4

votes

Collagenous colitis and the paleo diet

Answered on September 12, 2014
Created October 31, 2010 at 10:14 PM

My mother tells me she suffers from Collagenous colitis, which is an inflammatory colonic disease that appears to occur mostly in older women. The doctors tell her to go low fiber and low fat and there's no cure, but it sounds to me like an inflamed gut that would benefit from an anti-inflammatory diet. About two weeks ago in an attempt to control her blood pressure which had recently spiked, I convinced her to remove most wheat and sugar from her diet and to avoid low fat everything. She cheats sometimes, but her blood pressure responded well, she has dropped a few pounds, and she likes the diet. Has anyone here suffered from this condition? How are you treating it and what has worked and how long did it take for your body to respond?

19eda8d016ea385c806d7de6cafc5a23

on January 29, 2014
at 06:55 PM

Is collagenous colitis a microscopic colitis?

19eda8d016ea385c806d7de6cafc5a23

on January 28, 2014
at 08:55 PM

Thank you both, and I agree.

19eda8d016ea385c806d7de6cafc5a23

on January 28, 2014
at 08:32 PM

Good to know - thanks! I wish people came back to read their replies and follow-up questions..

19eda8d016ea385c806d7de6cafc5a23

on January 28, 2014
at 08:29 PM

I am so sorry for the both of you... what a struggle. What is SCD and have you tried it yet?

19eda8d016ea385c806d7de6cafc5a23

on January 28, 2014
at 08:22 PM

Thank you!

19eda8d016ea385c806d7de6cafc5a23

on January 28, 2014
at 07:20 PM

Like Betty, please tell us how hypothyroidism and wellbutrin play into this condition - thanks!

089dd41b18fbb95ebb5347cded708d98

(5635)

on July 21, 2013
at 09:41 PM

budesonide was hard on my gut, but it's supposed to be less harsh than prednisone. i stopped budesonide after three days because i couldn't handle all the cramping and diarrhea from it. what kind of diet does your son follow, Jamie? i hate hearing stories of such little kids having colitis.

9fef8c931963c3bbf3320379428477c0

(0)

on May 06, 2012
at 02:07 AM

Hi Andrew, I agree, doctors don't want to discuss nutrition. I would suggest you look at the web postings of the medical doctor, Thomas Cowan, who is different. He discusses the diet of Africans who are still eating traditional diets. Since refrigeration is not available, their diet includes a lot of fermented foods, and Dr. Cowan claims that digestive problems are practically unknown there. But re: the colonoscopy, it is not pleasant, but the only way to really know what is going on, it seems, and it could be something easily treatable. Good luck, Allison

4e184df9c1ed38f61febc5d6cf031921

(5005)

on May 05, 2012
at 08:05 AM

Sudden thought - the diarrhoea worsened significantly as the asthma improved and I stopped inhaled steroids. Could inhaled steroid have been having a low level, general anti-inflammatory effect, which allowed other things to flair up more when steroids were stopped?

7841848bd0c27c64353c583fb7971242

(7275)

on April 24, 2012
at 01:07 AM

Is cholecal just vitamin D3 (cholecalciferol)? The Zypan sounds like digestive enzymes (like NOW foods super enzymes that a lot of people take). What is the slippery elm gruel? Do capsules work, or do you need it in gruel form (i.e. mixed with water)?

D0ee96befc067f643fd1d659b57ce373

(20)

on February 08, 2012
at 10:07 AM

PS in addition to previous post, it should go without saying, but I will do it anyway, I avoid alcohol, dairy, spicy foods, sugar, processed foods, etc. As Jack Lalanne said "If man made it, I won't eat it."

06457e786ddd60f93898f36b2ab14fc5

(0)

on December 25, 2011
at 11:04 AM

Would really appreciate ur info on Wellbutrin & hypothyroidism as I'm just starting down this path. THANK YOU!

B22e5946e28a1845a6006737e59edfc6

(2437)

on March 07, 2011
at 03:40 AM

Have you dropped all foods that can cause an auto-immune issue? I had to drop dairy, gluten, and nightshades, eggs, and soy to get relief. Most say that nuts and seeds also cause issues. If you can I'd try 30 days of vegetables and meat only and even get most of your fat from coconut and avacado. I noticed that cutting back on animal fat and replacing it with plant derived fat to also help. Also if you can afford it try the 30 day trial with organic meat only.

07ad8e05f734cb1deec5479dc0e4a194

(315)

on January 03, 2011
at 11:36 PM

I'm so sorry about your daughter! Please check out SCD and pecanbread both online, I hope this helps.

8254c4e4d1f2aedd09cb9608b8777654

(140)

on November 09, 2010
at 09:53 AM

I have been trying to interest her in getting away from gluten and adopting a more non-inflammatory diet. My hope is that such changes will ease her symptoms. I agree completely that doctors are mostly useless when it comes to these issues. They are fine when you need a bone set or stitches, but only seem capable of thinking in terms of pharmaceuticals when treating symptoms.

8254c4e4d1f2aedd09cb9608b8777654

(140)

on November 09, 2010
at 09:46 AM

Thanks for your answer. I'm really sorry to hear that diet changes have not been effective. That's not real encouraging.

8254c4e4d1f2aedd09cb9608b8777654

(140)

on November 09, 2010
at 09:45 AM

I would not have thought so a few years ago, but after reading the paleo nutrition literature in that time, I see gluten sensitivity and auto-immune issues all over my family (u. colitis, digestive problems, allergies, asthma, etc.). This is probably another manifestation, and at 84 there could be permanent metabolic damage.

4e40d2b9e1a762949a25b958762aa10d

(762)

on November 06, 2010
at 02:38 AM

Hi Richard, I am sorry to hear about the severity of your mother's condition. Is there a history of early autoimmune disease (say starting before 40)? Because I neither have the condition nor know anyone with that condition, I have no personal experience. However since the standard treatments would be anti-inflammatories or, when severe enough, immunosuppressants, I certainly support finding alternative treatment with gentler side effects.

8254c4e4d1f2aedd09cb9608b8777654

(140)

on November 04, 2010
at 10:02 PM

My mom says she had the condition for perhaps 10 years, but that only recently, in the last couple of weeks, has she started having loose bowel movements at night while sleeping (twice). She has been taking aspirin, a NSAID, since 2006 and this is associated with the condition. I'm most interested in finding out whether people have had success in treating the condition without resorting to medications and, specifically, by adopting a more non-inflammatory diet.

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31 Answers

3
A7428f978067869bc9164c7d666bd21e

(30)

on June 14, 2011
at 12:16 AM

hi there, im 30 and have had collagenous colitis for about 3 years. i was also diagnosed with hypothyroidism in my early 20's. im convinced that my poor (high in gluten) diet in my late teens and early 20's contributed to this disease.

when i was first diagnosed, the gastroenterologist put me on a series of different medications which didnt do anything, and were difficult to take. some of them i could only take half an hour before or 2 hours after my thyroid medication - or 3 hours after having dairy etc etc. it was just too hard and i didnt see any benefit.

ive been paleo-ish for a year or so now but never super strict and a bit of gluten would always sneak in. but for the last month ive been completely gluten free and for the last week have been drinking 'vital greens' and ive been so much better. ive also had some relief when i tried metamucil which i know is the complete opposite of what is suggested. my diet is fairly high in fat and i dont seem to have a problem with dairy.

personally, i dont think its hard to go gluten free at all. there are many options when eating out these days, gluten free bread etc. and theres pretty much always steak on the menu which is way better than pasta anyway. you can even make awesome baked stuff using almond flour.

maybe im just in a good mood cos i did solid poo this morning. haha - its the little things that make me happy...

2
D0ee96befc067f643fd1d659b57ce373

(20)

on June 15, 2011
at 07:30 PM

Hi there,

I was diagnosed with microscopic colitis four years ago. I had Juvenile Rheumatoid Arthritis as a boy and had largely grown out of it. A bout of severe food poisoning and too many antibiotics and I never seemed to recover. I tried 80/10/10, then expanded to low fat vegan. Finally went low fat vegan and gluten free and within 2 weeks was off entocort. Thought I was doing well and but about a year and a half ago I was experiencing horribly sore joints and constant tendonitis. Found the paleo diet and dove right in. Paleo brought immediate relief to my joints but the diarrhea often returned. Tried pepto bismol for 8 weeks which helped some. So for the past year and two months I have been on a paleo diet with occasional experiments of adding white rice, sweet potatoes or yucca into the diet. When things are good I have 2-3 solid shits per day. When they are not, well...

Here is what I have learned... no alcohol, and low fat, these are musts. Favor fish and lean, pasture raised poultry meat, lean pork, very lean beef. Fruit - not too much at once. Veggies - cooked, some at each meal (even breakfast). Overall I am doing pretty well but my energy level is a bit low as it is hard to get enough calories on this diet and it is probably too high in protein and there are not enough carbs. I would like to add some sweet potatoes back in, but each time I do, I get the rumbling in the stomach followed by a dose of D. I tried eating only meat and veggies and felt terribly tired and diarrhea came back. Now I am pretty much following the Loren Cordain version of Paleo, which seems to work best for me. Still, my energy was better eating low fat - high carb vegetarian.

Good luck to all the other MC sufferers out there.

Keep us posted on what you learn.

19eda8d016ea385c806d7de6cafc5a23

on January 29, 2014
at 06:55 PM

Is collagenous colitis a microscopic colitis?

2
831c02643ffeaacd554b03455328a2f1

on March 07, 2011
at 02:54 AM

I have just been diagnosed with this illness and am still trying to absorb the diagnosis. I'm relieved it's not cancer, but then there is the reality of trying to live through and with it. Thank you for all the suggestions and for the fact there are others out there with something no one in my realm of friends/family have ever heard of! I am a mental wreck trying to live a normal life with it and I'm finally "getting it" that a normal life may not be. I asked the docs if my long-term med use (hypothryoidism, Wellbutrin) could be the problem (before the biopsies) and was emphatically told "no". Doesn't exactly inspire confidence when I do a little research and find out that's probably the cause of it all! Laura

06457e786ddd60f93898f36b2ab14fc5

(0)

on December 25, 2011
at 11:04 AM

Would really appreciate ur info on Wellbutrin & hypothyroidism as I'm just starting down this path. THANK YOU!

19eda8d016ea385c806d7de6cafc5a23

on January 28, 2014
at 07:20 PM

Like Betty, please tell us how hypothyroidism and wellbutrin play into this condition - thanks!

2
Fab361da9f8db8c264589395051ce478

on November 08, 2010
at 01:35 AM

Hi Richard, I have the same condition as your mom. Was diagnosed with it almost 4 years ago. Nasty bit of bad luck. Of course, this is the third "auto-immune" condition I've sprouted in my adult life. Started with hypothyroidism at 19, moved to granuloma anularae (sp?)in late 30's and now collagenous colitis at 60. I have tried diet changes, all the usual over-the-counter medications physicians start with and moved on to Entocort. The last one is a steroid and while it stopped the diarrhea while I was on the largest dose, it came back as my doctor reduced the dosage. Apparently, one should not stay on steroids forever. Side effects prohibit same.

I have found some ability to moderate the diarrhea attacks by changing my lifestyle a bit. And those lifestyle changes have reduced some stress for me. For example, I have accepted that I can no longer work full time so I've adopted a part-time schedule that frees up my mornings and evenings - both are times when I am likely to have recurrent bouts with the diarrhea.

I also try to keep to a schedule of balanced activity and allow one day a week just to do any old thing I want. As a tutor, though, that means my income is reduced.

I also eat differently but never found diet changes helpful. I've learned to have several mini-meals in lieu of three larger ones. I take water with me everywhere, limit my social activities to things that take place in close proximity to a ladies room, and avoid eating anything more than an apple after 4:30 pm. A glass of wine is now a no-no since it usually produces a sleepless night with several trips to the bathroom.

As for the over the counter pain medications, I sometimes have to decide whether it's better to take them and risk more diarrhea, or be in pain from aching joints. Have to say both the doctors I've seen did not think this was a big deal in the scheme of things. Hope that helps. LC

8254c4e4d1f2aedd09cb9608b8777654

(140)

on November 09, 2010
at 09:46 AM

Thanks for your answer. I'm really sorry to hear that diet changes have not been effective. That's not real encouraging.

B22e5946e28a1845a6006737e59edfc6

(2437)

on March 07, 2011
at 03:40 AM

Have you dropped all foods that can cause an auto-immune issue? I had to drop dairy, gluten, and nightshades, eggs, and soy to get relief. Most say that nuts and seeds also cause issues. If you can I'd try 30 days of vegetables and meat only and even get most of your fat from coconut and avacado. I noticed that cutting back on animal fat and replacing it with plant derived fat to also help. Also if you can afford it try the 30 day trial with organic meat only.

1
E113d1701cf9769621891dcf8decd34b

on January 03, 2011
at 10:02 PM

Here's something to consider. 3 years ago I was diagnosed with collagenous colitis. At that time the doctor told me to take Imodium, which was a joke as it didn't do any good at all. I went to a naturopathic doctor with my blood work and colonoscopy records. She said we can clear this up and it did for 3 years. I took slippery elm gruel every day for 7 days then every other day for 3 weeks. I also took a tablet called Zypan from Standard Process Inc. after each meal (for the intestines) and another tablet called Cholacol for the liver--again after each meal. This cleared up the problem within about 3 weeks.

I have recently had another episode along with a gall bladder that was not functioning. My gall bladder was removed but the CC was running rampant. This time I became extremely dehydrated and had to have several IV's and 3 hospital stays. My doctor has me on Entocort (which is horribly expensive) and wants me on it for 12 weeks. Meanwhile I have gone back on the slippery elm, Zypan and Cholacol. I am much better but of course don't know what is working--the steroids or the natural herbs and enzymes. Oh yes, I am always on probiotics.

My next plan is to pursue looking into being tested to see if my autoimmune system is causing the problem. If that is the case, I have a chiropractor and his medical doctor partner who treat the autoimmune system.

Just thought I would share these alternatives to steroids and medical doctors scratching their heads as to what can be done. Mickey

7841848bd0c27c64353c583fb7971242

(7275)

on April 24, 2012
at 01:07 AM

Is cholecal just vitamin D3 (cholecalciferol)? The Zypan sounds like digestive enzymes (like NOW foods super enzymes that a lot of people take). What is the slippery elm gruel? Do capsules work, or do you need it in gruel form (i.e. mixed with water)?

19eda8d016ea385c806d7de6cafc5a23

on January 28, 2014
at 08:32 PM

Good to know - thanks! I wish people came back to read their replies and follow-up questions..

1
1837f0c690eb99244e558b3768ad8484

(10)

on December 13, 2010
at 09:42 PM

My 6 year old daughter has been diagnosed twice with Callagenous Colitis. Once when she was 4 when I got fed up w/ the Pediatric GI specialists not figuring out why she had chronic diarhea and I took her to a surgeon who did a colonoscopy with biopsies and diagnosed her with it and told me to take her back to the GI specialist to see how to treat it. We had the slides sent to the Specialist, who told me that her slides were normal for a 4 year old child and to just give her Miralax. Finally we found another doctor after 2 years trying to find out what was going on. She was AGAIN diagnosed with Callagenous Colitis this past March 2010. We treated her with Entocort and Gluten Free Diet. She responded tremendously!!!! BUT we found out through a bone density scan in August, that she has Osteoperosis at 6years old! We took her off the steroid and even though her diet is still Strictly Gluten free, her symptoms have returned after a couple of months. We have an appointment with the same specialist tomorrow and I'm trying to find other causes for this disorder. I don't want to put her on a steroid again because I believe that is what contributed to her Osteoperosis. I just want to cry! I feel like we are right back where we started. I can't find anything that discusses this condition in children. Her symptoms started when she was 1 1/2 years old. She had diahrea for 4 months and no one could figure out why. She gets constipated with encoperesis, which is leakage. That is why she get the loose stools and they told me to give her miralax. Throughout this ordeal, she was suffering from protein enteropathy (leaking of protein in her stools), malnutrition, and bone loss. We feed her very healthy and I just don't know what to do. We are thinking of getting another oppinion if this doctor isn't willing to look at other possible causes.

07ad8e05f734cb1deec5479dc0e4a194

(315)

on January 03, 2011
at 11:36 PM

I'm so sorry about your daughter! Please check out SCD and pecanbread both online, I hope this helps.

19eda8d016ea385c806d7de6cafc5a23

on January 28, 2014
at 08:29 PM

I am so sorry for the both of you... what a struggle. What is SCD and have you tried it yet?

1
D7a525068f03be394b439be14d9c0c1f

on December 13, 2010
at 10:35 AM

I am a sufferer from this type of colitis. Brought on by stress when my husband had cancer, in 2005. I have had reocurring bouts and now have swelling joints with rhumotoid arthritis, which my consultant is positive is linked to my immune system and the colitis. The last bout, for the first time, I have been in pain constantly. My doctor gave me some steroids but not that successful. Watching what you eat is a constant nightmare. Gluten free help.s As has been mentioned the doctors and consultants seem useless when it comes to diet issues.

A friend of mine had this very serverely being taken into hospital and has now completely eliminated the inflammation by having virtually the same things to eat each evening, with little variation. She paid ??35 for a dietician for several months and the list of things you cannot eat is unbelievable! She had been on this diet for two years and has now just introduced gluten free. This is so hard when you have a good social life and entertain.I now have an appointment in January to have another colonospcopy and to see what is going on down there.Watch this space. Linda December 13th 2010 at 10.35

1
4e40d2b9e1a762949a25b958762aa10d

(762)

on November 03, 2010
at 03:31 PM

Hi Richard,

To my knowledge, they call it collagenous colitis because there is increased collagen deposition in the intestinal wall. That is, collagenous condition describes the condition, not the condition's cause. Because many things can cause inflammation and subsequent collagen desposition, it is important to further understand what well-understood causes of inflammation are in play here.

I suspect a biopsy was done to confirm the diagnosis. Was there any lymphocytic infiltrate (presence of white blood cells)? If so prolonged lymphocytic infiltration, a hallmark of which is abnormal patterns of protein deposition, may be an underlying pathology. This is why corticosteroids (Budesonide, also used for asthmatics as Rhinocort), which broadly suppress the immune system (including the inflammatory part) are used.

I agree that limiting inflammation through diet will help. The trick is to figure out, as much as possible, what is causing the inflammation. Otherwise, the treatment may just mask the problem.

Do you know anything more you would be comfortable to share about your mother's condition?

8254c4e4d1f2aedd09cb9608b8777654

(140)

on November 09, 2010
at 09:45 AM

I would not have thought so a few years ago, but after reading the paleo nutrition literature in that time, I see gluten sensitivity and auto-immune issues all over my family (u. colitis, digestive problems, allergies, asthma, etc.). This is probably another manifestation, and at 84 there could be permanent metabolic damage.

8254c4e4d1f2aedd09cb9608b8777654

(140)

on November 04, 2010
at 10:02 PM

My mom says she had the condition for perhaps 10 years, but that only recently, in the last couple of weeks, has she started having loose bowel movements at night while sleeping (twice). She has been taking aspirin, a NSAID, since 2006 and this is associated with the condition. I'm most interested in finding out whether people have had success in treating the condition without resorting to medications and, specifically, by adopting a more non-inflammatory diet.

4e40d2b9e1a762949a25b958762aa10d

(762)

on November 06, 2010
at 02:38 AM

Hi Richard, I am sorry to hear about the severity of your mother's condition. Is there a history of early autoimmune disease (say starting before 40)? Because I neither have the condition nor know anyone with that condition, I have no personal experience. However since the standard treatments would be anti-inflammatories or, when severe enough, immunosuppressants, I certainly support finding alternative treatment with gentler side effects.

19eda8d016ea385c806d7de6cafc5a23

on January 28, 2014
at 08:22 PM

Thank you!

0
Medium avatar

on May 24, 2014
at 01:09 PM

To decrease the indications, regularly a specialist will propose collagenous colitis eating regimen to individuals with the sickness along the medication process. It additionally described by the vicinity of groups like substance called collagen at the divider lining the colon. Those groups are shows up in minuscule level, so to diagnose the ailment will require minute examination of biopsies strategy.

0
E5b242a37c82df6dac630042f769cec2

on May 23, 2014
at 08:14 PM

I have had colitis for several years now & I have to say, what helps me the most is taking a multi vitamin along with a REALLY GOOD probiotic! I am lactose intolerant, so I have very little dairy. I find it interesting that so many have hypothyroidism along with colitis! I have been on thyroid meds for 29 years. Anyway, the vitamins have always done really great for me!!

,

0
Ee660e6884fe77196f23e7e91fa98220

on March 24, 2014
at 01:58 AM

I know this thread is a little old, but I thought I'd add to it.

I am a 24 year old and I have had microscopic colitis (the lymphocytic variety) since I was 18 years old. I have had chronic diarrhea for the last 7 years.

I know there is a lot of speculation about what causes it, and it is probably different for each person, but for me I think it was a perfect storm of stress, poor diet, and SSRIs. I was on zoloft for a couple of years preceding the onset, and SSRI's are associated with this illness. (Also, when I attempted to go back on a different SSRI a few years ago, my symptoms increased 5 fold, revealing its true effect on my body). I have always been a worrier, but I also put stress on my body through an eating disorder. I binged on carbohydrates and sugar.

I started following the paleo diet a few years ago. It helped with my stomach pains and relieved some bloating, but as I still ate gluten and soy, occasional grains, loads of nuts, dried fruit, and raw fruits and vegetables, my stomach never got a break.

In fall of 2013, I had some food sensitivity testing done by Enterolab. It came back saying I was highly sensitive to casein, gluten, soy, and egg protein, as well as revealed reactions to common animal proteins like chicken, beef, and tuna; I also reacted to potatoes, rice, cashews and almonds, among other things. I know this is because I have a very leaky, inflamed gut at this point that is reacting to everything.

Since then, I have eliminated all soy, dairy, egg, and gluten from my diet. I have also eliminated all nuts & seeds and nightshade vegetables. However, I have experienced no change. I have recently eliminated coffee, and am drinking green tea instead. I am hoping that this will have an impact, but so far it has been 5 days and no change just from that switch.

I am on 9 mg of entocort and 2 pills asacol, but this has had literally no effect on my bowels.

I realize i should probably not be eating any raw vegetables or fruit, no fatty meats, no caffeine of any kind, and very limited to no added fats or oils, but these changes have been difficult for me. I am always tired it seems, and that is why it has taken so long for me to give up coffee; caffeine is what gets me through the day.

I take vitamin d, b vitamins, fermented cod liver oil, and fish oil. I try and incorporate liver, bone broth, fermented foods & seaweed when I can.

Some conclusions I have reached are: 1) stress plays a huge role in this illness and 2) a functional medicine doctor is probably going to be more effective for you than a western medicine doctor. GI Dr's can unfortunately only give you medicine to mask the inflammation, not uncover the root cause (and these medications don't even work for me!)

I am in the process of trying to find a functional medicine doctor and hopefully get some answers into how my gut bacteria, hormones, and stress levels might play in to all of this.

Good luck to all of you that are dealing with this condition; while it's not as bad as ulcerative colitis, its still not a fun thing to live with.

0
C1bd3f64e3031e602249f73eb6bbc905

on September 12, 2013
at 01:08 PM

Hi

I have just come across this forum in researching my microscopic colitis with which I have just been diagnosed. Probably have had it for years but was misdiagnosed as IBS. I am in the UK.

I went on the Paleo diet website. I tend to agree that diet DOES have some effect on the condition, for example, I KNOW that curry sets me off! However, as a scientist, I question whether a specific diet such as the Paleo diet will have an effect. Who says that our Paleolithic, or Stone Age, ancestors didn't have bowel problems, or headaches, or fatigue? There is no evidence to say that this diet was perfect for their health, is there? This is just what they HAD to eat in those days. And yet, having said this, I follow a diet very similar to the Paleo diet suggested by Dr Loren Cordain, as I believe it is a healthy diet, except for the emphasis on meat for the protein source. I have been a pescatarian for many years and (although no evidence to suggest this), I think my vegetarian habits, with the occasional fish, MAY be a contributory factor to my present condition - as well as the Ibuprofen I took for over a year for broken limbs recently, as well as the Sertraline (SSRI) I took for depression because of the broken limbs!

So, my conclusion is, after all my research, stay away from all drugs! And yes, definitely watch what you eat and OBSERVE what triggers episodes of diarrhoea and avoid those foods accordingly. We only live one life, so let's live in the present and live it to the full! Good luck to all fellow odorous sufferers of this pesky, non-curable disease!

0
7f8c0aaef0df032dd257b747bcace0d6

on August 19, 2013
at 06:41 PM

I got diagnosed with CC in July of this year. I had been suffering with chronic diarrhea for months. I had surgery to try and repair a non-union of my ulna (forearm) 2 months prior to the diarrhea. I was in the hospital for 8 days. My doctor pounded me with 5 different anti-biotics over that period of time in my IV to PREVENT an infection. Had a colonoscopy at the end of June and the biopsy showed the microscopic proteins in tissues. My doctor recommended Imodium, which did work for awhile when I had diarrhea throughout the day, then kind of didn't work anymore. So she prescribed Asacol, which is an anti-inflammatory for ulcerative colitis. Well, one of the side effects is diarrhea and now I can't tell if I'm continuing with my 'problem' or am having the side effect. I've been taking 3 800mg pills per day for 2 weeks. I have read that it can help to go on a low fat/low fiber diet. And stop eating dairy, raw fruits and vegetables and nuts. Well...I love cashews and hated to give them up. I am a lacto-ovo vegetarian and get most of my protein from dairy (cottage cheese, cheese, etc.) and nuts. I stopped eating organic tofu because I read that was bad too. The probiotic yogurt gives me cramps and gas. I even tried the probiotic pills for 2 weeks but had to take an anti-acid with them because they hurt my stomach. I am 54, weigh 110 lbs. and work out at the gym 5 days a week and eat well (I am losing weight). I also don't want to give up my wine on the weekends nor cup of coffee in the AM. Now I am reading you should cut out bread and pasta as well. What do I eat then? Rice & eggs everyday? I think not. Also I had started drinking whey protein, 1 glass (23 grams) a day a year ago and stopped that a few months ago. I had thought maybe it had something to do with the collagen collecting in the colon too.

0
D7ba0531dd8dc03b24c823e1930de24d

on July 21, 2013
at 09:11 PM

Hi Heidi. My almost 5 year old son was just diagnosed with CC, after a little more than a year of on and off diarrhea. The dr has suggested budesonide and I am so reluctant to start it. How is your daughter doing now?

089dd41b18fbb95ebb5347cded708d98

(5635)

on July 21, 2013
at 09:41 PM

budesonide was hard on my gut, but it's supposed to be less harsh than prednisone. i stopped budesonide after three days because i couldn't handle all the cramping and diarrhea from it. what kind of diet does your son follow, Jamie? i hate hearing stories of such little kids having colitis.

0
De009684a7af182f26fab82dc31f3e6d

on February 17, 2013
at 12:35 PM

Hi everyone, I have had CC for about 15 years and until this current flare, basically ate and drank what I wanted. I had treated flare ups with accupuncture, endefen (powder of various natural spices and pectins which help restore balance in your gut), EPA/DHA (600/400 in small doses) and probiotics from my accupuncturist and acacia senegal fiber (from Heather's tummy fiber on line and a huge wealth of info). I recently have been dealing with diarrhea for like 6 to 7 months in various severity. I have been on budesonide and have not been able to stop taking it. My accupuncturist had moved and I thought it was to far, but I finally drove the extra miles to see her. She is a huge help and has like unlimited knowledge. Along with needling me (does not hurt and really helps), she has recommended no wheat, dairy, soy, sugar, and processed foods. It has helped and I am definetly not bloated any more! I eat rice, potatoes, cooked veggies, chicken, gluten free breads and have cut out fat also. She also told me about inflamation of the gut and I eat regulary tumeric, ginger, and some curry, all anti-inflamatory spices which have helped I believe. There is also a wealth of info on line about gut and inflamation foods also. I spent a lot of time researching on line and am today stopping caffeine (coffee). I hope that no coffee makes a huge impact as I have only 2 1/2 weeks left on my meds. I am ok now (not perfect) but I worry about no meds in a few weeks. It was pretty bad working with diarrhea. Seriously try to find an accupuncturist that has experience (mine has probably close to 20 years), she worked in a group with other experienced accupuncturist before going it alone. Sue

0
14d1088c218ba02faed14ed4a5e8a985

on January 04, 2013
at 03:07 AM

MAYO Clinic wrote that no known cause of CC; other than women who have taken Zoloft. Hard to know wht to do. Comofrting to know there is a site connection and oodles of hints and ideas. I've gained a lot of info. from you all and appreciate you. 'Carell

0
0b826789853c44bf4fa83949d2d8691d

on December 13, 2012
at 03:39 AM

Try Zoloft or some kind of anti depressant. I have cc and suffered for years. After reading an article about how anti depressants calm the intestinal system just as it calms the mind, I decided to try it. I take 200 mg of zoloft and 1 imodium every morning and for the most part, my cc is under control. I have a few flare ups from time to time, but nothing I can't live with. I am now looking to try a gluten free diet just to see if that will get rid of the occasional flare ups.

0
843d09e26be3ef13a4326d833dca20ae

on December 05, 2012
at 03:05 AM

I was diagnosed with CC one year ago and have tried a gluten and yeast (one of my many allergies) free diet along with bentyl four times a day simethicone twice a day and immodium without any releif. I can gain 3lbs in bloat with a meal even a small one. I eat low carbs only natural ones from fruits and vegis. Living soley on fruits vegis and low fat protein has done me no good and I'm frustrated. Everything I eat immediatly causes a low rumbling in my gut. Water bms interfere with my daily life and wake me up twice a night. I have had accidents and have even messed the floor and wall at work! How embarrassing a girl in her 20's pooping all over literally. I just want to cry. I was recently diagnosed wit 27 food allergies/sensitivities and cant possibly eliminate everything! I saw the docotor today and we are going to continue with the bentyl,simethicone, an anti inflammitory (starts with an A) and pepto bismol. I'm going to try with only cooked fruits and vegis and servely limit my caffene. I'm also planning to go to an alternative medicine chiropractor whom is known for helping with allergies. Good luck to all you sufferers of this debillitating embarrassing condition my heart goes out to you all for we are left to try out combination of things that

work. For most of us only beng a short time of releif.

0
Ae005caaf9830c50a8537eb6fa790bbb

on September 27, 2012
at 02:33 AM

Have any of you tried eating apples. I noticed that if I eat an apple a day,peeled, it keeps the colitis away! (yeah, not funny but true). It has to do with the pectin. Also, once you get a little more stablized, try eating more fruit, mostly bananas, oranges and watermelon. I was doing great on this and then I came down with the stomach flu. It is true that if you consume a lot of fat, nothing will help. But you have to have some fat in your diet for health reasons, it would be best to use either olive or canoloa oil. I have had CC for 25 years now. This is the only thing that helps. You may start first by eliminating corn, wheat, diary and soy. Use cocunut creamer for your coffee which should be either 1/2 caff or totally decaffeninated. That is another thing that I have found out, caffiene can act like a laxative. I have about 2 to 3 cups of 1/2 caff in the morning, the rest of the day is caffeine free. Once you have eliminated all corn, wheat, diary and soy for a few weeks, your pain will disapper. You may have to live on meats, vegetables and fruits. Hope this helps.

0
7e36094a0f7a2fbad24290225405220b

(2064)

on May 28, 2012
at 06:41 AM

My husband has ulcerative colitis and was told by his doctor to eat a low fibre diet. This was at the same time as I went low carb and then primal so I just fed him what I eat except he has corn flakes for breakfast. He is fine unless he eats too much gluten. That makes the diahorrea flare up.

0
9aef3e5333ae96bc538fb0aebb0bcf19

on May 28, 2012
at 04:49 AM

I am 82 years old and was found out 14 years ago that I had Lympocytic colitis. None of the meds given worked for me. I finally went to the universitiy medical libary and looked up the researach. I found Dr. Kennith Fine who has done much research and continues to do so. He was the one who found that Pepto B. could help some people. He also sugests gluten free diet and has a program for testing for other food allergies. I found that i am alergic to dairy, soy, rice, almonds as well as gluten. I have had major relief from his program. He has a website- www.finerhealth.com. He is a GI doctor who heads a clinic in Dallas, Tx. totally devoted to microscopic colitis.

0
4e184df9c1ed38f61febc5d6cf031921

(5005)

on May 05, 2012
at 07:58 AM

Fascinating thread. I have NOT been diagnosed with CC - but I have had symptoms for over 30 years and the last 3 years, very severe. 2.5 years now of no grains (except occasional white rice), no seed oils - basically paleo, moderate carb, high fat and all grass fed meat. This has helped asthma greatly and I am finally off steroid inhalers which is a great plus!

I really DO NOT want a colonoscopy, but neither do I want this constant diarrhoea and the social / work problems associated with it. I am fortunately self employed, but mornings are often completely out as I have to be near the bathroom, and foreign travel has been impossible for the last 4 years.

It is good to have a name to put to it even if not diagnosed and the suggestions above for diet etc are brilliant. I shall adapt my diet accordingly and see what happens.

I have not been to the doctor to discuss my symptoms - I have little faith in medicine here in the UK as EVERYTHING seems to be treated with drugs rather than life style changes. And I know it was Paleo that finally sorted out my asthma, after 54 years of various drug treatments. So - thanks for this thread!!.

4e184df9c1ed38f61febc5d6cf031921

(5005)

on May 05, 2012
at 08:05 AM

Sudden thought - the diarrhoea worsened significantly as the asthma improved and I stopped inhaled steroids. Could inhaled steroid have been having a low level, general anti-inflammatory effect, which allowed other things to flair up more when steroids were stopped?

9fef8c931963c3bbf3320379428477c0

(0)

on May 06, 2012
at 02:07 AM

Hi Andrew, I agree, doctors don't want to discuss nutrition. I would suggest you look at the web postings of the medical doctor, Thomas Cowan, who is different. He discusses the diet of Africans who are still eating traditional diets. Since refrigeration is not available, their diet includes a lot of fermented foods, and Dr. Cowan claims that digestive problems are practically unknown there. But re: the colonoscopy, it is not pleasant, but the only way to really know what is going on, it seems, and it could be something easily treatable. Good luck, Allison

0
9fef8c931963c3bbf3320379428477c0

on May 05, 2012
at 04:22 AM

I have gluten intolerance and have been diagnosed with microscopic colitis (first lymphocytic and just a few months ago, collagenous.) I have had really a good response to adding fermented foods to my diet - miso soup for breakfast, kefir (low fat, plain), kombucha, sauerkraut. It is easy to brew kombucha from organic ingredients including green tea. Of course, I have avoided gluten for over 10 years also. I also limit the non-gluten carbs, and red meat. I try to consume ginger and chia seeds, and fish with omega 3's.

Perhaps others would benefit from fermented foods. They are so much more effective for me than a probiotic pill, which did nothing.

0
D0ee96befc067f643fd1d659b57ce373

(20)

on February 08, 2012
at 09:53 AM

Ok, I am back again (previous pot June 15, 2011). After lots of tweaking and adjusting to my diet I have put my microscopic colitis into remission. I have only one or two bm's per day and they are always solid. Here is the diet...

  1. Low fat. This is muy importante! A damaged colon gets irritated by bile salts that digest fat and so it sends everything out to the toilet. The solution is not to eat fat. No added oil, butter, lard, etc. No fatty foods, animal or vegetable.

  2. No allergens. Do an elimination diet ala Dr. McDougall or Dr. Klaper and find out if you have any food allergies. The above Docs are vegan so if you want to eat meat or fish check these out too through the same process of elimination and testing. I react to gluten, beef (even grassfed), nightshade vegetables, and high oxalate vegetables (this means no sweet potatoes, ugh!).

  3. Supplements: I am taking Carlson's fish oil. Start with one capsule per day. when you tolerate that add another. Then when you tolerate that add one more so that you are taking 600 mg of DHA per day. Remember fish oil is fatty and so go slow at first and build up the amount you are taking as the inflammation calms. When I was eating too much fatty meat I could never take fish oil as the combined total fat sent me straight to the john but on my current diet and by starting slowly I am up to 3 capsule of fish oil per day which also does wonders for the Rheumatoid arthritis in my hands. I am also taking Glutamine to repair the gut, calcium-magnesium to absorb excess oxalate, and vitamin D.

  4. My diet: this may not be right for you but at least it is a start. I eat: white basmati rice (my main source of calories), low oxalate fruits and vegetables cooked in water (fruits are cooked too), lean fish (poached) and and very lean meat (boiled or grilled) 200 grams - 1 x per day. This diet is very low in fat (less than 10%), high soluble fiber and low insoluble fiber, has adequate high quality protein, and, provided you eat enough cooked veggies, easily meets all RDA's. It is not paleo or vegetarian but it works for me. I have lots of energy and feel great and have no MC symptoms.

Good luck to all MC sufferers out there. My e-mail is [email protected] If you have any questions or if I can be of any help please do not hesitate to send me a message.

D0ee96befc067f643fd1d659b57ce373

(20)

on February 08, 2012
at 10:07 AM

PS in addition to previous post, it should go without saying, but I will do it anyway, I avoid alcohol, dairy, spicy foods, sugar, processed foods, etc. As Jack Lalanne said "If man made it, I won't eat it."

0
B74e776ca6fa2016eadf9f826c379bf1

(0)

on December 13, 2011
at 06:08 PM

After 4 months of chronic diarrhea, my Dr. had a few stool samples taken.. they came out normal. Then a couple weeks later, I almost passed out, and felt like I was dying. My DH and I agreed to go to the ER. They found me to be severely dehydrated and did the gamut of test on my stool. Came up with C diff. After a round of Flagyl, still had chronic diarrhea about 20 or more times a day, cramps, pain, and night time bathroom runs, I finally had a colonoscopy to find it to be CC. I now try to eat Gluten free, but I sometimes wonder if the disease is not only in my colon... could it possibly be throughout my smooth tissues? My eyes are dry and itchy and my joints and spine HURT! I also sometimes feel strange sensations in my heart area, like chunky stuff flowing through it. Whew, what a strange thing this is. I feel for all of you. All we can do it take good care of ourselves. Do not drink, smoke or overdo pain meds, and do not over eat even though you may be hungry as heck! The Dr.s seem to have no clue about what to do.. and just want to deal with the normal/unsick people? What's up with that. God Bless all of you dealing with CC.

0
49282c6c63c9eef807f3e2f608c2f747

on November 05, 2011
at 07:38 AM

I was diagnosed with CC 5 years ago and after a colonoscopy I was given sample medication since I could not afford the script. It worked well for a while, would have horrible flair ups and go back to being ok. Now the past year has been awful. I went to my GI and he gave me endocort and lomotial. My condition has gotten so severe, I have constant cramping, bloating, light headed, low energy levels and major weight loss. I have thru the years found out what causes more pain when it comes to food and have gluten free, lactose free and low sugar foods. I rarely eat out and always prepare food. This condition has completely changed my life. When I seeked out help I was 26. My social life has drastically changed, not only am I fearful of a "episode", I'm constantly tired. Right now nothing I eat is sticking and have become the "shrinking women". I have no energy and always feel tired but, cannot sleep. my relationship with food has caused me anxiety cause i'm never sure which time is going to cause me pain and discomfort..Has anyone had similar experiences??

0
6fd2a3fedeb0a0ee4e637cd3dc3b009c

on September 28, 2011
at 01:33 PM

I have had Collagenous Colitis for over 12 years. Early on I would have long periods of normalcy. I have been on Pepto Bismal tablets, which worked quite well for some time. Recently my GI prescribed Entocort, 3 each day. It worked immediately, but then suffered many side effects. Such as "moon face", severe leg cramps, thinning of forearm skin, plus other problems. I then went to one a day. But for the FIRST time I read about a low fiber diet, published by the Mayo Clinic. It makes so much sense! Why hasn't that been suggested before? I'm in the early days but so far, so good.

0
09bfa6f539bf5c5311564806f80e0704

(0)

on August 03, 2011
at 06:05 PM

Hi all...I was diagnosed with CC in April of this year after suffering with it for 4 yrs....my doc has me on endocort which I have been taking since then....it is,truly a miracle...I feel great although I was unaware of the osteoporitis aspect of the drug...thank goodness I have a good prescription plan as the drug is quite costly....I go back to the doc in September my only fear is that he will take me off the drug...I don't know how I could go back to the way I was before I started taking the endocort....

0
05a12c5b28b5b28f41a3b6231a4f44fc

on July 15, 2011
at 03:45 PM

Hi Folks, I am a 47 year old woman with CC I have been battling it for about a year and a half now with limited results. After 1 colonos. and 1 spig with the diagnosis a year ago. I have been on canasa suppository which worked for a couple of weeks to entocort now for nine months straight...After pnemonia about 3 months ago it has gotton worse and my immune system seems to be taking a hit as well. I have had five previous abdominal surgeries that have no initial relation to the CC but it has left me with a great deal of adhesions and scar tissue internally....I wonder if ...and this sounds maybe a little out there... but might there be a connection between the fiberous adhesion production and the collegen produced in the walls of the colon? Thoughts?

0
B3fae8851525d80bc25feb42184a1ac9

(0)

on February 08, 2011
at 04:26 PM

I suffer from this disease sadly I feel for others with this disorder. Medicines have not really helped much and i have had just about everything tried on me. Fact is some people have to accept the fact that their life is never going to be the same as it was before the disease started. If family and close friends understand it makes it easier for sufferers of the disease. To help the sufferer check each day if they need things from a store, or post office for examples. Another thing is that is hurtful when others say well if you only try this thing or that (gets on your nerves as they are not a doctor) then you would be able to go places. I would like also to those who might read this in the future PLEASE, so many of you suggest depends and other disposable undergarments so the person can go places and not worry about accidents if they can't get to a restroom fast enough. Odors are still going to be there and believe me when i say it is very degrading. My post is really to say when suggestions are made to the sufferer from well meaning others PLEASE LAY OFF, we have doctors for that.

0
1aeb2cfacf9bc03644bcda640ce459ba

(154)

on November 09, 2010
at 02:07 AM

doctors are not with it at all when it comes to colon illnesses.. try going to scdiet.com and search for Lutz or Life without Bread. they have posted some pages that are very informative....of course, specific carbohydrate diet is all about gut healing so you should find lots of good reading.

8254c4e4d1f2aedd09cb9608b8777654

(140)

on November 09, 2010
at 09:53 AM

I have been trying to interest her in getting away from gluten and adopting a more non-inflammatory diet. My hope is that such changes will ease her symptoms. I agree completely that doctors are mostly useless when it comes to these issues. They are fine when you need a bone set or stitches, but only seem capable of thinking in terms of pharmaceuticals when treating symptoms.

19eda8d016ea385c806d7de6cafc5a23

on January 28, 2014
at 08:55 PM

Thank you both, and I agree.

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