2

votes

Success with Fibromyalgia and Chronic Fatigue Syndrome?

Answered on August 19, 2014
Created April 18, 2011 at 2:13 PM

FM came up occasionally in some threads and I was wondering what are people's experiences.

My FM wasn't very severe, my main issue was constant fatigue, lack of energy, non restful sleep, waves of unspecified muscle pains (similar to very strong soreness after overtraining), oversensitivity to touch/pain. I also had bad joint pains (esp. knees) which made exercising hell. I've tried multiple medicine, nothing helped.

After switching to Paleo I was surprised how my fatigue disappeared, I suddenly had energy after work (so I could cook, earlier on I had only energy to nuke something in the microwave) and wanted to do "stuff" instead of just vegging in front of the computer.

Other result was, that the random "all over pains" just ceased to appear. I started to exercise again, and my knees didn't hurt at all! I am much stronger, can do push ups and simple strength training.

I still am sensitive to touch/pain and have trigger points (no neck rub for me!).

Is my reaction typical? Are there other people who got healed from most (or all) FM symptoms? What about chronic fatigue? What was your doctor's reaction? Mine was shocked when I told him what I eat :) I will soon go again for a check up to again confirm my diet is the medicine.

A4035454eae8f034faf4eace22c13573

(120)

on November 07, 2012
at 05:18 PM

Paleo has helped my fibro so much. Also I recommend the Rumble Roller and getting heaps of sun.

3efe3950bcf7d8ccc9bdca20e5f453f3

(10)

on April 23, 2011
at 03:46 AM

Thank you so much! Maybe the exercising is the problem. It's something I tend to overdo because I like it. lol. Is D3 ribose? I've been following Teitelbaum's protocol for about 3 years now. It has helped some, and I notice a big difference in pain when I miss my supplements, especially the ribose. Looks like it might just be a game of patience and laying of the exercise a bit more. Thanks guys :).

Cc2a43461ec5b2b7ba5d55215ea0f068

(236)

on April 19, 2011
at 12:41 PM

Thanks, Dr. K. Some of us search for a long time trying to find these answers and the medical people just want to prescribe drugs.

A68f24168bc0de414a038037e287b581

(4896)

on April 19, 2011
at 02:24 AM

The changes were so slowly, that I can't even pin point the moment when my fatigue disappeared, when I started to have more energy. it just slowly sipped in, like through IV :) Make sure you sleep a lot, as we, FM-people, have generally problems with it. Be good to yourself, rest a lot, there are no miracles, but the curing does happen! I've heard from more people that they were successful, so I am sure you will be as well :)

A68f24168bc0de414a038037e287b581

(4896)

on April 19, 2011
at 02:21 AM

I didn't start the exercising part right away, but waited till I was strong enough to do it. Maybe it's too much for your body at the moment? Try to do only walking for example, for another month or so and see if it's enough. I would also suggest supplementing with D3. The fatigue didn't disappear right away. I think it's also depends on severity of your FM. Take it easy, enjoy the positive changes, and let the body heal. I've been on paleo for just over a year, and it's still not perfect, but I have my life back.

21fd060d0796fdb8a4a990441e08eae7

(24543)

on April 19, 2011
at 01:58 AM

(d-ribose has greater effects on energy than it does on pain, which appears to be what you need?)

21fd060d0796fdb8a4a990441e08eae7

(24543)

on April 19, 2011
at 01:57 AM

Have you tried D-Ribose, as per Dr. Teitlebaum? http://www.endfatigue.com/web-newsletters/Newsletter_3_questions_d-ribose.html

Ed71ab1c75c6a9bd217a599db0a3e117

(25472)

on April 18, 2011
at 07:49 PM

d3 is big but I always use it on conjunction with vit K2 supplementation and frequent rechecks of the D levels.

D83e454e794d761ab524814c0ff8f838

(531)

on April 18, 2011
at 03:51 PM

It's been a while since I've had them touched in that specific FM pattern, but I would say within one year of being GF, they were gone. I think lots of coconut fat really helped me too.

A68f24168bc0de414a038037e287b581

(4896)

on April 18, 2011
at 03:20 PM

This is great! Do you still have trigger points?

D83e454e794d761ab524814c0ff8f838

(531)

on April 18, 2011
at 03:18 PM

Both disappeared within 3 months of eliminating gluten for me a few years ago.

A68f24168bc0de414a038037e287b581

(4896)

on April 18, 2011
at 03:05 PM

I also supplement with D3 now, but not as intensively like your son. And i"ve been supplementing only for a couple months or so, so it's probably other things as well. But I was D3 deficient earlier on.

A68f24168bc0de414a038037e287b581

(4896)

on April 18, 2011
at 03:04 PM

Thank you, I will check him out!

06d21b99c58283ce575e36c4ecd4a458

(9948)

on April 18, 2011
at 02:53 PM

My 33 year old son had FM pretty bad. Started on 10000IU/day Vit D3 and in less than a month, FM gone. Not on paleo yet.

06d21b99c58283ce575e36c4ecd4a458

(9948)

on April 18, 2011
at 02:49 PM

My 33 year old son had FM pretty bad. Started on 10000IU/day Vit D3 and in less than a month, FM gone.

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3 Answers

3
46ee2f7d91719ecfe691a0c2a6da7034

(148)

on April 18, 2011
at 02:38 PM

I suggest you read one of Dr. John Sarno's books: 'The Mindbody Prescription', 'The Divided Mind: The Epidemic of Mindbody Disorders',or 'Healing Back Pain - the mind-body connection'. He mentions Fybromyalgia and chronic fatigue as what he describes as TMS = Tension Myoneural Syndrome. It is worth exploring to see if it fits for you.

The books are probably in your local library or available on Amazon - new or used. There are some YouTube video interviews with him online.

A68f24168bc0de414a038037e287b581

(4896)

on April 18, 2011
at 03:04 PM

Thank you, I will check him out!

1
3efe3950bcf7d8ccc9bdca20e5f453f3

on April 19, 2011
at 01:38 AM

Ok... I am so glad to hear you are having success!!!

I have FM and (re) started Paleo again about two months ago. For the most part, my brain-fog is gone, I've been able to exercise fairly well, though I have to rest a lot more than I'd like, despite the fact that I'm trying not to over-do it. But I am tired. Very, very fatigued. I'm not in as much pain, and I don't have as much of that fluey feeling, but I am just so freaking tired. The fatigue is the same reason I have fallen off the wagon before. I keep hoping it will eventually go away, that it's just part of the healing process. But I've also noticed my moods are a little lower... Sometimes I get that way when I cycle with the fibro, and I can't get as much done. It just seems like I should be doing better.

Am I missing something?

A68f24168bc0de414a038037e287b581

(4896)

on April 19, 2011
at 02:21 AM

I didn't start the exercising part right away, but waited till I was strong enough to do it. Maybe it's too much for your body at the moment? Try to do only walking for example, for another month or so and see if it's enough. I would also suggest supplementing with D3. The fatigue didn't disappear right away. I think it's also depends on severity of your FM. Take it easy, enjoy the positive changes, and let the body heal. I've been on paleo for just over a year, and it's still not perfect, but I have my life back.

21fd060d0796fdb8a4a990441e08eae7

(24543)

on April 19, 2011
at 01:58 AM

(d-ribose has greater effects on energy than it does on pain, which appears to be what you need?)

21fd060d0796fdb8a4a990441e08eae7

(24543)

on April 19, 2011
at 01:57 AM

Have you tried D-Ribose, as per Dr. Teitlebaum? http://www.endfatigue.com/web-newsletters/Newsletter_3_questions_d-ribose.html

A68f24168bc0de414a038037e287b581

(4896)

on April 19, 2011
at 02:24 AM

The changes were so slowly, that I can't even pin point the moment when my fatigue disappeared, when I started to have more energy. it just slowly sipped in, like through IV :) Make sure you sleep a lot, as we, FM-people, have generally problems with it. Be good to yourself, rest a lot, there are no miracles, but the curing does happen! I've heard from more people that they were successful, so I am sure you will be as well :)

3efe3950bcf7d8ccc9bdca20e5f453f3

(10)

on April 23, 2011
at 03:46 AM

Thank you so much! Maybe the exercising is the problem. It's something I tend to overdo because I like it. lol. Is D3 ribose? I've been following Teitelbaum's protocol for about 3 years now. It has helped some, and I notice a big difference in pain when I miss my supplements, especially the ribose. Looks like it might just be a game of patience and laying of the exercise a bit more. Thanks guys :).

1
Ed71ab1c75c6a9bd217a599db0a3e117

(25472)

on April 18, 2011
at 02:22 PM

This is a staple of my practice but it very hard for patients to overcome because there are too few docs who understand how to treat it and patients are overwhelmed with the changes they need to make. Paleo style dieting strict guidelines is one. Managing leptin however is of supreme importance then reversing their fatty liver occurs. Requires a lot of supplements and about 18-24 months of intense treatment but very rewarding for the patient and doc.

Ed71ab1c75c6a9bd217a599db0a3e117

(25472)

on April 18, 2011
at 07:49 PM

d3 is big but I always use it on conjunction with vit K2 supplementation and frequent rechecks of the D levels.

06d21b99c58283ce575e36c4ecd4a458

(9948)

on April 18, 2011
at 02:49 PM

My 33 year old son had FM pretty bad. Started on 10000IU/day Vit D3 and in less than a month, FM gone.

06d21b99c58283ce575e36c4ecd4a458

(9948)

on April 18, 2011
at 02:53 PM

My 33 year old son had FM pretty bad. Started on 10000IU/day Vit D3 and in less than a month, FM gone. Not on paleo yet.

Cc2a43461ec5b2b7ba5d55215ea0f068

(236)

on April 19, 2011
at 12:41 PM

Thanks, Dr. K. Some of us search for a long time trying to find these answers and the medical people just want to prescribe drugs.

A68f24168bc0de414a038037e287b581

(4896)

on April 18, 2011
at 03:05 PM

I also supplement with D3 now, but not as intensively like your son. And i"ve been supplementing only for a couple months or so, so it's probably other things as well. But I was D3 deficient earlier on.

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