1

votes

Seeking lupus information

Answered on August 19, 2014
Created August 04, 2011 at 8:46 PM

A very good friend of mine has just been diagnosed with lupus. I looked through the threads on here, and found some scattered information, but would love if anyone has specific info with links to articles I could send her. She has been a vegetarian(lacto-ovo with occasional wild fish) for a long time, eats, imo, way too much soy, sugar, gluten and conventional dairy. I think she's open right now to dietary changes that she hasn't been open to in the past, and feel that this is just the right moment to get her some really great info that I've been trying to give her for years about paleo style eating. Thanks!

34b560c8b9ce660d7839fb7e29d7be89

on August 06, 2011
at 10:38 AM

I think your on the right track, my understanding is that NA's exhibit fairly high rates of genetic homogeneity and while related to Asians have been separate and somewhat distinct for some time now. My reservation has 12 different bands from all over this region and none of them were known for their use of domesticated grains/legumes but instead for wild game and notably salmon.

3c6b4eed18dc57f746755b698426e7c8

(5152)

on August 05, 2011
at 02:25 PM

The difference seems that Asians are used to eating rice for ~8,000 years whereas American Indians do not seem as heavily into rice. And since rice is a grain (tamed grass seeds really), Asians seem adapted whereas American Indians with their primarily corn consuption (or nomadic hunting lifestyle) would not? If so, this seems to be an adaptation based on lifestyle, not racial proximity.

3c6b4eed18dc57f746755b698426e7c8

(5152)

on August 05, 2011
at 02:23 PM

That's interesting. And you're of American Indian ancestry? To the contrary, I've heard that Asians (of course, not American Indians) are relatively immune from gluten sensitivity and Celiac disease. I wonder why that's the case since Asians and American Indians seem closer.

Ed983a42344945b1ff70fd9597a23493

on August 04, 2011
at 11:48 PM

Thanks for the book recommendation! Of course I totally agree with what you said about eating for health, but I know that she would be more likely convinced with specific studies or articles relating specifically to lupus or autoimmune disease in general. I also know that she's already been supplementing with a high quality vitamin d and getting sunlight exposure when possible for a while now.

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5 Answers

3
Aead76beb5fc7b762a6b4ddc234f6051

(15239)

on August 05, 2011
at 01:35 AM

honestly, i might try emailing loren cordain directly. there is a ton of autoimmune + paleo/GF info out there, not all of it good, but he is super on top of the legit stuff and is willing to help. he gave me some great resources when i was looking for specific multiple sclerosis stuff, and even gave me the email for someone he knows personally in colorado who helped me find my neurologist here in boston. hes a great resource, and really responsive. loren.cordain AT colostate DOT edu (his email is listed publicly on the university website which is why i just gave it out like that)

3
Eecc48184707bc26bce631485b5b7e34

on August 04, 2011
at 09:33 PM

I'd give her the jaminet's book and would cull his blog for more info.

For the most part, the the path to health is not disease specific - meaning it's not one way of eating for one thing and another way of eating for something else. What works to prevent illness and maintain optimal health is largely the same from person to person regardless of their issues.

There was just another lupus/vitamin d study published - that would be worth tracking down.

Best, Katherine

Ed983a42344945b1ff70fd9597a23493

on August 04, 2011
at 11:48 PM

Thanks for the book recommendation! Of course I totally agree with what you said about eating for health, but I know that she would be more likely convinced with specific studies or articles relating specifically to lupus or autoimmune disease in general. I also know that she's already been supplementing with a high quality vitamin d and getting sunlight exposure when possible for a while now.

2
34b560c8b9ce660d7839fb7e29d7be89

on August 05, 2011
at 09:27 AM

http://www.scientificamerican.com/article.cfm?id=celiac-disease-insights

Here is an article I read a while back about how Celiac Disease and "leaky gut syndrome" may be linked to autoimmune diseases such as Lupus. My aunt died from the disease and it is somewhat prevalent in this area. I firmly believe from my own experiences that I am gluten intolerant at best and that a lot of the people here (mostly Native American) are similarly, if not out-right Celiacs.

3c6b4eed18dc57f746755b698426e7c8

(5152)

on August 05, 2011
at 02:23 PM

That's interesting. And you're of American Indian ancestry? To the contrary, I've heard that Asians (of course, not American Indians) are relatively immune from gluten sensitivity and Celiac disease. I wonder why that's the case since Asians and American Indians seem closer.

34b560c8b9ce660d7839fb7e29d7be89

on August 06, 2011
at 10:38 AM

I think your on the right track, my understanding is that NA's exhibit fairly high rates of genetic homogeneity and while related to Asians have been separate and somewhat distinct for some time now. My reservation has 12 different bands from all over this region and none of them were known for their use of domesticated grains/legumes but instead for wild game and notably salmon.

3c6b4eed18dc57f746755b698426e7c8

(5152)

on August 05, 2011
at 02:25 PM

The difference seems that Asians are used to eating rice for ~8,000 years whereas American Indians do not seem as heavily into rice. And since rice is a grain (tamed grass seeds really), Asians seem adapted whereas American Indians with their primarily corn consuption (or nomadic hunting lifestyle) would not? If so, this seems to be an adaptation based on lifestyle, not racial proximity.

2
3c6b4eed18dc57f746755b698426e7c8

on August 05, 2011
at 12:22 AM

There are several articles which link lupus and gluten consumption. Just google lupus and gluten. PHD proposes a gluten-free diet and safe starches. So that would fit.

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