1

votes

Mitigating losses (weight gain) during a crisis (sickness)

Answered on August 19, 2014
Created February 16, 2013 at 5:07 PM

I have been stricken with a terrible sickness that has left me severely handicapped when it comes to physical and mental activity. It is still unknown at this time as my blood work, aside from a slightly lowered WBC, is normal indicating a perfectly healthy 23 y/o male.

If I do any form of exercise, I become tired and fatigued very rapidly. Shopping the outside aisles has become my only form it seems.

I used to follow the IF protocol to a T and saw amazing results. Then I incorporated paleo style eating and saw even better results that allowed me to cut to under 12% BF.

Although I never count calories intuitively I know I was eating incredibly low calorie each day and felt great because I looked amazing.

Now I am off the IF because once I stopped, I started feeling slightly better. Then, as a way to get more vitamin C, I added more fruits in which really helped.

While ultimately my goal is to feel better and return to full health, I really hate that I'm slowly watching 3 years of hard work slowly disappear. The scale is creeping up and the mirror is starting to become my worst enemy. The worst part is, I feel helpless in the whole matter because it's a paradox.

In order to feel better and heal I need to eat plenty of fruits and vegetables, yet Im never hungry because my appetite is suppressed from this mystery illness. So while I could lose weight and it's easy too, I am force feeding myself because it is making me feel better, providing my body with the nutrients it needs! On top of that, I can hardly expend any calories passed walking to classes, cooking, grocery shopping, and physical therapy. Coupled with sleeping 14-18 hours a day, it seems most of my waking hours are spent making sure I am eating fruits, good fats, vegetables, and proteins, the weight gain is still happening (not to mention the muscle atrophy, oh the horror!)

As the mirror begins to depict a tale of return to origination, I am becoming desperate to hold on to what I have worked so hard to achieve. Yet, still I wonder, is it even worth it anymore? Shall I just throw in the white towel? Surrender? Forget about it? Just not worry about it until I return to normal, even if it takes 6 more months and I lose everything? I mean I can always do it again... Yet there has to be something I can do. Something!

List of symptoms:

Symptoms range daily and I can't even begin to remember all of them.

-Fatigue/lethargy
-cold extremities
-mental fog/trouble concentrating. SLow speech slow reactions
-mood swings: when I feel good I feel normal, when Im "in the fog" or "the beast" has me I am irritable and prone to being snappy
-constipation/diarrhea
-always feel bloated
-urinary troubles (i always seem to have a little extra dribble)
-no reaction to caffeine/alcohol/sugar, just increased anxiety.

oh! these are high up there too
-breathing difficulties
-heart palpitations/heart flutterings
-strange cravings
-light headedness/dizziness, like a sense of being off balance (like the balance mechanism is broken) -balance issues

I think there are some gut issues but its hard to describe. Sometimes I have gas. A lot of times after eating my big ass salad, it makes these funny noises like popping/clicking.

here is some of my most recent bloodwork:

White blood cells: 3.3 k/ul
Red blood cells: 4.17 m/ul
Hemoglobin: 13.4 g/dl
Hematocrit: 37.3%
MCV: 89.4 fL
MCH: 32.1 pg
MCHC: 35.9%
RBC Dist. width: 13.0%
Platelet count 176 k/uL

Segs: 52.7%
Lymphocytes: 35.8%
Monocytes: 9.7%
Eosinophilis: 0.9%
Basophils: 0.9%
ABS Segs: 1.7 k/uL
ABS Lymphocytes: 1.2 k/uL
ABS Monocytes: 0.3 k/uL
ABS Basophils: 0.0 k/uL
ABS Eosinophils: 0.0 k/uL

Sodium 139 mEQ/L
Potassium 4.3 mEQ/L
Chloride 105 mEq/L
Carbon Dioxide 26 mEq/L
Urea Nitrogen 19 mg/dl
Creatinine 1.00 mg/dl
Glucose 89 mg/dl
calcium total 9.5 mg/dl
protein total 6.8 mg/dl
albumin 4.8 mg/dl
SGOT { AST } 20 U/L
SGPT { ALT } 19 U/L
Alkaline Phosphatase 61 U/L
Bilirubin Total 0.4 mg/dl

Thank god this is the second time my thyroid back in normal range!

TSH: 1.313 uIU/mL


EDIT: UPDATE, March 1st

Just got back from the blood doctor, they ran tests for Lyme, Mono, cancers, and STDs all of which came back negative.

My White blood cell count is still below average. Today it was 3.7, down from 4.1.

I think we are going to be referred to a hormone specialist next.

3b031bce7c181c10452ee202e2b54dc6

(803)

on September 07, 2013
at 01:28 AM

I edited the original post for ya, and thank you in advance for your interest!

3b031bce7c181c10452ee202e2b54dc6

(803)

on March 22, 2013
at 12:18 AM

Hey VB, I was wondering if you could email me, my email is my username @ gmail.com I just feel it would be easier

F5a0ddffcf9ef5beca864050f090a790

(15515)

on March 17, 2013
at 04:25 AM

David, I don't know about just one plum. I think it is hard to tell, but sulphur burps are a pretty common symptom of SIBO. My doctor told me that people respond quite well to antibiotics and then you have to be on a very strict diet for 2 years (you cannot have too much fruit but you should include starchy veggies and safe starches) after the treatment. Please take the breath test and come back to me - I want to know the outcome. I would not diagnose SIBO just because of one plum, it is the whole array of symptoms. And to me - you are that case.

3b031bce7c181c10452ee202e2b54dc6

(803)

on March 17, 2013
at 02:15 AM

Hey VB, I think I was in denial for SIBO. But now, Im thinking I have it again. Im definitely going to get the breath test done ASAP. I just have a quick question and hope you can get back to me... I ate a plum after not eating for a few hours and then about 20 minutes later I started burping. Is this a pretty strong indicator I have SIBO?

3b031bce7c181c10452ee202e2b54dc6

(803)

on March 05, 2013
at 07:55 PM

I honestly believe that I got very sick with penumonia/bronchitis and gastroenteritis. I was under a lot of stress being abroad and my body just got really sick all at once. Now its just important to eat and heal.

3b031bce7c181c10452ee202e2b54dc6

(803)

on March 05, 2013
at 07:53 PM

It's frustrating when the doctor says "I dont know whats wrong" and be referred on to yet more specialists.. They are sending me to another hospital to basically start over in case something was missed, but I think IM going to see a hormone specialist. I will mention SIBO and other things I think it could be, Lyme, chronic fatigue, and a few more. I am not keeping strict scd/paleo/fodmaps anymore because the symptoms dont seem to be related to when I eat, like you mentioned with SIBO.

3b031bce7c181c10452ee202e2b54dc6

(803)

on March 05, 2013
at 07:51 PM

Hey VB, Hope all is well in your world with the SIBO I was just wondering if SIBO can cause a continuous low white blood cell count? My last 5 blood work ups have indicated a slightly below average white blood count.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 28, 2013
at 07:10 PM

Oh, and no need to eat only meat now since you know it does not make any difference. But stick with a very strict version of SCD/Paleo/Fodmaps. I am glad you are keeping me posted. Don't worry, you will get through it!

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 28, 2013
at 07:09 PM

I meant bloating and GI stuff. Let me know how the results checked out. You know - I no longer have SIBO but I still have all the symptoms - fatigue and so many more. As if I still have it. Plus I have low blood pressure and other very unpleasant things. I am getting my blood work results soon and frankly, I am a bit worried. I cannot wait to see my doctor.

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 28, 2013
at 06:53 PM

when you say eat only meat and see if you feel any different, what kind of different are you talking?

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 28, 2013
at 06:50 PM

I have been tested for all the above except SIBO. I am going back tomorrow for follow up tests and results from last time. The thing is even during Intermittent fasting I still have brain fog. I ate nothing but meat (Chicken, turkey, and fish (salmon, trout, and Swai)) for 4 days straight. I still had brain fog and trouble concentrating before and after eating. No ease on the fatigue either. My eczema cleared up a little though!

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 24, 2013
at 07:22 PM

I went over your symptoms again. SIBO. Two things scream SIBO to me: always feel bloated and strange cravings. You cannot get those with lyme or mono (as far as I know). Also, I am glad you don't have a diarrhea because you don't fit under hydrogen under my description. How much does it cost to have this test done? I paid around $60.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 24, 2013
at 07:18 PM

Can you get tested for mono and lyme? As well as parvovirus b-19? The good thing about SIBO it is very easy to test and detect. If you don't find anything, just get tested to rule it out.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 24, 2013
at 07:17 PM

I don't know. But everything I have read from your posts seems very SIBO to me. Here is a simple test you can do: try eating only meat (grass-fed) for one meal. See if you feel any different. It is just one meal. I never felt constipation till I stopped eating fruit. When I was eating fruit, everything was normal.

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 24, 2013
at 06:14 PM

the thing is, my symptoms align so well with lyme, mono, and a few others like parvovirus b-19 and cytomegalovirus. I havent been constipated or had diarrhea. my stools are just really hard to pass and fat heavy.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 24, 2013
at 06:00 PM

Hey David. I am doing well except for my fatigue. Since SIBO is no longer a problem, it could be leftover from my SIBO (lack of iron and B12) or possible liver damage. I will find out on Tuesday. Diarrhea is definitely SIBO (hydrogen producing bacteria). Fatigue is definitely SIBO. Check for more symptoms at siboinfo.com

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 23, 2013
at 06:30 AM

Hey VB, Just wanted to check in on how you are doing. I was wondering... SIBO causes chronic diarrhea right? My fatigue/lethargy is all day long, is this characteristic of SIBO?

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 09:06 PM

My advice - experiment with different foods and see what works for you. I suggest grass fed meat and low FODMAPS vegetables. But I don't know if it is going to work for you or not. Again, try to eat foods one at a time and then record how you feel. Some meals I had to isolate vegetables to one single one to figure out if it worked for me or not.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 09:03 PM

For me, if I eat some foods, I get so tired, I fall asleep. Ginger is one of them. I don't know what causes it but my guess is low stomach acid. I am sorry I am not sure I can answer your questions - because I don't know that much, really. I am not a doctor and I only know what happened to me and that's it. Even though my bacteria is killed, my health is far from being perfect. I think it is going to take another six months or more. But at least I know how to kill it off and what it is. I only learned about SIBO last November - I did not even know anything about it before.

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 19, 2013
at 08:42 PM

falling asleep after eating certain foods... what does that mean is happening? You know, like what is going on to cause it?

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 19, 2013
at 08:40 PM

Hey congrats on kicking SIBO! I hope you use the experience as a way to help others through the toughness! I had two apples this morning and felt horrible, but I also took cinnamon, garlic, echinacea, and milk thistle. I will start just making entire meals of a certain type of food to see.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 08:15 PM

oh, and I meant write down... sorry

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 08:13 PM

too much fruit, sorry. I wanted to write too many different fruits

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 08:11 PM

I would eat something, record it and then I would write down the reaction. Here is a sample: I ate liver, felt great. I ate burned meat, got a stomach ache. Did not feel well. I had juice, I felt tired and fell asleep. I ate too many fruit, got sugar cravings and hives. I ate chocolate at night, had restless sleep and palpitations. I don't know if you are as sensitive as I am, but since you sleep so much, right down how it affected your energy levels. I also recorded my energy levels after eating foods. I made up a 0 to 10 scale, where 0 would be falling asleep after eating certain foods.

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 19, 2013
at 07:52 PM

how do you know and verify a reaction? What am I looking for?

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 07:26 PM

If I were you, I would develop a food journal and I would list your reaction to foods. My reaction was almost immediate.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 07:25 PM

First and foremost: you can eat grass fed beef. For me I had to have it almost raw, not very cooked. For you it can be different. Raw cucumbers worked for me too. I don't know whether they will work for you or not. I was keeping a journal of what foods worked for me and what foods did not. The worst foods for me were cooked and overcooked. The best food was almost raw meat. But you may be different. I don't know. I don't have the answer. I reacted to all nuts and seeds, but I had cravings for them and I ate them. Not every day, but I ate pecans, walnuts and sometime had cravings for macadamias

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 07:22 PM

David - to answer all your food questions - I really don't know. I can tell you what worked for me, but I don't know if it will work for you or not. See for yourself.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 07:21 PM

Guess what??? I had another methane/hydrogen test done today and I AM ALL CLEAR!!!! I AM SIBO FREE!!! I KILLED THE BACTERIA!!! Now I have to eat well for the next two years to restore my gut flora. I ate cheese today, but it was on SCD legal list so I am fine. I could not believe that my methane producing bacteria is no longer there. Wow. No more antibiotics for me. I hope that I have learned my lesson the hard way and I will be very very careful from now on.

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 19, 2013
at 04:44 AM

Can I have nuts and seeds? Should I have nuts and seeds? Is kale ok? Should I cook/steam everything?

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 19, 2013
at 03:52 AM

Well, mainly I can just make some dietary changes that are focused on treating IBS/SIBO until I can get properly dx'd. What do you recommend eating? just lean meats like chicken and fish. I need some kind of veggie. is raw spinach ok?

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 03:37 AM

Good luck and again, please come back and let me know. I really need to know if you have SIBO or not.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 03:36 AM

Then if you take the test and you don't have it - you will have to find another cause. So proceed with caution.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 03:35 AM

Again, in some cases SIBO requires antibiotics. You don't want to administer antibiotics for yourself, it can be dangerous. No self-medication - it is wrong. I could not find a doctor for a while, but I would not take any medicine without my doctor's supervision. But I am more cautious about doctors now, after five of them failed to properly diagnose and treat me. So even though I listen to my doctors, it is me who makes the final decision about my treatment.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 03:31 AM

1. You need to take a test 2. If you test positive, you need to find a good doctor. I recommend dr. Siebecker if you cannot find a good one, but I am sure you can find somebody 3. No, do not treat yourself. You might do some damage. 4. No juice fast. No, it is not beneficial. 5. Read this: http://www.eat-real-food-paleodietitian.com/paleo-diet-and-SIBO.html

F299706618ad5d2c014130cb35d07dcf

(628)

on February 19, 2013
at 03:15 AM

Haha I am going into health care for that very reason...

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 19, 2013
at 03:06 AM

would it be safe to treat myself for IBS? Should I do any kind of juice fast? I am so tired of being tired and unable to concentrate. Not able to walk or feel normal!

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 02:36 AM

It depends. Hydrogen bacteria develops from acute gastroenteritis, so you might have hydrogen. Be ready that your regular doc does not know anything and might be apprehensive. They want to look smart and have no idea. Please do not self dx yourself - GET THE TESTING DONE.

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 19, 2013
at 01:50 AM

Well, I did do a lot of fasting, but only intermittently. I have read that it is caused by stress, traveler's diarrhea, and food poisoning. All three of which I had around the same time. There may even be a link between getting Mononucleosis and IBS. Im going to self dx myself and start treating for SIBO

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 19, 2013
at 01:45 AM

Learning so much. haha I feel like I could go into the healthcare industry now

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 18, 2013
at 05:59 AM

I forgot to mention the obvious: no grain, no sugar, no processed foods... Just look up SCD diet and Low FODMAPs.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 18, 2013
at 12:30 AM

The causes are different for different bacteria. Mine was from prolonged fasting. Yours is probably due to heavy antibiotics or some other GI problem. It is hard for me to answer the foods question but generally avoid onion and cabbage families. Carrots and cucumbers pose no problem.

F299706618ad5d2c014130cb35d07dcf

(628)

on February 17, 2013
at 09:12 PM

That's intense. You've got be learning a lot through all this. Good Luck with your results!

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 17, 2013
at 08:15 PM

What caused yours? Why did mine not appear until after I got really sick? I will talk to my Dr about a test when I see him on March 1st. What kinds of food would exacerbate my symptoms? I feel as if mine are slowly going away with a lot of rest.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 17, 2013
at 07:09 AM

I edited my answer for you.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 17, 2013
at 06:59 AM

I am going to edit my answer for you.

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 17, 2013
at 06:23 AM

I'm hoping that is what it is, however I have been tested for parvovirus B-19, Cytomegalovirus, Epsteinn-Barr, Lyme, HIV, Leukemia, and TB. All have returned negative. I am still expecting some more results from a hemotologist in the next week or so and if anything hits, I would really love to post back.

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5 Answers

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F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 16, 2013
at 06:08 PM

I have a suggestion - it might sound crazy but try it - it might help. Try a low-fat low-sugar high-carb high-fiber version of Paleo. It means more vegetables, very few berries, less fat and more tubers.

DON"T EVER GIVE UP!!!

mitigating-losses-(weight-gain)-during-a-crisis-(sickness)

Oh, and I love to hear about mystery illnesses. Could you list your symptoms in bullet points? It is hard to figure them out from the text.


Okay, I will be very very honest and I hope you will take my answer seriously. The reason I say this because I might sound like a broken record, but it is the TRUTH. Maybe I don't know the whole truth - I am still learning, but that's the process and just maybe it is going to help you.

I had the same mystery illness and I thought I was dying from some disease that people had no idea what it was. At one point I actually went on vacation thinking it would be the last vacation of my life.

I know exactly when this illness started and what triggered it.

I don't know anything about your numbers. I am not a doctor and frankly I am bad at math (not algebra though, I am very good at algebra).

All your symptoms match mine. ALL OF THEM. By the way, the loss of balance is called ataxia or something like that. It comes from gluten intolerance that is connected to the problem I am going to outline for you.

I am sorry to break it up to you, but you probably have SIBO. The only way to know for sure is to get a hydrogen/methane test done. If you are constipated, you have methane producing bacteria (most likely). If you have a diarrhea - hydrogen producing (and then you are in luck because it is easier to get rid of). It seems to me that you are in advanced stages (you had it for a while).

The reason why you got weak is the same reason it happened to me. Your bacteria keeps eating your food and takes all your nutrients. You have none left for your body. Do you know you are not supposed to overexert yourself with SIBO? You can't even exercise!

Now if you go and do the test and it shows that you don't have SIBO I promise I will shut up and I will never say to another human being that they have it. I will stand by my word.

The sooner you know, the easier it is to get rid of it. I got it 6 years ago and I did not know what it was. Now those little suckers developed biofilm and I am struggling to kill those bastards.

Good luck!

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 17, 2013
at 06:59 AM

I am going to edit my answer for you.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 18, 2013
at 05:59 AM

I forgot to mention the obvious: no grain, no sugar, no processed foods... Just look up SCD diet and Low FODMAPs.

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 17, 2013
at 08:15 PM

What caused yours? Why did mine not appear until after I got really sick? I will talk to my Dr about a test when I see him on March 1st. What kinds of food would exacerbate my symptoms? I feel as if mine are slowly going away with a lot of rest.

3b031bce7c181c10452ee202e2b54dc6

(803)

on September 07, 2013
at 01:28 AM

I edited the original post for ya, and thank you in advance for your interest!

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 19, 2013
at 08:40 PM

Hey congrats on kicking SIBO! I hope you use the experience as a way to help others through the toughness! I had two apples this morning and felt horrible, but I also took cinnamon, garlic, echinacea, and milk thistle. I will start just making entire meals of a certain type of food to see.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 02:36 AM

It depends. Hydrogen bacteria develops from acute gastroenteritis, so you might have hydrogen. Be ready that your regular doc does not know anything and might be apprehensive. They want to look smart and have no idea. Please do not self dx yourself - GET THE TESTING DONE.

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 19, 2013
at 08:42 PM

falling asleep after eating certain foods... what does that mean is happening? You know, like what is going on to cause it?

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 19, 2013
at 04:44 AM

Can I have nuts and seeds? Should I have nuts and seeds? Is kale ok? Should I cook/steam everything?

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 08:11 PM

I would eat something, record it and then I would write down the reaction. Here is a sample: I ate liver, felt great. I ate burned meat, got a stomach ache. Did not feel well. I had juice, I felt tired and fell asleep. I ate too many fruit, got sugar cravings and hives. I ate chocolate at night, had restless sleep and palpitations. I don't know if you are as sensitive as I am, but since you sleep so much, right down how it affected your energy levels. I also recorded my energy levels after eating foods. I made up a 0 to 10 scale, where 0 would be falling asleep after eating certain foods.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 09:06 PM

My advice - experiment with different foods and see what works for you. I suggest grass fed meat and low FODMAPS vegetables. But I don't know if it is going to work for you or not. Again, try to eat foods one at a time and then record how you feel. Some meals I had to isolate vegetables to one single one to figure out if it worked for me or not.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 03:31 AM

1. You need to take a test 2. If you test positive, you need to find a good doctor. I recommend dr. Siebecker if you cannot find a good one, but I am sure you can find somebody 3. No, do not treat yourself. You might do some damage. 4. No juice fast. No, it is not beneficial. 5. Read this: http://www.eat-real-food-paleodietitian.com/paleo-diet-and-SIBO.html

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 03:37 AM

Good luck and again, please come back and let me know. I really need to know if you have SIBO or not.

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 19, 2013
at 07:52 PM

how do you know and verify a reaction? What am I looking for?

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 18, 2013
at 12:30 AM

The causes are different for different bacteria. Mine was from prolonged fasting. Yours is probably due to heavy antibiotics or some other GI problem. It is hard for me to answer the foods question but generally avoid onion and cabbage families. Carrots and cucumbers pose no problem.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 03:35 AM

Again, in some cases SIBO requires antibiotics. You don't want to administer antibiotics for yourself, it can be dangerous. No self-medication - it is wrong. I could not find a doctor for a while, but I would not take any medicine without my doctor's supervision. But I am more cautious about doctors now, after five of them failed to properly diagnose and treat me. So even though I listen to my doctors, it is me who makes the final decision about my treatment.

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 19, 2013
at 03:52 AM

Well, mainly I can just make some dietary changes that are focused on treating IBS/SIBO until I can get properly dx'd. What do you recommend eating? just lean meats like chicken and fish. I need some kind of veggie. is raw spinach ok?

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 07:25 PM

First and foremost: you can eat grass fed beef. For me I had to have it almost raw, not very cooked. For you it can be different. Raw cucumbers worked for me too. I don't know whether they will work for you or not. I was keeping a journal of what foods worked for me and what foods did not. The worst foods for me were cooked and overcooked. The best food was almost raw meat. But you may be different. I don't know. I don't have the answer. I reacted to all nuts and seeds, but I had cravings for them and I ate them. Not every day, but I ate pecans, walnuts and sometime had cravings for macadamias

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 19, 2013
at 03:06 AM

would it be safe to treat myself for IBS? Should I do any kind of juice fast? I am so tired of being tired and unable to concentrate. Not able to walk or feel normal!

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 07:21 PM

Guess what??? I had another methane/hydrogen test done today and I AM ALL CLEAR!!!! I AM SIBO FREE!!! I KILLED THE BACTERIA!!! Now I have to eat well for the next two years to restore my gut flora. I ate cheese today, but it was on SCD legal list so I am fine. I could not believe that my methane producing bacteria is no longer there. Wow. No more antibiotics for me. I hope that I have learned my lesson the hard way and I will be very very careful from now on.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 08:13 PM

too much fruit, sorry. I wanted to write too many different fruits

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 03:36 AM

Then if you take the test and you don't have it - you will have to find another cause. So proceed with caution.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 07:22 PM

David - to answer all your food questions - I really don't know. I can tell you what worked for me, but I don't know if it will work for you or not. See for yourself.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 08:15 PM

oh, and I meant write down... sorry

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 19, 2013
at 01:50 AM

Well, I did do a lot of fasting, but only intermittently. I have read that it is caused by stress, traveler's diarrhea, and food poisoning. All three of which I had around the same time. There may even be a link between getting Mononucleosis and IBS. Im going to self dx myself and start treating for SIBO

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 07:26 PM

If I were you, I would develop a food journal and I would list your reaction to foods. My reaction was almost immediate.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 19, 2013
at 09:03 PM

For me, if I eat some foods, I get so tired, I fall asleep. Ginger is one of them. I don't know what causes it but my guess is low stomach acid. I am sorry I am not sure I can answer your questions - because I don't know that much, really. I am not a doctor and I only know what happened to me and that's it. Even though my bacteria is killed, my health is far from being perfect. I think it is going to take another six months or more. But at least I know how to kill it off and what it is. I only learned about SIBO last November - I did not even know anything about it before.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 24, 2013
at 06:00 PM

Hey David. I am doing well except for my fatigue. Since SIBO is no longer a problem, it could be leftover from my SIBO (lack of iron and B12) or possible liver damage. I will find out on Tuesday. Diarrhea is definitely SIBO (hydrogen producing bacteria). Fatigue is definitely SIBO. Check for more symptoms at siboinfo.com

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 23, 2013
at 06:30 AM

Hey VB, Just wanted to check in on how you are doing. I was wondering... SIBO causes chronic diarrhea right? My fatigue/lethargy is all day long, is this characteristic of SIBO?

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 24, 2013
at 07:22 PM

I went over your symptoms again. SIBO. Two things scream SIBO to me: always feel bloated and strange cravings. You cannot get those with lyme or mono (as far as I know). Also, I am glad you don't have a diarrhea because you don't fit under hydrogen under my description. How much does it cost to have this test done? I paid around $60.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 24, 2013
at 07:18 PM

Can you get tested for mono and lyme? As well as parvovirus b-19? The good thing about SIBO it is very easy to test and detect. If you don't find anything, just get tested to rule it out.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 24, 2013
at 07:17 PM

I don't know. But everything I have read from your posts seems very SIBO to me. Here is a simple test you can do: try eating only meat (grass-fed) for one meal. See if you feel any different. It is just one meal. I never felt constipation till I stopped eating fruit. When I was eating fruit, everything was normal.

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 24, 2013
at 06:14 PM

the thing is, my symptoms align so well with lyme, mono, and a few others like parvovirus b-19 and cytomegalovirus. I havent been constipated or had diarrhea. my stools are just really hard to pass and fat heavy.

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 28, 2013
at 06:53 PM

when you say eat only meat and see if you feel any different, what kind of different are you talking?

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 28, 2013
at 07:09 PM

I meant bloating and GI stuff. Let me know how the results checked out. You know - I no longer have SIBO but I still have all the symptoms - fatigue and so many more. As if I still have it. Plus I have low blood pressure and other very unpleasant things. I am getting my blood work results soon and frankly, I am a bit worried. I cannot wait to see my doctor.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on February 28, 2013
at 07:10 PM

Oh, and no need to eat only meat now since you know it does not make any difference. But stick with a very strict version of SCD/Paleo/Fodmaps. I am glad you are keeping me posted. Don't worry, you will get through it!

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 28, 2013
at 06:50 PM

I have been tested for all the above except SIBO. I am going back tomorrow for follow up tests and results from last time. The thing is even during Intermittent fasting I still have brain fog. I ate nothing but meat (Chicken, turkey, and fish (salmon, trout, and Swai)) for 4 days straight. I still had brain fog and trouble concentrating before and after eating. No ease on the fatigue either. My eczema cleared up a little though!

3b031bce7c181c10452ee202e2b54dc6

(803)

on March 05, 2013
at 07:51 PM

Hey VB, Hope all is well in your world with the SIBO I was just wondering if SIBO can cause a continuous low white blood cell count? My last 5 blood work ups have indicated a slightly below average white blood count.

3b031bce7c181c10452ee202e2b54dc6

(803)

on March 05, 2013
at 07:55 PM

I honestly believe that I got very sick with penumonia/bronchitis and gastroenteritis. I was under a lot of stress being abroad and my body just got really sick all at once. Now its just important to eat and heal.

3b031bce7c181c10452ee202e2b54dc6

(803)

on March 05, 2013
at 07:53 PM

It's frustrating when the doctor says "I dont know whats wrong" and be referred on to yet more specialists.. They are sending me to another hospital to basically start over in case something was missed, but I think IM going to see a hormone specialist. I will mention SIBO and other things I think it could be, Lyme, chronic fatigue, and a few more. I am not keeping strict scd/paleo/fodmaps anymore because the symptoms dont seem to be related to when I eat, like you mentioned with SIBO.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on March 17, 2013
at 04:25 AM

David, I don't know about just one plum. I think it is hard to tell, but sulphur burps are a pretty common symptom of SIBO. My doctor told me that people respond quite well to antibiotics and then you have to be on a very strict diet for 2 years (you cannot have too much fruit but you should include starchy veggies and safe starches) after the treatment. Please take the breath test and come back to me - I want to know the outcome. I would not diagnose SIBO just because of one plum, it is the whole array of symptoms. And to me - you are that case.

3b031bce7c181c10452ee202e2b54dc6

(803)

on March 17, 2013
at 02:15 AM

Hey VB, I think I was in denial for SIBO. But now, Im thinking I have it again. Im definitely going to get the breath test done ASAP. I just have a quick question and hope you can get back to me... I ate a plum after not eating for a few hours and then about 20 minutes later I started burping. Is this a pretty strong indicator I have SIBO?

3b031bce7c181c10452ee202e2b54dc6

(803)

on March 22, 2013
at 12:18 AM

Hey VB, I was wondering if you could email me, my email is my username @ gmail.com I just feel it would be easier

1
089dd41b18fbb95ebb5347cded708d98

(5635)

on February 16, 2013
at 11:19 PM

so you've had bloodwork and doctors can't figure out what's wrong? what kind of tests have you had done? it seems like you are still pretty active if you can do all those things so you are still getting plenty of physical activity in.

i am recovering from an illness as well and have been bedridden for about 2 years. i get up and can do some things, but i've lost a ton of muscle and weight in general. i don't keep track of bodyfat so i'm not sure what level i'm at. i'd say if you feel better eat more fruits and veggies, do that regardless of your weight. why feel miserable just for vanity when you can feel good?

1
Eed7dabde3d61910685845e04605267f

on February 16, 2013
at 06:49 PM

Sounds like hypocortisolism. Also sounds like you've ruin yourself and your metabolism into the ground. The weight gain will happen as you rebound from malnourishement. If you feel bad and think you could feel better, eat, sleep as you are. So you might gain a bit of weight; after years of what sounds like slowly putting your hormones out of whack, this may be a necessary part of getting well.

It's not like you can't work hard again and meet your goals for vanity/body composition after you get healthy. What's more important to you?

0
F299706618ad5d2c014130cb35d07dcf

on February 17, 2013
at 04:29 AM

I know this seems rather simple, but have you been tested for epstein barr virus (Mononucleosis)? I have it right now and the whole, sleeping and needing to eat for energy thing is how I feel. Getting fatigued very rapidly is pretty much the main symptom. I have had it for about a year, sometimes my symptoms stop for about a month and then it comes right back (i'm also type-1 diabetic so i'm dealing with a depressed immune system and crazy blood sugars too). I definitely understand the... only having enough energy to walk to class, cook, and get to the grocery store thing.

I have been in shape my whole life and finally was starting to gain some muscle before I first got sick. Like you said it's really really tough to see all your hard work go away. I am gaining a little weight and it's tough. I know that I just need to keep eating as healthy as I can... so that I can get healthy enough to work out again. haha. I miss the gym but I'm just focusing on rebuilding my immune system.

If you've been working out and eating really healthy for 3 years, youre not going to forget it all in 6 months (if it takes that long). Just trust that your body needs to heel now and that you will be able to pick up your good habits again when youre feeling better. You may even have more motivation when you do (at least that's what I'm hoping happens to me).

Best of luck! I hope my insight helped a little.

  • Hannah

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 17, 2013
at 06:23 AM

I'm hoping that is what it is, however I have been tested for parvovirus B-19, Cytomegalovirus, Epsteinn-Barr, Lyme, HIV, Leukemia, and TB. All have returned negative. I am still expecting some more results from a hemotologist in the next week or so and if anything hits, I would really love to post back.

3b031bce7c181c10452ee202e2b54dc6

(803)

on February 19, 2013
at 01:45 AM

Learning so much. haha I feel like I could go into the healthcare industry now

F299706618ad5d2c014130cb35d07dcf

(628)

on February 19, 2013
at 03:15 AM

Haha I am going into health care for that very reason...

F299706618ad5d2c014130cb35d07dcf

(628)

on February 17, 2013
at 09:12 PM

That's intense. You've got be learning a lot through all this. Good Luck with your results!

0
705e66484ed64fe8e188123de398413e

on February 16, 2013
at 10:24 PM

If this is some kind of hypocortisolism (aka adrenal fatigue), the fact that eating makes you feel better may a short term solution to the real problem. Are you working with a healthcare professional? Maybe someone who could give an ASI test?

If you're really sleeping 14-18 hours a day, then you're still doing IF because your eating window is so short!

Can you quantify the level of calorie/fruit intake?

Why not try a Vitamin C supplement in place of some of the fruit?

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