So you think you are a Celiac or gluten sensitive? Be careful.

Answered on August 19, 2014
Created August 17, 2012 at 2:51 AM

One thing I have noticed about the different grains, some are much worse than others. I cannot tolerate any amount of white rice or corn. Even a handful of corn tortilla chips causes me all sorts of problems, especially a funky one where the vision in one eye goes south (I really hate that one). They have a disproportionate amount of symptoms for the amount ingested. However, I can tolerate a fair amount of wheat, as long as it is whole wheat, and potatoes with relatively minor symptoms. The ironic part of this is that I have two daughters that are celiacs. And they are actual celiacs, confirmed by scope. The reason I am telling this story is I often wondered what happened 10 years ago when my gastro and pain issues went through the roof. Prior to that, I had issues but they were fairly minor and manageable. Over 8 years I figured out which foods were the issue, discovered lutein and recovered. Now I think I understand what happened. My downfall started shortly after my first daughter was diagnosed as a celiac. We did as any family with a celiac would do, we moved to a gluten free diet which involves dropping wheat and eating more corn and rice. As I starting sliding down, I was convinced I was a celiac too and totally converted over. Basically I was now eating the things that I now know I cannot tolerate. It took 8 long years to figure it out. The latest craze now seems to be going gluten free. Everyone seems to think they are gluten sensitive or intolerant. Be careful. Celiac disease is in my genes and yet going on the celiac disease caused me a ton of problems.



on August 24, 2012
at 02:04 AM

Sorry, forgot to ask my question at the end. I ran out time. Any others out there who have celiac family members and yet aren't celiacs, but have have diet issues?



on August 17, 2012
at 03:12 AM

"The latest craze now seems to be going gluten free." This is a good thing. Nobody benefits from gluten, celiac or otherwise.



on August 17, 2012
at 03:06 AM

I've never seen a better argument for the completely grain free paleo diet, your misery was caused by grains, just not the usual suspect. I agree the gluten-free grain substitutions can be worse than the gluten itself, don't get me started on my dislike and digestive distress caused by quinoa and millet. And yet I can eat oats or sourdough bread just fine. Trial and error, trial and error. Sorry it took you 8 years to find your way back.

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on August 17, 2012
at 05:25 AM

What a great post! Thank you for the warning! Gluten free does not cut it anymore, it has to be grain free and legume free (and dairy free) for autoimmune sufferers. We should be warned!

I used to think that gluten is the devil, but now I understand that gluten has many faces. Demonizing wheat, barley, rye and cross-contaminated oats is not going to solve the problem till will demonize processed foods. But that means the companies would have to put a warning label (like on cigarettes) on every singe package of breakfast cereals and every fast food item out there.

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