2

votes

Gastrointestinal Issues. Unknown cause?

Answered on August 19, 2014
Created June 13, 2012 at 1:23 PM

Hi guys,

For the last 7 months or so I have been experiencing gastrointestinal problems (heavy bloating, constipation, fatigue, etc) which have gotten increasingly worse over the last few months. It started sometime after I took too many NSAIDs and got an ulcer, before that I was paleo and very healthy.

Test for H pylori came back negative, I have all the signs of low acidity without GERD.

I have tried gaps, very low carb, various supplements. Taking betaine HCL helps a bit. Sauerkraut makes me very gassy and bloated, yet to get my hands on any other fermented foods. I have tried increasing my stomach acid by taking lots of the minerals required for acid function with minimal effectiveness.

Over the last week I've been taking about 8 tbsps of coconut oil a day and eating basically just eggs. I have experienced a great amount of fatigue, dizziness and sickness so I assume that the coconut oil is killing off something.

The h pylori fit all my symptoms and since the test came back negative I am back to square one, any insights would be much appreciated.

Edit:

I am starting to think I had damaged my stomach/small intestines/possibly liver because no matter what I consume (water, only fats or proteins or carbs, gaps, avoiding fodmaps, etc) I have abdominal distention/bloating afterwards.

Is this possible? Could I have damaged one of my organs from taking too many NSAIDs / getting an ulcer?

Any insights would be greatly appreciated.

3e762aadbc84870b6ec7277fe32c7b84

(95)

on October 09, 2012
at 04:51 PM

The first weeks of GAPS intro diet stage 1 was the most uncomfortable for me: constipation, die-off symptoms, bloating, aches, abdominal discomfort, bad breath, foggy brain, fatigue, nightmares, etc. Then it got better one and a half weeks later, first time I didn't have bloating in months/years, until I started adding more foods on stage 3. Desperate, I hope you are feeling better by now. All that coconut oil could definitely trigger lots of die-off/Herxheimer symptoms.

0104d134c517031678cb90bb2919b5d3

(117)

on June 17, 2012
at 01:09 PM

Update: Seen the local GP who was rather useless and suggested I need to eat more WTF. Also that I should have a test for celiac's even though I had told him I cut out all gluten 3+months ago.

0104d134c517031678cb90bb2919b5d3

(117)

on June 14, 2012
at 09:09 AM

Yea hopefully I will get referred to a gastrointestinal specialists Crowlover. So far the GPs knowledge of the subject has been very disappointing.

B1076248dde479773e75044818e1878c

(458)

on June 14, 2012
at 02:54 AM

Link messed up, here's the supplement again: http://www.iherb.com/Thorne-Research-GI-Encap-60-Veggie-Caps/18504

B1076248dde479773e75044818e1878c

(458)

on June 14, 2012
at 02:53 AM

I'm doing SIBO for chronic digestive problems as well as for a possible link to rheumatoid arthritis of the spine (spondylitis). It's really good that you're not ignoring these problems. I noticed a dysfunctional gut at the age of 30, and by 35, I developed arthritis...gut disorders lead to worse. As you're running tests, here's a supplement that I frequently use to calm nausea and burning: http://www.iherb.com/product-reviews/Thorne-Research-GI-Encap-60 It's not meant for long-term, but it can get me out of a jam by coating my stomach lining. It'd be good for ulcers too.

4ef079c57d2140bba4dbf4e30240a645

(4413)

on June 13, 2012
at 11:23 PM

I hope your GP is good... an ND or functional medicine MD is typically much better at this kind of problem. All the best.

4ef079c57d2140bba4dbf4e30240a645

(4413)

on June 13, 2012
at 11:22 PM

I might not be explaining it clearly - they can actually analyize and see what is present and what is present that should not be there and what is missing (level of healthy bacteria) what they don't do is analyze it further when the only thing that your MD ordered was H.Pyl. If a doc orders one test, that is all they look for period. A person might have something else horrible like C-difficile, but if all the doc ordered is one test, that is all they will assess.For issues like this I personally don't waste time, I just pay out of pocket. I understand that this is not possible for everyone.

0104d134c517031678cb90bb2919b5d3

(117)

on June 13, 2012
at 09:32 PM

Spent weeks on and off but never really fit the classic gaps symptoms nor did I experience the relief from my symptoms (bloating, constipation, fatigue) after 3days of bone broth, etc. It seemed I just got more mineral deficient and felt worse (developed bags under eyes). It could be that I have not spent enough time on gaps but I have a hunch something else is at play. Yea the coconut oil is getting really difficult to stomach, just looking at it makes me want to throw up, but my skin and hair as improved and I think my eczema has slightly since taking it. Seeing GP (again) tommorow ben.

0104d134c517031678cb90bb2919b5d3

(117)

on June 13, 2012
at 09:09 PM

Cool, hopefully I can get more tests. Seems weird how they can't just look at your stool and tell you if anything is wrong.

0104d134c517031678cb90bb2919b5d3

(117)

on June 13, 2012
at 09:07 PM

At the moment I am operating under the assumption that it could be bacteria and fungus and figure if not the diet shouldn't really do me harm as long as I am consuming enough nutrients. Didn't know it starves off the good bacteria but I guess it makes sense. Cheers for the link.

0104d134c517031678cb90bb2919b5d3

(117)

on June 13, 2012
at 09:03 PM

On and off for weeks at a time. The problem was I would spend 3 days+ on just bone broth and not get any improvement from constipation, bloating, etc. This lead me to believe gaps would not solve my problem.

C4f1a0c70c4e0dea507c2e346c036bbd

on June 13, 2012
at 08:28 PM

Does SIBO involve the Ilium, its the last part of the small intestine. That's where my Chrohns is.

4ef079c57d2140bba4dbf4e30240a645

(4413)

on June 13, 2012
at 04:18 PM

Re the breath test - it can test for SIBO and Fructose Malabsorption and other stuff. Im unclear if those can be ordered at the same time or two different tests. The website might say. I have personally not used this but I referred by niece to my ND and this is whay was used. I wish you well.

4ef079c57d2140bba4dbf4e30240a645

(4413)

on June 13, 2012
at 04:16 PM

Is likley that they only tested for H.pyl. especially if this was a standard MD appt.Still, its important to rule out so that's good. More comprehensive stool tests can also be ordered by your MD but the issue seems to be that he has to ask for each specific test rather than an actual analysis of what is in your stool that shouldn't be. Parasites, bateria, fungus etc. I use Genova Diagnostics www.gdx.net/

5ccb98f6ae42ce87e206cf3f6a86039f

(11581)

on June 13, 2012
at 03:44 PM

How long did you stay on gaps etc?

F92e4ca55291c3f3096a3d4d3d854986

(11698)

on June 13, 2012
at 03:40 PM

You might want to read this, re bacteria and carbs. http://chriskresser.com/myths-and-truths-about-fiber Also, I take acacia powder which is not expensive and which I find helps regulate my gut.

0104d134c517031678cb90bb2919b5d3

(117)

on June 13, 2012
at 03:34 PM

I had a stool test where they were testing specifically for h pylori, the test came back as normal. Do you think they would have also look for/seen other bacteria and notified me if they found some? Also would the hydrogen breath test directly diagnose sibo or just fructose malabsorption? Thanks Crowlover.

F92e4ca55291c3f3096a3d4d3d854986

(11698)

on June 13, 2012
at 03:31 PM

My view is that eating very low carb can starve off bad bacteria (if that is indeed the problem, but do you know that?) but also starves the good bacteria so you can be worse off in the long run. I think that's what happened to me. Maybe more testing is in order - like a stool sample to test your flora levels. However, yes, stool analysis and good probiotics are both pricey.

0104d134c517031678cb90bb2919b5d3

(117)

on June 13, 2012
at 03:02 PM

Not a lot of love for eggs so far, might have to cut them again. I have heard that powdered probiotics contain far less than the real food but it seems that one is of a better quality. I should also mention money is a bit of an issue since I have just finished being a student. Does white rice have good nutritional value and also would the carbs not feed any bacteria/candida?

0104d134c517031678cb90bb2919b5d3

(117)

on June 13, 2012
at 02:57 PM

Cool, last week I had seafood and butter all week but was still no better. What kind of test is for SIBO? Going to the local GP again tomorow so could mention it. The NSAIDs where for tonsilitus, me being stupid and all decided to take lots on an empty stomach...

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4 Answers

2
F92e4ca55291c3f3096a3d4d3d854986

(11698)

on June 13, 2012
at 02:24 PM

I can't diagnose the issue but I have had IBS for 15 years. I do find that probiotics a big help. Like you, I can't eat saukerkraut (FODMAPS are too gassy for me) but I take a powdered probiotic (Custom Probiotics, 11-strains of bacteria, you can order online) and I make homemade goat kefir.

Also - "just eggs" would ruin me. I find them too gassy. Meats, certain low-FODMAP, easy-to-digest fruit and veg and white rice are my friends.

F92e4ca55291c3f3096a3d4d3d854986

(11698)

on June 13, 2012
at 03:40 PM

You might want to read this, re bacteria and carbs. http://chriskresser.com/myths-and-truths-about-fiber Also, I take acacia powder which is not expensive and which I find helps regulate my gut.

0104d134c517031678cb90bb2919b5d3

(117)

on June 13, 2012
at 09:07 PM

At the moment I am operating under the assumption that it could be bacteria and fungus and figure if not the diet shouldn't really do me harm as long as I am consuming enough nutrients. Didn't know it starves off the good bacteria but I guess it makes sense. Cheers for the link.

0104d134c517031678cb90bb2919b5d3

(117)

on June 13, 2012
at 03:02 PM

Not a lot of love for eggs so far, might have to cut them again. I have heard that powdered probiotics contain far less than the real food but it seems that one is of a better quality. I should also mention money is a bit of an issue since I have just finished being a student. Does white rice have good nutritional value and also would the carbs not feed any bacteria/candida?

F92e4ca55291c3f3096a3d4d3d854986

(11698)

on June 13, 2012
at 03:31 PM

My view is that eating very low carb can starve off bad bacteria (if that is indeed the problem, but do you know that?) but also starves the good bacteria so you can be worse off in the long run. I think that's what happened to me. Maybe more testing is in order - like a stool sample to test your flora levels. However, yes, stool analysis and good probiotics are both pricey.

1
4ef079c57d2140bba4dbf4e30240a645

on June 13, 2012
at 03:13 PM

My clinician uses this test. He helped my niece with similar issues who was then diagnosed with SIBO http://www.metsol.com/fructose-malabsorption A comprehensive stool test would also be useful for finding out if you have bacteria, fungus, parasites etc.
Good luck.

0104d134c517031678cb90bb2919b5d3

(117)

on June 13, 2012
at 03:34 PM

I had a stool test where they were testing specifically for h pylori, the test came back as normal. Do you think they would have also look for/seen other bacteria and notified me if they found some? Also would the hydrogen breath test directly diagnose sibo or just fructose malabsorption? Thanks Crowlover.

4ef079c57d2140bba4dbf4e30240a645

(4413)

on June 13, 2012
at 11:22 PM

I might not be explaining it clearly - they can actually analyize and see what is present and what is present that should not be there and what is missing (level of healthy bacteria) what they don't do is analyze it further when the only thing that your MD ordered was H.Pyl. If a doc orders one test, that is all they look for period. A person might have something else horrible like C-difficile, but if all the doc ordered is one test, that is all they will assess.For issues like this I personally don't waste time, I just pay out of pocket. I understand that this is not possible for everyone.

0104d134c517031678cb90bb2919b5d3

(117)

on June 13, 2012
at 09:09 PM

Cool, hopefully I can get more tests. Seems weird how they can't just look at your stool and tell you if anything is wrong.

4ef079c57d2140bba4dbf4e30240a645

(4413)

on June 13, 2012
at 04:16 PM

Is likley that they only tested for H.pyl. especially if this was a standard MD appt.Still, its important to rule out so that's good. More comprehensive stool tests can also be ordered by your MD but the issue seems to be that he has to ask for each specific test rather than an actual analysis of what is in your stool that shouldn't be. Parasites, bateria, fungus etc. I use Genova Diagnostics www.gdx.net/

4ef079c57d2140bba4dbf4e30240a645

(4413)

on June 13, 2012
at 04:18 PM

Re the breath test - it can test for SIBO and Fructose Malabsorption and other stuff. Im unclear if those can be ordered at the same time or two different tests. The website might say. I have personally not used this but I referred by niece to my ND and this is whay was used. I wish you well.

1
B1076248dde479773e75044818e1878c

(458)

on June 13, 2012
at 02:23 PM

What were you on the NSAIDs for? Do you have a rheumatic condition?

Avoid egg whites - they have a protein in them that will irritate the gut lining.

When my stomach gets this bad, I go to straight meat for a couple days. Grassfed beef or lots of seafood (not salmon...seems to mess with me).

You may wish to look into SIBO testing - I just completed one yesterday, and I'm waiting for the results. There is a TON of research right now coming out about this in the major journals.

http://www.siboinfo.com/

http://www.sciencedaily.com/releases/2012/05/120525103354.htm

Hang in there. We WILL get to the bottom of these gut disorders! I'm so determined. :)

0104d134c517031678cb90bb2919b5d3

(117)

on June 13, 2012
at 02:57 PM

Cool, last week I had seafood and butter all week but was still no better. What kind of test is for SIBO? Going to the local GP again tomorow so could mention it. The NSAIDs where for tonsilitus, me being stupid and all decided to take lots on an empty stomach...

B1076248dde479773e75044818e1878c

(458)

on June 14, 2012
at 02:53 AM

I'm doing SIBO for chronic digestive problems as well as for a possible link to rheumatoid arthritis of the spine (spondylitis). It's really good that you're not ignoring these problems. I noticed a dysfunctional gut at the age of 30, and by 35, I developed arthritis...gut disorders lead to worse. As you're running tests, here's a supplement that I frequently use to calm nausea and burning: http://www.iherb.com/product-reviews/Thorne-Research-GI-Encap-60 It's not meant for long-term, but it can get me out of a jam by coating my stomach lining. It'd be good for ulcers too.

C4f1a0c70c4e0dea507c2e346c036bbd

on June 13, 2012
at 08:28 PM

Does SIBO involve the Ilium, its the last part of the small intestine. That's where my Chrohns is.

B1076248dde479773e75044818e1878c

(458)

on June 14, 2012
at 02:54 AM

Link messed up, here's the supplement again: http://www.iherb.com/Thorne-Research-GI-Encap-60-Veggie-Caps/18504

0
1e443a3241f80129faa05125ce346e47

(734)

on June 13, 2012
at 09:07 PM

For the last 7 months or so I have been experiencing gastrointestinal problems

...

I have tried GAPS

GAPS and diet is something that only works on a long-term. How long did you try the GAPS-diet. An estimate on the GAPS website says that most people have to follow the GAPS-diet for at least two years. As for the other supplements, it's the same story: it takes time and the progress is slow.

8 tbsps of coconut oil a day

That is a lot (I'm saying this as a coconut oil addict, mind you!). 4 tbsp a day would be better (and is still

The fatigue could indeed be a response to the Herxheimer's reaction (the die-off), but then it should go away after a couple of days. Otherwise there's something else that's wrong.

A last note: I'm no doctor and even if I was, I can't diagnose you over the internet. If you've got serious medical issues, you should consult a doctor.

I had some other suggestions too, but most of those were already mentioned by the people who replied before I wrote this. :)

0104d134c517031678cb90bb2919b5d3

(117)

on June 14, 2012
at 09:09 AM

Yea hopefully I will get referred to a gastrointestinal specialists Crowlover. So far the GPs knowledge of the subject has been very disappointing.

0104d134c517031678cb90bb2919b5d3

(117)

on June 13, 2012
at 09:32 PM

Spent weeks on and off but never really fit the classic gaps symptoms nor did I experience the relief from my symptoms (bloating, constipation, fatigue) after 3days of bone broth, etc. It seemed I just got more mineral deficient and felt worse (developed bags under eyes). It could be that I have not spent enough time on gaps but I have a hunch something else is at play. Yea the coconut oil is getting really difficult to stomach, just looking at it makes me want to throw up, but my skin and hair as improved and I think my eczema has slightly since taking it. Seeing GP (again) tommorow ben.

4ef079c57d2140bba4dbf4e30240a645

(4413)

on June 13, 2012
at 11:23 PM

I hope your GP is good... an ND or functional medicine MD is typically much better at this kind of problem. All the best.

3e762aadbc84870b6ec7277fe32c7b84

(95)

on October 09, 2012
at 04:51 PM

The first weeks of GAPS intro diet stage 1 was the most uncomfortable for me: constipation, die-off symptoms, bloating, aches, abdominal discomfort, bad breath, foggy brain, fatigue, nightmares, etc. Then it got better one and a half weeks later, first time I didn't have bloating in months/years, until I started adding more foods on stage 3. Desperate, I hope you are feeling better by now. All that coconut oil could definitely trigger lots of die-off/Herxheimer symptoms.

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