2

votes

FODMAP, SCD, or GAPs for SIBO/Gastroparesis

Answered on August 19, 2014
Created September 04, 2012 at 12:00 AM

I've been diagnosed with gastroparesis (slow stomach emptying), have an inflamed small intestines, and also suspect I have SIBO. Problem is, I'm so confused as to what dietary guidelines to follow. GAPs and SCD allow some foods that FODMAPs doesn't, but the general consensus for trying to kill off SIBO is a very low carb diet. I've lost a good deal of weight due to digestive issues (loss of appetite, bloating, constipation, stomach pains), from 145-122lbs at 5'10 and 23yrs old (dude), so I am trying to gain some weight. How in the world do I eat enough on a VLC diet? I have breakfast down, but lunch and dinner I'm lost. I have the whole meat + veggies, but the amount of fat I'd need to supplement with to hit a calorie surplus is absurd and I can't eat a whole bunch of fat due to gastroparesis (fat slows gastric emptying, further worseing my gastroparesis).

Has anyone dealt with a problem such as mine and how are you managing it or have you solved it? I want to include avocados with my lunch to help bump up cals, but then FODMAPs doesn't allow this. I love bananas, but feel that they make my symptoms worse, yet they are allowed on all three. I feel like I'm between a rock and a hard place trying to figure out what to eat/not eat while helping to lower the inflammation in my small intestines AND gain weight. Help?

E621ee733a15442e039d0945dabe0411

(115)

on January 20, 2013
at 12:41 PM

Domperidone didnt mess me up as bad as Reglan (Reglan gave me insane anxiety too) but it still made me feel pretty nuts, so I understand your hesitation. My dr is giving me erythromycin three times a day for this and it does help the specifically gastropereisis related symptoms some, but I'm worried its hurting other things so I'm not sure I'd recomend it, but its something to ask your dr about. I am also still very sick doing strict paleo and no fodmaps so if you find an answer to your symptoms please let me know. I hope something works for you :-)

2a17904e3436c49530e5bedaeb06dd5b

(80)

on October 14, 2012
at 01:35 PM

Stephanie, I would love to get into the facebook group. I just posted today for advice on my new diagnosis of SIBO (which I had suspected I had for almost a year now...)

8ea784171b2d15cffb537349b341b806

(260)

on September 21, 2012
at 01:46 AM

My stomach is still nowhere near normal, but it's better than before. It's still a daily struggle to eat enough to gain weight, especially since I cannot work out yet, but it's been going up slowly. I've even experimented and has some fast food and find that I tolerate it just fine, which is weird but good to know. I've had it twice on days where I struggle ALOT, but that's few and far between. I'm of the opinion that you have to experiment because everyone is different, a blanket paleo + SIBO diet will not work for everyone. Are there any foods in particular that really give you trouble?

8ea784171b2d15cffb537349b341b806

(260)

on September 21, 2012
at 01:43 AM

How has xifaxan been working for you? I tried it but it didn't do anything for me. I've checked out your website before and it's very informative! What kind of grains and carbs do you eat? I tried VLC but it didn't work. Honestly, once I started supplementing with Betaine HCL my stomach got well enough to allow me to eat carbs again. I've been able to eat potatoes for dinner again, and have even been having oatmeal several times a week and can tolerate gelato, so I've been able to gain some weight back (currently 125.4lbs this morning). I can even tolerate a good amount of fat now.

8ea784171b2d15cffb537349b341b806

(260)

on September 04, 2012
at 03:18 AM

Huh, it definitely might be if you experienced increased hunger. I'll get in touch with my GI doc and see what he can do, thanks!

F92e4ca55291c3f3096a3d4d3d854986

(11698)

on September 04, 2012
at 02:49 AM

I had zero side effects on domperidone, and I'm pretty sensitive to drugs. All I noticed was that I got hungrier sooner after meals. Might be worth a try.

8ea784171b2d15cffb537349b341b806

(260)

on September 04, 2012
at 02:23 AM

I actually was going to get this, but my GI doc said my gastroparesis is not bad enough....as if losing 20lbs+ in six months is not bad, riiiiiight. I would have to get it from a pharmacy in Canada, but after seeing what Reglan did to me (nasty anxiety attacks), I'm not too amped up to try Domperidone.

8ea784171b2d15cffb537349b341b806

(260)

on September 04, 2012
at 01:57 AM

Ok I'll try that out. Only problem is that I've been paleo for awhile (2007) and this problem started happening in 2009, getting noticeably worse in the past two years. So no clue why it would still occur while eating so healthy, but I'll give it a shot.

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4 Answers

best answer

0
3eca93d2e56dfcd768197dc5a50944f2

(11697)

on September 04, 2012
at 12:24 AM

I personally wouldn't worry than much about Fodmaps, unless the problem doesn't go away within a few months. Just do Paleo with the SCD/GAPS twist: home-made goat kefir (which is more potent than their suggested yogurt). Everything else should be Paleo: fermented foods, coconut oil, bone broth, offal, shellfish etc.

8ea784171b2d15cffb537349b341b806

(260)

on September 04, 2012
at 01:57 AM

Ok I'll try that out. Only problem is that I've been paleo for awhile (2007) and this problem started happening in 2009, getting noticeably worse in the past two years. So no clue why it would still occur while eating so healthy, but I'll give it a shot.

2
24d0edb7fad5b4d19468b4ccdcefe062

on September 20, 2012
at 02:12 AM

Hi Joe,

I'm in the same challenging situation and it is quite frustrating! Been exploring paleo and SIBO but without the ability to consume much fat haven't had much luck. I take domepridone and recently xifaxan. Bone broth is a staple in my diet but so are some grains and carbs. Still willing to experiment though and not giving up. I have a website you might find helpful at www.journeywithgp.com. Also, because of others who have shared similar frustrations I'm starting a private support group via FB soon. Contact me through the blog if interested, would love to connect!

Stephanie

8ea784171b2d15cffb537349b341b806

(260)

on September 21, 2012
at 01:46 AM

My stomach is still nowhere near normal, but it's better than before. It's still a daily struggle to eat enough to gain weight, especially since I cannot work out yet, but it's been going up slowly. I've even experimented and has some fast food and find that I tolerate it just fine, which is weird but good to know. I've had it twice on days where I struggle ALOT, but that's few and far between. I'm of the opinion that you have to experiment because everyone is different, a blanket paleo + SIBO diet will not work for everyone. Are there any foods in particular that really give you trouble?

8ea784171b2d15cffb537349b341b806

(260)

on September 21, 2012
at 01:43 AM

How has xifaxan been working for you? I tried it but it didn't do anything for me. I've checked out your website before and it's very informative! What kind of grains and carbs do you eat? I tried VLC but it didn't work. Honestly, once I started supplementing with Betaine HCL my stomach got well enough to allow me to eat carbs again. I've been able to eat potatoes for dinner again, and have even been having oatmeal several times a week and can tolerate gelato, so I've been able to gain some weight back (currently 125.4lbs this morning). I can even tolerate a good amount of fat now.

2a17904e3436c49530e5bedaeb06dd5b

(80)

on October 14, 2012
at 01:35 PM

Stephanie, I would love to get into the facebook group. I just posted today for advice on my new diagnosis of SIBO (which I had suspected I had for almost a year now...)

0
68f554e3775757fcd5073825e729d3f8

on November 19, 2012
at 05:02 AM

Joe, I'm having the same problem... I've been fighting sibo for awhile and I just don't know wtf to do . I was at 148 now dropped to 124lbs...I would love to hear from you somehow and share my battles with you. By the way, My name is Johnny lee and I'm 28 yrs. old. Lets find a way to talk and beat through this.

If anyone else is suffering... I would encourage the same. Find a way to communicate more directly. .. God bless and hope to hear from someone soon

0
F92e4ca55291c3f3096a3d4d3d854986

(11698)

on September 04, 2012
at 02:13 AM

I'm not a big advocate of drugs but I will say that domperidone works great for gastroparesis. Used it myself for a while. However if you're in the US, I don't believe it's available there.

8ea784171b2d15cffb537349b341b806

(260)

on September 04, 2012
at 03:18 AM

Huh, it definitely might be if you experienced increased hunger. I'll get in touch with my GI doc and see what he can do, thanks!

8ea784171b2d15cffb537349b341b806

(260)

on September 04, 2012
at 02:23 AM

I actually was going to get this, but my GI doc said my gastroparesis is not bad enough....as if losing 20lbs+ in six months is not bad, riiiiiight. I would have to get it from a pharmacy in Canada, but after seeing what Reglan did to me (nasty anxiety attacks), I'm not too amped up to try Domperidone.

F92e4ca55291c3f3096a3d4d3d854986

(11698)

on September 04, 2012
at 02:49 AM

I had zero side effects on domperidone, and I'm pretty sensitive to drugs. All I noticed was that I got hungrier sooner after meals. Might be worth a try.

E621ee733a15442e039d0945dabe0411

(115)

on January 20, 2013
at 12:41 PM

Domperidone didnt mess me up as bad as Reglan (Reglan gave me insane anxiety too) but it still made me feel pretty nuts, so I understand your hesitation. My dr is giving me erythromycin three times a day for this and it does help the specifically gastropereisis related symptoms some, but I'm worried its hurting other things so I'm not sure I'd recomend it, but its something to ask your dr about. I am also still very sick doing strict paleo and no fodmaps so if you find an answer to your symptoms please let me know. I hope something works for you :-)

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