3

votes

Anyone here managing their MS without drugs?

Answered on August 19, 2014
Created March 12, 2013 at 6:37 AM

Background: I've been struggling with food sensitivities for awhile now. I've isolated a variety of foods that cause a variety of symptoms, including "brain fog". Then, in December, I had an episode of neuropathy that I have found out was caused by multiple sclerosis. It's likely that my MS lesions on my brain have been there for awhile causing the brain fog and memory issues. A new lesion on my spinal cord caused my physical neuropathy.

I had been moving closer to strict Autoimmune Paleo, but I never went 100% until my diagnosis in February. Since then, my fatigue, memory problems, and tingling/numbness have nearly disappeared.

Many people have great results with MS drugs. However, I do not use drugs. Every pharmaceutical that I've ever taken - from birth control to antidepressants to ibuprofen - even marijuana! - has caused collateral damage, and I'm not ready to deal with the kinds of side effects that MS drugs can bring (liver damage, birth defects, cancer, death).

Some will call me a naive idiot for refusing drugs. I can do little to convince you that I have a real working brain, but I'll offer this: In addition to my years of reading to understand my food issues, I've recently had several weeks of time off, which I've mostly spent becoming aware of many of the pros and cons of MS drugs, as well as the pros and cons of NOT being on MS drugs, and the theories behind what causes MS and what can stop it in its tracks. I've also watched many hours of presentations on MS science (proper, anecdotal, AND wacky alternative), but I don't take any of it seriously until I hear the explanations behind the cures.

I don't place much stock in chatrooms and forums, but I find that PaleoHacks seems to have a much lower bullshit to truth ratio than others, so I'd like some more anecdotal evidence, if you can give it:

Do any of you treat your MS with autoimmune diet and exercise, with no pharmaceuticals? How has this succeeded? How has it failed?

Thank you.

564468f093b36d9cdeb8adb138446363

(188)

on March 14, 2013
at 05:52 AM

Docs put me on 50000IU/week for several weeks, and now they recommend 1000IU/day but I'm on 2000. I may up again after my next blood test.

564468f093b36d9cdeb8adb138446363

(188)

on March 14, 2013
at 05:43 AM

Strict Autoimmune Paleo: http://www.thepaleomom.com/2012/05/modifying-paleo-for-autoimmune.html Then add in Terry Wahls' rules: http://www.youtube.com/watch?v=KLjgBLwH3Wc And just in case, eliminate a few more things: http://www.whilesciencesleeps.com/monte-diet/ I collect recipes here: http://pinterest.com/sjoh/paleo-aip-autoimmune-protocol/ And exercise every day. Search YouTube for Loren Cordain "The Paleo Diet and Multiple Sclerosis". (Looked into Swank Diet, but it affects my blood sugar. I just limit my fats to animal, coconut, and olive oil and eat less of them.)

564468f093b36d9cdeb8adb138446363

(188)

on March 14, 2013
at 05:29 AM

Yes, it's fantastically inspiring. I've watched it several times.

Ce41c230e8c2a4295db31aec3ef4b2ab

(32556)

on March 12, 2013
at 02:57 PM

And some commentary by an MS researcher: http://msj.sagepub.com/content/19/2/143.long

Ce41c230e8c2a4295db31aec3ef4b2ab

(32556)

on March 12, 2013
at 02:34 PM

No stories, but have you seen the Vitamin D & MS study? http://www.webmd.com/multiple-sclerosis/news/20090428/high-doses-vitamin-d-cut-ms-relapses Personally, if I had MS, I would get my blood level up to 80-100 ng/ml via sun & supplementation. I do this anyway & my asthma symptoms are history!

Medium avatar

(3024)

on March 12, 2013
at 01:30 PM

+1 for bullshit to truth ratio. This should be an official scientific term.

  • 564468f093b36d9cdeb8adb138446363

    asked by

    (188)
  • Views
    2.2K
  • Last Activity
    1281D AGO
Frontpage book

Get FREE instant access to our Paleo For Beginners Guide & 15 FREE Recipes!

2 Answers

1
A65499f2f8c65602881550fe309cd48c

(3501)

on March 12, 2013
at 12:02 PM

Dr. Terry Wahls "Minding my mitochondria" TED talk should give you a great start. http://youtu.be/KLjgBLwH3Wc

564468f093b36d9cdeb8adb138446363

(188)

on March 14, 2013
at 05:29 AM

Yes, it's fantastically inspiring. I've watched it several times.

0
14d0424c0df973faa4d97a5179d5ce6e

(0)

on March 12, 2013
at 02:48 PM

Where can I find more info about the diet you are on?

564468f093b36d9cdeb8adb138446363

(188)

on March 14, 2013
at 05:43 AM

Strict Autoimmune Paleo: http://www.thepaleomom.com/2012/05/modifying-paleo-for-autoimmune.html Then add in Terry Wahls' rules: http://www.youtube.com/watch?v=KLjgBLwH3Wc And just in case, eliminate a few more things: http://www.whilesciencesleeps.com/monte-diet/ I collect recipes here: http://pinterest.com/sjoh/paleo-aip-autoimmune-protocol/ And exercise every day. Search YouTube for Loren Cordain "The Paleo Diet and Multiple Sclerosis". (Looked into Swank Diet, but it affects my blood sugar. I just limit my fats to animal, coconut, and olive oil and eat less of them.)

Answer Question


Get FREE instant access to our
Paleo For Beginners Guide & 15 FREE Recipes!