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Ankylosing Spondylitis and fermented foods and/or probiotics

Answered on August 19, 2014
Created June 30, 2013 at 4:26 PM

I've been paleo a long time, 8 years at least. I first went mostly-paleo when I was diagnosed with Ankylosing Spondylitis (B27 positive) and was in the midst of a painful flare. It took a while, but eventually the flare went away. I decided at the time that it was due to gluten and I didn't really have AS. My doctor set me straight recently.

However, 7 years later I'm still Paleo, stricter than ever, and I had another flare when I started taking a probiotic. It took me a while to figure out it was related to the the probiotics, but when I drank kefir (as an experiment) and the pain flared even worse, I figured it out. I tried switching to a different probiotic, but had the same results.

About a month of strict eating and no fermented foods or probiotics, I got the pain to a manageable state, but with residual sacral ileitis (as seen on xray).

So, since I'm always struggling to lose weight, I thought I might give resistant starch a try and began to take some potato starch in the morning and evening and BOOM! The AS flared up again. Then I remembered the AS diet was a no-starch diet... oops. Well, I figured I might as well press my luck and try kefir with the RS (resistant starch) and see what happens. Yeah... it got worse.

My question is this. If my AS is due to a leaky gut which it sure seems like it is, how do I heal that leaky gut without flaring my AS? I'm sure I'm on my own for any non-standard medical treatment, unless you know of any forward thinking doctors in the San Diego/So. CA area.

Thanks for any help!

94401dfe2f2229a8da7037fe76fe61d3

(15)

on July 02, 2013
at 02:02 PM

Yes, I've been very strictly gluten free for 8 years or so. I'm not 100% dairy free, but don't use much. Butter and a bit of cream in one coffee per day. I have had 100% dairy free periods. Thanks for the glutamine suggestion, I'll try it. Right now fermented foods are causing my AS to flare. I don't want to aggravate any more than the probiotics and prebiotics already did. I'll check with the Rhuematologist about LDN. I assume you mean low-dose naltrexone.

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6 Answers

1
D33a8d5f095a8532ddf7a0d6c27bfe63

(578)

on July 01, 2013
at 03:07 AM

First, it's not clear from your post whether you're gluten-free. Are you? Second, are you dairy free? Egg white free? Perhaps nightshade free? Not all of them may be helpful but I don't know of anyone who's not helped by going dairy-free. That would be my recommendation.

As far as your reaction to starch, I can't help you here much. But those who believe in SCD feel that the polysaccarhides are an issue. Personally, I never felt that they worsen your leaky gut.

To heal your leaky gut, I recommend the following: take some L-Glutamine 5-15g per day. That is supposed to help repair your leaky gut. Eat some fermented foods or beverages like kombucha or sauerkraut. Take some immunoglobulins. Avoiding the above foods can also be helpful, I believe, as those are the foods that leak once gluten gets out.

Then, if all else fails, you have the nuclear option. LDN. It works for about 75% of people and I've seen people go into complete remission.

94401dfe2f2229a8da7037fe76fe61d3

(15)

on July 02, 2013
at 02:02 PM

Yes, I've been very strictly gluten free for 8 years or so. I'm not 100% dairy free, but don't use much. Butter and a bit of cream in one coffee per day. I have had 100% dairy free periods. Thanks for the glutamine suggestion, I'll try it. Right now fermented foods are causing my AS to flare. I don't want to aggravate any more than the probiotics and prebiotics already did. I'll check with the Rhuematologist about LDN. I assume you mean low-dose naltrexone.

0
9c6edca5369b6e86f6709043c480b9c2

on October 18, 2013
at 05:31 AM

I have AS and for a few years have experimented with my diet, first no starch/no dairy. And recently I switched to no fruit or sugar, no gluten, soy, nuts, corn, and no GMO's . But I can eat starch! Gluten free starch, like rice. I'm so happy. No starch was so hard. But of course, now it's hard to live without sugar. I'm going to try probiotics to see if it enables me to eat sugar. But I will try probiotics without FOS or dairy. I think that FOS also helps our enemy bacteria (klebsiella p.) to grow. I think that either candida or klebsiella overgrowth gets me. Ive felt better with inner co coconut probiotics ( contains no FOS or dairy) that I get at Whole Foods. It helps me keep iritis and acne at bay, but its expensive and I have drink lots of it. The probiotics I'm considering next are Custom Probiotics or HLC Intensive Capsules by Pharmax. Hope this info helps. @NancyM @Humatarian

0
9c6edca5369b6e86f6709043c480b9c2

on October 18, 2013
at 05:30 AM

I have AS and for a few years have experimented with my diet, first no starch/no dairy. And recently I switched to no fruit or sugar, no gluten, soy, nuts, corn, and no GMO's . But I can eat starch! Gluten free starch, like rice. I'm so happy. No starch was so hard. But of course, now it's hard to live without sugar. I'm going to try probiotics to see if it enables me to eat sugar. But I will try probiotics without FOS or dairy. I think that FOS also helps our enemy bacteria (klebsiella p.) to grow. I think that either candida or klebsiella overgrowth gets me. Ive felt better with inner co coconut probiotics ( contains no FOS or dairy) that I get at Whole Foods. It helps me keep iritis and acne at bay, but its expensive and I have drink lots of it. The probiotics I'm considering next are Custom Probiotics or HLC Intensive Capsules by Pharmax. Hope this info helps. @NancyM @Humatarian

0
67871ef2326f29da48f1522827fc0f80

(704)

on July 18, 2013
at 06:54 PM

I have autoimmune (a few) and when I intake dairy, I react immediately. Different dairy affects differently (whole milk, terribly; skim milk, some; isolated whey protein, VIOLENTLY, etc.). The reaction happens systemically and also GI (depending on what was consumed, some only mildly bother my gut -- nausea, bloating, NOT diarrhea, that's not my bag). I'll get fevers, swelling, joint pain and my face will explode (cystic acne; papules, pustules).

I'd get off the dairy already! That said, notice I say 'when I eat dairy.' I'm not perfect. I sometimes just really want frozen custard or some cheddar. I pay.

I avoid citrus, nightshades, garlic (pity, my favorite flavor in the world and it will mess me up very badly), most raw veg and the laundry list of foods that were proven triggers through years of doctor-supervised elimination testing.

I do well eating raw, fermented sauerkraut but supplement that with pill probiotics (and 2 T raw, unfiltered apple cidre vinaigre daily as 'pre'biotic).

0
E21191687e147515bf2757beb32dd6d7

on July 18, 2013
at 06:46 PM

Hi,

I don't know anything about AS but I have done some reading on leaky gut being related in many cases (maybe all, I'm not sure) to Candida or SIBO (small intestinal bacterial overgrowth).

This website has been a wealth of information and hopefully can lead you towards a solution http://www.thecandidadiet.com/forum/ The search function is below and does provide a number of hits for AS http://www.thecandidadiet.com/forum/yaf_search.aspx#0|5

All the best with your healing!

0
576dc803ed0dfa3616509e20f515d070

on July 04, 2013
at 05:12 PM

It is interesting why probiotics should cause problems with the Ankylosing Spondylitis because i thought the problem was with the Klebsiella bacteria, which shouldn't be in any probiotic i would of thought.

I know you will know this already but i thought the problem was with molecular mimicry specific to Klebsiella so it is strange why probiotics should also bring symptoms on. Actually, thinking about it, maybe the probiotics are just increasing gut permeability allowing the Klesiella through, however it works.

Not sure if you have ever seen this blog before Chrohn's Carnivore but if you haven't it is intriguing stuff and the guy seems to have cured himself, although using quite extreme measures though, by effectively starving the Klebsiella. Although it's about Chrohn's it is relevant due to the connection between the two and Klebsiella.

I think i remember he talked about having problems with something like brussels sprouts and maybe veg in general, basically strong prebiotics, so maybe it isn't just starch causing the problems.

As the person above me says for the gut to heal maybe you have to try to work out what is causing it to become permeable in the first place, no matter what supplements etc you take, which is obviously easier said than done considering the amount of things it could be. Lectins being in all the above mentioned food sources but then there are other things like different kinds of sensitivities, salicylates etc.

Btw i don't know if i have Ankylosing Spondylitis myself or not, i looked into it for a while due to nagging Si pain i have but i need to get a diagnosis one way or the other, so i hope you don't mind my input.

I know i have never worked out what is wrong with my guts and what the specific triggers are for my own problems and i end up moving from one thing to the other but at least you know starch is a trigger and there is definitely something up with your gut flora etc so you should be there soon i would of thought. Good luck with the healing.

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