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Hack my diet for "Solar Purpura"

Commented on July 17, 2014
Created July 14, 2014 at 5:12 AM

I was just diagnosed with "solar purpura", also known as "actinic purpura" or (ugh) "senile purpura". This is bleeding under the skin on the forearms, especially my left forearm. It's related to damaged collagen, primarily from sun exposure (hence my left forearm since that gets more sun when I'm driving) but there are other contributing factors including inhaled steroids which I take for asthma. There may also be an inflammatory component. I generally try to eat a fairly non-inflammatory Paleo diet, but we were on vacation this past week and there were some--shall we say--dietary "indiscretions" going on. As a result I've had an outbreak of a lot of bleeding under the skin.

I grew up on a tropical island where I played outside in the sun all day long as a child and nobody used sunscreen in those days, so I probably did some of the damage way back when.

The doctor and articles I read all say that it's "benign" and that there's no treatment for it (though I did read there is a pharmaceutical available now). BUT, it's a defect in the collagen, AND it is often "associated with" osteoporosis--in other words, in my mind if there is an underlying deficiency that perhaps should not be considered benign. And I also have hope that I can at least prevent further damage with nutrient dense whole foods.

I know I can't go back and undo the sun damage, and I've been trying to get off the inhaled steroids but always run into trouble when I get completely off them. The thing I CAN control for now is diet and supplements so I'm trying to figure out the best approach to support my remaining collagen (and possibly rebuild it???).

1. I know I need more dietary collagen. I make bone broth we use in cooking and as a base for soups especially in winter, but I never really just had some daily. I'm going to start with 1 cup a day and perhaps more. I've started to add powdered Great Lakes gelatin to liquids I drink and we are using it as a thickener in some cooking now. We eat meat on the bone, and I like to eat the softened gristle and suck the bones. (I love bone marrow!).

2. I already take Vitamin D3 (3000 mg/day and my level was 48 ng/mL), 100 mg. of K2 (MK7), 1200 mg. of EPA/DHA from fish oil. Should any of these be increased?

3. Should I add anything--e.g. vitamin C, vitamin E or calcium? I'm wary of calcium supplements so I try to get plenty of dietary calcium from leafy greens, canned fish with bones (I need to eat this more often), and some dairy. I eat tomatoes, berries and leafy greens for Vitamin C, but I'm not a big fruit eater and some citrus causes me to have migraines.

3491e51730101b18724dc57c86601173

(8395)

on July 17, 2014
at 03:39 PM

It is something I'm considering bc I don't know how else to get off the asthma meds. The problem is that it would take years for me to know if it's helping. I don't have asthma issues often (rarely) but when I do I'm very, very sick--not good for a self employed person in a highly stressful and time sensitive job. When I get cocky and go off the steroids, I'm 100 times sicker when I do get the cascade of asthma exacerbation. But that may be 9 months or a year later or more. I cannot afford a low level of function and missed work for weeks at a time again.

3491e51730101b18724dc57c86601173

(8395)

on July 17, 2014
at 03:29 PM

From what I understand it's not a thin blood issue, it's a collagen issue that causes the walls of the capillaries to be too thin and tear easily (scary to me--could it be happening systemically?). My first fear was a bleeding disorder, but all my labs looking for that are OK.

3491e51730101b18724dc57c86601173

(8395)

on July 16, 2014
at 06:58 AM

Yikes, that's scary, but my WBC was normal and my asthma is actually better than it used to be, I just can't get completely off the steroids--every time I get cocky and try ends badly.

47cbd166d262925037bc6f9a9265eb20

(55)

on July 16, 2014
at 04:41 AM

Checked this before ?

en.wikipedia.org/wiki/Churg–Strauss_syndrome

3491e51730101b18724dc57c86601173

(8395)

on July 15, 2014
at 07:31 PM

From my reading what I understand is that it's years of sun damage. I grew up on a tropical island in the days when nobody ever heard of sunscreen--I played outside all day, every day, except during school hours. And it's worse on my left forearm, which makes sense since I didn't have AC in my car for years and always drove with the window down, my left arm on the windowsill to catch the breeze. Additionally, I take a lot of inhaled steroid for asthma, and that is also a risk factor for collagen breakdown.

3ce6a0d24be025e2f2af534545bdd1d7

(26217)

on July 15, 2014
at 07:22 PM

47cbd166d262925037bc6f9a9265eb20

(55)

on July 15, 2014
at 06:51 PM

Maybe you're right...

http://en.wikipedia.org/wiki/Anticoagulant#Food_an...

There are more that can thin the blood and aggravate bleedings such as vitamins c, e, omega 3 oils, you may want to be careful with them, sorry for the imprecise jargon

3491e51730101b18724dc57c86601173

(8395)

on July 14, 2014
at 03:50 PM

What I do is not "great enough" if I have such a breakdown of collagen that short sun exposure is causing bleeding. That's what I'm trying to get a handle on--if it's happening on the surface of my skin where I can see it, what's happening in the rest of my body? As for osteoporosis, I recently completed menopause, so it is a concern. But I'm not sure I can get my HMO to test for it yet.

47cbd166d262925037bc6f9a9265eb20

(55)

on July 14, 2014
at 01:29 PM

How did you get Solar Purpura ?

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2 Answers

0
47cbd166d262925037bc6f9a9265eb20

(55)

on July 16, 2014
at 08:25 AM

Maybe you can give a serious try to autoimmune protocol:

http://www.ncbi.nlm.nih.gov/pubmed/20477126

http://www.ncbi.nlm.nih.gov/pubmed/14646381

3491e51730101b18724dc57c86601173

(8395)

on July 17, 2014
at 03:39 PM

It is something I'm considering bc I don't know how else to get off the asthma meds. The problem is that it would take years for me to know if it's helping. I don't have asthma issues often (rarely) but when I do I'm very, very sick--not good for a self employed person in a highly stressful and time sensitive job. When I get cocky and go off the steroids, I'm 100 times sicker when I do get the cascade of asthma exacerbation. But that may be 9 months or a year later or more. I cannot afford a low level of function and missed work for weeks at a time again.

0
47cbd166d262925037bc6f9a9265eb20

(55)

on July 14, 2014
at 01:26 PM

I think you're unnecessarily worried, what you do is great enough. Is there any other reason you may be worried about having strong bones ?

PS: I'd stay away from calcium supplements also, you also do dairy which is a rather new source of calcium for an adult... This was in my mailbox unread:

http://www.greenmedinfo.com/blog/osteoporosis-myth-dangers-high-bone-mineral-density?page=2

3491e51730101b18724dc57c86601173

(8395)

on July 17, 2014
at 03:29 PM

From what I understand it's not a thin blood issue, it's a collagen issue that causes the walls of the capillaries to be too thin and tear easily (scary to me--could it be happening systemically?). My first fear was a bleeding disorder, but all my labs looking for that are OK.

3491e51730101b18724dc57c86601173

(8395)

on July 14, 2014
at 03:50 PM

What I do is not "great enough" if I have such a breakdown of collagen that short sun exposure is causing bleeding. That's what I'm trying to get a handle on--if it's happening on the surface of my skin where I can see it, what's happening in the rest of my body? As for osteoporosis, I recently completed menopause, so it is a concern. But I'm not sure I can get my HMO to test for it yet.

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