4

votes

LDN - any low dose naltrexone users

Answered on August 19, 2014
Created June 06, 2011 at 9:59 PM

has anyone, or is anyone, using LDN, low dose naltrexone for their health issues?
i will be starting this soon and i'm wondering about other people's results, especially since we all here aim to heal with our diet first.

D33a8d5f095a8532ddf7a0d6c27bfe63

(578)

on July 27, 2013
at 03:04 PM

Good going, it seems one of the first symptoms to go upon taking LDN is joint-/muscle-related pain and stiffness.

D33a8d5f095a8532ddf7a0d6c27bfe63

(578)

on July 27, 2013
at 03:00 PM

That would be positive ANA for general autoimmunity and low positive for Sjogren's SSA/Ro, which is often associated with Lupus, right?

35c8f0c35da258ac54165ef14195e0b8

(167)

on December 18, 2012
at 04:18 PM

Hi. I have LDN and tried to start but got really sick. You mention refrigeration. I have had my bottle of LDN for months at room temp. Does LDN have poor shelf stability? I was thinking of trying again at a lower dose, but if it no longer works, I don't want to waste my time.

363d0a0277a8b61ada3a24ab3ad85d5a

(4642)

on October 23, 2011
at 11:39 AM

Hi Todd, I know this post is oldish, but I just got on LDN and my Dr. in NYC does phone consults for people all over the US and uses a compounding pharmacy that can ship to you. Let me know if you would like his info.

B1076248dde479773e75044818e1878c

(458)

on July 07, 2011
at 11:53 AM

4.5 milligrams - I think this is standard?

345c1755efe005edd162b770dc6fb821

(8767)

on June 28, 2011
at 02:33 PM

I got it from a dr....and he gave me a big supply so I've not had to get more, I keep it refrigerated for future use. Not sure how you'd go about getting it otherwise, I believe its a controlled substance.

50637dfd7dc7a7e811d82283f4f5fd10

(5838)

on June 27, 2011
at 01:05 AM

How do you find this stuff? I've been told that I need it, but have to find a local doc to get me the script. I tried the yahoo LDN group but no luck.

05055dcbf12c81f1cce777ec365870af

(1791)

on June 09, 2011
at 07:23 PM

thats great, how many mg are you taking to start out?

345c1755efe005edd162b770dc6fb821

(8767)

on June 07, 2011
at 02:31 PM

hope it helps!!

05055dcbf12c81f1cce777ec365870af

(1791)

on June 07, 2011
at 06:41 AM

btw really appreciate your comment

05055dcbf12c81f1cce777ec365870af

(1791)

on June 07, 2011
at 12:49 AM

yeah i have a limited diet lately, and i decided i wasnt going to jump through hoops and pay all the fees for a dr's consult about ldn, so i ordered the pills to make it myself. many people do that because, as you said, many docs are ignorant.

05055dcbf12c81f1cce777ec365870af

(1791)

on June 06, 2011
at 10:15 PM

i do not have ms. i have gut issues/candida and/or fungus, possibly leaky gut with impaired immune system and chronic inflammation among other symptoms stemming from this.

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9 Answers

2
345c1755efe005edd162b770dc6fb821

(8767)

on June 06, 2011
at 11:53 PM

I have it, not currently using it (safely stored in my refridge for now). Was at one point so severely immflamed in my intestines from food allergies, it was the only thing in the last 6 years that helped me get the immflamation down to a point that I could live a semi normal life. I should add, I've always refused sterioid treatments.

You obviously have to start slow and increase slowly, there is a flu-ish side effect and some people have trouble sleeping. I only had some flu-ish symptons, aching into your bones but my dr. told me to cut the dose back to where it didnt both me and hold there for a while. If i felt like trying to increase later, go for it, if not, no worries.

I believe I got up to about 3.5 (4.5 max), I was on it for about 6 months, it did me a world of good. I've got my stash in case I need it again in the future.

I say give it a try and I hope it works for you!!! Glad you found a dr. who knows about LDN, it really is cutting edge for chronic inflammation!!

I have numerous food allergies which are ever increasing, my symptons include immediate to prolonged intestinal inflammation. My food goes thru me in 20 minutes flat (at my worst)...this was maintained for over 2 years. I have leaky gut and probably ibs....I got this from a dr. in Taiwan who was also with similar gut issues...he saved me! I live overseas, moving every 2+ years, seen many many drs.from many continents who all diagnos me with different things, I give up with drs. for now....I seem to know more about me than they care to hear.

05055dcbf12c81f1cce777ec365870af

(1791)

on June 07, 2011
at 12:49 AM

yeah i have a limited diet lately, and i decided i wasnt going to jump through hoops and pay all the fees for a dr's consult about ldn, so i ordered the pills to make it myself. many people do that because, as you said, many docs are ignorant.

05055dcbf12c81f1cce777ec365870af

(1791)

on June 07, 2011
at 06:41 AM

btw really appreciate your comment

345c1755efe005edd162b770dc6fb821

(8767)

on June 07, 2011
at 02:31 PM

hope it helps!!

50637dfd7dc7a7e811d82283f4f5fd10

(5838)

on June 27, 2011
at 01:05 AM

How do you find this stuff? I've been told that I need it, but have to find a local doc to get me the script. I tried the yahoo LDN group but no luck.

345c1755efe005edd162b770dc6fb821

(8767)

on June 28, 2011
at 02:33 PM

I got it from a dr....and he gave me a big supply so I've not had to get more, I keep it refrigerated for future use. Not sure how you'd go about getting it otherwise, I believe its a controlled substance.

363d0a0277a8b61ada3a24ab3ad85d5a

(4642)

on October 23, 2011
at 11:39 AM

Hi Todd, I know this post is oldish, but I just got on LDN and my Dr. in NYC does phone consults for people all over the US and uses a compounding pharmacy that can ship to you. Let me know if you would like his info.

35c8f0c35da258ac54165ef14195e0b8

(167)

on December 18, 2012
at 04:18 PM

Hi. I have LDN and tried to start but got really sick. You mention refrigeration. I have had my bottle of LDN for months at room temp. Does LDN have poor shelf stability? I was thinking of trying again at a lower dose, but if it no longer works, I don't want to waste my time.

1
1262e67bbce7a94c19e7a0bb97503604

on July 27, 2013
at 08:34 AM

Hi, I take LDN for fibromyalgia. The first few days were difficult as I was having lucid dreams and didn't feel like I got any sleep and would wake up with a horrific headache, one day I had a migraine for the entire day. Considering I stopped my Opiate pain patches, anti-seizure medication and Endep, which actually helped my sleep I honestly cant believe I feel this good. The first few days I was very stiff, but no where near as stiff as I am without meds. I have only been taking it for just over a week and before was unable to work. I worked for three hours yesterday and was not in half the pain standing as I was before. I was considering dropping the dose, but am getting used to it. I only wake up a few times a night now and don't mind the dreaming as I know that LDN works during REM sleep. A man in my support group has been taking it for a long time now and claims that he hardly feels like he has a disability. I still have a headache when I wake up but it goes away once I get up and start moving around. I have heard that it should be taken on a gluten free diet and would be interested to hear if anyone does this. Good luck with it and I hope it works for you!

D33a8d5f095a8532ddf7a0d6c27bfe63

(578)

on July 27, 2013
at 03:04 PM

Good going, it seems one of the first symptoms to go upon taking LDN is joint-/muscle-related pain and stiffness.

0
44e6b3d2c13ec8b5ed234f9637da4aec

on December 20, 2013
at 02:00 AM

I took it for Crohns for 6 mos. Honestly I didn't see any effect at all except odd dreams.

0
2eccf0c162d47cbfd44f285cf3ba1171

on December 19, 2013
at 03:52 PM

I've been taking LDN to assess its side effects and safety, before approving it for my family members with rheumatoid arthritis, hashimotos etc. I have now been on it for three months. Keep in mind I had no illness or problems beforehand. Now I am sleeping better than I ever have in my life, and have lots of energy during the day. My body seems to resist getting sick even when everyone around me is sick. Basically I feel great. If the key doctors who researched this drug take it for its anti-cancer preventative effects, I don't see why I would stop taking it. I use the 4.5mg dose at 10pm. Had nightmares and trouble sleeping for the first 2 days and then never again. Hope this helps! Wondering if anyone has tried doing LDN in "intervals", for example if there is a benefit to going on 3 months, off one month etc. so that the body doesn't get too used to being blocked at night. Thanks.

0
089dd41b18fbb95ebb5347cded708d98

(5635)

on January 18, 2013
at 05:12 AM

i was using it for 2.5 months but found no relief. i was at the 4.5 dosage. my only side effect was severe insomnia. i got maybe 2 hours of sleep a night while i was on it and then i'd nap midday. that was difficult on my body for sure.

0
363d0a0277a8b61ada3a24ab3ad85d5a

(4642)

on June 07, 2012
at 02:52 AM

I am taking it because I had low positive ANA for lupus (negative now), low positive for Sjogren's (getting lower every time I test) and thyroid antibodies indicating Hashimoto's (though normal thyroid hormone level). I need to get that tested again since it has been a few months. The first few weeks made sleep weird, but afterwards I felt great. I really love it, I feel energetic, and less anxious (a problem I had before).

D33a8d5f095a8532ddf7a0d6c27bfe63

(578)

on July 27, 2013
at 03:00 PM

That would be positive ANA for general autoimmunity and low positive for Sjogren's SSA/Ro, which is often associated with Lupus, right?

0
07d0f2bb86a1f8d2d1f223d2471490fa

on June 24, 2011
at 07:04 PM

Can I ask Why you stopped taking Ldn as I have read many take as a preventative for many dieases conditions that are immune related

0
B1076248dde479773e75044818e1878c

(458)

on June 09, 2011
at 03:09 PM

I started LDN about 5 days ago, and I'm surprised how quickly I'm experiencing progress. I have ankylosing spondylitis (autoimmune - rheumatoid arthritis in the spine). In just 5 days, my stomach is less acidic, less nauseous, the inflammation in my shoulders is down, the pain in my neck (spine) is down, and the iritis (eye inflammation) is way down. I stopped taking Humira (TNF blocker like Remicade) since it wasn't working anyway, and I'm slowly trying to come off prednisone as well. I'd be very interested to know if others are trying to go this route. I'm really hoping to get off the toxic drugs and onto something like LDN that has far less side effects!

05055dcbf12c81f1cce777ec365870af

(1791)

on June 09, 2011
at 07:23 PM

thats great, how many mg are you taking to start out?

B1076248dde479773e75044818e1878c

(458)

on July 07, 2011
at 11:53 AM

4.5 milligrams - I think this is standard?

0
Bb1ba0d71083ceaecd3a3b405a977454

on June 06, 2011
at 10:09 PM

Are you going to be taking this for MS? Just wondering because I am on a DMD for MS.

05055dcbf12c81f1cce777ec365870af

(1791)

on June 06, 2011
at 10:15 PM

i do not have ms. i have gut issues/candida and/or fungus, possibly leaky gut with impaired immune system and chronic inflammation among other symptoms stemming from this.

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