1

votes

Unexplained Tremor

Answered on August 19, 2014
Created November 04, 2011 at 6:48 PM

I just want to provide some background info first, before getting to the question. This is a question regarding my sister who has Celiac's Disease as well as sensitivities to many other foods such as soy and dairy. She has been gluten free for about 2 years and doesn't eat soy or dairy containing products either. She follows paleo pretty darn close, some grains here and there, but infrequent and in small amounts. In the past she has experienced small hand tremors, and still gets them off and on. Recently though she has said they have been getting bigger and more frequent. She notices coffee seems to aggravate them, so she avoids it, but it is still happening. I thought it could be related to sleep and stress which she says may be a small part of it. She is a 1st grade teacher and is getting her masters, needless to say she has some stress in her life... I know she is a little prone to get anxious at times too, but she denies this is the problem. I also suggested some supplements such as magnesium which we are going to try. Aside from that she takes fish oil, probiotic and a mutli (all are gluten free, no doubt). So, does anyone have any suggestions? Maybe a possible food sensitivity we should try to pinpoint or some supplement to try? Anything helps and is much appreciated! Thanks!

11b7b7ba720a5cd43c74a0ef99a16adb

(3448)

on May 07, 2012
at 07:27 PM

---> ET produces exaggerated anxiety and nervousness in pressure situations. If you need, I can recommend a doctor in the Atlanta area that specializes in ET treatment (1 of only 2 in the state). There are very few doctors that specialize in ET, and--in my experience--doctors in general don't know diddly squat about ET (actually, less than diddly squat, as you are more likely to get wrong information about ET from most doctors than not).

11b7b7ba720a5cd43c74a0ef99a16adb

(3448)

on May 07, 2012
at 07:20 PM

I've had ET since birth. (1) Not all ET is hereditary, so not having a family history does not eliminate it. (2) Caffeine does NOT make ET worse; the fact that coffee makes her tremors worse argues against ET. (3) Alcohol calms ET tremors, but makes other tremors worse (or has no effect). What happens when she has had 3 drinks close together? (4) ET often affects areas besides hands--vocal chords, neck, legs, belly. Does she have tremors in any of these areas? (5) Does she experience more elevated feelings of nervousness in pressure situations (like public speaking) than she used to? --->

De267f213b375efca5da07890e5efc25

(3747)

on November 07, 2011
at 08:11 PM

I can see value in conservatism, especially with our medical system. I've found doctors to be of little use so far and very expensive. I imagine your sister must be scared and frustrated by now. If no good answers here, then maybe try some support group forums? Anyway, wish her the best.

Bb4b4a43f76db4977a3b63721a7c10e7

(215)

on November 05, 2011
at 03:57 PM

Thanks for the suggestion, but we are going to try some other methods before resorting to that. I don't think we have exhausted our resources just yet, but we are not foolish enough to rule out western medicine and sacrifice her health and well-being. I appreciate the concern.

Bb4b4a43f76db4977a3b63721a7c10e7

(215)

on November 05, 2011
at 03:47 PM

Thanks everyone for the responses - much appreciated advice

Bb4b4a43f76db4977a3b63721a7c10e7

(215)

on November 05, 2011
at 03:46 PM

She is 25. No familial ETs, no parkinson's, no GB issues, no bladder issues... I don't think she is doing a B complex, but that's a great suggestion. No offal in her diet, and probably not going to happen. Grandmother does have minor MS, but I don't think that's the issue here as she shows no other signs accompanying the disorder. We live halfway across the country from each other so I can't really do the blinking experiment, but I'll see if I can figure something out on that one. I've seen her unsteady hands before and it reminds me of when I've done a hard workout and can't hold hands steady

Bb4b4a43f76db4977a3b63721a7c10e7

(215)

on November 05, 2011
at 03:42 PM

Thanks - yep this was along the lines of my thought process as well. I have told her to go completely grain free and caffeine free to see what happens. I guess I will step it up a notch!

Ed71ab1c75c6a9bd217a599db0a3e117

(25472)

on November 04, 2011
at 10:24 PM

count how many times she blinks in one minute and dont tell her what you are doing. Then report back the results. I may have an idea that could help you.

32f5749fa6cf7adbeb0b0b031ba82b46

(41747)

on November 04, 2011
at 10:22 PM

Agreed. Do everything "right" with paleo and you're setting yourself up for the best prognosis possible. Even then, it's not a panacea.

Medium avatar

(4878)

on November 04, 2011
at 07:00 PM

On more...Any history of bladder incontinence?

Medium avatar

(4878)

on November 04, 2011
at 07:00 PM

Couple of questions: 1. Any Essential Tremors in your male family members? 2. Any Parkinsons in your genetic history? 3. Any gallbladder problems in your family? 4. Does she supplement with B Complex? 5. Does she eat offal/liver in the quantities suggested by Paleo gurus?

6670b38baf0aae7f4d8ac2463ddc37c0

(3946)

on November 04, 2011
at 06:56 PM

How old is she?

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4 Answers

3
De267f213b375efca5da07890e5efc25

(3747)

on November 04, 2011
at 08:28 PM

There is a place for alternative medicine and lifestyle modification and there's a place for traditional medicine. I think this would definitely fall into the latter category - see a Neurologist.

32f5749fa6cf7adbeb0b0b031ba82b46

(41747)

on November 04, 2011
at 10:22 PM

Agreed. Do everything "right" with paleo and you're setting yourself up for the best prognosis possible. Even then, it's not a panacea.

Bb4b4a43f76db4977a3b63721a7c10e7

(215)

on November 05, 2011
at 03:57 PM

Thanks for the suggestion, but we are going to try some other methods before resorting to that. I don't think we have exhausted our resources just yet, but we are not foolish enough to rule out western medicine and sacrifice her health and well-being. I appreciate the concern.

De267f213b375efca5da07890e5efc25

(3747)

on November 07, 2011
at 08:11 PM

I can see value in conservatism, especially with our medical system. I've found doctors to be of little use so far and very expensive. I imagine your sister must be scared and frustrated by now. If no good answers here, then maybe try some support group forums? Anyway, wish her the best.

0
D0501f0cc09c961a06c3d188361e7b07

on November 04, 2011
at 10:22 PM

To answer everyone's questions, this definitely sounds like Essential Tremor http://www.essentialtremor.org/. I have suffered from Essential Tremor for the past 10 years and it started showing up when I was 20 years old. My father, my brother and one of my sisters (which she has the worst symptoms) also suffer from ET, hence the other name, familial tremor. So far, there is no cure and much is not known about it or what exactly causes it, and everything that I have ever been told by a doctor or read online to help eliminate the symptoms has not worked until I eliminated gluten

There is definitely a link between Essential Tremor and gluten and I found this out after completing my Whole30 this past January 2011. I'm actually on The Whole30's testimonial page and was the one that brought this disease and the relation to gluten to their attention. You can find my testimonial here: http://whole9life.com/2011/06/the-whole30-a-z-real-life-testimonials/

Since completing my first Whole30, I have basically gone full paleo/primal/gluten free, and I have also completed a couple of tests to verify the effect. After drinking beer or eating bread, within a day the shaking in my hands will come back. Once I eliminate gluten again, the shaking will again reside and starts to disappear within a week or so. I'm extremely aware of the way my body reacts to gluten and have reached the point that I can tell when gluten has been used in the food I eat. Now I know that gluten is not in coffee, but the shaking in my hands will also come back if I have coffee, which sounds very similar to your sister. Also, If I am tired, dehydrated, hungry, or just finished a WOD, the shaking in my hands will increase temporarily. Does this happen to her?

My suggestion to your sister would be to completely cut out all grains and remove caffeine for awhile. Then reintroduce caffeine and see what happens. In the end it really comes down to your sister because ET's symptoms and what causes them are going to be different with everyone.

I hope this information helps your sisters figure out a solution to her symptoms.

TJ The Bacon Diaries

Bb4b4a43f76db4977a3b63721a7c10e7

(215)

on November 05, 2011
at 03:42 PM

Thanks - yep this was along the lines of my thought process as well. I have told her to go completely grain free and caffeine free to see what happens. I guess I will step it up a notch!

11b7b7ba720a5cd43c74a0ef99a16adb

(3448)

on May 07, 2012
at 07:20 PM

I've had ET since birth. (1) Not all ET is hereditary, so not having a family history does not eliminate it. (2) Caffeine does NOT make ET worse; the fact that coffee makes her tremors worse argues against ET. (3) Alcohol calms ET tremors, but makes other tremors worse (or has no effect). What happens when she has had 3 drinks close together? (4) ET often affects areas besides hands--vocal chords, neck, legs, belly. Does she have tremors in any of these areas? (5) Does she experience more elevated feelings of nervousness in pressure situations (like public speaking) than she used to? --->

11b7b7ba720a5cd43c74a0ef99a16adb

(3448)

on May 07, 2012
at 07:27 PM

---> ET produces exaggerated anxiety and nervousness in pressure situations. If you need, I can recommend a doctor in the Atlanta area that specializes in ET treatment (1 of only 2 in the state). There are very few doctors that specialize in ET, and--in my experience--doctors in general don't know diddly squat about ET (actually, less than diddly squat, as you are more likely to get wrong information about ET from most doctors than not).

0
79dc9d47aeb85d76439c2aa0661df568

(355)

on November 04, 2011
at 07:36 PM

One of my sisters has Essential Tremors (she's in her mid-30s). Is there a link between those and gluten intolerance / other food allergies (which also run in the family)?

0
6670b38baf0aae7f4d8ac2463ddc37c0

(3946)

on November 04, 2011
at 07:01 PM

I used to get hand tremors before Paleo, usually during episodes of having too much adrenaline. This was usually caused by my diet, hypoglycemia, stress, etc. My hand tremors were bad enough that other people noticed it. Since being strict VLC/LC Paleo, my tremors have disappeared. That being said, I would not mess around with this and I would go to a doctor to rule out anything serious.

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