I'm a 28 yo female and have had ibs for 10 years: diarrhea, incomplete bowel movements, extreme bloating & gas, occasional heartburn/indigestion. I can control the gas/bloating a bit through diet (mostly paleo, low carb, but I do eat fermented dairy/coffee/dark chocolate/wine), but no matter what I do the diarrhea and incomplete bowel movements haven't improved at all. I run to the bathroom 5-10 times at least every morning, which is exhausting and embarrassing. My thyroid is supposedly fine. I've had an endoscopy, a colonoscopy, been tested for parasites, gut flora, and food allergies, tried acupuncture, hypnotherapy, psychotherapy, elimination diets (no coffee/dairy/eggs/alcohol), and supplements (probiotics, L-glutamine,enzymes, HCL, etc) but nothing helps. I can't tolerate most sugars & starches, and can't eat many of the "safe" vegetables and fruits on the FODMAPS and SCD diets. My doctor suggested I try the antibiotic Rifaximin to see if it's SIBO; my instinct is to try the elemental diet but the only formula I can find is Vivonex Plus, which lists maltodextrin & cornstarch as its first 2 ingredients (give me gas) and soybean oil as its fourth ingredient (yuck). Has anyone here tried an elemental diet to help with their gut issues? And also, does anybody have any ideas as to what could be causing my problems and what else I could do to try and solve them? I would really appreciate any advice/help you can offer!
asked byjetsky_1 (15)
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on June 04, 2012
at 01:04 AM
Hi Jetsky, I understand where you are coming from - I've had IBS for 15 years and like you have tried every possible treatment under the sun. Two things - I did a hydrogen breath test to test for SIBO (it was negative), instead of just trying a drug to see if it helped. Perhaps those tests aren't conclusive, I'm not sure, just a thought. I don't think people should be trying antibiotics willy-nilly, esp as we know how critical gut flora is in all this.
I can't speak to the elemental diet, but I'm surprised you are still drinking coffee and wine, especially when your stools run towards loose. Caffeine increases gastric motility, and alcohol is a gut irritant. Dark chocolate, too, can have a laxative effect. I know it's hard to give up everything - I still have some wine on occasion - but it seems like those would be particularly unhelpful for you. Also, have you tried increasing your soluble fiber? Acacia fiber I find quite helpful, as well as white rice. I do 1/2 cup of white rice and 1/2 tsp of acacia per day, along with a high-strength probiotic which I also find helps. Finally, a month ago I started Cipralex (Lexapro) which may also be helping a little - at the very least, it's helping my mood so I am not as down about the IBS.
on June 04, 2012
at 01:16 AM
"My doctor suggested I try the antibiotic Rifaximin to see if it's SIBO"... Shouldn't that be the other way round? You should be tested for SIBO first and then start treatment; you shouldn't start a treatment and then see whether you have a condition (at least not when you're talking about antibiotics, which can have an adverse effect on your health).
Secondly, what probiotics did you try? Not all probiotics are created equal. I would suggest trying a probiotics containing a high amount of lactobacillus plantarum 299v strains, since they have been shown in some trials to be very successful in treating IBS. This is the kind of treatment you can try and see if it works. You should be able to feel improvement after about 4 weeks if it works. Personally, I believe probiotics are only useful in combination with a good diet (see below).
Extreme bloating and gas might be relieved by using (activated) charcoal. A cheap supplement with a huge potential, so it's worth trying. Just bear in mind that you should take any medications at least 5 hours earlier or later, since the charcoal diminishes the effects of the medication tremendously.
You say you still eat fermented dairy/dark chocolate/wine, all of which contains high amounts of histamine, which can have huge effects on you. In some people, histamine intolerance manifests itself by migraines, in others in the bowels,... You might want to try a low-histamine (there are many summaries of what you can and cannot eat on the internet) GAPS/SCD/Paleo diet for at least a couple of weeks and see if there's any improvement.
What I also suggest is using coconut oil. It is shown to relieve a lot of symtoms associated with Crohn's, ulcerative colitis, IBS,... Basically all kinds of digestive disorders (and loads of other stuff) and it also works as an antiseptic, so it can also work against any infections.
Please also bear in mind, as you probably know, that IBS is a syndrome disorder rather than a disease, which means that it's nothing more than a list of symptoms that may be caused by a huge range of issues, so the tips described above might work (and have shown to be successful in a number of cases), but it might not work too. There are no guarantees in this.
on June 04, 2012
at 03:16 AM
Read comment #88.
Good luck. Hope you find what you need.
on June 04, 2012
at 11:45 AM
SIBO is very likely to be the cause if you have trouble tolerating carbs of all types.
I would not recommend the elemental diet, because it contains a lot of artificial ingredients and is high in sugar. I think you can achieve very similar results by following a strict meat and fat diet only for 2-3 weeks (no vegetable matter), as this would deprive the excess of bacteria in your small intestines (if you have SIBO) and hopefully, make them die. Be aware that die-off symptoms are very common!
The Rifaximin treatment can also be very effective but IT NEEDS to be followed by dietary changes to prevent relapse.
Herbal antibiotics can also be another approach that you can discuss with your doctor (most likely with a naturopathic doctor).
The approach you choose is up to you, but you need to adapt your diet to help heal your gut (which is likely to be leaky if you have SIBO), correct nutritional deficiencies caused by SIBO and follow a GAPS-like protocol to slowly increase your food tolerance.
on June 04, 2012
at 11:02 AM
definitely consider the gaps intro diet,
1) its a diet made to control over growths of bacteria, yeast etc.
2) its a diet that eliminates then introduces and only things to help over growths as above.
3) its a diet meant to help eliminate the dirreaha and fine tune you body
4) its a diet meant to help you repopulate the good stuff in your body and rid of the bad.
Ive had "IBS" for years and I can say its finally under control, not 100%, but in 3 months now on intro I'm finally more stable.
I also can not handle rice, its too taxing on my system and causes horrible bloating. I figure a year on GAPS and I should be able to start 'testing' things. I've seen indicators of my gut sealing and its definitely more tolerable to wine, chocolate when I have the occassional cheat.
look into as well, good luck!!
on July 12, 2012
at 11:31 PM
Hi, As a previous Crohns Disease sufferer of 40 years, I no longer - in my understanding - have the disease :) As much as diet plays a very important role to how a gut behaves, so does ones thinking :) I spent two years after one major attack, bleeding from the bowel pretty much every day, and searching for alternative answers, especially through diets, but also alternative medicines and techniques, pretty much every one that existed! As the two years went on, I got better. The diets may have helped, but I also got happier. Sugar out, alcohol out, fast food out, meat out, etc., etc. Thought I had the solution, but three years later and another stressful situation occurred. The 'Crohns', or rather the name for the symptoms I was having, i.e. inflammation and ulceration of the bowel, resulting in another bleeding attack. More surgery was booked, but before that happened, I had a major fundamental mind shift, and all the bleeding stopped within 7 days. My surgery was cancelled and my specialist was satisfied that the attack had retreated :) That was nearly 13 years ago now :) I definitely agree that diet is important, as certain consumed products have an effect on the gut. Cells change according to their environment, so put something into the body that is an enemy as such, and the cells will REACT accordingly :) But alongside this, look at the drive of this vehicle. How your brain 'thinks' also creates an environment for your body. Any form of 'stress' (ha ha! - the non-acceptance of 'what is') or anger, or frustration, or irritation - anything negative really, can reek havoc on your cellular system. In my understanding, by being the observer of your mind and creating a good and positive environment for your 'Self' there is so important. How you feed your 'physical system' is also very important, in order to create a good environment within the cells of the body, that support the 'Self' :). I think it would be good to keep these two environments healthy :) All the best to you all :) Kit Campbell 'The Irritable Brain Syndrome'
on June 04, 2012
at 02:51 AM
I believe it's established now that IBS is caused by SIBO, even tho the SIBO tests currently aren't very accurate. Take the antibiotic but also start kefir/probiotics to recolonize yourself with good critters. You should ditch the wine & candy for now.
on October 11, 2014
at 05:57 AM
Not sure if you have had any luck, I am thinking of doing a 7 day water fast or elemental diet to give my digestive system a break. If you are interesting in connecting and going through one together I'd love to have a 'buddy.'
on July 12, 2012
at 06:45 PM
If you are daring enough you can try to make your own version of Vivonex minus the maltodextrin, corn starch and soy oil. You can look here for variations:
You can add mct oil for calories if you are worried about sugars.
Be careful if you try this take it easy. It should be easier than a 2 week fast but still pretty hard. Make sure you don't have yeast parasites they may damage your system.
You also really need to try other remedies especially diet. Eliminate the following for at least 6 months: all sugars and sweetners, dairy, all grains, fruit, just eat less fibrous veggies cooked well like a soup or steam boil until soft and also eat meat and saturated fats.
Look here for ideas here: http://www.slideshare.net/drrinde/sibo-grand-rounds-presentation-2011-best
Join sibonation yahoo group if you can't read last URL