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Question about Paleo, Graves' disease, Radioactive Iodine and Hypothyroidism

Answered on August 19, 2014
Created June 26, 2013 at 9:39 AM

I've been reading on how the Paleo diet can improve and get rid of the Graves disease. Was diagnosed with Graves' in April this year. I have an appointment set up with the nuclear medicine lab for the RAI. I need something done now and not latter. I was allergic to the MTI and PTU. I'm 26 years old male, 6'1" and am now down to 143lbs. My ribs, backbone, hipbone and knees are protruding sickly. Pardon the reference but I look like a Holocaust Survivor. I don't have the protruding eyes (yet).

After the RAI treatment, can I use the Paleo to balance out the Hypothyroidism that I'm bound to get? I can't afford the Paleo diet as it stands right now. I can't work because I have no energy what-so-ever. I sleep about 13 hours a day sometimes and sometimes I'm awake for 29 hours, but as soon as I do something exerting I have to pass out. So I have no money, I'm living with my parents and they can barely afford to put food on the table as it is.

When I get the RAI and my energy starts coming back somewhat, I plan on getting a job and going with the Paleo. Anyone else had this problem and treatment with the RAI and paleo afterwards? I hate the fact of being on medication for the rest of my life. I don't think medication does any good. I know that most of our diseases, cancers and what have you, are all related to medication and processed foods with hormones, GMOs, preservatives, etc.

I would also like to know if there is any Paleo cookbooks or lists for either Graves or Hypothyroidism

6120c989fd5b69f42a0834b69b87955b

(24553)

on July 11, 2013
at 06:58 AM

What a wonderful answer. Sometimes RAI is the only option. I'm just worried that Dillon thinks that thyroid replacement therapy will be optional after the procedure.

A7768b6c6be7f5d6acc76e5efa66464c

on July 11, 2013
at 03:14 AM

What a thoughtful and beautifully written response, and a moving story too. I'm a hyper-to-hypo myself, though fortunately I was able to tolerate PTU and didn't need RAI. Still, all of this rings true.

6120c989fd5b69f42a0834b69b87955b

(24553)

on July 10, 2013
at 10:58 PM

"The element iodine was used for the treatment of hypo- and hyperthyroidism5 and for many other medical conditions.18 For hyperthyroidism, the daily dose ranged from 6.25 mg to 180 mg elemental iodine in the form of Lugol solution with the most common intake of 90 mg achieving success rate as high as 90 percent." http://www.healthsalon.org/274/iodine-dr-guy-e-abraham-md/

6120c989fd5b69f42a0834b69b87955b

(24553)

on July 10, 2013
at 10:46 PM

Please read this before proceeding, I know you are sick and allergic to the meds, but it isn't a treatment that you can undo. http://www.stopthethyroidmadness.com/search/rai

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6 Answers

3
F079762b734a44dfd3a967c5960fc73f

on July 11, 2013
at 01:20 AM

My mother was terrified of the idea of drinking a radioactive cocktail, and terrified of being on thyroid meds for the rest of her life. As a result, she waited a full year after her Graves diagnoses to get the RAI treatment, and in that time, she almost died. In a year's time, she wasted away to a gaunt 105 lbs (she is over 5'8"), developed congestive heart failure, her somewhat bulging eyes became even bigger, her hands trembled like someone with advanced Parkinson's disease. Her muscles wasted to the point that she couldn't climb the stairs on her own, and had to crawl. My strong, gorgeous, healthy mother had whithered into an elderly woman in a matter of months. It was heartbreaking. She tried many "alternative" methods (low dose naltrexone, megadosing on iodine, etc), saying, "I just want to try natural methods first." Finally we all realized, as a family, that our dear mother was dying before our eyes from a totally treatable disease. We tearfully begged and pleaded that she see an actual endocrinologist. She eventually agreed, once she realized how dire her situation was, and was scheduled immediately for RAI. She is doing much better. She has come back from the brink of death, literally. She will never be 100%, as she has damaged her body so severely, but she'll come back about 80/85%. The irony is that her phobia of RAI, and obsession with going the "natural" route, quite literally almost killed her. Get the RAI. You'll be hypothyroid for a little while probably, but after a time, if you're getting your thyroid levels measured regularly and seeing a good endocrinologist, you'll find out what the right dosage is. What's the problem with having to take a tiny pill the rest of your life? It's a miracle that you have that option. Don't wait. If you wait too long to get the RAI, you will only harm your heart and muscles and other tissues until finally you realize that you cannot wait any longer. Your eyes might begin to bulge, and that's not always reversible. Now, if you had Graves in your family history, but weren't symptomatic, or were only mildly hyperthyroid, I'd say maybe the alternative option was maybe worth a shot. But I wouldn't waste time (or your body) trying alternative methods at this point, as they are better suited for prevention or mild cases, in my opinion. Your thyroid is totally out of control and you need the big guns at this point. I know you can't undo the RAI procedure, but you also may not be able to undo some of the effects of letting an out of control thyroid ravage your muscles, nerves, and organs. You'll have to weigh the risks and benefits and come to your conclusion yourself, but I just thought I'd share my mom's story. I'm so sorry you're going through this trial of health. I wish you the best, and I wish you a speedy return to vibrant health very soon! It's possible to be marvelously healthy again, even if you do have to take prescription meds indefinitely. I don't have a problem with alternative methods...but there is a time and place for allopathic medicine, and it sounds like this is one of those times.

6120c989fd5b69f42a0834b69b87955b

(24553)

on July 11, 2013
at 06:58 AM

What a wonderful answer. Sometimes RAI is the only option. I'm just worried that Dillon thinks that thyroid replacement therapy will be optional after the procedure.

A7768b6c6be7f5d6acc76e5efa66464c

on July 11, 2013
at 03:14 AM

What a thoughtful and beautifully written response, and a moving story too. I'm a hyper-to-hypo myself, though fortunately I was able to tolerate PTU and didn't need RAI. Still, all of this rings true.

1
A6b7afacdb512b861716bca9e9226ad3

(333)

on August 11, 2013
at 04:42 PM

I refused the RAI and surgery...found a mineral balancing protocol (ithyroid.com) and was in normal range in 3 months, after the meds never worked. Copper seems to have been the key, specifically in ratio with zinc. It's tricky but not impossible. I had to really listen to my body and notice what happened with various supps.

1
E227ab5cf88beebe420ad31d314a7d10

on July 11, 2013
at 09:56 PM

Ditto the high iodine protocol of Drs. Abraham, Brownstein and Flechas with Lugol's. RAI isn't meant to be in the body, the natural mineral iodine is. I would seek out an iodine literate practitioner to help http://www.breastcancerchoices.org/ipractitioners.html

1
6120c989fd5b69f42a0834b69b87955b

(24553)

on July 10, 2013
at 10:32 PM

Before getting the RAI I would seriously check out the Stop The Thyroid Madness website and Facebook group. Many now hypothyroid (formerly hyper) people on there regretting the procedure. If you get the RAI you won't have a functioning thyroid anymore, and will have to take thyroid meds for the rest of your life. Paleo can include a lot of foods that help the thyroid (also some that can hinder it), but you won't have a thyroid anymore that can be stimulated, so it won't help in the way I think you are hoping it will. Your body needs thyroid hormones to survive, and medication will be the only way to get it after the RAI.

6120c989fd5b69f42a0834b69b87955b

(24553)

on July 10, 2013
at 10:58 PM

"The element iodine was used for the treatment of hypo- and hyperthyroidism5 and for many other medical conditions.18 For hyperthyroidism, the daily dose ranged from 6.25 mg to 180 mg elemental iodine in the form of Lugol solution with the most common intake of 90 mg achieving success rate as high as 90 percent." http://www.healthsalon.org/274/iodine-dr-guy-e-abraham-md/

6120c989fd5b69f42a0834b69b87955b

(24553)

on July 10, 2013
at 10:46 PM

Please read this before proceeding, I know you are sick and allergic to the meds, but it isn't a treatment that you can undo. http://www.stopthethyroidmadness.com/search/rai

0
Ce41c230e8c2a4295db31aec3ef4b2ab

(32564)

on June 26, 2013
at 09:58 PM

Get your Vitamin D3 level checked and sun/supplement to at least 60-80 ng/ml. More info on the Vitamin D council website.

Also, this is interesting: http://thyroid.about.com/b/2010/09/30/vitamin-d-important-thyroid.htm

0
85063620a49720d8c7c3fb0a5805105e

on June 26, 2013
at 09:44 PM

Bone broth can stretch your meals. It is relatively inexpensive, just takes time to cook. This is good for the ailments you have listed. It also works at keeping calcium levels up which the thyroid drugs affect. I am on Synthroid and T4. Bone broth makes me feel much better.

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