1

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Starting paleo...lupus fares up?!

Answered on August 19, 2014
Created February 03, 2012 at 12:28 AM

My girlfriend and I started paleo just a few weeks ago. For me (6' 4", 440#, mid 40's male, no allergies, mild high blood pressure), it's been good so far. I've noticed quite a bit of change just in the two weeks.

On the other hand, she's had a different experience. She's got about 50# or so she could lose from her 5' 8" frame, but nothing's changed. Moreover, she has lupus. She does not take steroids, and so she's tried to control symptoms through diet and exercise. Well, mostly diet. And that was--up until recently--virtually not there either. Wheat and dairy often sent her to migraine hell.

Now, she's noticed a few things:

  • Strong nausea after meals, although that seems has lessened
  • Skin lesions appearing
  • Facial rash

We're keeping sugars, wheat, and dairy completely out. Cooking our own meals. Whole foods. A solid Paleo plan, by the books.

So, has anyone experienced or seen anything like this before? Is it common during the adjustment? Should we wait it out? Your comments are greatly appreciated.

B0fe7b5a9a197cd293978150cbd9055f

(8938)

on May 15, 2012
at 04:01 PM

Have you tried eating a raw carrot daily between meals? It's a quick fix, but it works well.

315107f5516e7e7fecacdf1bd4e3e326

on February 06, 2012
at 05:19 PM

Thanks for the citation. I will take a look at it as well.

315107f5516e7e7fecacdf1bd4e3e326

on February 06, 2012
at 05:18 PM

Thanks for the information. I did look at it, and while the symptoms match, there's no real way to establish a firm diagnosis (channeling House). We're going to go through a wait-and-see, to determine if this detox reaction is indeed the culprit. Fingers crossed.

Ce41c230e8c2a4295db31aec3ef4b2ab

(32556)

on February 03, 2012
at 01:47 AM

Different folks have different detox reactions. Read the link for a description of herxheimer reaction symptoms.

Ce41c230e8c2a4295db31aec3ef4b2ab

(32556)

on February 03, 2012
at 01:45 AM

This happens to *some* people who go paleo--with or without lupus. Plenty of anecdotal reports on the MDA forum.

4781cf8ae1bfcb558dfb056af17bea94

(4359)

on February 03, 2012
at 01:36 AM

On what do you base your conclusion that this happens to some people with lupis and that it is the herxheimer reaction? I suspect nothing.

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4 Answers

best answer

1
Ce41c230e8c2a4295db31aec3ef4b2ab

(32556)

on February 03, 2012
at 12:40 AM

Yes, this can happen for some folks. Sounds like a Herxheimer reaction--pretty much a detox reaction. If so, it will get better.

How is her Vitamin D blood level? Really important that she get tested and aim for the high end of 50-80 ng/ml with an autoimmune disease like lupus.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2902729/

Ce41c230e8c2a4295db31aec3ef4b2ab

(32556)

on February 03, 2012
at 01:47 AM

Different folks have different detox reactions. Read the link for a description of herxheimer reaction symptoms.

4781cf8ae1bfcb558dfb056af17bea94

(4359)

on February 03, 2012
at 01:36 AM

On what do you base your conclusion that this happens to some people with lupis and that it is the herxheimer reaction? I suspect nothing.

Ce41c230e8c2a4295db31aec3ef4b2ab

(32556)

on February 03, 2012
at 01:45 AM

This happens to *some* people who go paleo--with or without lupus. Plenty of anecdotal reports on the MDA forum.

315107f5516e7e7fecacdf1bd4e3e326

on February 06, 2012
at 05:18 PM

Thanks for the information. I did look at it, and while the symptoms match, there's no real way to establish a firm diagnosis (channeling House). We're going to go through a wait-and-see, to determine if this detox reaction is indeed the culprit. Fingers crossed.

best answer

1
F2cd77a6d2133ca3ae5b4353c4047577

on February 03, 2012
at 01:00 AM

Definitely.

Dr. Paul Jaminet seems to think that lupus is a sort of catch-all diagnosis for some sort of underlying bacterial infection. I can't help but agree with him given the support he puts forth in his book. As the body strengthens through resolution of malnutrition and begins to detoxify more efficiently, there should be an upswing in immune response. That is essentially what she is experiencing.

Most dietary healing regimens for auto-immune disorders have their own name for this reaction (Herheimer, die-off, detox) but I guess what you should know is that it is most assuredly a GOOD sign, not a bad one.

http://perfecthealthdiet.com/?page_id=4228#Lupus

315107f5516e7e7fecacdf1bd4e3e326

on February 06, 2012
at 05:19 PM

Thanks for the citation. I will take a look at it as well.

0
7bd89b94a1311e6f2b2324ca95000903

on April 23, 2013
at 07:01 PM

I got lupus when I started paleo diet two years ago! Mine is timid lupus (at least the doctor says, I'm not convinced) ... But I have a rash, that drives me crazy.

I'm afraid to go off paleo cuz I feel so good otherwise.

I've love to know if this is a weird coincidence?!?

0
8949bf87b0e0aefcad10f29975e4fa2b

(8989)

on February 03, 2012
at 05:39 PM

She might do well to read about gut health and see if that fits. The GAPS protocol has been helpful for many.

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