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PSC(PRIMARY SCLEROSING CHOLONGITIS) AND THE PALEO DIET?

Answered on August 19, 2014
Created December 30, 2012 at 1:41 PM

Hi everyone,

After a period of severe ill health, around 6/7 years ago, I was diagnosed with PSC. My condition has progressed to the point where I suffer from regular bouts of crippling abdominal pains, extreme fatigue, periods of jaundice and a general feeling of poor health. On top of this I have also been diagnosed with auto immune hepatitis and ulcerative colitis, which is not to bad really. All my conditions are inflamatory in nature and the ultimate prognosis for people with my conditions is not to positive really. With this in mind, very recently, I decided to alter my diet to see if it has any effect on these periods of inflamation. So, I was wondering if anyone out there had had any experience of the Paleo diet having any effect on auto immune system conditions (which of course most literature says it does)and whether it had any effect on progression rates. Or even whether it at least helped!

Thanks

Stuart

976aa9badbd3b58fc2a32fc6686989b2

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on December 31, 2012
at 10:49 AM

Wow, the results of the alteration in your lifestyle to the symptomatic status of your condition are very encouraging. Being able to eliminate insomnia,reduce pain and fatigue by 90% and see your pruritis diminish by 50%, all non pharmaceuticaly. As a fellow sufferer, I think that's an amazing improvement and you should be proud of yourself for taking control of your life back. Eating a low carb diet in the modern world can be very difficult and it takes a lot of will power to do. So well done! Stories such as yours are a motivation and will help.

976aa9badbd3b58fc2a32fc6686989b2

(0)

on December 31, 2012
at 12:45 AM

Thanks to you both for your replies. Joanna, I'm sorry your UC is so severe, sounds terrible. I hope your dietary experiment gives you some relief soon. Could you give me more info on the Al protocol you mentioned, have never heard of it. Also, Dam, in your professional capacity as a rheumatology nurse, as there is such a lack of understanding surrounding the trigger causing PSC, do you know of many studies and research papers which have specifically looked into dietary factors, and if so what were their results.

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5 Answers

1
7bcdcce584eb132e4c06b8ad2b1d22cc

on December 31, 2012
at 12:52 AM

I have psc and turned to primal/pale for relief from insomnia, chronic pain, chronic fatigue, migraine like headaches and gastrointestinal bouts of trouble. I also have pruritis and some jaundice. I was diagnosed in fall 2002. Nothing my specialist suggested did more than mask some symptoms. I also gained almost 200 lbs from 2002 till 2012 stemming from loss of movement from fatigue as well as depression and eating for comfort.

At the suggestion of family friends, I started primal eating Feb 2012. One week later, my insomnia stopped and has not recurred. Within six months pain and fatigue were less than 5-10% of old levels. Some days are still better than others. Some days are pain and fatigue free. Pruritis is still a bit of an issue, but are better by 50% or so. Headaches are rare. I have also lost 101 pounds.

I was very low carb until recently. I am experimenting with the perfect health diet and hope to lose 50 pounds in 2013.

I don't know if my results are normal, good, poor whatever. I have enjoyed life more this year. I play more with my kids. I hike and canoe when possible without needing a day of bed rest to recuperate.

Take from this what you will, but I am thankful for this explosion of my life quality. I am also grateful to paleohacks and marks daily apple.

I hope you find similar or even better results than I have had from this lifestyle.

976aa9badbd3b58fc2a32fc6686989b2

(0)

on December 31, 2012
at 10:49 AM

Wow, the results of the alteration in your lifestyle to the symptomatic status of your condition are very encouraging. Being able to eliminate insomnia,reduce pain and fatigue by 90% and see your pruritis diminish by 50%, all non pharmaceuticaly. As a fellow sufferer, I think that's an amazing improvement and you should be proud of yourself for taking control of your life back. Eating a low carb diet in the modern world can be very difficult and it takes a lot of will power to do. So well done! Stories such as yours are a motivation and will help.

0
0f2294ba531065ae18fd73ebc3aada57

on September 16, 2013
at 12:42 AM

@Stuart 4 - I have PSC and have been eating Paleo for a couple of years. Paleo has kept my liver enzymes from going higher, but did not help them go lower. What did help a lot was seeing Dr. Jon Matsen at the Northshore naturopathic clinic in Vancouver, CA. I live in Michigan, but flew out there. He has healed 5 people of PSC and for me, my enzymes have been steadily coming down since seeing him. Look for www.eatingalive.com.

0
D33a8d5f095a8532ddf7a0d6c27bfe63

(578)

on December 31, 2012
at 04:22 AM

With something that serious (PSC), I would seriously look into starting LDN therapy with Alpha Lipoic Acid. Join Yahoo's LDN group and search for PSC. I think there are cases of people who've had success with both UC and PSC. Paleo can subside your symptoms but I don't think it can by itself stop the progression of severe autoimmune conditions. LDN doesn't work for everyone and there are some side effects but many people have success with it.

0
C98b66d4a54a69c23ceebb4ee3127745

on December 30, 2012
at 07:09 PM

Stuart, I agree with Joanna. As a rheumatology nurse I spend a great deal of time educating my patient population regarding their auto immune diseases/disorders. There is no written literature that supports one diet over another with regards to improved symptomatology. However, as Joanna said it is a very healthy way to eat and you should see some improvement by merely eliminating dairy and carbs. Good luck!!

976aa9badbd3b58fc2a32fc6686989b2

(0)

on December 31, 2012
at 12:45 AM

Thanks to you both for your replies. Joanna, I'm sorry your UC is so severe, sounds terrible. I hope your dietary experiment gives you some relief soon. Could you give me more info on the Al protocol you mentioned, have never heard of it. Also, Dam, in your professional capacity as a rheumatology nurse, as there is such a lack of understanding surrounding the trigger causing PSC, do you know of many studies and research papers which have specifically looked into dietary factors, and if so what were their results.

0
089dd41b18fbb95ebb5347cded708d98

(5635)

on December 30, 2012
at 06:34 PM

hey stuart. i also have UC but mine is very bad. i was tested for PSC because my liver enzymes are always so high, but luckily my MRCP came back negative for now. i started paleo 5 months ago and have seen a decrease in some symptoms, but i am definitely not in remission. i just needed a few blood transfusions at the beginning on december because nothing is helping with the blood loss. my bloodwork still sucks as my inflammation markers are so high and hemoglobin/iron is very low. so all in all, i will stay on the diet just because it's good for my health, but i wouldn't say it's the end all for autoimmune conditions.

you might try the AI protocol, too. i've been doing that for over two months- still no difference in symptoms, but it could work for you if some of these foods are possible triggers.

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