2

votes

Any Lymies here?

Answered on August 19, 2014
Created March 31, 2011 at 8:31 PM

Hey,

Are there any Lyme-patients who follow a Paleoish/Primal diet? I'm a Lymie myself and love to get to know other Lymies to exchange thoughts about diet,treatments/protocols,exercise and other routines.

On Rob Wolff's site there actually was a story of a former Lymie. I've tried to get in contact with him,but no such luck.

F79dd33c17d9fbb55cc7e202dfa30e6e

(300)

on May 07, 2013
at 07:46 PM

Hey Dr. Ryan. I have a friend who has Lyme's and is drastically underweight. We have really good raw milk products around here, and I'm wondering if she might try dairy as another way to get more good calories into her? Or is dairy a no-no for everybody with Lyme's?

669790861549f3c6d54d88a65296ed19

(452)

on April 15, 2011
at 05:52 PM

Me too for over 10years and I have knee joint pain too.Though some days they feel really warm and less painless,so don't know if that's a good thing and what causes it.I can tolerate moderate amounts of raw milk sheep cheese.Though I have issues with my brain/mood,for instance pumpkin,cooked red beets or coconut milk elevate my mood towards much happier and it feels like my body gives me less feelings of anxiety.Though these are considered high-carb foods:(

669790861549f3c6d54d88a65296ed19

(452)

on April 15, 2011
at 05:50 PM

Me too for over 10years and I have knee joint pain too.Though some days they feel really warm and less painless,so don't know if that's a good thing and what causes it.I can tolerate moderate amounts of raw milk sheep cheese.Though I have issues with my brain/mood,for instance pumpkin or coconut milk elevate my mood towards much happier and feels like my body gives me less feelings of anxiety.

669790861549f3c6d54d88a65296ed19

(452)

on April 01, 2011
at 06:33 PM

Thanx Dr.Ryan,I indeed rarely consume nuts.If I do only walnuts&macadamia's. It seems that I tolerate rawmilk cheese from sheep.I'm still debating if I should remove it,since rawmilk has lots of positive enzymes. As far as the exercise part;I need to work on another mindframe regarding this.Due to chronic cardioing,despite my hatred,I develloped kind of an eating disorder.(Feeling that I never move enough vs food/fat/veggie intake,while I actually need to gain a little,but I'm afraid I'll keep on gaining.This constant calculating of amounts of fat/veggies etc.is such a heavy load on my mind)

E7a462d6e99fec7e8f0ddda11b34a770

(1638)

on April 01, 2011
at 04:31 PM

I have chronic Lyme (for over 10 years) and have been primal/paleo (with dairy) for 14 months. Because of severe knee issues I have not been exercising but I have also not had any weight gain. I lost 10-12 lbs at the beginning like everyone pretty much does who goes lower carb than they were used to, but have been within the same 2-4 lbs range since then. I would like to lose more, but right now I am happy with my weight being stable over the last year - this in itself is a victory. Unless you start eating like those who are doing heavy workouts, I wouldn't worry about getting fat.

669790861549f3c6d54d88a65296ed19

(452)

on March 31, 2011
at 10:56 PM

Do you still eat fruit as it is sugar too? and did/do you exercise and what kinds of exercise?how frequent? I'd like to grow some muscles/get strong but I can't do heavy lifting as I can't stress the body too much.I have kind of a fear of getting fat on Paleo without exercising. What does/did your diet look like;what sources of fat do you use?pork,lamb,avocado,nuts,coconut milk,dairy/cheese?how much and which veggies? Do you use antibiotics or natural things to get rid off the Lyme?I'm still thinking if I'll start the Cowden Protocol.

669790861549f3c6d54d88a65296ed19

(452)

on March 31, 2011
at 10:47 PM

It's such a common term amongst patients,that I guess I never thought about the fact that others might not know what it means;)

Af1d286f0fd5c3949f59b4edf4d892f5

(18472)

on March 31, 2011
at 08:53 PM

oh... as in Lyme disease. I see. I have never heard of the term "Lymies" before.

0bc6cbb653cdc5e82400f6da920f11eb

(19245)

on March 31, 2011
at 08:45 PM

I think they mean Lyme Disease. It is a bacterial infection resulting from being bitten by an infected tick.

Be1dbd31e4a3fccd4394494aa5db256d

(17969)

on March 31, 2011
at 08:45 PM

Lol, Lymies. +1 No I'm not a lymie but you make it sound fun and you have a good attitude. I know it's probably not fun. Bottom line, anything inflammatory improves with paleo done right. I don't know about curing it though

Be1dbd31e4a3fccd4394494aa5db256d

(17969)

on March 31, 2011
at 08:44 PM

Lol, Lymies. +1 No I'm not a lymie but you make it sound fun and you have a good attitude. I know it's probably fun. Bottom line, anything inflammatory improves with paleo done right. I don't know about curing it though.

Af1d286f0fd5c3949f59b4edf4d892f5

(18472)

on March 31, 2011
at 08:34 PM

i have no idea what that means, so i'd reckon other may not know as well. care to expand your question to explain what lymie is? it may make it more attractive to answer.

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2 Answers

1
E8022f05c250e19a65b92207dd1630ca

on April 01, 2011
at 02:32 PM

Hey Joey. I have cared for 5 or 6 patients with Lyme disease and have had some awesome results but some cases are definitely tougher than others. The folks that have had the most success come for regular weekly chiropractic adjustments to help their nervous system function optimally and allow for proper joint stimulation. One guy in particular is mostly pain free and can now get back to his job as a tree removal dude (not great if you are trying to avoid tics but physical none the less). All of them have responded well to a grain-free, dairy free, legume free diet. So that leaves pastured meats, free range chicken/eggs, wild fish, veggies, lower fructose containing fruits like berries grapefruit and melon, and good fats like coconut/olive oil/avocado etc. I think avoiding nuts as much as you can is a smart thing to do also since they can be problematic with immune challenges like Lyme. Be as physical as you can without hurting yourself, I recommend sticking to mostly gymnastic type stuff like pushups, pullups, situps, squats, etc. It seems like you're a positive person too which is super critical with a problem like Lyme since it can be a very frustrating deal.

669790861549f3c6d54d88a65296ed19

(452)

on April 01, 2011
at 06:33 PM

Thanx Dr.Ryan,I indeed rarely consume nuts.If I do only walnuts&macadamia's. It seems that I tolerate rawmilk cheese from sheep.I'm still debating if I should remove it,since rawmilk has lots of positive enzymes. As far as the exercise part;I need to work on another mindframe regarding this.Due to chronic cardioing,despite my hatred,I develloped kind of an eating disorder.(Feeling that I never move enough vs food/fat/veggie intake,while I actually need to gain a little,but I'm afraid I'll keep on gaining.This constant calculating of amounts of fat/veggies etc.is such a heavy load on my mind)

F79dd33c17d9fbb55cc7e202dfa30e6e

(300)

on May 07, 2013
at 07:46 PM

Hey Dr. Ryan. I have a friend who has Lyme's and is drastically underweight. We have really good raw milk products around here, and I'm wondering if she might try dairy as another way to get more good calories into her? Or is dairy a no-no for everybody with Lyme's?

1
0dc1d63c3d5975f5115f535c6a90c9dd

(2283)

on March 31, 2011
at 10:18 PM

Yep! Me and I can say that the paleo diet has dramatically improved my life. I'd say that dropping gluten, processed foods, and sugar made the most dramatic difference. Then adopting paleo was like icing on the cake.

669790861549f3c6d54d88a65296ed19

(452)

on March 31, 2011
at 10:56 PM

Do you still eat fruit as it is sugar too? and did/do you exercise and what kinds of exercise?how frequent? I'd like to grow some muscles/get strong but I can't do heavy lifting as I can't stress the body too much.I have kind of a fear of getting fat on Paleo without exercising. What does/did your diet look like;what sources of fat do you use?pork,lamb,avocado,nuts,coconut milk,dairy/cheese?how much and which veggies? Do you use antibiotics or natural things to get rid off the Lyme?I'm still thinking if I'll start the Cowden Protocol.

E7a462d6e99fec7e8f0ddda11b34a770

(1638)

on April 01, 2011
at 04:31 PM

I have chronic Lyme (for over 10 years) and have been primal/paleo (with dairy) for 14 months. Because of severe knee issues I have not been exercising but I have also not had any weight gain. I lost 10-12 lbs at the beginning like everyone pretty much does who goes lower carb than they were used to, but have been within the same 2-4 lbs range since then. I would like to lose more, but right now I am happy with my weight being stable over the last year - this in itself is a victory. Unless you start eating like those who are doing heavy workouts, I wouldn't worry about getting fat.

669790861549f3c6d54d88a65296ed19

(452)

on April 15, 2011
at 05:52 PM

Me too for over 10years and I have knee joint pain too.Though some days they feel really warm and less painless,so don't know if that's a good thing and what causes it.I can tolerate moderate amounts of raw milk sheep cheese.Though I have issues with my brain/mood,for instance pumpkin,cooked red beets or coconut milk elevate my mood towards much happier and it feels like my body gives me less feelings of anxiety.Though these are considered high-carb foods:(

669790861549f3c6d54d88a65296ed19

(452)

on April 15, 2011
at 05:50 PM

Me too for over 10years and I have knee joint pain too.Though some days they feel really warm and less painless,so don't know if that's a good thing and what causes it.I can tolerate moderate amounts of raw milk sheep cheese.Though I have issues with my brain/mood,for instance pumpkin or coconut milk elevate my mood towards much happier and feels like my body gives me less feelings of anxiety.

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