1

votes

Still really sick.. help?

Answered on August 19, 2014
Created January 22, 2013 at 3:53 PM

I've been doing strict paleo and no fodmaps for a while now and am still very sick (gas and bloating, constipation, diareaha, nausea (vomiting if I dont take lots of Zofran), lots of abdominal pain, plus automiminue symtoms like severe clubbing of the fingers, vascular hives, pain all over and fibromyalgia..etc..) I've decided to cut out the coconut oil too (I already cut out all nuts) as well as eggs and the only dairy I was still eating which was full fat pasture raised butter and occational cream. So I'm hopeing that will make a difference but I'm starting to feel pretty hopeless (and hungry lol). I have a lot of questions but I'll try to at least make them clear:

1.Is there any other obvios thing I shouldn't be eating? Or anything I should eat (can't eat anything fermented it makes my symptoms much worse) Am going to try bone broth as soon as I have someone to help me make it, am too tired and sick to tackle it on my own.

2.Without butter or coconut oil what fats should I use? I'm thinking olive oil and lard (tho I kno nothing about lard)? Is there anything else?

3.I'm on a ton of stomach meds including Erythromycin three times a day (for gastroperesis) which I've been taking for many years. My gastroenterologist says it won't harm the good bacteria in my gut. Is that true? Are some antibiotics ok?

4.My gastroenterologist says I'm unlikely to have SIBO and gastroperesis (delayed stomach emptying) at the same time. There are people on paleohacks who say they have both so I'm not sure if I should believe him. Should I try to get tested on my own somehow? There is a breath test for this right? Is it expensive?

5.Should I be worried about leaky gut? My gastroenterologist dismisses this too. Is there a test for that? I know there's supposed to be a link between leaky gut and automimmune disorders which makes me wonder. So many of my symptoms overlap different disorders how does anyone sort this out?

Any advice for any of these questions would be appriciated- sorry for the long muliple question- pretty desperate

973c21f7bc31c09d12675c1ba45df153

(145)

on January 24, 2013
at 12:20 PM

How can someone be an idiot for being suspicious?

0b7c3e7fd96005f0b2dfd781e512fc2e

(1237)

on January 24, 2013
at 11:39 AM

Why did you cut out coconut oil?

F5a0ddffcf9ef5beca864050f090a790

(15515)

on January 23, 2013
at 07:42 PM

Sorry I was not clear. No, both northwestpharmacy.com and universaldrugstore are fine. However, there is a site called canadian pharmacy or something like that is not safe. If you check it out and you do indeed have SIBO, come back to Paleohacks. But I still hope you will change your nick by then.

E621ee733a15442e039d0945dabe0411

(115)

on January 23, 2013
at 07:15 PM

thanks, you've been very helpfull- ill look into the SIBO test, the Motillium, the itopride and the 5HTP- and learn to make chicken soup :-) Im hoping if I keep eliminating things from my diet Ill get some relief eventually. One thing I didnt understand in your comment- are you saying northwestpharmacy is the malicious website?

7bf306ada57db47547e9da39a415edf6

(11214)

on January 23, 2013
at 03:19 PM

This is because you are short. All the proof goes right over your head.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on January 23, 2013
at 06:51 AM

She ordered it trough northwestpharmacy. I believe (it is canadian). Do not mix it with canadian pharmacy - it is a malicious website. Both Motillium and itopride act the same, but Motillium gave me too many side effects.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on January 23, 2013
at 06:46 AM

The hydrogen/methane test is available in the US, you can actually get one online, do it at home and mail it in. I believe it is available anywhere from $100 to $400. Check siboinfo.com, she lists the sources. She recommends erythromycin or prucalopride at night, once pre day, a very small dosage. Well, it did not work for me. Even itopride did not work for me the first time around - I have developed side effects. There is a thing called 5HTP or different supplements containing 5HTP that work the same, but I will stick with itopride for now. A girl I know used Motillium

E621ee733a15442e039d0945dabe0411

(115)

on January 23, 2013
at 06:20 AM

sry I shouldnt assume ur in the US- the itopride isnt approved here- I've run into this prob alot unfortunately

E621ee733a15442e039d0945dabe0411

(115)

on January 23, 2013
at 06:18 AM

sry I shouldnt assume ur in the US- the idopride isnt approved here- I've run into this prob alot

E621ee733a15442e039d0945dabe0411

(115)

on January 23, 2013
at 06:06 AM

Thanks- ill def fiure out a way to get the test and look into that dr. I take ginger- but could maybe take more? Did you get the itopride prescribed thru canada or something? (I used to get Zelnorm that way but is no longer avail) It looks like a good med to try after a quick google- says it doesnt mess up your qt interval- which is starting to b a prob for me. Looks like I could order it from India or something?- I'm never sure whether to trust those sites. Obv ill ask my dr about it when I see him- but he's just gonna tell me to get it on my own anyway so id like to figure out how.

4523f952f67fa6485efeac2c9ea810cf

(166)

on January 23, 2013
at 03:56 AM

I don't see any proof that you're not an idiot.

4523f952f67fa6485efeac2c9ea810cf

(166)

on January 23, 2013
at 03:55 AM

I don't see any proof that you're real either.

4523f952f67fa6485efeac2c9ea810cf

(166)

on January 23, 2013
at 03:55 AM

I like her nickname ;-)

F5a0ddffcf9ef5beca864050f090a790

(15515)

on January 23, 2013
at 03:55 AM

I take TONS of ginger and itopride - I had to half the dose because I was so sensitive (I have leaky gut).

F5a0ddffcf9ef5beca864050f090a790

(15515)

on January 23, 2013
at 03:52 AM

I have tried to convince a couple doctors that they are wrong - it is just not possible. Try to be as friendly as you can, and if it does not work - find another doctor. I highly recommend 1. getting the test done, hydrogen/methane. The cost depends on where you live. 2. After you have your test results schedule a Skype consultation with dr. Siebecker - siboinfo.com

E621ee733a15442e039d0945dabe0411

(115)

on January 23, 2013
at 12:07 AM

Why wouldnt I be real? Anyway, thanks VB- ive looked at alot of your other questions including your new one about motility- seems we have similar probs. What prokinetic do you take? Id love to replace the ery-tab. Is the SIBO test expensive? My dr really did tell me its unlikely id have SIBO and gastroperesis so im not sure what to think, seems hes very wrong on this. Should I try to convince him hes wrong or look for a new dr? The one study I found on SIBO and gastroperesis was from 2010 and small so maybe the dr doesnt know? Have you had trouble finding drs who are knowlegeable about this?

E621ee733a15442e039d0945dabe0411

(115)

on January 22, 2013
at 11:29 PM

You're absolutely right, me and caveboy are not real, we are spies for the vegan mob lol

F5a0ddffcf9ef5beca864050f090a790

(15515)

on January 22, 2013
at 05:07 PM

Oh... Maybe you can suggest she changes her nick?

7bf306ada57db47547e9da39a415edf6

(11214)

on January 22, 2013
at 05:03 PM

I don't see too much proof you are real either, caveboy.

4523f952f67fa6485efeac2c9ea810cf

(166)

on January 22, 2013
at 05:01 PM

Because I suggested she posted, lol.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on January 22, 2013
at 04:58 PM

Sorry - the question sounds a bit odd. How come you are answering for her?

4523f952f67fa6485efeac2c9ea810cf

(166)

on January 22, 2013
at 04:53 PM

You think because someone is sick on paleo they must be a troll? She's had IBS for years.

4523f952f67fa6485efeac2c9ea810cf

(166)

on January 22, 2013
at 04:47 PM

I know this person in real life...you're an idiot.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on January 22, 2013
at 04:45 PM

"If you are real"... That's what I was thinking as well :) Of course, this person is real. Behind every troll there is a real person, you know. People troll for reason.

  • E621ee733a15442e039d0945dabe0411

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4 Answers

2
32652cb696b75182cb121009ee4edea3

(5802)

on February 07, 2013
at 01:38 PM

I tend to believe this, bc it is not unlike what I experienced a few years ago. And paleo made it worse before it made it better.

(1) I'm interested to know how you feel without the cream. For me, even 1 tsp of cream a day causes brain fog, bloating, and extreme exhaustion.

(2) You're going to have to wean off the meds. At least for a short time, to see how you feel. You can always add them back if necessary.

(3) Gut issues are many-layered. You never "just" have gastroparesis, or reflux, or ibs, or low stomach acid, or gallbladder disease, etc. The system is complex, and you can have multiple issues both physical and biochemical. Doctors over-simplify bc their mission is to isolate and treat. That works sometimes, or at least it works well enough for them.

I have found a lot of help from this site:

http://www.eat-real-food-paleodietitian.com/

She has a book coming out, but there is a lot of info on her site. I followed her SIBO protocol for a while and experience huge relief with my gut problems. (It's kind of like a paleo GAPS diet). Now I'm 100% paleo, and after decades of gut pain, all that's left is one tiny twinge (which may be endometriosis, so whatever!).

0
874ff271ca3379984344d5f9f760fec3

on January 24, 2013
at 11:30 AM

You need a CDSA 2.0 and a good doctor. Trying to ignore this problem could cause irreversible damage to your body.

0
F5a0ddffcf9ef5beca864050f090a790

(15515)

on January 22, 2013
at 04:51 PM

If this is a real question, here are my answers:

  1. Try eating chicken soup with zucchini and carrots, nothing else for a while.

  2. If I were you, I would use fat from grass-fed beef.

  3. Instead of erythromycin try something else. Antibiotics for many years will destroy your gut flora.

  4. SIBO comes with impaired motility. Yes, you should get tested. Get a hydrogen-methane breath test.

  5. If you have SIBO, you might have a leaky gut. There is a test, but it is costly. Most people can tell by their symptoms.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on January 22, 2013
at 04:58 PM

Sorry - the question sounds a bit odd. How come you are answering for her?

E621ee733a15442e039d0945dabe0411

(115)

on January 23, 2013
at 07:15 PM

thanks, you've been very helpfull- ill look into the SIBO test, the Motillium, the itopride and the 5HTP- and learn to make chicken soup :-) Im hoping if I keep eliminating things from my diet Ill get some relief eventually. One thing I didnt understand in your comment- are you saying northwestpharmacy is the malicious website?

4523f952f67fa6485efeac2c9ea810cf

(166)

on January 22, 2013
at 05:01 PM

Because I suggested she posted, lol.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on January 22, 2013
at 05:07 PM

Oh... Maybe you can suggest she changes her nick?

F5a0ddffcf9ef5beca864050f090a790

(15515)

on January 23, 2013
at 03:55 AM

I take TONS of ginger and itopride - I had to half the dose because I was so sensitive (I have leaky gut).

E621ee733a15442e039d0945dabe0411

(115)

on January 23, 2013
at 06:18 AM

sry I shouldnt assume ur in the US- the idopride isnt approved here- I've run into this prob alot

F5a0ddffcf9ef5beca864050f090a790

(15515)

on January 23, 2013
at 03:52 AM

I have tried to convince a couple doctors that they are wrong - it is just not possible. Try to be as friendly as you can, and if it does not work - find another doctor. I highly recommend 1. getting the test done, hydrogen/methane. The cost depends on where you live. 2. After you have your test results schedule a Skype consultation with dr. Siebecker - siboinfo.com

F5a0ddffcf9ef5beca864050f090a790

(15515)

on January 23, 2013
at 06:46 AM

The hydrogen/methane test is available in the US, you can actually get one online, do it at home and mail it in. I believe it is available anywhere from $100 to $400. Check siboinfo.com, she lists the sources. She recommends erythromycin or prucalopride at night, once pre day, a very small dosage. Well, it did not work for me. Even itopride did not work for me the first time around - I have developed side effects. There is a thing called 5HTP or different supplements containing 5HTP that work the same, but I will stick with itopride for now. A girl I know used Motillium

E621ee733a15442e039d0945dabe0411

(115)

on January 23, 2013
at 06:06 AM

Thanks- ill def fiure out a way to get the test and look into that dr. I take ginger- but could maybe take more? Did you get the itopride prescribed thru canada or something? (I used to get Zelnorm that way but is no longer avail) It looks like a good med to try after a quick google- says it doesnt mess up your qt interval- which is starting to b a prob for me. Looks like I could order it from India or something?- I'm never sure whether to trust those sites. Obv ill ask my dr about it when I see him- but he's just gonna tell me to get it on my own anyway so id like to figure out how.

E621ee733a15442e039d0945dabe0411

(115)

on January 23, 2013
at 12:07 AM

Why wouldnt I be real? Anyway, thanks VB- ive looked at alot of your other questions including your new one about motility- seems we have similar probs. What prokinetic do you take? Id love to replace the ery-tab. Is the SIBO test expensive? My dr really did tell me its unlikely id have SIBO and gastroperesis so im not sure what to think, seems hes very wrong on this. Should I try to convince him hes wrong or look for a new dr? The one study I found on SIBO and gastroperesis was from 2010 and small so maybe the dr doesnt know? Have you had trouble finding drs who are knowlegeable about this?

E621ee733a15442e039d0945dabe0411

(115)

on January 23, 2013
at 06:20 AM

sry I shouldnt assume ur in the US- the itopride isnt approved here- I've run into this prob alot unfortunately

F5a0ddffcf9ef5beca864050f090a790

(15515)

on January 23, 2013
at 07:42 PM

Sorry I was not clear. No, both northwestpharmacy.com and universaldrugstore are fine. However, there is a site called canadian pharmacy or something like that is not safe. If you check it out and you do indeed have SIBO, come back to Paleohacks. But I still hope you will change your nick by then.

4523f952f67fa6485efeac2c9ea810cf

(166)

on January 22, 2013
at 04:53 PM

You think because someone is sick on paleo they must be a troll? She's had IBS for years.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on January 23, 2013
at 06:51 AM

She ordered it trough northwestpharmacy. I believe (it is canadian). Do not mix it with canadian pharmacy - it is a malicious website. Both Motillium and itopride act the same, but Motillium gave me too many side effects.

4523f952f67fa6485efeac2c9ea810cf

(166)

on January 23, 2013
at 03:55 AM

I like her nickname ;-)

-1
7bf306ada57db47547e9da39a415edf6

(11214)

on January 22, 2013
at 04:18 PM

If you are real, just go eat something, anything that is actually food. This reads so badly that it sounds suspiciously like a little girl who has nothing better to do than troll paleohacks. If you are actually real. Eat food, preferably real food, but get enough calories into your body so that you can actually think clearly again, and ask coherent questions. One question at a time might help too.

Hopefully, it also dawns on you, at some point, that referring to yourself as a slut isn't a very good idea either.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on January 22, 2013
at 04:45 PM

"If you are real"... That's what I was thinking as well :) Of course, this person is real. Behind every troll there is a real person, you know. People troll for reason.

7bf306ada57db47547e9da39a415edf6

(11214)

on January 22, 2013
at 05:03 PM

I don't see too much proof you are real either, caveboy.

973c21f7bc31c09d12675c1ba45df153

(145)

on January 24, 2013
at 12:20 PM

How can someone be an idiot for being suspicious?

4523f952f67fa6485efeac2c9ea810cf

(166)

on January 22, 2013
at 04:47 PM

I know this person in real life...you're an idiot.

7bf306ada57db47547e9da39a415edf6

(11214)

on January 23, 2013
at 03:19 PM

This is because you are short. All the proof goes right over your head.

4523f952f67fa6485efeac2c9ea810cf

(166)

on January 23, 2013
at 03:55 AM

I don't see any proof that you're real either.

E621ee733a15442e039d0945dabe0411

(115)

on January 22, 2013
at 11:29 PM

You're absolutely right, me and caveboy are not real, we are spies for the vegan mob lol

4523f952f67fa6485efeac2c9ea810cf

(166)

on January 23, 2013
at 03:56 AM

I don't see any proof that you're not an idiot.

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