hi, any have some advice. I got a problem speaking at age 16, diagnosed at 21 with larynx dystonia, botox treatment with bad reactions for last 10 years, changed specialist for 2nd oppinion, was told they think they miss diagnosed me! and i have sever vocal tension made worse by post nasal drip, really bad dehydration and suspected silent reflux. ive had some speech therapy, they got me to change my diet cuting out as much dairy, acidic foods, chocolate, ive swapped crisps for snack a jacks, i only drink water 2 litres a day, i now do 3 steam inhalations a day for 10 mins, neck+voice exercises. I used to wake up like i had a hang over every day, eyes popping, head really sore, nose bone dry and when i began to drink in the morning then my nose would begin to pop and i would get huge chunks of clear jelly down my throat and into my mouth. since starting the steams my dehydration has improved some, but its still bad, im still very dehydrated in the morning, i dont get the chunks of clear jelly but from the second i wake stuff is running down my throat and have a really sticky mouth. im drinking through the day even tho i have no thirst, my tumy is always swishing with water. if i miss a steam, or dont drink 2 litres or the weather is hot i get really dehydrated so fast and if it gets too bad i then get nasal pressure. I see it as a vicious circle, the pnd is affecting the silent reflux, the silent reflux is affecting the pnd and dehydration and the dehydration is affecting the silent reflux and pnd! and all 3 are affecting the vocal tension! I asked my doctor for blood tests for dehydration and basic food alergy tests, he gave me test for dehydration which im awaiting the results and told me as i was under ent i had to ask them for the food allergy tests!, i then asked ent my speech therapist and she said my doctor had to authorise them! when i had the dehydration tests i took a funny turn afterwards, they took my blood pressure and said it was low, i think i have low pressure anyway+ when googled it i found out dehydration is linked to low blood pressure. My question is, i now have to go back to the doctor to ask for allergy tests, but as they dont seem to know what they are doing could someone please tell me what specifically i have to ask for. do i ask for skin prick tests, or just blood tests, i think theres a basic alery test for all allergies, whats that called? is that skin test or blood? ( as i do get hay fever, although still have pnd in winter too) then i researched and was gona ask for food allergy tests for gluten, wheat, corn, rice, oats, soy, ghee, dairy, is there anything else ( i eat a lot of potato , should i ask for that? also when i ask for dairy does that include egg?) do i just ask for food allergy tests and state the above things? again is that for skin test or blood test if all the tests, allergies and dehydration come back negative ive requested i be given a trail period on PPi's, i read that if you have silent reflux then you should take the PPis twice a day, is that right?
asked bybob_24 (10)
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on August 23, 2013
at 10:58 AM
"I eat a lot of bread and most days have ham sandwich without butter..."
Stop eating bread. & another thing, stop eating bread.
Give up all products which contain grains (bread, pastry, noodles, pasta, check labels for wheat, other grains & gluten).
You may be fine with white rice & white rice products, some people 'disallow' rice under the paleo banner. I am not opposed to white rice myself, & it is one my main carb sources (along with spuds). I'll also eat rice vermicelli (noodles) now again, as long as the ingredients are just rice & water.
Bread is also low in water content compared with real/natural foods and boiled/steamed white rice, so that will not be helping with your hydration.
"...i had to drink vodka based products, as if i drank lager the affects would be much worse..."
This sentence made me think you may have issues with gluten....again, give up grains & grain products.
on August 23, 2013
at 03:36 PM
Bob, get rid of the bread. Right now. I have had quite a lot of very bad acid and even bile reflux which didn't go away until I took out both grains and cow's dairy. Later I found I could do non-cow dairy (goat cheese, buffalo, sheep, etc.)
But the reflux didn't go away until I took out the things causing it, and you might not know what they are.
One thing that has helped is a shot of olive oil or coconut oil before eating things that might get stuck in my esophagus. The reflux can damage the lining, making foods get stuck, or hard to swallow. You can also slowly try to increase your intake of fats, which will lower your need for calories from carbs and protein.
Also, did you have your gall bladder removed by some chance? If so, you'll need digestive enzymes that contain ox-bile. This is typical of celiacs - having reflux, removal of gall bladder. Not sure about the PND.
Sometimes the problem is too little stomach acid, either from H. Pylori, or because mineral absorption from food is poor because of low stomach acid, or antacids, PPI inhibitors, etc. Digestive enzymes with betaine-HCL before meals helps here. But make sure you can swallow the pills. I've had episodes where a pill or two gets stuck in the esophagus and then causes further damage since it is acidic. So consuming a bit of some fat right before can help the lining.
I don't know about the nasal drip, that certainly will make the reflux worse, but perhaps it's also caused by what you eat - certainly dairy can cause this type of reaction.
Butter is typically not problematic for most, though some who highly react to dairy will react to butter also - the reason is that allergies are to the proteins and butter contains very little. You can try ghee which is a slowly heated butter, with the solids skimmed out, so almost no protein remains - you can buy it in Indian stores, or make it yourself - google for instructions.
on August 21, 2013
at 11:14 PM
Eat veggies, meat, fish, some fruit and nuts. Drink clean filtered water. Irrigate your sinus a few times a day as needed. Do this for several months and see how you feel.
I went from a sinus wreck to someone who pays almost no attention to it anymore.
on August 19, 2013
at 01:30 AM
get checked for vitamin d level, thyroid issues and celiac too, please. The food allergy tests for IgE are sensitive and specific but the intolerance tests (IgG) are not terribly reliable. The celiac tests aren't perfect either. You pretty much have to eliminate and then challenge. Also some of these intolerances are temporary and you can add a problematic food back after awhile if you've addressed the true issue causing the inflammation and "leaky gut" (intestinal impermeability).
Dairy tests would be for whey and casein (cow milk proteins). Egg is a separate set of tests, one for yolk and the other for egg white. Eggs are hard to challenge. Some people do ok with eggs in baked goods, but not not otherwise, for example.
Have you tried digestive enzymes? These are more likely to help than a PPI. http://chriskresser.com/paleo-diet-challenges-solutions-ii-its-all-about-the-gut
on August 18, 2013
at 11:15 AM
Its my first time using the site and had thought i would be able to edit after i posted, hopefully this is a bit easier to read.
Anyone have some advice. I got a problem speaking at age 16, diagnosed at 21 with larynx dystonia, botox treatment with bad reactions for last 10 years, changed specialist for 2nd opinion, was told they think they miss diagnosed me! and i have sever vocal tension made worse by post nasal drip, really bad dehydration and suspected silent reflux.
since being told i have vocal tension ive had some speech therapy, they got me to change my diet cuting out as much dairy, acidic foods, chocolate, ive swapped crisps for snack a jacks, i only drink water 2 litres a day, i now do 3 steam inhalations a day for 10 mins, neck+voice exercises. I used to wake up like i had a hang over every day, eyes popping, head really sore, nose bone dry and when i began to drink in the morning then my nose would begin to pop and i would get huge chunks of clear jelly down my throat and into my mouth. since starting the steams my dehydration has improved some, but its still bad,
im still very dehydrated in the morning, i dont get the chunks of clear jelly but from the second i wake stuff is running down my throat and have a really sticky mouth. im drinking through the day even tho i have no thirst, my tummy is always swishing with water. if i miss a steam, or dont drink 2 litres or the weather is hot i get really dehydrated so fast and if it gets too bad i then get nasal pressure.
I see it as a vicious circle, the pnd is affecting the silent reflux, the silent reflux is affecting the PND and dehydration and the dehydration is affecting the silent reflux and PND! and all 3 are affecting the vocal tension!
I asked my doctor for blood tests for dehydration and basic food alergy tests, he gave me test for dehydration which im awaiting the results for and told me as i was under ENT i had to ask them for the food allergy tests!, i then asked ENT my speech therapist and she said my doctor had to authorise them!
when i had the dehydration tests i took a funny turn afterwards, they took my blood pressure and said it was low, i think i have low pressure anyway+ when googled it i found out dehydration is linked to low blood pressure.
My question is, i now have to go back to the doctor to ask for allergy tests, but as they don't seem to know what they are doing could someone please tell me what specifically i have to ask for.
Do i ask for skin prick tests, or just blood tests, i think there's a basic allergy test for all allergies, whats that called? is that skin test or blood? ( as i do get hay fever, although still have PND in winter too) then i researched and was going to ask for food allergy tests for gluten, wheat, corn, rice, oats, soy, ghee, dairy, is there anything else ( i eat a lot of potato , should i ask for that? also when i ask for dairy does that include egg?) do i just ask for food allergy tests and state the above things? again is that for skin test or blood test.
if all the tests, allergies and dehydration come back negative ive requested i be given a trail period on PPi's, i read that if you have silent reflux then you should take the PPis twice a day, is that right?
thanks for any help
on August 30, 2013
at 09:27 PM
Here's another book that is worth a look. I had forgotten about it.
Fast Track Digestion : Heartburn is the title.
He basically divides foods into categories of starches and helps you determine how much of which starches you can tolerate. (After you get things under control, you can gradually increase your tolerance - slowly).
He responds to comments on his blog.
Here's one comment that may interest you:
Norm Robillard says: March 10, 2013 at 4:31 am Hi Derek, I have worked with many people with LPR. The general approach is the same with regard to diet. However, the fact that the damage is more related to acidic vapors affecting the upper esophagus and delicate voice box, symptoms tend to take longer to improve – weeks to months instead of days for heartburn.
on August 24, 2013
at 06:14 PM
The vinegar sounds fine to me, the main thing you need out of it is acidity. It may say something like 5% on the bottle. If it has good flavor too, that's all to the good.
The celiac tests are completely different. You've asked for IgE tests for classic allergies. The celiac tests tend to look at IgA and also something called tTG.
"There is a particular series of blood tests called the ‘Celiac Panel”. These tests measure your immune system’s response to gluten in the food you eat.
tTG-IgA or tissue transglutaminase-IgA AGA-IgG or Antigliadin IgG AGA-IgA or Antigliadin IGA Total IGA
The presence of tTG antibodies is highly suggestive of CD, while AGA can be elevated also in cases of wheat allergy." http://www.celiaccenter.org/faq.asp#blood
also read this: http://celiacdisease.about.com/od/diagnosingceliacdisease/a/Celiac-Blood-Tests.htm It suggests one more test.
Do you really need this? I don't know - Be sure to fill this sheet out. Get a female relative to help you; they tend to know who has what in the family. http://www.southernarizonaceliacsupport.org/disease/symptomchecksheet.pdf It may help your doc decide if you should be tested for celiac. Or Coeliac as it is spelled in the UK.
If the vinegar seems to help, then there's nothing wrong with trying almost anything, including tomatoes, tomato sauce, citrus. The main thing is to try to keep records of what you ate, how you felt afterwards and how you felt the next day, don't try too many things at once, and keep in mind that most food intolerances are temporary. Some are permanent. Gluten and casein (the protein in dairy) are generally permanent. Food allergies in adults tend to permanent, kids sometimes grow out of them. Allergies are the IgE reactions.
I've never heard of an IgE test for ghee, because it is pure fat, but let me know if it does.
To recap, the IgE tests are for allergy and those are probably permanent in adults. Ignoring them, ie continuing to eat foods that you are allergic too, can lead to the allergy getting worse and worse and then you can end up in the emergency room with anaphalactic shock. (IgE = Emergency)
IgA tests for intolerance. These are often temporary. You avoid the problematic food for several weeks or months and then can often re-introduce it successfully. Gluten and casein, however, tend to be permanent. (IgA = Avoid)
The IgE tests tend to be accurate. The IgA tests tend to have false positives. For intolerances, you need to eliminate and challenge to confirm. In other words, you remove the foods for awhile and then carefully test them to see if they can come back into your diet. You can repeat this process every 3-6 months if you like. Dr. Joneca's book will have the details on how to do this.
With luck, the vinegar will help you digest all sorts of foods better. I don't think you are being delusional; it is a big project, why not hope for a good outcome!
on August 24, 2013
at 09:24 AM
Ive ordered the book from amazon, am going to try buy some apple cider vinegar, some epsom salt lotion and the vit D
ive asked the dr for the following igE tests ( which i wont hear for 2 weeks if i can have)
Barely, buckwheat,corn, gluten, oat, rice, rye, ghee, sesame, soy bean, wheat, yeast (bakers), yeast brewers, lentil, cane sugar, cheese,milk, whey,casein, yoghurt,egg white, egg yolk,coco, chocolate,potato,
They are both foods i think i have a problem with and foods im still eating now,or ingredients which i think could be in food i eat or might eat, there are other foods like tomatoes and onions, oranges i didnt put on the list as number 1, i know they make my acid bad and number 2 i didnt want to make the list too long as im already having trouble getting the tests from the dr.
If i have the above igE tests, do i still need to get the celiac test? does the celiac test, test for more than the ige? i just need to be clear as if my doctor does give me the above igE tests and the celiac test is something completely different i might have to go private for that!
the tuna i used to eat, was tinned, i think in sunflower oil, i never looked at the tin for what else was in it.
one last thing, i love tomato sauce , is that bad for acid reflux? for some reason i thought it might be ok even though i know tomatoes are bad for my acid! but maybe thats me being Delusional! or wishful thinking!!!.
Thanks again Hope everyone has a nice weekend - one last thing, saw some apple cider vinegar, it says Organic cider vinegar, Oat matured. Unpasteurised - not heat treated thus preserving its valuable enzymes and full flavour. is that ok to get????
on August 23, 2013
at 11:05 PM
Just for now, until you have more information, assume the causation goes like this:
Eating X food(s), that you digest poorly, causes insufficient stomach acid or improper timing of stomach acid, which leads to silent acid reflux that is showing up as post nasal drip, which is causing at least some of the dehydration and and is stressing your vocal cords.
Now, this may not be exactly right, but it gives you a way to think about the problem and you can adjust it as you learn more. The main point is that you want to focus your efforts early in in the problem chain rather than towards the end.
Next, I tend to believe that reflux is actually caused by insufficient stomach acid for most people. This post explains - acid. http://chriskresser.com/what-everybody-ought-to-know-but-doesnt-about-heartburn-gerd
I often point to Kresser's blog because he will try to point you toward actual research, not just opinion, and he explain things clearly.
One thing that might help with the dehydration is Epsom Salt baths. Inexpensive, easy to try, little risk. You could also try Epsom lotion on days that a bath is inconvenient. To be a little low on magnesium is very common. But I wouldn't bother with magnesium supplements just yet; too many variables and expense.
The Joneca book will talk about the differences in scrambled and fried eggs, etc - all the details.
When you made the list of foods you wanted to test for, are those foods you eat now or those you avoid because you feel they cause problems. You may want to test for both groups.
When you eat tuna is it fresh or canned? If canned, are there any ingredients other than fish, water, salt or oil? What sort of oil? Any soy? Variables!
The vitamin D may help with the chest tightness; can't hurt.
With your family medical history, you really, really need to test for celiac. If you have an autoimmune condition, it is better to know it and have it formally documented, particularly the way your health system is set up.
Don't drop bread or wheat until you've done all the testing. This is very important. But start saying goodbye, because it is almost certainly going to go and permanently. Your experiences with lager is a big clue among many things that you mentioned. Your experience with tuna is just the reflux/PND issue showing up.
I am very glad to hear that you do some cooking; that's a huge help.
The main things you can do now are to try the vinegar, to see if that helps you digest things better. Start the D and magnesium and work on getting the tests for celiac, etc. Get the allergy book because it will help you think about what you CAN eat while you sort this all out. Start trying out some new meals and keeping some food records.
I think you should skip the neti pot, the steams are much better.
The suggestions to try more fats and to try ghee are great. It would be interesting to see how you do with mince, jacket potato (baked potato) and ghee (and the vinegar with all meals). Or cooked rice instead of potato. Or just a meal of mince and salt. Boring, but minimal variables.
Let us know how to goes when you add vinegar or lemon juice pre-meal. And the results of the liver test will be interesting too. Please add to this thread, I don't generally check all of PaleoHacks.
on August 23, 2013
at 09:12 AM
Thats the thing i dont understand, when i say i had dehydration blood tests, i asked for liver function, kidney function, diabetes, chemical imbalance/electrolytes, urine analysis, and then i said "and anything else you can thing of that might be causing me to be dehydrated.
Im not sure if they actually tested me to see if i was dehydrated, more to see if there was something they could detect that might cause dehydration, so im believing i still could be dehydrated? As i definately still feel so! and its the PND or silent reflux making me so?
I have asked for a copy of the results be sent to me so I can check what they tested for!
I do drink 2 litres a day of spring still water, and do 3 steams, but if i drink under the 2 litres, or i miss my steams, or the weather is hot then i find i get a lot more dehydrated really quickly. Also it only works if i continuously sip throughout the day, it doesnt work if i down a lot of water.
Ive also noticed that if i do anything physical i get dehydrated really quickly even if i still have the 2 litres of water and do the steams.
During a typical day, i wake up feeling rough, my eyes feel heavy and slightly sore, my mouth is slightly sticky, my nose is bone dry, the second i wake up i can feel stuff going dow the back of my nose, and also when i wake up my stomach acid is jumping around, i can feel it.
when i begin to drink water, i feel slightly better, but for the whole day i just feel yuck, i feel dehydrated, i never have a sense of smell, my nose is always bone dry even though i have PND, i feel lethargic,
if i dont drink enough or do the steams, i go from dehydrated to really dehydrated, can can feel it come on really fast, my nose feels worse, my throat gets bone dry/really sticky and my speech seems to slow up, then the next morning my eyes will be popping, nose bone dry, when i drink i will hear my ears pop, then my nose, then lots of big clear jelly chunks will come down my throat from nose, sometimes it causes me nasal pressure and when i blow my nose i can feel big bits of jelly pulled from my cheek!, its awful!
I feel during the day i keep the really bad dehydration at bay with my drinking and steams, but i am still dehydrated, and then when i sleep because i cant steam or drink, it gets a lot worse, thats why i feel so bad in the mornings, and wondered because of this if it could be the silent reflux?
I dont feel like food dehydrates me, or when i eat i havent noticed it do so, even though it might! for a few years i have thought i might have IBS, as sometimes i will eat, and then within 5-10 mins, i feel bloated and then i get an unbelievable crippling pain!, this only happens with some foods, i used to like spicy foods, but now i know they bring the pain on, i also know the yolk of a fried egg does the same, but if i have a yolk in scrambled egg it doesnt seem to! theres probably other foods but i havent singles them out.
I know tomatoes and onions seem to give me acid reflux, if i have soup it keeps coming back into my mouth, i dont know why but tuna gives me a sore throat sometimes really bad like its bruised so bad i have to sleep to let the pain go!
any Dairy food seems to get stuck in my throat and im just clearing my throat for quite a while afterwards, the same happens with fried food and chocolate, and crisps.
I tried having fruit, i cant have oranges as they cause acid, so i tried banana, i feel like it gets stuck in my pipe on the wake down and just makes me feel sick, not like im going to be sick, just a sick feeling, I also tried melon, but feel like its brings on acid, but dont know why! i like pineapple but dont feel like that agrees with me either!
I eat a lot of bread and most days have ham sandwich without butter, and a pack of rice cake crisps, i often feel like the bread gets stuck on the way down and stays there for quite a while.
Are the apple cider vinegar or lemon juice acidic? if they are wont they make my silent reflux worse? Im willing to give them a go! I seem to have the PND worse in the morning, and then it slows up but is there all day, doesnt seem to get worse again till the morning again.
Thanks for the link to the food allergy book, i think i do need to get something like this, i have very little knowledge, as although i think i have had PND, silent reflux and dehydration, its only been recently ive been told that what they think my problem is, for 15 years i thought it was the larynx dystonia and the symptoms i had were just a by product of that!
Yeah will probably hold off on the 2nd opinion for speech therapist, until ive had the allergy tests, tried the vinegar/lemon juice, ive also been told if my vocal tension doesnt improve i can have a trial back on the botox injected into my throat, but apparently they inject in a different place this time, to see if that helps with the vocal tension
I had asthma up until i was about 14, then they said i grew out of it, but my chest still gets tight on cold mornings.i also get bad hay fever, My gran has really bad arthritis but i dont know what type, she has it in most of her body, she also has T1 diabetes? Actually her daughter/my aunt has some muscle problem too, but im not sure what, im sure its some kind of immune problem.
I sort of cook, i try to stay away from processed foods as much as possible.
Also forgot, i dont drink alcohol any more as when i did, it would make me feel so dehydrated and awful and make my throat really sluggish, all the symptoms would last 3- 5 days before i was back to normal.
another thing is if i eat fish i can taste it for 2 days afterwards but the taste seems to be coming from my nose! does that mean anything?
I was considering buying a neti pot, are they a good idea? will they help with post nasal drip? how many times a day should you use them?
Also forgot, my nose feels so bone dry it feels like only half of one nostril is allowing air through, sometimes its the right, sometimes the left, i can never breath properly through both, this does affect my breathing as i only like breathing through my nose.
Also also forgot..... to say, years ago when i did used to drink alcohol, i had to drink vodka based products, as if i drank lager the affects would be much worse, it was still bad with vodka, but less then larger.
anyway, thanks again for your help, have a nice day.
on August 21, 2013
at 10:18 PM
So the good news is that you are not dehydrated because you're drinking lots of water and now you need to wait for the doctor? That all sounds very frustrating, but you will have some time to research before your next appointment.
When I've read about vinegar, it seems to be mostly apple cider vinegar that is mentioned. But I've also read that lemon juice can work so it is the acidity that matters. About 1 tablespoon in about 1 ounce of water, 10-20 minutes before the meal. It will be interesting to see if this helps you; at least it is not expensive to try. If you have PND after every meal, then take it every meal. Definitely at dinner, based on how you describe feeling in the morning.
Even if you have the allergy tests, you still need to remove foods and then add them back, ie, "challenge" them because the tests can give lots of false positives. So you may want to read about and plan a diet you can try for about a month that will be very minimal. A classic is lamb, rice and pears, and very little else because these foods are less likely to be allergenic. You can do quite a lot of this sort of testing on your own, without spending a lot.
Are there any foods that you suspect or have a feeling about? Have you noticed any trends at all such as you tend to feel worse after the weekends, or anything like that? For example, if you didn't have PND after breakfast, then breakfast foods are less likely to be on your suspect list. You can start keeping a record of what you are eating, that may help the doc.
http://www.amazon.com/Dealing-Food-Allergies-Practical-Detecting/dp/092352164X/ref=pd_sim_b_4 is a great book for food allergies and intolerances. It has lots of practical details and explicit how to challenge instructions. She has a helpful website and you can start there: http://www.allergynutrition.com/
One thing you do need to spend on - a vitamin D supplement. Try for 4000 to 5000 iu a day and take it in the morning. Try a drop form instead of tablets. Another inexpensive supplement you could try is vitamin B12. A sublingual (under the tongue) version or drops to put under the tongue, would be a good choice for you.
If you are ready to get going and make some progress, you can go ahead and try 1 week without dairy (absolutely none!) and see how you feel. You're very close to this already, but sometimes even very small amounts can keep you feeling miserable. You can also try moving all the wheat in your diet to one meal a day, like only at lunch. Basically, you need to start thinking of all the foods in your life as variables and think of ways that you can control the variables so that you can spot patterns. This is temporary, you won't be doing this forever; but the investment in time can really pay off in terms of health and quality of life improvements.
Do not remove wheat completely until you know about any testing to be done.
You did not ask my opinion on this point, but I would wait on the 2nd opinion on the speech therapist.
Do you have any other health issues? Any hearing loss? Are there any autoimmune diseases in your family, such as rheumatoid arthritis or T1 diabetes?
Do you cook?
That's all for now; keep the questions coming and congrats to you for taking control of your health.
on August 21, 2013
at 03:01 PM
Hi, Thanks for the advice, yeah , sorry my first post was a lot longer than i thought, once i got tying! im in the Uk, i came across this website when i googled Post nasal drip.
I got my dehydration blood tests back, all i was told was they were normal, i have asked for a copy of them so i can check what exactly they tested for! just to check they tested for everything i wanted done.
I havent cut dairy out completely, when my speech therapist said i had sever vocal tension and it was being caused by PND, dehydration ,silent reflux+anxiety, she said we would start with changing my diet, i try to have very little dairy, non if possible, i only drink still water- 2 litres a day, i dont have caffine or chocolate, i swapped chocolate bars for breakfast bars, i dont eat crisps now, i have rice cakes, i try to stay away from fried food or fatty food,acidic and spicy foods, thats all i was told. and to do 3 steam inhalations a day combined with the voice and neck exercises.
im having to push with everything as although ive improved its been very little, so i did some researc and found out about blood tests to see if theres a cause for being dehydrated which they gave me and are clear.
I then read if you have PND you could have food allergies and you should try and have food allergy tests, this is the stumbling block as i dont think the doctors wants to give them to me, my speech therapist said get the dr to organise them, the doctor then said get the speech therapist to do it, ive been back to speech therapy and she says she cant do it go back to the doctor! ive been back to him and he is now on holiday for 2 weeks and no one else will sanction them so i have to wait! and he could still say no!
My speech therapist gives me very little advice, she said if the dehydration doesnt improve ( which it hasnt ) then ask the doctor for a trial on PPi's to see if it helps with the silent reflux , didnt say for how long or that theres side effects and what they would be! or that you shouldnt be on them long term. i just really dont know what to do or who to ask for help.
Im also not happy with my speech therapy, after 4 sessions i was told i had picked up the technique and i had to now go for psychology to work on my anxiety about speaking, but i dont feel like i have picked it up, i feel no more comfortable speaking than when i began, i still really struggle with back ground noise, my voice strains and gives way. I have the vocal tension when im not anxious as well so surely its not all down to vocal tension?! i just seem to not be able to get any power into normal speaking even though i can get power in shouting one or 2 words, its holding a convo which is hard!
I was thinking of getting a second opinion from a speech therapist, but its so expensive, £100 for the opinion, then £65 per 45 mins for help after wards, and if i have to go private for food allergy tests its £200 for 40 foods.
ill just have to wait till my doctor is back from holiday and see if he will give me the tests and take it from there.
will try vinegar, is that just normal vinegar? and do you have it with every meal?
on August 20, 2013
at 11:49 AM
If the docs are proposing a short term course of PPI (like 2 weeks) that is reasonable to try. But if that is their long term solution; then you really need to keep looking for a cause that you can address, because PPI's long term cause a bunch more problems of their own.
Here's a checklist that will help you decide if a celiac test is called for: http://www.southernarizonaceliacsupport.org/disease/symptomchecksheet.pdf Take this in with you if you think you should be tested.
You need to ask for vitamin D and thyroid tests separately usually.The celiac tests are also separate and are often called a "celiac panel" because it is a set of tests.
It is pretty easy to be low on vitamin D, even if you live in the south, such as Atlanta. You can supplement this on your own, very cheaply. Vitamin D impacts almost everything in your body.
Good luck with your doc visit. You may want to try something like the "Whole 30" which is basically an elimination diet. It takes out all sorts of suspect foods and then you can cautiously try to add things back. (Or perhaps not, if you feel good on no grains, etc, you may just keep on eating Paleo)
I couldn't quite follow your first post, are you off ALL dairy now? All cow's milk products? And when did you start that?
Some people just have a little vinegar with a meal instead of a digestive enzyme; you may want to try that before you spend any cash. Also, you may not need the enzymes forever. For example, if you have a problem with food X, and you avoid it, you may digest everything else just fine.
Let us know how it goes at the doctor's.
on August 19, 2013
at 09:33 AM
Thanks for your help, i will make sure i ask for igE test and not igG, i did a bit more research last night and i was thinking of asking for tests for the following, as they seem to be most things which could be in everything day to day i eat.
Barely, buckwheat,corn, gluten, oat, rice, rye, ghee, sesame, soy bean, wheat, yeast (bakers), yeast brewers, lentil, cane sugar, cheese,milk, whey,casein, yoghurt,egg white, egg yolk,coco, chocolate,potato,
if i asked for the above , would i still have to ask for celiac? I asked for full blood tests which are related to dehydration, would they include thyroid? and vit D? I get the results tomorrow so will ask for a copy to see what they tested me for.
i hadnt even heard of digestive enzymes, the doctors arent really giving me any advice! im willing to try anything.
they said they think the silent reflux is causing the dehydration and post nasal drip, and then the PND is making the silent reflux worse, but it could be the dehydration or PND causing the other 2! so after finding out that there were test for dehydration and food allergy test i could have, i thought its best to see if there is a problem there, then i can try and tackle the silent reflux.
i didnt really know what else to do, the only thing i had read was the PPis would help the acid reflux, which in turn would help with damage to my throat and dehydration, and hopefully the PND
i will try and research digestive enzymes