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Edited on May 30, 2018
Created December 03, 2011 at 4:30 PM

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B910d6b940973a9b893dfbd673a0074d

(-4)

on May 29, 2018
at 08:12 PM

The_Quilt

What is your blog or how to I get to it?  I am trying to wean my father off prednisone.  He's on 17.5 mg and has been taking steroids for almost a year for vasculitis.  He gets extremely fatigued at the slightest decrease.

18ea61157ff51fe5fb71f4482f6ef7d3

(0)

on September 04, 2013
at 07:35 PM

Anyone else being treated for poly-myalgia?I do not remember the last time I suffered from the condition!My issue is weaning off predisone.I also have Sjourne's syndrome.

7d34aaddfcf7db8fda7e2499b6a0dc54

(0)

on January 18, 2013
at 01:33 PM

To add to that, I found this link on Google and didn't realize it was for the Paleo Diet. Would it help me to adopt a Paleo Diet while I taper? I'm not overweight at all, so I don't want to lose a bunch of weight, but if it will help me with the side effects of tapering, I would give it a shot.

Cdee7454bccdc4ac14ec23b9657eb573

(1239)

on December 09, 2011
at 04:50 PM

"...she doesn't care about my comfort or long-term health." That's sad, snufkin. I'd be looking for a new doctor if I felt that way about mine. Unfortunately, that's the impression too many doctors give.

8949bf87b0e0aefcad10f29975e4fa2b

(8989)

on December 09, 2011
at 04:47 PM

hey Q, great blog post!!

Ed71ab1c75c6a9bd217a599db0a3e117

(25472)

on December 09, 2011
at 01:52 PM

too bad and it is precisely what I expected. This is why my profession has to change.

Ed71ab1c75c6a9bd217a599db0a3e117

(25472)

on December 09, 2011
at 01:50 PM

blog is now up live. I decided to post it for this OP now instead of in Jan.

Ed71ab1c75c6a9bd217a599db0a3e117

(25472)

on December 04, 2011
at 05:10 PM

great boiler plate advice but what happens if your Physician is CW and suggest a USDA diet, that you should exercise more and eat less. This is done in over 98% of clinics in our country. I feel safe in saying this because it also represents what most people have heard from their doctors at most web forums. I really agree with you about snufjin Steve, but us MD's have been epic fails at helping anyone do anything correctly from an evolutionary medicine perspective. This why so many PHers do their own N-1 and leave CW alone. It is our job to help more in this area, and to carry a bigger load

3846a3b61bc9051e4baebdef62e58c52

(18635)

on December 03, 2011
at 06:58 PM

Is the standard in glasses and contacts to provide uv protection or not? I have considered the idea that always wearing the prescription lenses could be reducing the the effects of sunlight to the retina.

21fd060d0796fdb8a4a990441e08eae7

(24543)

on December 03, 2011
at 05:57 PM

Maybe using a light box at un-sunnable times could be fruitful? I used one a bit last winter for 15 minutes at a time and it was pretty okay. Obviously no vitamin D, but I guess it tricked my eyes a little.

Medium avatar

(291)

on December 03, 2011
at 05:48 PM

* drinking a cup of licourice tea *

Medium avatar

(291)

on December 03, 2011
at 05:48 PM

*drinking a cup of licourice tea*

Ed71ab1c75c6a9bd217a599db0a3e117

(25472)

on December 03, 2011
at 05:37 PM

Let me be very clear here......nothing replaces the sun. It is critical to my reset and to a paleo template. Too few seem to know it. Im gonna change that.

77877f762c40637911396daa19b53094

(78467)

on December 03, 2011
at 05:24 PM

throw in my two cents. Licorice very good for digestion.

77877f762c40637911396daa19b53094

(78467)

on December 03, 2011
at 05:04 PM

Thanks Quilt as well, Maybe this will get me into the Sun more often. Don't quite emphasize this enough. I relay to fuch on the d3 pills.

77877f762c40637911396daa19b53094

(78467)

on December 03, 2011
at 05:00 PM

What does the Pusher, sorry doctor, who addcted you to the prednesone advise?

Ed71ab1c75c6a9bd217a599db0a3e117

(25472)

on December 03, 2011
at 04:59 PM

i can not practice medicine on PH. Send me an email with your current D level and your current dose of steroids with frequency and duration of dosing. I maybe able to give a reasonable estimate.

1a98a40ba8ffdc5aa28d1324d01c6c9f

(20378)

on December 03, 2011
at 04:57 PM

Nice post Quilt!

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14 Answers

9
Ed71ab1c75c6a9bd217a599db0a3e117

(25472)

on December 03, 2011
at 04:50 PM

I have a blog in the que about this. Here is an early nugget for you. When we neurosurgeons use steroids for any reason on a short term basis we have some clinical tricks that quickly demolish the chronic effects of these drugs. The key to simultaneous supplement "whopping" doses of Vitamin D3 for about two weeks and make that the patient gets into exposed sunlight as early as possible in the AM. You must do both to get the effect. Sunlight on the retina is the best direct down regulator of cortisol production from the brain and adrenal gland. Hope it helps you.

1a98a40ba8ffdc5aa28d1324d01c6c9f

(20378)

on December 03, 2011
at 04:57 PM

Nice post Quilt!

3846a3b61bc9051e4baebdef62e58c52

(18635)

on December 03, 2011
at 06:58 PM

Is the standard in glasses and contacts to provide uv protection or not? I have considered the idea that always wearing the prescription lenses could be reducing the the effects of sunlight to the retina.

Ed71ab1c75c6a9bd217a599db0a3e117

(25472)

on December 03, 2011
at 05:37 PM

Let me be very clear here......nothing replaces the sun. It is critical to my reset and to a paleo template. Too few seem to know it. Im gonna change that.

Ed71ab1c75c6a9bd217a599db0a3e117

(25472)

on December 03, 2011
at 04:59 PM

i can not practice medicine on PH. Send me an email with your current D level and your current dose of steroids with frequency and duration of dosing. I maybe able to give a reasonable estimate.

21fd060d0796fdb8a4a990441e08eae7

(24543)

on December 03, 2011
at 05:57 PM

Maybe using a light box at un-sunnable times could be fruitful? I used one a bit last winter for 15 minutes at a time and it was pretty okay. Obviously no vitamin D, but I guess it tricked my eyes a little.

77877f762c40637911396daa19b53094

(78467)

on December 03, 2011
at 05:04 PM

Thanks Quilt as well, Maybe this will get me into the Sun more often. Don't quite emphasize this enough. I relay to fuch on the d3 pills.

Ed71ab1c75c6a9bd217a599db0a3e117

(25472)

on December 09, 2011
at 01:50 PM

blog is now up live. I decided to post it for this OP now instead of in Jan.

8949bf87b0e0aefcad10f29975e4fa2b

(8989)

on December 09, 2011
at 04:47 PM

hey Q, great blog post!!

2
96bf58d8c6bd492dc5b8ae46203fe247

(37227)

on December 03, 2011
at 04:45 PM

Man, that's a tough spot. Your determination to get through this is your best weapon it sounds like. Many years ago, I went through a similar thing when doctors threw too many drugs at me.

I finally got off all of them but it did take a while for my system to rebound. Oddly, what helped me (it might or might not be what you need) was to relax and let myself believe I was getting better rather than worrying about my symptoms. I got so used to being really sick that it became my "normal."

I wonder if fermented, probiotic foods would help your body rebound from the attack of the drug? If you feel that tired, you're doing the right thing to rest but can you comfortably get some sun in the warmest part of the day (assuming you're in the northern hemisphere) and are there little ways you can baby yourself to relax and let go of all the symptoms you're going through?

I'll come back to see what people experienced with prednisone have to say; in the meantime, take care of yourself and I hope you're better soon.

77877f762c40637911396daa19b53094

(78467)

on December 03, 2011
at 05:24 PM

throw in my two cents. Licorice very good for digestion.

1
6562360bc7788ccea9029410ff5eddd3

on March 18, 2013
at 09:35 PM

I've been on prednisone for 22 years as I was diagnosed with Crohn's disease at age 5. I'm now experiencing alot of the long term side effects For a number of years, I have had aching joints - particularly in cooler weather. My lower back, wrists, and knees are the main joints that ache. I lift weights 5 times a week, and have done this for the last 6 years, and this has kept my bones and muscles strong. Pushing myself to exercise is especially important in times of fatigue and low energy. As long as I have ben eating, I push myself to complete a workout and always notice the benefits. What I have noticed though, is that if I stop training for more than a week, my energy levels drop dramatically, and my joints start to ache and tighten up.

More concerning for me is the other unknown side effects that are starting to become evident. I have battled through bouts of depression and anxiety for the last 3 years which are noted side effects of prednisone. In the last three months, I didn't even realise that I was depressed because the change in my mood had become normal to me.

As such, I've really been focusing on my diet over the last few weeks, and have added a number of 'superfoods' (berries, carrots, omega-3) that have helped with my anxiety and depression, and over all feeling of well being. I feel like I have a lot more energy, and that my health is on the improvement again.

Therefore, my advice for anyone tapering off this drug, is to look at what can be improved in your diet. Book an appointment with a dietician and a naturopath, as they will both be able to aid you in improving your diet to obtain maximum nutrition, and eliminate all of the not so good things out of your diet. The naturopath may also help you choose the right supplements so as to keep you off medication for good.

I am seeing an endocrinologist in a week to start working on a plan to get me off this drug permanently. I have tried in the past, but only under the supervision of my gastroenterologist, and once I went below 9mg, I had a flare up with my Crohns, so hopefully we will be able to find a successful solution.

566c0f202f323b08d710334c4c1dac04

(0)

on November 25, 2015
at 12:32 AM

Hi Johnny

I'm interested to know how you got on with your appointment and plan for tapering off.

I am a chronic asthmatic, steroid dependent on and off for the past 30 years.

Every day for the past 15 years. I am currently stable at 10mg per day.

I would appreciate any info you choose to share with me to rid my nemesis I am no longer wanting to ride this merry go round of hell.

:-)

1
Cdee7454bccdc4ac14ec23b9657eb573

on December 04, 2011
at 07:28 AM

Hi, Snufkin. Yours is clearly a complicated case. You need to be working closely with your personal physicians who know all the details of your case. Regarding your extreme fatique/weakness, it's possible your doctors are tapering down the steroid dose a bit too quickly. There are at least a hundred other possibilities.

-Steve

-All matters regarding your health require supervision by a personal physician or other appropriate health professional familiar with your current health status. Always consult your personal physician before making any dietary or exercise changes.

Ed71ab1c75c6a9bd217a599db0a3e117

(25472)

on December 04, 2011
at 05:10 PM

great boiler plate advice but what happens if your Physician is CW and suggest a USDA diet, that you should exercise more and eat less. This is done in over 98% of clinics in our country. I feel safe in saying this because it also represents what most people have heard from their doctors at most web forums. I really agree with you about snufjin Steve, but us MD's have been epic fails at helping anyone do anything correctly from an evolutionary medicine perspective. This why so many PHers do their own N-1 and leave CW alone. It is our job to help more in this area, and to carry a bigger load

Ed71ab1c75c6a9bd217a599db0a3e117

(25472)

on December 09, 2011
at 01:52 PM

too bad and it is precisely what I expected. This is why my profession has to change.

Cdee7454bccdc4ac14ec23b9657eb573

(1239)

on December 09, 2011
at 04:50 PM

"...she doesn't care about my comfort or long-term health." That's sad, snufkin. I'd be looking for a new doctor if I felt that way about mine. Unfortunately, that's the impression too many doctors give.

0
18ea61157ff51fe5fb71f4482f6ef7d3

on September 04, 2013
at 07:27 PM

I have been taking predisone 10m for 3yrs. for poly-myalgia>I am having serious health issues.Weight gain,joint pain,severe depression,and I have developed ulcers in my stomache.I have already learned so much from this blog sight!I will be signing up so I can post also!!Trying to wean below 10 is seeming an impossible task!

18ea61157ff51fe5fb71f4482f6ef7d3

(0)

on September 04, 2013
at 07:35 PM

Anyone else being treated for poly-myalgia?I do not remember the last time I suffered from the condition!My issue is weaning off predisone.I also have Sjourne's syndrome.

0
7ff6f33ce1c46b93ce9fc3ce61ec55f0

on August 11, 2013
at 11:28 PM

I started at 15mg prednisone for an acute attack of polymyalgia rheumatica (it worked dramatically within hours), stayed on it for a few weeks, and am now tapering down at the rate of 1 mg every four days. Initially, I felt well. I am now at 7 mg and feel exhausted. My story is insignificant compared to others on this blog, but it would be comforting if someone else has experienced recovery after completing the taper.

0
A4d6b7408c7bcc03acd24bde44be8996

on May 08, 2013
at 03:19 AM

I have an extremely rare type of auto immune disease called Juvenile Dermatomyositis & have been on too many meds to keep track of. I started with Prednisone at 60mg and i am currently at 10mg. I had all the side affects...moon face, major edema, increase in appetite that led to me gaining around 50-60 pounds. I was 15 when that happened. Im 17 now & am still struggling with the Pred. I've had a complete change in my disposition & i'm on anti-depressants to help with that. The only thing i can say about having bad side effects is that if it makes you feel like crap tell your doctor. It's YOUR body so if you feel like somethings wrong then ask. I had bad reactions when i forst tapered because they tapered it by too much. Everyone's reaction to Pred is different so there is no "norm" for any of that. Go off of what you feel but also consult your doctor. Stay Positive <3

0
31a1f3005b2dfe606d02984ea18aa5b2

on March 26, 2013
at 04:16 PM

My doctor put me on 60 mg of Prednisone short-term for Bronchitis. I was on for 5 days and not told to taper. On the 6th day I could barely move - I had gone from 60 mg to none. It took about half the day for the fatigue to kick in, though. While on the prednisone, I felt incredibly good, despite the bronchitis.

So I called, and let the doc know. She then gave me a script that was 40 mg X2 days, 30 mgX2 days, 20 mgX2 days and 10 mgX 2 days and then none. I'm at the 20 mg and am feeling terrible. Tired, cranky, joint pain, fatigue, lack of concentration, bowel issues, etc.

I'm normally an extremely healthy person. I'm 51, and this bronchial bug blindsided me. I think the Prednisone was prescribed because my illness was so awful and I needed to work - I'd missed a lot of work.

Am I being tapered down to fast? Is it normal for me to feel this badly with a taper such as the one described above?

Thanks for any insight!

0
Ec1850c1c04a78f00c6bbb3735a17c10

on March 21, 2013
at 09:34 PM

I was diagnosed with Crohn's in 2011. I have been vigilant with what I eat and have been active over the course of the two past years, however I had a flare up in Nov 2012 which sent me to the hospital for few days. Doctors started me on 40 mg of prednisone with inital taper of 5 mg/week and half way through the taper was more slowed down to 2.5mg/ or half a pill. I had a belly ache when initially taking prednisone (was bloated), moon face developped, waking up in the middle of the night with sweats and I had some strange mood swings. When I got down to 2.5 mg a week, I had a flare up that sent me to the hospital again. Doctor's put me back on 10 mg to taper by 2.5mg. I screwed up with with doses and went from 10mg to 5 in a week and the rest I tapered down which ended last week. I am taking Ca/Mg, fish oil and 1000IU of vit D in the morning and Ferrous gluconate in the evening. I am still doing low residue diet. So far things are going well.Energy seems to be so so but I'm more happy being off this drug. My next GI appt is in May.

0
049cd5d0a375be074ef1d1ed4d85d8b3

on February 15, 2013
at 11:55 PM

I've been on 40 mg. of Prednisone for 4 months, I have tapered down to 24 mg. I'm now having extream fatigue and can hardly move, the doctor wanted me to tapered down 2 mg. a week, does anyone think this is too fast? I need help!

0
7d34aaddfcf7db8fda7e2499b6a0dc54

on January 18, 2013
at 01:29 PM

I'm right in the beginning of this myself and it pretty much sucks. I'd been on it on and off for a year with dosing packs. I actually convinced myself that it improved my quality of life. My dosage recently went up to 100mgs daily. Now I'm on a doc ordered taper, but it has me going from 100 to currently 25mg in 6 days. The lower doses will be a much slower taper, but my body hurts everywhere, even my teeth. I'm trying to decide how quickly I should start exercising, so I don't just lay around, which will only put me back to square one with my arthritis, etc. Btw, I'm 33 and had childhood bone cancer. I have a bunch of chronic pain issues, and I also developed Adrenal crisis, although my fam doc hasn't sent me to an endo yet. Anyone have anything to add about trying to exercise. I've already been walking about 5 miles a day because the med makes me, but I'm talking about more physical activity like Crossfit.

7d34aaddfcf7db8fda7e2499b6a0dc54

(0)

on January 18, 2013
at 01:33 PM

To add to that, I found this link on Google and didn't realize it was for the Paleo Diet. Would it help me to adopt a Paleo Diet while I taper? I'm not overweight at all, so I don't want to lose a bunch of weight, but if it will help me with the side effects of tapering, I would give it a shot.

0
Eca5ee8986f66c02d0f7d42f3563ef2c

on January 02, 2013
at 12:57 PM

I hesitate to blog, because my problem seems trivial compared to others, but I have been on 15 mg Prednisolone for 6 months, and have tapered at 1 mg/ week down to 8 mg: that's One 5 mg + 3 three one mg . Then I made a mistake and omitted the 5 mg tablet- for the last 2 days. I do not feel too good, but I have osteoarthritis and my surgeon does not want to operate while I am on steroids, and the muscle pains and so on I have are like those of arthritis. Any suggestions as to what to do?

0
9130e1a2b93fbe99c25836be940f3214

on October 10, 2012
at 06:57 AM

I would seriously try to taper for as long as you possibly can. Getting off of prednisone can be really tricky. Write down your plan with tapering all the way off of prednisone and than stick to it. Even if the side effects are really bad, you do not want to have to get more prednisone only to get more addicted.

0
77877f762c40637911396daa19b53094

(78467)

on December 03, 2011
at 04:57 PM

Start playing around with powdered/pilled licorice to recycle whatever endogenously produced cortisol you have left. I really feel for you. I take 1 tablespoon of powdered licorice a day for my adrenal fatique plus 1/8 teaspoon of panex ginseng. There is very little info on mixing cortisone/prednisone and licorice on the internet. I tried different ratios for a while. 5mgs cortisone + two teaspoons of licorice, 10 mgs cort + teaspoon and a half of licorice ect. Of cource predneisone is 4xstronger than regular cortisone.. Wow 60mgs of prend. That's 240 mgs of cortisol. Every time I try to lower my licorice I have failed. It's my only issue left. It is a bitch. So in the end, it may be easier to get off the licorice than the prednesone. But I am not a good role model on this issue. YET! Being addicted to 1 tablespoon of licorice does not qualifiy me for an AA type meeting!, but it shows that my complete recovery is not yet attained .

Medium avatar

(291)

on December 03, 2011
at 05:48 PM

*drinking a cup of licourice tea*

Medium avatar

(291)

on December 03, 2011
at 05:48 PM

* drinking a cup of licourice tea *

77877f762c40637911396daa19b53094

(78467)

on December 03, 2011
at 05:00 PM

What does the Pusher, sorry doctor, who addcted you to the prednesone advise?

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