1

votes

MRI when a problem is unlikely? (Pituitary Tumor)

Answered on August 19, 2014
Created April 24, 2013 at 1:29 PM

I went to see an Endocrinologist for hormonal imbalances, but instead of having my Hormones looked at, he wants me to do an MRI first. Reason for the MRI is my history of a pituitary tumor, that shrank and the levels returned to normal. My levels are still normal to this day, so I find it weird my Endo is so set on an MRI. If the tumor were back, the levels weren't normal. I am worried about the risk of an MRI, I am also breastfeeding and my son prefers his milk from the source.

Does anyone know a little about pituitary tumors? Is it possible it is back despite normal levels?

B2634bf90fa31b48a60e7c4f06761200

(694)

on April 25, 2013
at 11:39 PM

Forgot, that there's another entity called "Sheehan's Post Partum Necrosis" where after you deliver a baby, the pituitary can begin to die off... it can then get big... and then start shrinking back down. Symptoms can be from the increased size of the tumor (changes in visual field) or from decreased hormone production. something to think about and ask your endo about.

3959828c57f2aeddc08e5f374e92ad36

(87)

on April 25, 2013
at 12:43 AM

That is how I feel too. They could check other things first. My last MRI was done not too long ago. Weirdly some things like the extensive hormone panel are not covered by insurance in Germany so we would need to pay 100Eur extra to get that done...

3959828c57f2aeddc08e5f374e92ad36

(87)

on April 24, 2013
at 09:51 PM

My former endo said to only fet the MRI for the tumor (pituitary adenoma) every three years. During the three years visual fields and blood tests should inform about the state of the tumor and whether it is growing. That is what I was told. My tumor shrank after the use of medication.

3491e51730101b18724dc57c86601173

(8395)

on April 24, 2013
at 04:55 PM

I think they are just covering their bases because of your history. See my answer below, in my case there is no such history.

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4 Answers

1
4bd4e2fe6a095663f80c69656936e487

(744)

on April 24, 2013
at 10:03 PM

Your doctor probably doesn't want to get sued or something. It seems like that's what drives their actions.

1
3491e51730101b18724dc57c86601173

(8395)

on April 24, 2013
at 04:53 PM

I'm having the same issue. I have lifelong PCOS, and now I'm 53 so I SHOULD be in menopause, but my FSH is found down, meaning I'm not in menopause at all, but my last menses was six months ago. The endo wants to do an MRI to look for a brain tumor! She hasn't even bothered to have my prolactin levels tested which would be out if whack if it was the type of tumor she's looking for. And she doesn't seem to "get" that amenorrhea is consistent with PCOS to begin with and not at all unusual for me. Hello???

Most amazing is that this is Kaiser HMO, they won't even fully test thyroid panels because its too expensive, yet this would be the SECOND MRI suggested to me within a few months because the cardiologist wanted to do an MRI for my congenital heart problems instead of the usual echocardiogram. I can't imagine why they want these very expensive imaging tests when less expensive conventional tests would suffice. In this case I think it's because this HMO already has the equipment and the staff, so it really doesn't cost them more.

3959828c57f2aeddc08e5f374e92ad36

(87)

on April 25, 2013
at 12:43 AM

That is how I feel too. They could check other things first. My last MRI was done not too long ago. Weirdly some things like the extensive hormone panel are not covered by insurance in Germany so we would need to pay 100Eur extra to get that done...

0
B2634bf90fa31b48a60e7c4f06761200

on April 24, 2013
at 09:33 PM

Very reasonable request, especially given your previous history of a tumor. Tumors CAN come back.

Important things to know include:

  • What kind of tumor was it?
  • Was it ever treated?
  • If so, how was it treated? Surgery? Radiation? Medication? Went away on it's own?

B2634bf90fa31b48a60e7c4f06761200

(694)

on April 25, 2013
at 11:39 PM

Forgot, that there's another entity called "Sheehan's Post Partum Necrosis" where after you deliver a baby, the pituitary can begin to die off... it can then get big... and then start shrinking back down. Symptoms can be from the increased size of the tumor (changes in visual field) or from decreased hormone production. something to think about and ask your endo about.

3959828c57f2aeddc08e5f374e92ad36

(87)

on April 24, 2013
at 09:51 PM

My former endo said to only fet the MRI for the tumor (pituitary adenoma) every three years. During the three years visual fields and blood tests should inform about the state of the tumor and whether it is growing. That is what I was told. My tumor shrank after the use of medication.

0
32f5749fa6cf7adbeb0b0b031ba82b46

(41757)

on April 24, 2013
at 04:59 PM

There is no* risk to MRI, it's simply your body in a magnetic field.

(* non-zero, negligible)

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