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Paleo and Gilbert's Syndrome

Answered on August 19, 2014
Created March 19, 2010 at 6:51 PM

It's a long shot, but does anyone here suffer from Gilbert's Syndrome and if so, has going paleo made any noticeable difference to your energy levels and/or bilirubin count? How do you fare on a high fat diet and do you take liver cleansers regularly?

GS is a benign condition which affects the liver causing elevated levels of bilirubin in the blood and an increased risk of jaundice.

66813ef89b79904feafbd1db85926012

(0)

on May 16, 2012
at 06:35 AM

elevated bilirubin my entire life plus entire family has this. have had 4 jaundice episodes in my life as well (I'm only 27). Ive actually fixed all these problems now with some supplementation and cutting out a few high oxalate foods.

3c6b4eed18dc57f746755b698426e7c8

(5147)

on April 18, 2012
at 06:38 AM

May I ask how you were dxed with GS? Was it just an observation by your doc based on elevated Bilirubin measured direct? Or was there a specific test or procedure?

33b6c516904a967ef8ecb30f1dbd8cf2

(7073)

on March 20, 2010
at 03:53 PM

Yup, no one seems to know much about it, that's true. Scientists say it is hereditary, yes, but I think the SAD diet plays a huge role in GS in people whose livers are either damaged or susceptible (this is my own personal opinion - I have no evidence supporting this claim). I get fatigued very easily and have problems if I fast for extended periods of time, but otherwise, a high fat diet, even though it is frowned upon by people who have GS, has done wonders to my condition....thanks Dexter...

33b6c516904a967ef8ecb30f1dbd8cf2

(7073)

on March 20, 2010
at 03:44 PM

Oh thanks for the link, I was diagnosed as GS and gluten intolerance at the same time, about 7 years back, that is when I discovered the paleo diet, and realised that grains are a killer for my gut - I searched and searched back then for some proof of a connection between the two on the net, but came up with nothing....since then I just accepted that grains are not good and aggravate the GS (bilirubin count) and gluten intolerance......this is one of the links to celiac.com: http://www.celiac.com/gluten-free/topic/56269-high-bilirubin-gilberts-syndrome-linked-to-celiac-and-other-questions/

33b6c516904a967ef8ecb30f1dbd8cf2

(7073)

on March 20, 2010
at 03:36 PM

People with GS have problems digesting fat (!) and are advised to take something like Milk Thistle regularly to cleanse the liver. That is why I am interested to hear of other people who eat a high fat diet and if they continue to use herbs such as Milk Thistle.

93f44e8673d3ea2294cce085ebc96e13

(10502)

on March 19, 2010
at 11:35 PM

What is a "liver-cleanser"?

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11 Answers

7
06d21b99c58283ce575e36c4ecd4a458

(9948)

on March 19, 2010
at 10:53 PM

Here is one person's story regarding diet and GS. http://constantstateofflux.com/2007/03/14/gilberts-syndrome/ Be sure to click top right of this page for dietary changes. Edit: I should have seen that the author of this blog is our own Louisa on this blog....who asked the question. HA! I suspect she will be around soon checking in from the French Alps. Louisa, you didn't tell us of your extensive investigation of GS or your site. Your info is the best.

And Robb Wolfe at this URL http://robbwolf.com/2008/08/13/celiac-and-elevated-liver-enzymes/ has a commenter, Gonzalo Candia, who talks about his symptoms of GS. (in the green comments section, scroll down)

Don Matesz at http://donmatesz.blogspot.com/2009/05/top-ten-problems-with-applying_27.html also has a commenter about GS.

And here is a CrossFit site that mentions GS http://www.cathletics.com/forum/showthread.php?t=1871

Nobody seems to know much about GS and it is up to you to use yourself as a n=1 experiment.

Paleo is such an invigorating lifestyle that one cannot think it would be detrimental to your overall health and perhaps you can manage your GS somewhat better.

Good luck and keep PaleoHacks posted on your progress.

33b6c516904a967ef8ecb30f1dbd8cf2

(7073)

on March 20, 2010
at 03:53 PM

Yup, no one seems to know much about it, that's true. Scientists say it is hereditary, yes, but I think the SAD diet plays a huge role in GS in people whose livers are either damaged or susceptible (this is my own personal opinion - I have no evidence supporting this claim). I get fatigued very easily and have problems if I fast for extended periods of time, but otherwise, a high fat diet, even though it is frowned upon by people who have GS, has done wonders to my condition....thanks Dexter...

2
8a54f10b99e68c0a68eaf6cc54497a32

(20)

on March 09, 2011
at 10:08 PM

Yes, I was diagnosed with Gilbert's when the doctors were doing many blood panels to figure out why I was in so much stomach pain. Since going gluten free my levels have been normal!

2
13c5a9f1678d75b93f269cdcf69f14d5

(2339)

on March 20, 2010
at 01:59 AM

Celiac.com has a thread on Gilberts. The Paleo diet is a good choice for celiacs with the additonal retriction of being completely gluten free, not just grain free.

33b6c516904a967ef8ecb30f1dbd8cf2

(7073)

on March 20, 2010
at 03:44 PM

Oh thanks for the link, I was diagnosed as GS and gluten intolerance at the same time, about 7 years back, that is when I discovered the paleo diet, and realised that grains are a killer for my gut - I searched and searched back then for some proof of a connection between the two on the net, but came up with nothing....since then I just accepted that grains are not good and aggravate the GS (bilirubin count) and gluten intolerance......this is one of the links to celiac.com: http://www.celiac.com/gluten-free/topic/56269-high-bilirubin-gilberts-syndrome-linked-to-celiac-and-other-questions/

1
64433a05384cd9717c1aa6bf7e98b661

(15236)

on February 06, 2012
at 04:46 AM

I have it, it's been a non-issue on a paleo diet for the past few years

0
1b19a71d16524279062d7a0ca69fd1e5

on January 05, 2014
at 04:18 AM

Thank you for your answer TheGastronomer. I might have another liver issue on top of GS. I guess I should get a liver panel done. Thanks again!

0
Be157308a0438e382b88d9db4c12ab30

on January 04, 2014
at 01:24 PM

I have had GS since I was 16, diagnosed by my gastroenterologist after a bunch of tests that only showed indirect bilirubin elevated. I'm 24 now and I have been Paleo for about a year. The eyes are still slightly yellow and my bilirubin is the same. We can't be cured, this is genetic. I am very skeptical of those who say Paleo cured them, that's bs, they probably had some other liver pathology that went undiagnosed or they are being flat out dishonest. However, it has not made GS worse in any way so nothing to fear there. I've been on a high fat low carb diet and so far is been going great, bloodwork all looks great, my HDL (good cholesterol) went up and my triglycerides decreased. Ldl stayed about the same. I have zero issues at all digesting large amounts of fat, actually my gut feels much better these days. Good luck.

0
1b19a71d16524279062d7a0ca69fd1e5

on January 03, 2014
at 10:33 PM

I have bee doing GAPS diet (first stages) for two years, it's quite similar to Paleo, and I get Jaundice everytime I try to introduce more fats. Too bad because I love fats :(

0
3c6b4eed18dc57f746755b698426e7c8

on April 17, 2012
at 09:39 PM

GS is not officially classified as a disease. There is no consensus that some of its symptoms are actually due to the condition. I believe I have GS but have never really experienced those symptoms consistently. Again, provide a linke which shows that GS is an actually diseased state with diagnosable symptoms. Many acutally believe GS is inversely associated with CVD risk.

0
66813ef89b79904feafbd1db85926012

on April 17, 2012
at 04:37 PM

I've been on the Paleo diet for a few months now. At first my GS symptoms completely went away. However, now I'm having bruising issues, night sweats, insomnia and fatigue... again. Wish I had a liver panel done when I was feeling well to compare it to the issues I now have.

3c6b4eed18dc57f746755b698426e7c8

(5147)

on April 18, 2012
at 06:38 AM

May I ask how you were dxed with GS? Was it just an observation by your doc based on elevated Bilirubin measured direct? Or was there a specific test or procedure?

66813ef89b79904feafbd1db85926012

(0)

on May 16, 2012
at 06:35 AM

elevated bilirubin my entire life plus entire family has this. have had 4 jaundice episodes in my life as well (I'm only 27). Ive actually fixed all these problems now with some supplementation and cutting out a few high oxalate foods.

0
8c75fd947f7cece22c0770fa80549cbe

(222)

on March 06, 2012
at 03:12 AM

I have GS and have never noticed or knew about any symptoms aside from slight jaundice. Paleo hasn't seemed to affect my GS in any way that I can tell--although I do suspect some difficulty digesting fats. Perhaps I'll try milk thistle and report back.

0
39ef34d974d9a06a30fb234ea86f52c5

on March 06, 2012
at 02:58 AM

I was diagnosed with GS last July and changed to a Paleo diet. I've never felt better in my life (and bilirubin was normal on last two sets of blood work-yay!). I started a page on Facebook, Life with Gilbert's Syndrome, as well as a new blog, http://lifewithgs.blogspot.com. There are a lot of people in the group, and we all share tips, receipts, etc., to make life with GS easier :)

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