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Diet, CMV and Fibromyalgia

Answered on August 19, 2014
Created September 08, 2012 at 3:40 AM

There is more to my saga. As I described earlier, I fell off the cliff when I went on a celiac diet involving more corn and rice. Every part of my body was impacted. It was extremely painful, I had no energy, couldn't sleep, unbelievable brain fog, etc. I was such a mess that my doctor sent me for a barrage of tests that included a virus scan. End result, I was in the middle of an active CMV - cytomegalovirus - infection, a virus related to Epstein Barr, Herpes, Shingles. It has been awhile but I remember that CMV likes to attack nerves and that explains how I felt. I think every nerve in my body was under attack. It took six months but I recovered, however, never for long. I kept going through cycles. Never as deep,or as long as the initial, but continuous. It was like going through mini-bouts with the virus. After eight years I finally figured out that it was my diet. Getting off corn, rice, refined wheat, etc had an immediate impact. I took my belt in a notch or two almost overnight and all the other issues disappeared just as quick. It seems that my old diet compromised my immune system and allowed the CMV to roam free. What is the mechanism behind this? And how the lutein fits in to this is also beyond me. I am still blown away by all this and shocked by the seeming benign solution. Has anyone else had a similar diagnosis and experience?

Da056bc65a3e6e72c842750dcf93313a

(28)

on September 24, 2012
at 02:23 AM

Thanks but I already have a doctor. Over the past 10 years, I have had every test under the sun. As I have told him over the years since my CMV test, all the tests come back negative yet I still feel like have been hit by a bus most of the time. As the books say, the virus is easily defeated by most people until their immune system is compromised. And with 100 per cent surety I can say that my diet impacts my immune system. There was a tennis player, Justine Henne, who was hit by CMV and it kept her out of tennis for 9 months. So healthy people can be impacted by CMV. Why is the question?

Da056bc65a3e6e72c842750dcf93313a

(28)

on September 11, 2012
at 03:16 AM

If it is really gluten they have a blood test for that. And if the blood test is positive, they follow that with a scope. I have been through it twice with my daughters. Your symptoms sound more like what I had then what my daughters have. I'm not a celiac, I have been tested three times. And a celiac diet, less wheat and more corn, rice, etc causes me a world of grief. If you think gluten is a problem, get tested. The problem might not be gluten and you could end up in a worse situation. Probably safer to avoid all grains than just wheat.

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2 Answers

1
62442eec80b7d248ccfa08f98f736748

on September 23, 2012
at 02:41 AM

CMV infects a lot of people and you are right, is from the family of herpes viruses. herpes 1 and 2, simplex and zoster, are dormant in the root ganglia of your nerves and reactive in times of stress...ie. mouth sores (hopefully not genital warts...) and in zoster's case, shingles.

CMV is herpes 5. rarer to see reactivation but happens esp if you are immunocompromised. most well documented in HIV patients who are declining in cd4 counts. they get eye problems and sometimes in the lung, too. you see it in newborns who are born to mothers who have active cmv...leads to blind newborns...

basically, bottom line is you shouldn't see rampant cmv unless you are immunocompromised...and not like simple rsv or influenza flu. i'm not saying your diet or gluten is the cause...in fact i am kind of annoyed that a lot of people here think that everything about your health can be explained by your diet. but at the very least, if i were treating you, i'd be looking deeper for an underlying cause to your cmv. seek a medical diagnosis. maybe it is just gluten. but if it is something more serious, it'd be worth putting the effort into! -med student

Da056bc65a3e6e72c842750dcf93313a

(28)

on September 24, 2012
at 02:23 AM

Thanks but I already have a doctor. Over the past 10 years, I have had every test under the sun. As I have told him over the years since my CMV test, all the tests come back negative yet I still feel like have been hit by a bus most of the time. As the books say, the virus is easily defeated by most people until their immune system is compromised. And with 100 per cent surety I can say that my diet impacts my immune system. There was a tennis player, Justine Henne, who was hit by CMV and it kept her out of tennis for 9 months. So healthy people can be impacted by CMV. Why is the question?

0
Ba4ff9e230236da7c10856521e30f84d

on September 08, 2012
at 05:26 AM

All my life i've been a little distant, school reports said 'day dreaming', (I used to train at swimming and eat 12 Weetbix everymorning). Towards my mid 30's I had a hard time concentrating, even reading a sentence. Then the brain fog. This got so bad I couldn't even drive my car some days, dislocated from reality, can't think, concentrate, lethargic always tired, aching joints, back ache/spasms, couldn't sleep properly... My bowel transit time had always been very slow.. no pain though. This got so bad I went to see doctors, psychologists and a psychiatrist, brain scans etc.. Diagnosis was ADD. Dexamphetamines and antidepressants seemed to snap me out of the fog, but at the expense of being to 'wired' and not being 'me' so to speak.

Recently I've been following the 'Paleo' diet. I've lost 10kg's in about 10 weeks, but was still using slow cooker mixtures with wheat in there, and not omitting gluten from my diet. Brain fog was still prevalent, it's like everything around is slightly 'out of focus'. It affects one socially, as you never feel part of conversations - as if you're not fully there!

Last week I cut out gluten totally... WOW! the fog is lifting, can't remember feeling this alive! It's like my brains have had a +50 IQ injection! I actually feel like I want to enjoy life, much happier, can actually feel my bowels/stomach working, the aches and pains are just about gone.. Looking forward to getting fit again and enjoying my life!

Damn gluten.

Da056bc65a3e6e72c842750dcf93313a

(28)

on September 11, 2012
at 03:16 AM

If it is really gluten they have a blood test for that. And if the blood test is positive, they follow that with a scope. I have been through it twice with my daughters. Your symptoms sound more like what I had then what my daughters have. I'm not a celiac, I have been tested three times. And a celiac diet, less wheat and more corn, rice, etc causes me a world of grief. If you think gluten is a problem, get tested. The problem might not be gluten and you could end up in a worse situation. Probably safer to avoid all grains than just wheat.

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