2

votes

Have Celiac, AutoImmune diet?

Answered on August 19, 2014
Created December 13, 2012 at 7:09 PM

Hey everyone. I was recently diagnosed with Celiac, and even though I am only on my 3rd day of no gluten, I am concerned because my intestinal inflammation seems to be getting worse. It seems like almost anything I eat aggravates my stomach and intestines. I think I can actually feel the inflammation in my guts, it feels hot inside me and like there is play-doh in my intestines.

I am only eating whole foods now (no other grains or dairy either). Chicken, broccoli, fruit. I ate some salmon the day before yesterday and it really aggravated my stomach and my throat tightened up and all the usual symptoms.

So my question is, why are my guts are so inflammed now, AFTER quitting gluten? Is it normal for it to be this way for the first few days, or should I be thinking about doing an autoimmune diet?

851edf7b3d1edf4eac25edbadb2d5cc1

(95)

on December 29, 2012
at 05:58 PM

This is debatable. Some celiacs cannot handle even gluten-free grains (rice, corn, buckwheat, oats which is a grey area anyway) either. I would think this is likely due to intestinal damage, gut dysbiosis, and an over-active immune system more so than the proteins themselves. Honestly, I think you need to find what works for you...be prepared for some trial and error. If you're not comfortable eating potatoes or rice as per the SCD and similar protocals, I would encourage you to add in some other starch such as squash or bananas. If this doesn't work, try something a bit more ketogenic.

2564c814ad9931c834ae092e1ef069fb

(231)

on December 29, 2012
at 01:25 AM

Thanks for the replies, especially about starches. I am hesitant to eat white potatoes or rice because of the things I've heard about them, not just from paleo but from SCD, Cryex cross-reactivity and other sites saying that you should avoid all grains including rice. I'm also afraid to eat white potatoes after one night where I had really bad inflammation after eating one. I might try again later on. Are the proteins in rice really okay for celiac?

C657d176db6f11f98aeb2a89071e3281

(842)

on December 28, 2012
at 02:03 AM

glutenfreesociety.org

B90b8915b7e3d2a8ee760bb6918d53a7

(131)

on December 27, 2012
at 11:02 PM

Bone north is dead easy. Say you buy some chicken legs. Bake or fry them, eat all the meat off. Then put the left over bones in a pot with water and a tablespoon of vinegar and salt. Let that gently boil for about eight hours. Keep an eye on it cause you can boil the water away. Then take out the bones and put in some chipped veggies or even chicken meat and your golden.

197651282ddd8d675b974ee811d2269e

(1836)

on December 14, 2012
at 02:56 AM

I never would have gone Paleo prior to my health crisis. I was a faithful worshiper of whole grains. Funny enough, now my granola-type (long time vegetarian) friends are starting to ask me about all their weird rashes and digestive issues and wondering whether Paleo might be the answer.

197651282ddd8d675b974ee811d2269e

(1836)

on December 14, 2012
at 02:52 AM

You are lucky that others can/ will cook for you. How is the autoimmune diet different from Paleo? My stomach felt a little better whe I cut out gluten in the beginning but I did not truly feel well until I cut out all grains. You are way ahead of me since I only discovered Paleo after two months of gluten free, where I was pretty much despondent that I'd have to settle for yucky,imitation food for the rest of my life. Paleo was a revelation. I didn't know that I could be totally healthy, even healthier than I've ever been, without grains.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on December 14, 2012
at 02:52 AM

Make sure to eat more vegetables than fruit. Also, have some fermented veggies (naturally fermented that is) and fresh veggies in salads as well. It is important to cut out all inflammatory foods - additives, preservatives, vegetable oils.

7841848bd0c27c64353c583fb7971242

(7275)

on December 14, 2012
at 12:06 AM

I've had good luck with my family cooking for me: but I'm lucky that they've been so very careful to clean out their kitchens, use new cutting boards, and check ingredients very carefully. Normally when I visit my mom I do all the cooking (which is fun, returning the favor of her cooking for our family growing up), and when visiting my in-laws, who happen to live in a very celiac-friendly town, we just eat out.

2564c814ad9931c834ae092e1ef069fb

(231)

on December 13, 2012
at 09:59 PM

It's sad that I can't let my Mom cook for me anymore, especially since she was a really good cook. I can't trust her now unless she just wants to cook a steak.

2564c814ad9931c834ae092e1ef069fb

(231)

on December 13, 2012
at 09:58 PM

It's sad for me that I am afraid to let my Mom cook for me anymore, since I always loved what she made too. Unless she just wants to cook a plain piece of steak.

2564c814ad9931c834ae092e1ef069fb

(231)

on December 13, 2012
at 09:56 PM

Thanks for responding. I have no idea what to expect from this new diet. I'm trying to be really careful about what I eat, pretty much just meat, fruit and vegetables until I feel better.

2564c814ad9931c834ae092e1ef069fb

(231)

on December 13, 2012
at 09:52 PM

Well my Dr. endorsed probiotics so I just bought some of those (and took a long time reading the labels). What else is good for healing? Also this might sound silly but how do you make bone broth? I hate cooking but I guess I have to learn a little now.

E40b2fc9ddcf702bab9d61d28b8c8440

(505)

on December 13, 2012
at 09:16 PM

Are you taking anything to promote healing as well? Adding in some bone broth might really help. Congrats on staying away from other grains!

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5 Answers

best answer

1
7841848bd0c27c64353c583fb7971242

(7275)

on December 13, 2012
at 08:37 PM

Give it time. It took me 6 months to stop having diarrhea all the time, and it took over a year to get my gut back to good enough health to have normal-person stools. The fatigue and brain fog has taken even longer. From what I've read of other people's experiences, those were pretty common experiences. The 6 month mark seems to be very common, and many people report it taking a year or two to feel themselves again.

On the other hand, delay in healing could also come from trace amounts of gluten. It took me 6 months just to even become aware of how sensitive I really am. I highly recommend getting gluten test strips (I use ezgluten) so that you can rule out offending foods. I ate (and still eat) almost entirely home-prepared foods, but there are still some processed foods, like vinegar, spices, chocolate, etc, that people don't normally think about.

2564c814ad9931c834ae092e1ef069fb

(231)

on December 13, 2012
at 09:56 PM

Thanks for responding. I have no idea what to expect from this new diet. I'm trying to be really careful about what I eat, pretty much just meat, fruit and vegetables until I feel better.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on December 14, 2012
at 02:52 AM

Make sure to eat more vegetables than fruit. Also, have some fermented veggies (naturally fermented that is) and fresh veggies in salads as well. It is important to cut out all inflammatory foods - additives, preservatives, vegetable oils.

best answer

1
197651282ddd8d675b974ee811d2269e

on December 13, 2012
at 09:22 PM

It's good you are cutting out all grains and dairy. Also stay away from anything you might be allergic to and all packaged/ pre prepared foods for now. Make sure all of your cooking utensils, pots,and condiments are scrubbed clean of gluten traces. The Gluten Free Bible is a great book for the newly diagnosed. When I was first diagnosed, my mother used to make me her homemade soups, like she always did, but I had a lot of problems with them even though she swore that she never used anything with gluten. It could be contamination from other stuff or just traces of condiments like soy sauce. I still can't eat things that friends and my mom cooked, only what I cook and food at restaurants that have gluten free menus (but I rarely go out anymore). Good luck and hang in there, it will get better.

2564c814ad9931c834ae092e1ef069fb

(231)

on December 13, 2012
at 09:59 PM

It's sad that I can't let my Mom cook for me anymore, especially since she was a really good cook. I can't trust her now unless she just wants to cook a steak.

2564c814ad9931c834ae092e1ef069fb

(231)

on December 13, 2012
at 09:58 PM

It's sad for me that I am afraid to let my Mom cook for me anymore, since I always loved what she made too. Unless she just wants to cook a plain piece of steak.

7841848bd0c27c64353c583fb7971242

(7275)

on December 14, 2012
at 12:06 AM

I've had good luck with my family cooking for me: but I'm lucky that they've been so very careful to clean out their kitchens, use new cutting boards, and check ingredients very carefully. Normally when I visit my mom I do all the cooking (which is fun, returning the favor of her cooking for our family growing up), and when visiting my in-laws, who happen to live in a very celiac-friendly town, we just eat out.

197651282ddd8d675b974ee811d2269e

(1836)

on December 14, 2012
at 02:56 AM

I never would have gone Paleo prior to my health crisis. I was a faithful worshiper of whole grains. Funny enough, now my granola-type (long time vegetarian) friends are starting to ask me about all their weird rashes and digestive issues and wondering whether Paleo might be the answer.

197651282ddd8d675b974ee811d2269e

(1836)

on December 14, 2012
at 02:52 AM

You are lucky that others can/ will cook for you. How is the autoimmune diet different from Paleo? My stomach felt a little better whe I cut out gluten in the beginning but I did not truly feel well until I cut out all grains. You are way ahead of me since I only discovered Paleo after two months of gluten free, where I was pretty much despondent that I'd have to settle for yucky,imitation food for the rest of my life. Paleo was a revelation. I didn't know that I could be totally healthy, even healthier than I've ever been, without grains.

1
2e5dc29c61f97d335ffb990508424719

on December 27, 2012
at 11:57 PM

Look at healing your gut. Ferment your own sauerkraut for example it is easy to do and has orders of magnitude more good gut microbiota than probiotics. What took many years to hurt you won't be healed overnight. You need to decrease inflamation and heal the epithelial junctions. http://www.ehow.com/how_5668795_make-kraut-using-jars.html

1
C657d176db6f11f98aeb2a89071e3281

on December 27, 2012
at 11:43 PM

Gluten stays in the stomach for a long time--60 days or longer--the damage of gluten can take up to two years to heal. I love this website, https://www.facebook.com/Dr.PeterOsborne?ref=ts&fref=ts for help with celiac. I have done a lot of research. Paleo foods, whole foods will work. I would do a lot of broths (marrow bone, beef broths, homemade, chicken broths--made from organic meats.) When eating out, it is common for some restaurants to use beef cubes or chicken cubes which have gluten, soy sauce has gluten, even salad dressings and stuff you would never dream of. It takes research and time to figure this all out but the results are worth it. Best of luck to you. I cut out all grains and do not do the cake baking, etc that websites say you can make gluten free. If I want a dessert now, I make something like a paleo ice cream with heavy cream and sweet potato. It is yummy! Give yourself time to heal. I also follow a lot of the supplementation in "The Ph Miracle" by Dr. Robert O. Young available on Amazon and at www.phmiracleliving.com I found his shakes very soothing, even at the beginning. (Shakes like a whole avocado, coconut water, spinach, parsely, a lemon, a cucumber, ice and blend) I drank those all day long as they were very nutritious. I also use his phour salts in my water and alternate liters of that with liters of phurify and chlorophyll (together). Those products are talked about in his book and there are videos on his website explaining what they do.If I remember correctly, I couldn't do meats the first few weeks. I stayed with a lot of avocados and veggies in the blender. I also juiced greens. I added meat a while later, just don't remember if it took two or three weeks to do so.

C657d176db6f11f98aeb2a89071e3281

(842)

on December 28, 2012
at 02:03 AM

glutenfreesociety.org

0
851edf7b3d1edf4eac25edbadb2d5cc1

on December 28, 2012
at 09:23 PM

I went paleo 6 months ago after finding out I have celiac. I too found that for the first 3 weeks or so, my inflammation (and all the lovely symptoms associated with it) felt worse. It gradually got better after that. At this point, I am still not 100% healed, maybe 75%. I would look into a good quality probiotic and/or fermented foods, as well as bone broth. Also, and I think this part is VERY important for those of us with damaged guts, whether it's celiac, IBD, etc. but add some starch into your diet!!! You'll find that many people in the paleo community consider things like potatoes evil and tell you to avoid them - well, frankly that's a load of garbage. It's a whole food and our ancestors did in fact eat tubers and other root vegetables. Starch for inflamed guts is very soothing (Diane Sanfillippo in Practical Paleo talks about this, I think) and for it me it made a world of difference. Eat squash, sweet potatoes, regular potatoes, bananas, even rice every single day. One final thing, you want to also consider a stool test for bacterial overgrowths, fungal infections, etc - again, because our digestive system has been so impaired for years, these things can overgrow and cause seperate problems. Entero Lab offers one you can order and do at home. Good luck!

851edf7b3d1edf4eac25edbadb2d5cc1

(95)

on December 29, 2012
at 05:58 PM

This is debatable. Some celiacs cannot handle even gluten-free grains (rice, corn, buckwheat, oats which is a grey area anyway) either. I would think this is likely due to intestinal damage, gut dysbiosis, and an over-active immune system more so than the proteins themselves. Honestly, I think you need to find what works for you...be prepared for some trial and error. If you're not comfortable eating potatoes or rice as per the SCD and similar protocals, I would encourage you to add in some other starch such as squash or bananas. If this doesn't work, try something a bit more ketogenic.

2564c814ad9931c834ae092e1ef069fb

(231)

on December 29, 2012
at 01:25 AM

Thanks for the replies, especially about starches. I am hesitant to eat white potatoes or rice because of the things I've heard about them, not just from paleo but from SCD, Cryex cross-reactivity and other sites saying that you should avoid all grains including rice. I'm also afraid to eat white potatoes after one night where I had really bad inflammation after eating one. I might try again later on. Are the proteins in rice really okay for celiac?

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