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How do I get my doc to pay for genetic testing?

Answered on August 19, 2014
Created January 21, 2012 at 6:48 PM

Since I have Parkinson's on both sides (Grandparents) of my family tree, I'd like to get the most complete genetic testing for myself and family members.

I have a PPO, so I can self refer, which is great. So, what are the key buzz phrases I need to use to get the most complete medical background tests?

Any other advice regarding this issue, or links for PD related genetic help, is greatly appreciated in advance.

EDIT: Thanks for the suggestions for 23andme! What a great website and now I'm meeting random "relatives". The results were that I'm not a carrier for anything ...Yay. But I am 3% Neanderthal LOL.

Medium avatar

(4878)

on January 25, 2012
at 06:43 PM

Thanks! I signed up for 23andme, but will also be working with a genetic counselor.

Medium avatar

(4878)

on January 25, 2012
at 06:42 PM

Thanks, I signed up today!

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2 Answers

best answer

2
4781cf8ae1bfcb558dfb056af17bea94

(4359)

on January 21, 2012
at 09:24 PM

If you end up paying for it yourself and you just want the basic Parkinson's genetic test, do 23andme. You'll end up with a lot more than just the Parkinson's test and the cost will probably be much lower than going through the medical establishment.

Medium avatar

(4878)

on January 25, 2012
at 06:42 PM

Thanks, I signed up today!

2
Bebca5be026bf2633648452db9641859

(225)

on January 21, 2012
at 10:32 PM

Go to a genetic counselor. Primary care docs and even most specialists have no clue what genetic tests are on the market or how to interpret them (they call genetic counselors for help when their patients ask for these tests). So go to the source, a genetic counselor will discuss the available tests, their benefits, limitations, and interpret the results for you. They will even help with insurance issues getting the testing covered. You can look one up near you at www.nsgc.org

Medium avatar

(4878)

on January 25, 2012
at 06:43 PM

Thanks! I signed up for 23andme, but will also be working with a genetic counselor.

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