6

votes

If you have problems with wheat, have you seen Chris Kresser's article "50 Shades of Gluten (Intolerance)"?

Answered on August 19, 2014
Created April 03, 2013 at 7:00 PM

This article did a perfect job of describing my problems and experiments involving NCGS (Non-Celiac Gluten Sensitivity.)

If you suspect or know you have issues with wheat, I recommend it!

My questions: how did you discover you had a problem with wheat? If you've given it up or tried, what happened? Do you also have trouble with milk? What do you think of all the "gluten free" products?

My answers: I discovered my sensitivity by accident. When I decided to try paleo, I was amazed that a long list of health symptoms disappeared. Several relapses of eating wheat brought them all back, and going back off wheat caused them to disappear. Note: I am also one of those with the correlated sensitivity to milk. I can handle heavy cream but a tablespoon of half-and-half in my coffee makes me ill.

I avoid all the "gluten free" products as I consider them processed foods. I'm sticking with whole foods that have no gluten to begin with.

96440612cf0fcf366bf5ad8f776fca84

(19413)

on April 05, 2013
at 10:05 AM

I have zero issues with coffee. But a little bit of grains sets off a night of acid reflux, loss of cold resistance, brain fog, and a sense of malaise - like that before getting sick with the flu (which I haven't had once since having gone paleo.) So perhaps coffee cross reactivity with gluten is not happening to everyone.

Abf0b6d5e20906f742fd600887292c15

(192)

on April 04, 2013
at 12:47 PM

Maybe not all people want to spend so much time cooking but want convenient fast foods

Ce41c230e8c2a4295db31aec3ef4b2ab

(32556)

on April 04, 2013
at 03:10 AM

I have no problem with coffee, either, but I don't like it much--I prefer to drink tea.

96bf58d8c6bd492dc5b8ae46203fe247

(37227)

on April 04, 2013
at 01:58 AM

You're exactly right. At one point I was taking 5 prescriptions for various symptoms. When I went off them all AMA, the doctors were upset but I've been much healthier without them, even on SAD. I'm so healthy on paleo that people actually give me puzzled looks because I move like a younger person.

96bf58d8c6bd492dc5b8ae46203fe247

(37227)

on April 03, 2013
at 11:01 PM

That's a great point, foreveryoung, I had read that somewhere as well. I haven't noticed any problems with coffee myself, other than I find it way too bitter to drink black. I drink it every winter and stop during the hot season and I don't notice any differences so whatever my exact issues are with wheat and milk, coffee doesn't seem to trigger.

1edb06ded9ccf098a4517ca4a7a34ebc

(14952)

on April 03, 2013
at 10:19 PM

The protein in coffee is the most common cross-reactor to gluten. that's the relevance.

3720f5eb63757f8cdbf393ac7530c1c3

(259)

on April 03, 2013
at 10:07 PM

I don't understand the relevance foreveryoung? Coffee doesn't have gluten in does it?! I don't drink it anyway and gluten gives me joint pain so of course I avoid it but I'm just a bit confused now...

782d92f4127823bdfb2ddfcbcf961d0e

(5231)

on April 03, 2013
at 09:59 PM

I figured out that if I were still eating wheat I would also be taking a tryptan for the migraines, steroid cream for the rash, NSAID for the joint pain, PPI for the NSAID induced ulcer, bisphosphonate for the osteoporosis, and SSRI's for the depression.

782d92f4127823bdfb2ddfcbcf961d0e

(5231)

on April 03, 2013
at 09:54 PM

I was only getting one to maybe two migraines a month but I always thought that it was hormonal until I went gluten free. I am amazed at the number of symptoms that gluten intolerance can induce, yet medical practitioners don't know or don't recommend trying to cut out wheat when patients complain of these symptoms. Lifestyle changes seem better (and cheaper) than multiple rxs.

96bf58d8c6bd492dc5b8ae46203fe247

(37227)

on April 03, 2013
at 09:14 PM

We had symptoms in common! I've gone from 2-5 days of migraine per week to that many per year (and I think they were after my relapses of eating wheat.) Joint pain, GERD, mild balance issues and brain fog. Puffy gums, etc. Do you know? My hair was more white when I first went paleo, but nowadays it's more of a steel gray.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on April 03, 2013
at 08:53 PM

I bet it is SIBO. Bacteria thrives on carbs and lactose. Although I don't react to cheese. Not sure why.

96bf58d8c6bd492dc5b8ae46203fe247

(37227)

on April 03, 2013
at 08:49 PM

Hi, VB. I'm not even certain it's the gluten--or what form of it--I react to. All I know is that anything containing wheat or milk causes symptoms and nothing else does. I'm fine with cream, fortunately.

96bf58d8c6bd492dc5b8ae46203fe247

(37227)

on April 03, 2013
at 08:47 PM

foreveryoung, well I only guzzle 1 or 2 mugs of coffee and I have no symptoms (or withdrawal if I skip.) Last week I ate a couple bites of breaded fried chicken and I woke up with a deep "chest" voice and brain fog. I didn't feel good until afternoon. If that's confirmation bias, then I'm guilty I guess.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on April 03, 2013
at 07:37 PM

I was so excited about my intellectual ability, I forgot to thank you for the link :)

F5a0ddffcf9ef5beca864050f090a790

(15515)

on April 03, 2013
at 07:32 PM

SEE!!!!!!!!!!!!!!!!! I ALWAYS KNEW IT!!!!!!!!!!!!!!! I AM A GENIUS!!!!!!!!!!!!!!!!!!! (unrecognized,as always). Tired to say, "I told you so!"

A2c38be4c54c91a15071f82f14cac0b3

(12682)

on April 03, 2013
at 07:27 PM

Hey VB, you might find this interesting; the mayo clinic is studying how gut bacteria affects gluten sensitivity, among other conditions-> http://mayoresearch.mayo.edu/center-for-individualized-medicine/microbiome-program.asp

1edb06ded9ccf098a4517ca4a7a34ebc

(14952)

on April 03, 2013
at 07:17 PM

0 No but I love how so many people say wheat is evil because gluten is evil (even if they're not gluten intolerant), but guzzle cups of coffee like it's no body's business. This is what we call confirmation bias.

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8 Answers

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3
9a5e2da94ad63ea3186dfa494e16a8d1

on April 04, 2013
at 03:02 AM

I was the same as you, I went gluten-free hoping to lose a few pounds and lost about 10 minor health conditions that I didn't know I had. My sleep, mood, and energy improved, muscle and joint soreness disappeared, skin conditions disappeared, I now have increased tolerance for caffeine and spicy foods, and the list goes on. These are all things that were relatively minor (though the joint pain was getting worrisome) and had been building for years and I figured were just part of getting older. In a way going Paleo wound back the clock by 10+ years for me. Honestly this was really a surprise because I thought the whole gluten thing was mostly hype.

Now I think that a lot of people have issues like this that they just live with or think are normal but could probably get rid of by dropping gluten or perhaps otherwise changing their diet. People say that they just "have to have" their pasta, bagels, pizza, Eggos, cookies, whatever, but then they also have stubborn weight they can't lose, skin or hair conditions, chronic inflammation, etc. The problems are minor enough that they don't want to make what they perceive to be a radical change to eliminate them so they don't. But it could be so easy. It is really not a big deal to stop eating pasta, I mean really, it isn't.

I think all of the gluten-free junk foods are just stupid. Here on Paleohacks recently have been requests for recipes for "Paleo" nachos, scones, pizza, etc. These people are completely and thoroughly missing the point. This is like going vegetarian and looking for a recipe for vegetarian steak. Or going carnivore and looking for a recipe for all-meat asparagus. It's just stupid. I don't get it.

Abf0b6d5e20906f742fd600887292c15

(192)

on April 04, 2013
at 12:47 PM

Maybe not all people want to spend so much time cooking but want convenient fast foods

4
89fa2da4805b0b4e54b77a5a20a2e206

on April 03, 2013
at 09:13 PM

i dont have any gluten sensitivities or intolerances that are discernible to me (other than it seems to make me retain water?) I gave up wheat because i find it makes me gain weight-like eating a sandwich or having some spaghetti next day im 2-3 lbs heavier than i was. This was even the case when i went vegan-eliminating animal proteins and eating things like small amounts of pot barely, quinoa, beans, whole wheat pastas and alot veggies i easily put on 5 lbs in a short period of time.

Dairy im also fine with. Some weeks i buy yogurt to go with berries..other weeks i dont. I have small amounts of cheese on occasion. I use almond milk for my shakes as raw milk isnt available here.

i try to stay away from "gluten free products".. just another tag-line$$$ for companies to make-money. Plus its never as good as the real thing its trying to replicate- and makes me crave the real thing more.

2
782d92f4127823bdfb2ddfcbcf961d0e

on April 03, 2013
at 09:11 PM

A few years ago I was having problems with pain in my hip. The chiropractor I was seeing was not helping much in reducing the pain. My PT mentioned something about cutting out gluten in my diet so I did. After a few days (I think it was only a few) my pain disappeared which I thought was odd but wasn't quite sure it was due to the removal of wheat products. Then I noticed that I was no longer getting migraines, the rash on my chest and belly resolved, and a few other symptoms also improved. Like you, Nance, I thought that was pretty amazing!

These days, when I accidently get glutened I get a migraine but I live in home where others do eat wheat and I wonder if I'm getting a low level cross contamination.

Last year I had a LEAP test done and it indicated that I had a sensitivity to whey, cow's milk, cottage cheese, and american cheese but not goat's milk. I already knew that I was lactose intolerant but that I could improve it by eating more milk products. Now, I just stick to goat's cheese and sheep's milk yogurt, and I don't appear to be having any problems.

I've eaten gluten-free products but not really very often. I find them "meh" at best and they are often high in sugar which leaves me feeling bloated. Most of my diet is unprocessed or minimally processed foods.

96bf58d8c6bd492dc5b8ae46203fe247

(37227)

on April 04, 2013
at 01:58 AM

You're exactly right. At one point I was taking 5 prescriptions for various symptoms. When I went off them all AMA, the doctors were upset but I've been much healthier without them, even on SAD. I'm so healthy on paleo that people actually give me puzzled looks because I move like a younger person.

96bf58d8c6bd492dc5b8ae46203fe247

(37227)

on April 03, 2013
at 09:14 PM

We had symptoms in common! I've gone from 2-5 days of migraine per week to that many per year (and I think they were after my relapses of eating wheat.) Joint pain, GERD, mild balance issues and brain fog. Puffy gums, etc. Do you know? My hair was more white when I first went paleo, but nowadays it's more of a steel gray.

782d92f4127823bdfb2ddfcbcf961d0e

(5231)

on April 03, 2013
at 09:59 PM

I figured out that if I were still eating wheat I would also be taking a tryptan for the migraines, steroid cream for the rash, NSAID for the joint pain, PPI for the NSAID induced ulcer, bisphosphonate for the osteoporosis, and SSRI's for the depression.

782d92f4127823bdfb2ddfcbcf961d0e

(5231)

on April 03, 2013
at 09:54 PM

I was only getting one to maybe two migraines a month but I always thought that it was hormonal until I went gluten free. I am amazed at the number of symptoms that gluten intolerance can induce, yet medical practitioners don't know or don't recommend trying to cut out wheat when patients complain of these symptoms. Lifestyle changes seem better (and cheaper) than multiple rxs.

2
8f87879387f2a357db7c33008ff9a04a

on April 03, 2013
at 07:38 PM

I've been primal for 10 months. When I did a blood test last month for Hashimoto's I had to power down a bunch of gluten. (sick!) I never realized that I was sensitive. All the time I ate it (in the past) I never felt anything symptom wise. And going paleo really didn't seem to make me feel any different. The test came back positive for the Hashitmo's. I have to be hard core about gluten now. Before the test I ate soy sauce on occasion...feeling like it wasn't that big of a deal. Maybe thats why I never felt any different. Now I'm banishing all wheat from my house. I won't tolerate any cross contamination. My family can eat wheat elsewhere if they choose.

1
Ce41c230e8c2a4295db31aec3ef4b2ab

(32556)

on April 04, 2013
at 02:54 AM

Before I went Primal 3 years ago, I ate a WAP-style diet, basically Paleo, plus dairy, grains & (very few) legumes.

When I went (mostly) Primal, I cut out the sourdough bread I was eating regularly and went completely gluten-free. Even though I kept eating a few legumes and dairy, my IBS symptoms completely disappeared in 2 weeks. About a month later, my chronic eczema went away. Oh, yeah--no more joint pain either!

About 6 months later, I decided to "test" my system, so I ate a pasta dinner with bread. No other allergens, etc. Gas, bloating & diarrhea ensued.

Yup. I am gluten-intolerant.

I've known for a long time that I was lactose-intolerant, and no change there after going glutne-free. I am fine with heavy cream, butter and hard cheese.

I occasionally have eaten gluten-free products, but some of them make me bloat (FODMAPS) or contain canola oil, so not something I am wanting to make a regular part of my diet.

1
61f9349ad28e3c42d1cec58ba4825a7d

(10480)

on April 03, 2013
at 11:21 PM

I don't think I'm naturally gluten intolerant. I took some prescription medications awhile back that seemed to cause it. I don't know what the mechanism was (gut flora? who knows?) but after that, wheat was a no go for a while. I only discovered that wheat was the problem after getting super sick (lost a lot of weight quickly, was cold and trembling all the time, lost my period, the mail did not move properly, and I was nauseated 24/7 and could barely eat).

I have eaten gluten stuff very infrequently and in pretty small doses for about a year. I can eat gluten containing products once in a while with no or very little ill effects, but if I eat, say, a sandwich every day for a week, my tummy gets upset (lots of nausea, some diarrhea that stings a lot, sorry TMI guyz). I bet with more time, it would go away completely.

I have no lactose problems at all and no problem with coffee. I have tried a few gluten-free products but don't really find them worth the price and don't intend to try any more of them (unless someone made them homemade for me, then I would try it). I didn't really like baking even before I went Primal, so I haven't tried making any of that faux flour stuff myself. I use a little white rice flour for thickening some soups. That's about the extent of it for me.

1
F5a0ddffcf9ef5beca864050f090a790

(15515)

on April 03, 2013
at 07:24 PM

You know, I am wondering about that whole lactose and gluten sensitivity issue.

Could it be just SIBO, gut dysbiosis / dysfunction of some kind?

Gluten IS evil because most grains are evil. Just as processed foods.

However, gluten sensitivity IS caused by something, because some people have it and some people don't.

Have you ever been tested for methane/hydrogen producing bacteria?

F5a0ddffcf9ef5beca864050f090a790

(15515)

on April 03, 2013
at 08:53 PM

I bet it is SIBO. Bacteria thrives on carbs and lactose. Although I don't react to cheese. Not sure why.

A2c38be4c54c91a15071f82f14cac0b3

(12682)

on April 03, 2013
at 07:27 PM

Hey VB, you might find this interesting; the mayo clinic is studying how gut bacteria affects gluten sensitivity, among other conditions-> http://mayoresearch.mayo.edu/center-for-individualized-medicine/microbiome-program.asp

F5a0ddffcf9ef5beca864050f090a790

(15515)

on April 03, 2013
at 07:37 PM

I was so excited about my intellectual ability, I forgot to thank you for the link :)

96bf58d8c6bd492dc5b8ae46203fe247

(37227)

on April 03, 2013
at 08:49 PM

Hi, VB. I'm not even certain it's the gluten--or what form of it--I react to. All I know is that anything containing wheat or milk causes symptoms and nothing else does. I'm fine with cream, fortunately.

F5a0ddffcf9ef5beca864050f090a790

(15515)

on April 03, 2013
at 07:32 PM

SEE!!!!!!!!!!!!!!!!! I ALWAYS KNEW IT!!!!!!!!!!!!!!! I AM A GENIUS!!!!!!!!!!!!!!!!!!! (unrecognized,as always). Tired to say, "I told you so!"

0
1edb06ded9ccf098a4517ca4a7a34ebc

on April 03, 2013
at 07:16 PM

No but I love how so many people say wheat is evil because gluten is evil (even if they're not gluten intolerant), but guzzle cups of coffee like it's no body's business. This is what we call confirmation bias.

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