2

votes

Lymphocytic colitis

Answered on September 07, 2014
Created April 11, 2011 at 7:23 PM

Hi -

I'm a 32 year female who has just been diagnosed with lymphocytic colitis. I noticed problems starting in my gut about 4 weeks ago. I went on a strict paleo diet for 3 weeks, with no changes. I was continuing to have very bad diarrhea, and it kept getting worse, even on Paleo. It got to the point that i couldn't always control my bowels (very embarassing!). I saw a GI doc and had a colonoscopy and he found the colitis. He said to continue to the diet, and gave me steroids. He also ordered a blood test for Celiac. I just found out that was negative.

The doctor said that being off grains, wheat, dairy, legumes and processed foods definitely was good. However, he said that since i have had no bloating during this whole process and have been off of the foods for 4 weeks with no changes, that it's most likely not food causing the issues.

I have to fess up that I did cheat once about 3 weeks in. I had a roll. But, honestly, it made no difference that I could tell.

I know from what I read, that inflammation will take time to heal. I still plan on eating paleo b/c it makes sense to me. However, has anyone had these sort of problems? Shouldn't I at least have noticed SOME difference being so strict for 3 weeks straight?

I also am on Juice Plus. I have stopped that four about 2 and 1/2 weeks. It also has made no difference. I did research and it is a gluten-free product. I have been on it for over a year, with no issues.

I'd appreciate any input!

Medium avatar

(20)

on October 23, 2013
at 01:03 AM

...don't know what lymphocytic means in your case but it can take up to 2 years to heal colitis in general I understand. Hopefully you are eating lactose free yogurt or SCD yogurt everyday and bone broth soup two or three times a day which are the foundation of healing this condition. Great to hear the doctor supports this type diet based on empirical evidence (you).

345c1755efe005edd162b770dc6fb821

(8767)

on April 14, 2011
at 07:58 PM

definitely get tested just to be safe!! One less thing to worry about then! Feel better!!

2962874a0be1e52f12bdecc7641d4d7f

on April 14, 2011
at 03:21 PM

I've done research on Juice Plus. It is not a powdered drink. It is juiced and deheydrated fruits and vegetables in a capsule. It is certified gluten free. It tested regularly using the Tepnel ELISA methodology for the presence of gluten. The results show that Juice PLUS is less than 20 parts per million gluten. That is less than the FDA requires for anything to be labeled "gluten free". I did take some time off (more than 2 weeks) and saw no difference in my colitis. So, at least for me, it doesn't seem to aggregate my issue.

918ecd2369c4e8cd6a2d66846c20137c

(285)

on April 12, 2011
at 07:39 PM

FYI - thread on a related condition: http://paleohacks.com/questions/13350/collagenous-colitis-and-the-paleo-diet#axzz1JL3lhwum

2962874a0be1e52f12bdecc7641d4d7f

on April 12, 2011
at 03:37 PM

That's my only problem - i don't have any bloating, gas or swelling at all, which is why the doc. thinks it really isn't linked to food. He said i could get tested to be sure, but there isn't really any indicators for allergy. I definitely will keep it in mind, though if things progress. Thanks!!

345c1755efe005edd162b770dc6fb821

(8767)

on April 12, 2011
at 01:40 PM

started with uncontrollable diarrhea then progressed with extreme swelling in my intestines, almost to the point that I couldn't sit without difficulty. I was SHOCKED when I saw the list of food allergies, all/most of which were things that primal eating doesn't allow (corn, beef, pork, soy, processed salts, citric acids, etc.....) testing the tissue in the last colonoscopy confirmed pure inflammation from allergies. If you haven't yet had allergy testing, its worth a shot!

C80bb4f697a72b771ae44cc3637df8f7

(179)

on April 12, 2011
at 02:19 AM

I would cut out fruit and the nuts. Also, be careful of drinks or drink powders that promise all your veggies in one drink. They may say they are gluten free, but they are not generally certified gluten free and may contain barley and/or wheat grass. I steer clear away from those drinks too.

Medium avatar

(5136)

on April 11, 2011
at 09:59 PM

Just cause I saw "Gasland" recently and it's on my mind, do you think there could be any environmental pollutant factors contributing to it, compromised water quality, etc?

Medium avatar

(5136)

on April 11, 2011
at 09:48 PM

i would try cutting out the nuts altogether and the LARA bars at least for a while, no fun losing one more thing out of your diet, but they can be irritating. If eggs are not an allergen for you, maybe hard boil a dozen eggs at a time to use for snacks. Additionally, try to get more high quality fat into your diet. If you tolerate avocado well, eat more. Try introducing high quality lard (not the s**t at your supermarket) or tallow or duck fat. Maybe see if you tolerate ghee (you can make your own) as butter really has numerous great health benefits. high quality fat is different from junk fat

2962874a0be1e52f12bdecc7641d4d7f

on April 11, 2011
at 08:35 PM

Did you have any other symptoms except diarrhea that pointed to the food allergies? Any bloating or rash or anything?

2962874a0be1e52f12bdecc7641d4d7f

on April 11, 2011
at 08:33 PM

Generally - eggs and fruit (melons) in the morning, sometimes bacon or high quality gluten free sausage. Lunch - a salad with oil/vinegar, diced ham or chicken, olives, carrots. Dinner, usually a protein (fish, chicken, or lean red meat) and another veggie. Snacks may be nuts, apple or sometimes I did a Lara bar if i was short on time. Sometimes, avocado or tuna for a snack too. I originally used Coconut oil when cooking ,but read that could cause diarrhea, so i stopped using it and do olive oil when needed.

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8 Answers

1
91a484ea1d0dee7a95fde3f3d8513ca1

on May 05, 2011
at 03:51 PM

I have LC and have been treating it with diet alone for 1 year. I am GF/DF and SF, but not fully paleo at all. I am part of a long-running support group for MC (LC and CC) that has been most helpful. You can reach the forum through PerskyFarms.com. There are 650+ members. Most members get gene and food intolerance testing through Enterolab.com. Some have started MRT testing as well to ID additional food intolerances. Many are on a modified paleo diet. Contrary to paleo, having MC means you need to avoid foods with too much fiber, especially salad, raw veggies and unpeeled fruit. Most people with MC are gluten and dairy intolerant. Most are soy intolerant too. Many people react to some of the additives in GF foods such as Xanthan Gum and Carrageenan. Many do not do well on probiotics (few are DF anyway). Some members take Entocort or Asacol HD in combination with diet. Others have achieved remission with diet alone. But it is a chronic disease with little chance of "spontaneous remission" unless yours is drug-induced. Have you taken SSRIs (antidepressants), NSAIDS (ibuprofen, etc) or PPIs (Prevacid, etc). These can all cause drug-induced MC. MC is linked to a number of autoimmune diseases including celiac, thyroid disease, fibromyalgia, etc. We do not know the cause, but we know it is aggravated by stress and food intolerances. Some suspect viral/bacterial or toxic environmental causes.For others it may just be a triggering of their celiac genes.

1
4145b36f1488224964edac6258b75aff

(7821)

on April 26, 2011
at 09:01 PM

I have Crohn's Disease. It took me 3-4 months of flare up level diarrhea before I saw any benefit from the diet (I was fine before I went on the diet, by the way - my change was abrupt enough to cause a lot of turmoil). Wolfgang Lutz, who claimed that low-carb alone was enough to cause remission in many of his Crohn's patients, claimed that it would take about six months in total for 80% to see relief.

I kept a blog journal about the experience (see my profile) when I switched to a VLC/zero starch diet to try and treat my Crohn's. I have no idea if this will work for you, since your diagnosis is different, but if my experience does apply, you still have a couple months to go before you see relief - assuming that you have actually eliminated the trigger foods. It is possible that you have not, or that your condition is such that normally tolerable levels of starch/fiber are enough to keep driving the disease.

My only advice is to keep up with the normal medical procedures - take the pills! - while simultaneously being as strict as you possibly can about anything that might feed gut bacteria. This doesn't work for everyone, but it's worth a shot for a while.

Some quick random references that can help clarify the foods you might not suspect but still need to watch out for: http://www.archevore.com/panu-weblog/2011/2/5/fodmaps.html

http://www.kickas.org/medical/15.shtml (Ankylosing Spondylitis research which spills over to gut health)

1
345c1755efe005edd162b770dc6fb821

(8767)

on April 11, 2011
at 08:22 PM

I dont have the same diagnosis as you but I've had serious inflammation for years from food allergies; if i eat out, hidden ingredients seem to find their way into my food and I pay for it. Imodium is my only life saver and my dr. said some of his crohns patients have been on it for periods of 10+ years and theres no danger of liver or other damage from it like pepto-bosmol (at one point i was on it daily for over 2 years...the only way I could function). I've refused steroids always, but in trying to figure out what my gut doesn't seem to like I found that just being primal is not enough to help, that you also need to "Heal" your gut. I'm currently working on that (See GAPS diet).

I have everything under control for now but it doesn't take much for my intestines to blow up like a balloon. So GAPS is what I suspect i need to do to heal the problem and then gradually introduce foods back into my diet. Just waiting for the right time but got all the books. (ps: home made broths are a super calming food for your gut due to all the goodness from the bones....)

I've had every kind of mis-diagnosis without much help except the food allergies (took 2 years to find someone who thought to test for this). Inflammation does take time to heal but it also can come back in a flash. I'm hoping the heal will set me on the right path, perhaps look into that and see if its something you would consider doing. I'd be happy to recommend the group of books i'm reading....

345c1755efe005edd162b770dc6fb821

(8767)

on April 12, 2011
at 01:40 PM

started with uncontrollable diarrhea then progressed with extreme swelling in my intestines, almost to the point that I couldn't sit without difficulty. I was SHOCKED when I saw the list of food allergies, all/most of which were things that primal eating doesn't allow (corn, beef, pork, soy, processed salts, citric acids, etc.....) testing the tissue in the last colonoscopy confirmed pure inflammation from allergies. If you haven't yet had allergy testing, its worth a shot!

2962874a0be1e52f12bdecc7641d4d7f

on April 11, 2011
at 08:35 PM

Did you have any other symptoms except diarrhea that pointed to the food allergies? Any bloating or rash or anything?

2962874a0be1e52f12bdecc7641d4d7f

on April 12, 2011
at 03:37 PM

That's my only problem - i don't have any bloating, gas or swelling at all, which is why the doc. thinks it really isn't linked to food. He said i could get tested to be sure, but there isn't really any indicators for allergy. I definitely will keep it in mind, though if things progress. Thanks!!

345c1755efe005edd162b770dc6fb821

(8767)

on April 14, 2011
at 07:58 PM

definitely get tested just to be safe!! One less thing to worry about then! Feel better!!

0
6a4882b65d857ef02fc517d1bcfe2192

on September 07, 2014
at 01:21 PM

Hi Jessica, I am so sorry you are struggling right now- I have been there! It's debilitating, embarrassing and painful. I was diagnosed in 2012 and the doctors didn't even try to hide the fact that it was more than likely caused by prolonged exposure to anti anxiety medication (Zoloft and Paxil). I discontinued use of my meds and almost instantly whenr into remission for one year. When it returned, it was much worse and nothing seemed to bring relief...I tried juices, herbs, accupuncture. Then I got sick with a cold and was drinking an obscene amount of tea and I had my first solid movement in 9months. I know it seems almost too simple but for me it reduced the inflammation enough that I could go back to normal ..I continues to have some flare ups and that is when I went paleo. I haven't struggled with my colitis for almost a year now. I know it's not a one size fits all thing but it worked for me! My advice is to try to consistently drink several cups of tea very day while following the paleo diet... See if it helps. Good luck!

0
C7438c36e99fc88f9ded18c76837ac70

on October 30, 2013
at 05:59 PM

It takes time. It isn't a quick fix. If I were you, I would switch to the Auto immune protocol and adhere to it religiously. My son was diagnosed last November. We went from SCD to Paleo to AIP and the AIP has, in time, proven to be the most effective.

0
C42dce2934ba06436d136f8976241550

on December 07, 2011
at 07:18 PM

www.healingnaturallybybee.com

Candida diet/Success stories.

0
46ee2f7d91719ecfe691a0c2a6da7034

(148)

on April 11, 2011
at 08:08 PM

Check out Dr. John Sarno's 'The Mindbody Prescription', 'The Divided Mind', or 'Healing Back Pain the Mind-Body Connection' and TMS: Tension Myoneural Syndrome. He attributes some gut issues like colitis and crohns to TMS. I do don't know if that is the case with you but it can't hurt to check it out.

0
Medium avatar

(5136)

on April 11, 2011
at 07:29 PM

More specifically, what would you eat in a typical day? What kind of fats and how much of them are you eating?

2962874a0be1e52f12bdecc7641d4d7f

on April 11, 2011
at 08:33 PM

Generally - eggs and fruit (melons) in the morning, sometimes bacon or high quality gluten free sausage. Lunch - a salad with oil/vinegar, diced ham or chicken, olives, carrots. Dinner, usually a protein (fish, chicken, or lean red meat) and another veggie. Snacks may be nuts, apple or sometimes I did a Lara bar if i was short on time. Sometimes, avocado or tuna for a snack too. I originally used Coconut oil when cooking ,but read that could cause diarrhea, so i stopped using it and do olive oil when needed.

C80bb4f697a72b771ae44cc3637df8f7

(179)

on April 12, 2011
at 02:19 AM

I would cut out fruit and the nuts. Also, be careful of drinks or drink powders that promise all your veggies in one drink. They may say they are gluten free, but they are not generally certified gluten free and may contain barley and/or wheat grass. I steer clear away from those drinks too.

Medium avatar

(5136)

on April 11, 2011
at 09:59 PM

Just cause I saw "Gasland" recently and it's on my mind, do you think there could be any environmental pollutant factors contributing to it, compromised water quality, etc?

Medium avatar

(5136)

on April 11, 2011
at 09:48 PM

i would try cutting out the nuts altogether and the LARA bars at least for a while, no fun losing one more thing out of your diet, but they can be irritating. If eggs are not an allergen for you, maybe hard boil a dozen eggs at a time to use for snacks. Additionally, try to get more high quality fat into your diet. If you tolerate avocado well, eat more. Try introducing high quality lard (not the s**t at your supermarket) or tallow or duck fat. Maybe see if you tolerate ghee (you can make your own) as butter really has numerous great health benefits. high quality fat is different from junk fat

2962874a0be1e52f12bdecc7641d4d7f

on April 14, 2011
at 03:21 PM

I've done research on Juice Plus. It is not a powdered drink. It is juiced and deheydrated fruits and vegetables in a capsule. It is certified gluten free. It tested regularly using the Tepnel ELISA methodology for the presence of gluten. The results show that Juice PLUS is less than 20 parts per million gluten. That is less than the FDA requires for anything to be labeled "gluten free". I did take some time off (more than 2 weeks) and saw no difference in my colitis. So, at least for me, it doesn't seem to aggregate my issue.

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