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lyme/viral infections experience wanted

Answered on August 19, 2014
Created March 18, 2012 at 2:40 PM

i have extreme neuropathy/fibro. i cannot afford to go to a LLMD but i could ask a doc for a doxcycline rx.

i was wondering if anyone here who's experienced a lot of neural sx has benefited from taking antibiotics? not trying to hurt any feelings, but a lot of the lyme type groups make me nervous, it seems they're on long term antibiotics without much of an improvement. feel free to post any experiences, thanks

fwiw my cd57 was a 75, in range but this was when i was feeling pretty good. i was expecting it to be at least 100. healthy people are 200

293ba4c95d190bc616b27d85b10d705a

(661)

on March 19, 2012
at 05:35 PM

"I have yet to hear of one person who went to an LLMD and have that LLMD say, "Sorry but you don't have Lyme Disease." LOL seriously

293ba4c95d190bc616b27d85b10d705a

(661)

on March 19, 2012
at 05:33 PM

yup i agree. it was weird, when i was a teen i was put on doxycycline for my acne. after two weeks i stopped taking it because i had a terrible outbreak of cold sores. which in retrospect seems FISHY. i might try two weeks worth and see if i notice any improvements. i'm glad i'm not the only one questioning llmds

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2 Answers

1
1b0940ab80f8b74abf31b8c6ab30f59b

(40)

on March 19, 2012
at 04:32 PM

This is my first time ever posting. I got my first tick bite of the season today. My husband and I live in a heavily infested section of Pennsylvania, and we have a lot of property, with lots of wildlife, and I have been bitten over 100 times in the course of 18 years. I once went to an infectious diseases MD, and he said that they really can't even tell if I have Lyme's disease at any given time, because I have so many Lyme's antibodies in my system. None of the doctors I have seen over the years have seemed to really really know the truth about Lyme's disease. Every time I get bitten, I watch for any symptoms, and if any symptoms present, I get some antibiotics--usually a two-week course.

But generally, sugar and grain free for four years, I feel pretty good. I eat paleo, take supplements, do tick checks and watch for any flu symptoms or feeling weird. Actually, have never felt better in my life. I do know, however, that many of the old people in our area were felled by Lyme, and were treated before they died. I am paranoid about doctors, work for some at large pharma company, and they haven't convinced me of anything except that I stay away from Convention Wisdom and do a lot of self-treating and crowd-sourcing. Today, I removed the tick, and put some coconut oil on the bite site and I will watch for a week or so, the site (bull-eye), or check on any weird feelings. We now know that the ticks have emerged for their weeks or months and we have to do tick checks every night. My husband informed me yesterday that on the 5,000 year old corpe who was found in the Alps, apparently he had Lymes. So the bioterror stuff on the Internet can be taken with a grain of salt. I am not saying don't be concerned, just that I feel really good eating this way.

http://ngm.nationalgeographic.com/2011/11/iceman-autopsy/hall-text

1
F44b15b2fd1ad134200793d6b474fc4c

(938)

on March 19, 2012
at 03:14 PM

The Lyme type groups make me nervous too. I know lots of people who've been on antibiotics for years and years and they don't improve. I can't help but wonder if the antibiotics are contributing to how sick they feel. When they get worse, they say it's a herx reaction to the antibiotics -- meaning it's a good sign because the antibiotics are causing the bacteria to die off, leaving them feeling very sick. But is it a herx reaction or a reaction to the antibiotics? I'm not a doctor, but I have a lot of doubts about this long-term antibiotic treatment.

The Lyme community is split over whether Lyme Disease should be treated with short-term or long-term antibiotics. The LLMDs tend to go for long-term antibiotics. I think some of them are making a lot of money off of very sick people. I have yet to hear of one person who went to an LLMD and have that LLMD say, "Sorry but you don't have Lyme Disease." They all seem to find it and then give antibiotics -- often IV -- for years. My GP said doing that can kill you -- literally.

So, I'd be very careful diving into long-term antibiotics. Just a lay person's opinion...

293ba4c95d190bc616b27d85b10d705a

(661)

on March 19, 2012
at 05:35 PM

"I have yet to hear of one person who went to an LLMD and have that LLMD say, "Sorry but you don't have Lyme Disease." LOL seriously

293ba4c95d190bc616b27d85b10d705a

(661)

on March 19, 2012
at 05:33 PM

yup i agree. it was weird, when i was a teen i was put on doxycycline for my acne. after two weeks i stopped taking it because i had a terrible outbreak of cold sores. which in retrospect seems FISHY. i might try two weeks worth and see if i notice any improvements. i'm glad i'm not the only one questioning llmds

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