1

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hack my symptoms - thyroid or metabolic damage?

Answered on August 19, 2014
Created July 02, 2013 at 3:53 PM

Hi Hackers,

I posted on here frequently last summer during my first round at Paleo. I came to the diet in hopes of healing some issues I had been dealing with for now the past 3 years.

Brief background:

5'6, Female 27 years old. Always naturally thin around 130lbs.

About 3 years ago, I gained about 15 lbs from drinking too much and staying up to late and just not taking care of myself. I stupidly did the homeopathic HCG diet (500 calories a day) and dropped the weight in 3 weeks and felt great. As soon as I started eating more, I got crazy symptoms like fatigue, severe bloating, brain fog, moodiness etc. I was tested over the next 2 years and doctors could not figure out what was going on (Not celiac, tested in Endoscopy & Conoloscopy, food allergies negative, negative H Pylori). My symptoms have only gotten worse. I began a gluten free diet last year and it helped a bit, then cut out dairy and soy. At this point I began exercising 5-6 days a week to help with my energy. When I went full Paleo last summer, my brain fog persisted, and I began waking up in a panic nightly and feeling anxious (I know believe I was overtraining and not eating enough).

In January, my family thought my eating habits were incredibly orthorexic for me not even feeling much better, so I went back to SAD and stopped working out. I gained 40lbs (the most I have ever weighed in my life) in a matter of 5 months and in the past month symptoms got wayyyyy worse. My fatigue got so bad I couldnt get out of bed even after 12 hours of sleep. My stomach looked pregnant, hands and feet would swell up and my muscles and joints hurt.

I started Paleo again and that has helped the bloating, joint pain and fatigue a bit. I will not go back to SAD but there is definetly a missing element to my symptoms.

I recently saw an Endocrinologist who tested me for Hashimotos -- antibodies came back normal and my thyroid levels, Vit D levels and CBC are all "normal", although I did have a few small nodules on my thryoid. He put me on 50mcg of Synthroid anyways because my symptoms are still in line with hypothyroidism although my blood tests say differently.

ANYWAYS-- can anyone shed some light on what could be going on?? I feel like I am intolerant to everything -- I now am following the Paleo autoimmune protocol to feel even a little bit better.

Could my metabolism be so messed up from the original diet and subsequent food eliminations/exercising? Or could it really be my thyroid although my tests are all in the normal range? I feel like I am not living and am just existing at this point.

UPDATE I saw my grandmother today who told me my grandfather had Graves disease. Anyone have experience with Graves disease but hypo symptoms? I was not tested for Graves Antibodies, only Hashimotos...

UPDATE 8/5

Figured I would come and update... Saw my endo again today and my cortisol tests were normal, Graves antibodies normal and my TSH is low now so he is taking me off Synthroid (I did not feel any differently with it). I feel a lot better from being Paleo but still no answers as to why I react to strongly to foods and still have lingering brain fog. Pursuing healing leaky gut now.

5298fae4ca43301a041321caa1b48a61

(0)

on March 10, 2014
at 03:36 AM

Hi! My friend has been suffering almost identical symptoms for the last four years (symptoms started after an extremely low calorie diet). She's tried everything, everything, everything. All the things you've mentioned in some of your posts - endo, endoscopy, all the diets, thyroid, etc.

I saw in another comment that you've been feeling better. Can you tell me what you've done that worked?? Or is there a way she can message you on here? I copied some of the text and sent it to her and she was astonished at how similar her ordeal has been to yours. She is willing to do anything.Thanks!

75d65450b6ff0be7b969fb321f1200ac

(2506)

on July 05, 2013
at 07:28 PM

You might want to post your question wrt Graves/Hashimoto's on a thyroid forum site such as: http://www.thyroidboards.com/forumdisplay.php?f=16 Swings in thyroid function, that is going from hypo to hyper (or reverse), are known to happen. Once diagnosed with any thyroid misbehavior it is imperative to get tested every few months and adjust medication as required.

Aff97e82eccef9d957abdd7317f72457

(180)

on July 03, 2013
at 03:37 PM

ok, I'm on a limited autoimmune protocol for the moment (only 30 days) because I was having such crazy reactions to everything, I needed to do a reset and add things in one at a time to see what was the culprit. I'll def add in what carbs I can though. My digestion is suprisingly ok for now, don't seem to have a hard time digesting fats. It was much worse last year when I did Paleo the first round, but I think that is because I was eating broccoli/cauliflower and brussel sprouts daily. Yikes

A87123772dfaec07079b8fac17b20372

(261)

on July 03, 2013
at 03:15 PM

ou need to adjust your carbs. I am in the range 100/150 grams a day. I eat raw veggies, fruit (any kind) and some potatoes at every meal. I tend to have small and frequent meals (every 2-3 hours) just to keep my glycemia in order and not to overload the adrenals. It won't be forever, but at the moment it works well. I also take some adrenal cortex for the adrenal glans and other stuff for my hypothyroidism. Fats are also important for the adrenals, but until my digestion isn't getting better, eating fats just gives bloating and pain.

Aff97e82eccef9d957abdd7317f72457

(180)

on July 03, 2013
at 02:08 PM

thanks! When I was IF'ing last year I definitely felt worse so I won't do that again. I also had a really difficult time recovering from HIIT. Looks like walking and weight training are best for my body. What would you qualify as "too low carb"? I am currently only getting carbs from berries, carrots and tubers and feeling better-- prob around 75g/day. I get anxiety and and shakiness if I eat anything like potatoes or white rice. any advice on fixing the adrenals? I have been making sure I get to bed before 10pm, reading before bed rather than tv, walking 5x/week, and stretching/light yoga

8d3cb0be5f31c75a05f853cb3b5c245a

(1601)

on July 02, 2013
at 10:11 PM

I would actually recommend a metametrix stool test, looking for pathogens as the source of your weight gain. but only do that after about 3 months of eating PHD style and supplements. Search Perfecthealthdiet.com and metametrix for more information. it's hard to say since you've just restarted paleo, but good luck! I know it's hard but you can do it.

Aff97e82eccef9d957abdd7317f72457

(180)

on July 02, 2013
at 05:14 PM

thanks Lazza, I agree that my doctor is being prudent, but I also don't want to be taking medication for something that is not the cause of the problem. But I am going to give it a few weeks to see if it makes a difference. And as for the naturopath, I will look into that.

Aff97e82eccef9d957abdd7317f72457

(180)

on July 02, 2013
at 05:04 PM

thanks Kevin, I was able to call my dr. and I am going to get this test later this week.

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4 Answers

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1
A87123772dfaec07079b8fac17b20372

on July 03, 2013
at 04:57 AM

Hypothyroidism slows digestion and gives bloating and many other issues. Normal range lab tests mean nothing. I was "normal" in my lab tests until I found a great endocrinologist who fixed my adrenal glans and thyroid (you can't heal hypo unless you first fix your adrenal glands). Don't go too low-carb if you have hypo (Paul Jaminet has good articles about this), don't do intermittent fasting if you have adrenal issues (you need stable blood sugars in order to not overload adrenal glands) and take it easy with fat. When you are hypo you go short of ox-bile and have difficulty with digesting fats.

But more than everything, read the beautiful book of Janie Bowthorpe, "Stop the thyroid madness". She suffered for many years of hypo and tried everything until she began to study and found out the problem. Unfortunately, listening to the "conventional" doctor she had to wait until her lab tests were so bad (and her thyroid in such bad conditions) that in the end she developed Addison disease, but still under control. The book has a lot of great suggestions and patients experience on how to heal hypo.

Aff97e82eccef9d957abdd7317f72457

(180)

on July 03, 2013
at 02:08 PM

thanks! When I was IF'ing last year I definitely felt worse so I won't do that again. I also had a really difficult time recovering from HIIT. Looks like walking and weight training are best for my body. What would you qualify as "too low carb"? I am currently only getting carbs from berries, carrots and tubers and feeling better-- prob around 75g/day. I get anxiety and and shakiness if I eat anything like potatoes or white rice. any advice on fixing the adrenals? I have been making sure I get to bed before 10pm, reading before bed rather than tv, walking 5x/week, and stretching/light yoga

Aff97e82eccef9d957abdd7317f72457

(180)

on July 03, 2013
at 03:37 PM

ok, I'm on a limited autoimmune protocol for the moment (only 30 days) because I was having such crazy reactions to everything, I needed to do a reset and add things in one at a time to see what was the culprit. I'll def add in what carbs I can though. My digestion is suprisingly ok for now, don't seem to have a hard time digesting fats. It was much worse last year when I did Paleo the first round, but I think that is because I was eating broccoli/cauliflower and brussel sprouts daily. Yikes

A87123772dfaec07079b8fac17b20372

(261)

on July 03, 2013
at 03:15 PM

ou need to adjust your carbs. I am in the range 100/150 grams a day. I eat raw veggies, fruit (any kind) and some potatoes at every meal. I tend to have small and frequent meals (every 2-3 hours) just to keep my glycemia in order and not to overload the adrenals. It won't be forever, but at the moment it works well. I also take some adrenal cortex for the adrenal glans and other stuff for my hypothyroidism. Fats are also important for the adrenals, but until my digestion isn't getting better, eating fats just gives bloating and pain.

2
75d65450b6ff0be7b969fb321f1200ac

(2506)

on July 02, 2013
at 04:58 PM

Firstly, I suggest simplifying your diet to something generally Paleo-ish and make sure the diet is balanced nutritionally. Read Perfect Health Diet (Jaminet) and go with the recommended supplementation regimen. Avoid deviating from this diet until you figure out what is wrong.

Now as for what is wrong, I suspect it is either hormonal or you have some fundamental nutritional (vitamin/mineral) imbalance. Maybe a naturopath can advise on the correct set of tests? Based on your test results it is unlikely your thyroid is to blame but I think your doctor is being prudent by having you take low dose Synthroid to see if it helps.

_Lazza

Aff97e82eccef9d957abdd7317f72457

(180)

on July 02, 2013
at 05:14 PM

thanks Lazza, I agree that my doctor is being prudent, but I also don't want to be taking medication for something that is not the cause of the problem. But I am going to give it a few weeks to see if it makes a difference. And as for the naturopath, I will look into that.

8d3cb0be5f31c75a05f853cb3b5c245a

(1601)

on July 02, 2013
at 10:11 PM

I would actually recommend a metametrix stool test, looking for pathogens as the source of your weight gain. but only do that after about 3 months of eating PHD style and supplements. Search Perfecthealthdiet.com and metametrix for more information. it's hard to say since you've just restarted paleo, but good luck! I know it's hard but you can do it.

1
D396b126240f584bc358e6e4fd84e9e3

on July 02, 2013
at 04:29 PM

It may be adrenal related or some other hormonal imbalance. Your cheapest option is probably to do a saliva test at home. I've done this one a couple times and it uncovered some issues for me - bit.ly/13TSDf2

Aff97e82eccef9d957abdd7317f72457

(180)

on July 02, 2013
at 05:04 PM

thanks Kevin, I was able to call my dr. and I am going to get this test later this week.

0
F62e0124c106938b90f28123571ca272

on July 02, 2013
at 05:27 PM

Greetings,

I suffer some of the same symptoms periodically. I would look closely at your food intake and read every label--assume nothing and be proactive. In addition to gluten/flour intolerance, artificial sweeteners, and food coloring really screw me up---brain fog, heart palpitations, blurred vision. This stuff will show up in the most unlikely of places...

My latest discovery is the tazo zen green tea I get at Starbucks has 'natural' flavorings added. I've poked around the Internet and came up with some interesting answers as to what those ingredient(s) might be... One of the answers being a 'corn' based product. Is it? I don't have a conclusive answer, but enough of question that I will not buy it anymore. The fact that Starbucks feels compelled to list 'natural ingredients' instead of just listing what is actually in the tea is enough of a reason (for me) to discontinue.

Cheers

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