2

votes

What are the causes of Fibromyalgia?

Answered on September 12, 2014
Created July 10, 2012 at 2:33 AM

Current theories on Fibromyalgia? I removed 70% plus of my pain and 95% plus of the brain fog following an autoimmune version of the paleo diet. However I still have waaaay more back pain then the average person and tend to get stiff muscles very quickly if I dont stretch daily. How can I tackle this final 30% (which includes cracking shoulders, back, etc...knots ALL over back, neck, thighs, etc..)

75b3b900d09e555fc57b74ca24f7a76a

on July 10, 2012
at 08:21 PM

I take fish oil and tumeric (curcumin) for inflammation. Mg helps with muscle tension, B vit help with energy...and the paleo diet helps most of all.

49d1320cc71e4228b14621d2858c1252

(21)

on July 10, 2012
at 06:48 PM

I was just trying to help. You asked a question and I have an answer. It has worked on everyone I know and I have used it for 15 years. IT's been around for over 22 years and everyone gets results, plus there is a ton of science and research to back it up. The products literally saved my moms life. I knew people would probably leave the comments they did about something they have never really researched but I am not the type of person to not say something when someone is asking for help and I know of something to help it. Sorry to offend, not what I was trying to do

4ef079c57d2140bba4dbf4e30240a645

(4413)

on July 10, 2012
at 03:09 PM

I saw her TED talk. Wow. Amazing. And.. I would say that protocol would work for many autoimmune illnesses. High doses of Ubiqionol, R-la, Lycopene and other antioxidants along with a high protein and high vegetable diet, lowered my Thyroid antibodies into the negative range.

0a9ad4e577fe24a6b8aafa1dd7a50c79

(5150)

on July 10, 2012
at 02:28 PM

Something a bit more detailed: http://www.ncbi.nlm.nih.gov/pubmed/16153847

0a9ad4e577fe24a6b8aafa1dd7a50c79

(5150)

on July 10, 2012
at 02:24 PM

I do, but I'm not about to go dig them up among stacks of files. Here's a basic study, not the one I'm referring to though: http://www.ncbi.nlm.nih.gov/pubmed/11507631

E36cb992cf0a5eba8b97a359c15f38b3

(4347)

on July 10, 2012
at 12:08 PM

Do you have sources? I don't ask this to be a pain; rather, I'm genuinely interested.

A65499f2f8c65602881550fe309cd48c

(3501)

on July 10, 2012
at 09:45 AM

I went to the website to look at the products...most full of soy. The kids stuff is loaded with soy and sugars....yep. Crap.

4ef079c57d2140bba4dbf4e30240a645

(4413)

on July 10, 2012
at 08:13 AM

oh geez. I don't know if its crap or not but its TACKY is what it is.

4ef079c57d2140bba4dbf4e30240a645

(4413)

on July 10, 2012
at 07:57 AM

I personally would be taking a very hefty amount of Turmeric and other supplements for inflammation. Have you done this. This curcumin/turmeric product has helped my friend with spondylitis and fibromyalgia, a lot: http://www.thorne.com/articles/meriva.jsp She also swears by Gotu Kola for inflammation.

4ef079c57d2140bba4dbf4e30240a645

(4413)

on July 10, 2012
at 07:53 AM

do you take supplements for inflammation? Turmeric, Ubiquinol etc....

A65499f2f8c65602881550fe309cd48c

(3501)

on July 10, 2012
at 04:03 AM

I hope you find something that helps.

A65499f2f8c65602881550fe309cd48c

(3501)

on July 10, 2012
at 03:45 AM

Down voted...why? You are schlepping very un-paleo crap.

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9 Answers

best answer

1
Da12b342d4959f5bd776c0f00b072a6c

on July 10, 2012
at 05:10 AM

Vitamin D deficiency has to be considered in the management of fibromyalgia syndrome. Have you checked your leveLs?

2
75b3b900d09e555fc57b74ca24f7a76a

on July 10, 2012
at 07:23 AM

I have fibromyalgia, too, and also have greatly improved through diet. However, I still have symptoms...The best helps are regular exercise and stretching (as you mentioned); regular acupuncture (used to need this every week, but now down to twice per month); deep tissue massage (every few months); and monthly chiropractic (this one is not essential, but helpful). I also think that it is just taking time for my nutritional deficiencies to be compensated for. My digestion was very poor in the past (due to unknown gluten intolerance), causing long-term nutritional deficiencies that only resolve over the course of time.

I hope that helps some! Really, I'm also still struggling with that last bit of chronic inflammation that has not died down. How do I get my immune system to relax....? I look forward to reading what other people post on this one.

75b3b900d09e555fc57b74ca24f7a76a

on July 10, 2012
at 08:21 PM

I take fish oil and tumeric (curcumin) for inflammation. Mg helps with muscle tension, B vit help with energy...and the paleo diet helps most of all.

4ef079c57d2140bba4dbf4e30240a645

(4413)

on July 10, 2012
at 07:53 AM

do you take supplements for inflammation? Turmeric, Ubiquinol etc....

1
18e6c4a8d6c466e53e046bb808e0b412

on July 10, 2012
at 04:09 PM

Lower carb eating has really helped my fibromyalgia tons, but it's no cure. But lots of little things add up and make a difference. Avoid chemicals and processed foods as much as possible, even sweeteners (Stevia and Splenda might be okay). Go for organic healthy versions of foods that you trust.

I found a magnesium supplement helps alot too.

Addressing nutrition and what you're eating helps.

As for the muscles, I second the above that massage will help alot. I get a monthly massage and it's worth every penny. Chiropractic too if you can find a good one (look for one that practices the Brimhall methods and/or atlas orthogonal techniques). Swimming, jacuzzi or soaking on a hot bath with Epsom salts and some nice essential oils. Meditation, yoga, gentle stretching, and yes, exercise as you can do it. I found lifting heavy things (weights) helps too.

Get any other issues that might make your fibro worse dealt with as best as possible, such as other medical conditions, stress, etc. And behavior changes in accepting you might not be able to do everything without sufficient rest and recovery too.

And last, make sure you are sleeping well. Have a good sleep environment. Stick to a strict sleep schedule even on your days off. If you need a medication to help you sleep better, talk to doctor or try melatonin.

And remember, sometimes it's the little things that slowly add up to make a difference. There's not typically going to be one big win, but small differences can really help over time.

1
9f161572b637aaa94df427a46156fb74

on July 10, 2012
at 12:58 PM

For me the cause of my fibro was stress. Toxic food stress and mental/percieved stress. I had a whole cascade of health issues come up when my husband found his whole birth family. Yes, his parents had him at 16, then got married, still married and now he has 3 siblings, and I have 2 mother in laws! Really crazy time. Anyway. It just aggravated other stresses that were already there. Mainly food stress, toxic, sugar and gluten laden foods which were my favorite (aka addiction) started the whole reaction. All that had to go bye bye when I basically couldn't hold anything down or in. Both ways. Then I began with gluten free, then the GAPS diet. I felt a ton better, but I would say, I really felt muscle tightness mostly during the GAPS diet. That diet allowed a lot of honey. Therefore, I feel that carbs really contribute to fibro as well.

Meditation (guided) has really helped. The book Full Catastrophe Living by Jon Kabat-Zinn really helped calm my whole nervous system. I think the nervous system just goes haywire and needs a mechanism to calm is down.

Sleep is also really key. I have had terrible issues with it. Falling asleep is no problem, but waking up at 4am really makes me feel crappy. I don't take anything but low carb has helped me with this.

Also, low carb had really helped. I now pretty much cycle, 2 days low carb 30-50, then increase carbs 70-100, maybe more, on one day. But, last weekend I went overboard and my sleep sucked and I felt super stiff on Monday morning. Went low carb yesterday and slept well and feeling great today.

1
0a9ad4e577fe24a6b8aafa1dd7a50c79

on July 10, 2012
at 02:56 AM

Protein mimicry by certain viruses/bacteria/fungi. Pretty sure the protein in this case would be Type 2, Type 3 and Type 6 Collagen.

Immune deficiency exacerbates the problem. Or rather, it lets the problem occur in the first place.

E36cb992cf0a5eba8b97a359c15f38b3

(4347)

on July 10, 2012
at 12:08 PM

Do you have sources? I don't ask this to be a pain; rather, I'm genuinely interested.

0a9ad4e577fe24a6b8aafa1dd7a50c79

(5150)

on July 10, 2012
at 02:24 PM

I do, but I'm not about to go dig them up among stacks of files. Here's a basic study, not the one I'm referring to though: http://www.ncbi.nlm.nih.gov/pubmed/11507631

0a9ad4e577fe24a6b8aafa1dd7a50c79

(5150)

on July 10, 2012
at 02:28 PM

Something a bit more detailed: http://www.ncbi.nlm.nih.gov/pubmed/16153847

0
1edb06ded9ccf098a4517ca4a7a34ebc

on July 10, 2012
at 01:21 PM

Have you tried something similar to the Wahls Diet? It is essentially a paleo-style diet optimized for mitochondrial care and efficiency. I would try following that a couple months and seeing how things progress, and making sure that you're also supplementing with r-ALA, CoQ10 (ubiquinol), and creatine.

http://www.terrywahls.com/eating-the-wahls-way

Hope you find relief soon.

4ef079c57d2140bba4dbf4e30240a645

(4413)

on July 10, 2012
at 03:09 PM

I saw her TED talk. Wow. Amazing. And.. I would say that protocol would work for many autoimmune illnesses. High doses of Ubiqionol, R-la, Lycopene and other antioxidants along with a high protein and high vegetable diet, lowered my Thyroid antibodies into the negative range.

0
46bee6b93ee79082ea1094f26c2da5a4

(837)

on July 10, 2012
at 01:06 PM

Have you tried yoga? I'd be a (bigger) mess without regular yoga, it helps so much.

0
3846a3b61bc9051e4baebdef62e58c52

(18635)

on July 10, 2012
at 02:58 AM

I would say one theory is the neurological feedback loop of pain being hypersensitive so that a response (and associated tissue changes like spasm or inflammation) is triggered at lower thresholds than normal.

Movement based therapy (exercise/PT) and body work (chiropractic and massage) would both be good options to attempt to rectify this mechanism. Increased proprioceptive feedback inhibits nociception. But, these neurological changes may take some time to heal. Just keep working at it! Good luck.

-2
49d1320cc71e4228b14621d2858c1252

on July 10, 2012
at 03:31 AM

I have personally helped quite a few people with fibro. They are all 90-100% pain free and most are off all meds. You can get more info on my youtube site and contact me there if you have any questions.I don't know if this would be for you or not but it's free to find out more and research. http://www.youtube.com/user/westsidephxrelivers?feature=results_main

A65499f2f8c65602881550fe309cd48c

(3501)

on July 10, 2012
at 03:45 AM

Down voted...why? You are schlepping very un-paleo crap.

4ef079c57d2140bba4dbf4e30240a645

(4413)

on July 10, 2012
at 08:13 AM

oh geez. I don't know if its crap or not but its TACKY is what it is.

49d1320cc71e4228b14621d2858c1252

(21)

on July 10, 2012
at 06:48 PM

I was just trying to help. You asked a question and I have an answer. It has worked on everyone I know and I have used it for 15 years. IT's been around for over 22 years and everyone gets results, plus there is a ton of science and research to back it up. The products literally saved my moms life. I knew people would probably leave the comments they did about something they have never really researched but I am not the type of person to not say something when someone is asking for help and I know of something to help it. Sorry to offend, not what I was trying to do

A65499f2f8c65602881550fe309cd48c

(3501)

on July 10, 2012
at 09:45 AM

I went to the website to look at the products...most full of soy. The kids stuff is loaded with soy and sugars....yep. Crap.

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