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Graves disease and kelp

Commented on October 02, 2013
Created October 01, 2013 at 5:20 PM

Can kelp supplements cause or trigger an dormant autoimmune Graves disease, and what actually causes Graves disease? Is it something like grains, which can cause like Hashimotos also responsible for Graves, or can it be caused by other things such as hereditary reasons?

My wife had very low TSH as well as losing weight and was under a lot of stress, she she was tested for Graves disease with radioactive iodine. [The test pill caused her to give off something like 550CPM for 3 days, then suddenly dropped to around 60cpm after being flushed out by diarrhea.]

The specialist's diagnosis is that she had a dormant hereditary Graves disease and that no one should take kelp supplements because they're not FDA regulated and are what triggered a dormant Graves disease to become active, and now she has to either 1) go on thyroid suppressing medicines, or 2) go on much stronger radioactive iodine, and if untreated could cause heart failure or stroke, or death.

I don't have the kelp supplements in front of me, but they have something like 150% of the RDA for iodine. Been taking them somewhat daily, somewhat every other day for over a year now as we use sea salt and don't have any other iodine sources beyond the occasional sushi/shrimp meals. Doctor is blaming these pills specifically as the cause for her newly diagnosed Graves disease.

Besides those two above questions, does anyone have any experience with this? Is the specialist correct? What treatment options are available, are there any other possible causes for these types of symptoms, where do we go from here to treat this?

Here are the test results: (hand written on top "Graves disease. -Hyperthyroidism")

  • TSH: <0.005 uIU/mL
  • Thyrotropin Receptor Ab Serum 2.11 IU/L
  • T4 Free (Direct) 2.11
  • Thyroid Stim Immunoglobulin 427%
  • Sedimentation Rate Westergren 2 mm/hr
  • Triiodothyronine, Free, Serum 4.9 pg/mL
  • Thyroid Peroxidase (TPO) Ab 19 IU/mL

96440612cf0fcf366bf5ad8f776fca84

(19463)

on October 02, 2013
at 02:29 PM

Thanks.

A6b7afacdb512b861716bca9e9226ad3

(333)

on October 02, 2013
at 01:13 AM

also, copper is potent. So really don't take too much too long without the zinc. You'll know when it's too much by the nausea/heartburn/metallic taste.

The iodine MUST be balanced with selenium when you add it back in. CRUCIAL.

A6b7afacdb512b861716bca9e9226ad3

(333)

on October 02, 2013
at 01:10 AM

DANG. It lost my copied comment. So I'll recap: based on my experience, start only with copper. Then add magnesium. At some point, the copper will be replenished and zinc will need to be added. Then the others (maybe a multi?). Avoid iodine until feeling WAY better, including salt w/iodine. Copper is the key, IMO. It's a tricky balancing puzzle, but mineral ratio and balancing mineral pairs are crucial. I find it completely fascinating. Holler if anything is confusing. I love this stuff and also love feeling better.

A6b7afacdb512b861716bca9e9226ad3

(333)

on October 02, 2013
at 01:06 AM

Sorry for the delay! It was one of those dental-appointment-and-a-funeral kind of days. Well, the site I used a number of years ago is now archived, but a lot of info is still there: ithyroid.com. There are ways to access it, but it's tricky. I would do a search also on "autoimmune copper".

(apparently there's a character limit--will finish in the next comment)

96440612cf0fcf366bf5ad8f776fca84

(19463)

on October 01, 2013
at 09:30 PM

Thanks. What does mineral balancing involve? Is there a guide or book as to which minerals in what amounts and how often? We usually take a bunch of things already, not just iodine... magnesium, selenium, zinc, potassium, sometimes manganese though rarely. Haven't added in copper since we can get that from dark chocolate/cocoa powder. Thanks.

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A6b7afacdb512b861716bca9e9226ad3

(333)

on October 01, 2013
at 06:10 PM

I'm not a doctor, but I believe she can get well using mineral balancing (and paleo). I did. I refused to get the RAI treatment or to have my thyroid removed surgically. The meds did not work for me. Once I started the correct minerals, I got my blood levels normal in 3 months. I've also had to do the same with hypothyroid. There is a way.

96440612cf0fcf366bf5ad8f776fca84

(19463)

on October 01, 2013
at 09:30 PM

Thanks. What does mineral balancing involve? Is there a guide or book as to which minerals in what amounts and how often? We usually take a bunch of things already, not just iodine... magnesium, selenium, zinc, potassium, sometimes manganese though rarely. Haven't added in copper since we can get that from dark chocolate/cocoa powder. Thanks.

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