" =/= cure-all for absolutely everything. Too much D CAN cause problems, believe it or not, and you cannot know 100% that it will actually help.

B4ec9ce369e43ea83f06ee645169cee0

on May 12, 2011
at 08:39 PM

Dexter... I've noticed you say this on many posts. This is good advice but I'd also caution people to first get their levels checked. And then it's required to get them checked again some time later. If people take vit D that is not absorbed it can build up in the body. This happened to me and I am laying off the vitD until I can get my GI system working better to absorb the supplements.

06d21b99c58283ce575e36c4ecd4a458

(9948)

on May 12, 2011
at 09:05 PM

Kim, how did you know you were not absorbing the Vit D3? And how did you know it was building up in the body? What were the symptoms that cause you to first believe it was building up in your body? Do you go out in the sun 30min a day? In all my reading I have never come across anyone with adverse reactions to Vit D3. I have seen that Calif lifeguards, after a summer season, test at 135 to 150 ng/mL serum with no adverse consequences. Dr K wants his patients to be at 70 to 100ng/mL.

06d21b99c58283ce575e36c4ecd4a458

(9948)

on May 12, 2011
at 09:29 PM

Olivia, what problems are caused by too much Vit D3? I read a case where a patient was taking 500,000IU per day, due to a compounding pharmacy/lab error..susposed to be 50,000IU over 6 months and the patient only complained of irritability.

06d21b99c58283ce575e36c4ecd4a458

(9948)

on May 12, 2011
at 09:03 PM

Kim, how did you know you were not absorbing the Vit D3? And how did you know it was building up in the body? What were the symptoms that cause you to first believe it was building up in your body? Do you go out in the sun 30min a day? In all my reading I have never come across anyone with adverse reactions to Vit D3. I have seen that Calif lifeguards, after a summer season, test at 135 to 150 ng/mL serum with no adverse consequences.

Answer Question


Get FREE instant access to our
Paleo For Beginners Guide & 15 FREE Recipes!