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ESRD, transplant in future, modified Paleo because Renal diet sucks. HELP

Asked on February 08, 2015
Created April 27, 2014 at 2:15 AM

Okay, sorry for my long absence, but you'll see why.

3 months ago, my husband was rushed to the ER, having trouble breathing, coughing up crap from his lungs, muscle spasm and SUPER high blood pressure (210/140). Much testing later, poof, we get the diagnosis of End Stage Renal Disease and he's put on 6 different bp meds and dialysis 3-4 days a week just to stabilize him.

Now the dietitians at the hospital put him on a renal, low sodium, low potassium, cardiac diet, because he also had some heart damage because of the fluid back up and electrolyte imbalance. It's not severe damage mind you, but they want to prevent any future damage.

We had him moved to Cedars for evaluation to see if a transplant is in order and they are willing to do it. But I have to admit, the diet sucks. First, my husband is Korean, so the low sodium part is hard for him to take. I mean, telling a Korean no kimchee is a death sentence in itself. I want to move him to a reasonable version of Paleo. My husband loves meat, especially beef and he loves veggies. I think we can manage on white rice as a carb because it's lower in phosphorus too (which is one of the tenants of a renal diet). Now comes my question.

What are some good resources for specialty Paleo diets? I have scoured Amazon for cookbooks and can't seem to find much. I guess my other issue is we really need to plan meals so I need the nutrition info too. Is there a good nutrition planner/meal planner out there that gives me the info on sodium, potassium, and phosphorus? Hell, I even debated one of those diet delivery services, since we live in SoCal. I've got to keep him healthy enough til transplant time, which is at least 6-12 months out.

Thanks in advance folks and it's good to be back!

****  Just adding some new info since I posted this orginally in April.  It has been a whirlwind getting food into my husband so he doesn't look like a stick.  He's lost over 60lbs and gone from his happy bodybuilder physique to quite scrawny.  We are "trying" to do a modified version of Paleo, but it is VERY difficult when on dialysis and trying to do low phosphorus, low potassium and little to no sodium.  Myself and his parents are on a living donor list for transplantation, though I am last because I am not a blood type match.  Average BP is now 120-130/60-80.  We are awaiting transplant testing results and nearing surgery time every day.  Again, if anyone has a favorite recipe site, I can break down the recipes.  In this short time, I've learned what to avoid and what he can have.  Thanks again for those who've commented and helped.

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3 Answers

1
32f5749fa6cf7adbeb0b0b031ba82b46

(41757)

on December 26, 2014
at 03:58 PM

Stick to the renal diet, but you can make it paleo. Lots and lots of veggies, a little meat. Rice is fine too. Unfortunately, every seasoning out there is probably verboten on a renal diet, being salt-centered. It's going to be bland, but he is literally dying. 

F0a9dea438e7943fa05da318773e785e

on December 26, 2014
at 04:07 PM

yeah, we've managed to get his blood pressure down, so that's improved.  I try to use whatever natural herbs I can for seasoning, but otherwise we're stuck with 1 or 2 commercial ones that are geared towards people with high blood pressure or kidney disease.  Hopefully his donor gets the testing completed soon, so we can get the transplant done and move on with life.

0
F0a9dea438e7943fa05da318773e785e

on February 08, 2015
at 10:04 PM

I don't know how much longer he's going to be able to hang in there.  I've created a facebook page for those who want to follow his journey.  www.facebook.com/patrick081680  There is also a Gofundme associated with it to help with medical expenses, but we really need a type B or O to donate a kidney through Cedars.  Thanks for the info and support.  We really appreciate it.

J.

0
D9c34dca8d04e49d93614d429ccec995

on November 27, 2014
at 09:06 AM

Considering the diagnosis, I think you have to be extremely careful with what your husband eats. Most of the paleo community are relatively healthy with functioning kidneys, and dont mind testing out ideas on themselves to see if they can improve certain blood markers, or how they feel etc. With your husband, he may just not be able to take extra protein or fat. 

I take it your husband wasnt paleo before the diagnosis? 

32f5749fa6cf7adbeb0b0b031ba82b46

(41757)

on December 26, 2014
at 03:55 PM

@Compote He's in kidney failure, excess protein is indeed a bad idea at this time. 

F0a9dea438e7943fa05da318773e785e

on December 26, 2014
at 03:26 PM

 He had been eating most of the Paleo meals I was cooking.  We are working around as much of the "recommendations" from the dialysis place as possible, but it's really ridiculous sometimes.  He's already lost over 60lbs.  Just hoping he gets a transplant soon. 

E83024ab9b7ac4e900a55b0ad1ef39ca

(9)

on November 27, 2014
at 12:37 PM

Protein being "hard on the kidneys" is a myth. Soy protein maybe. 

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