Ok so this might sounds worse than it actually is, but its my reality!
Some background: (sorry if its TMI!!)
8 yrs ago I was doing Adkins very successfully, was just eating most proteins and not much else. A very stressful family situation occurred and sent me into a physical tizzy which I am still recovering from,resulting in explosive diarrhea and extreme intestinal inflammation, pain, nausea (I couldn't even sit down they were swollen like balloons).
I was living in Mexico at the time. Went to several gastro dr. got some relief from the swelling but never got the diarrhea under control. Living on Imodium and basically unable to leave the house. I refused steroids which were always offered, and refused all forms of sedatives. Dr's didn't seem to have any interest in me after I refused these meds, I knew they were just diagnosing me with a standard 'typical' IBS etc. diagnoses, since they didn't want to do any extra effort to really find any other issues, I continued to look for new dr's. Went thru about 6 within a year, all pretty much labeling me the same way.
testing for parasites, ameba's etc. all negative; but high amts of mucus and undigested foods in stool samples.
We moved to Costa Rica, the family stress was no longer existent from this point. found a good gastro dr. who sent me for allergy testing; turns out a whole list of food allergies, all of which I was eating daily. I was about 110lbs at the time, I was absorbing nutrients and looked thin but healthy, but my digestion was completing within 20 minutes (from another test, xray with some liquid dye). I was in the bathroom for the entire day every day, terrible squeezing sensation and spasms. Removal of the foods helped but my system was not calming down. Living on Imodium, still going from 7am to 5pm all day, worse after eating anything. Never had issues during the night, but always awoken by grumbling painful intestines and running to restroom.
Additional colonoscopy confirmed diverticulitis, no ulcers, tissue samples confirmed inflammation. Found to have some fibroid tumors in uterus, but small and hadn't had any issues/symptoms. Still high amts of mucus and undigested foods in stool samples. I was living a very stress free life in general but of course stressed over the gastro issues and not being able to do anything far from the bathroom.
We moved to Taiwan a year later, found a great MD who himself had leaky gut, he sent me to a accupuncture dr. and after 2 months of treatment (and starting LDN) I was getting some relief. Still living on Imodium but not quite as much. Additional food allergy testing confirmed new/additional food allergies, the list was getting longer. MD suspected leaky gut, crohns tests were negative (we have crohns in the family). Still mucus and diarrhea daily but less explosive.
(fyi: liver testing for effects of Imodium proved no impact; confirmed by crohns specialist who said his patients survive on Imodium for 10+ years and its ok...just in case you are thinking!!!)
Stopped LDN, Imodium down to 1-2 day (from 3-4). Weight gain of about 30 lbs and started playing tennis again, dropped about 10 lbs when trying. Eating a SAD diet still.
Moved to Colombia, loss a bit more weight, feeling good, issues started to develop weight increased back up to before, highest weight ever 145. Issues created by eating out at unfamiliar restaurants or at peoples home. Suspected cross contamination, still SAD.
After 2 years became pretty fed up, was absorbing info on Paleo, January went 100% primal, 7 months later down those 30lbs of pure fat, off all gluten and all processed foods.
I still have spastic intestines. I only take Imodium every other day max 1/2 pill, sometimes can go a whole week without any (if I eat at home). I think its like a bad habit now.....
I started Digestive Enzymes in late June, I'm getting more regular taking them. My digestion is much improved, only going daily from 1-6 times on a normal day, less pain but still squeezing, no nausea--on that poop chart posted this week I'm usually from 4-7 (before was always 6-7). No mucus at all detected in stools, color is better with DE, brownish red, only noticeably yellow (normal for me these last 8 yrs) when I forget the DE. A bad day for me is squeezing and pain for the morning, worse if I eat, up to 12 times and finally diarrhea.
I have tried Probiotics, they generally give me diarrhea. The ones from Sisson are super strong and I have broken them apart and reduced to small amounts. I do keep this in the back of my mind to keep trying, just need to recapsulate them in smaller amts and work up I guess.
My diet is 100% primal trying to convert to paleo (withdrawing parm cheese is my main obstacle)
Still have severe intolerance to beef, soy, corn.
Nightshades bother me. Lime kills me. Other intolerance's include yucca, citric acid, processed salts, casein's, egg yolk
I can eat lamb 1-2xs month, more and I start to have issues with it. (could be because they douse lamb in beef juices for taste as I found out recently), not a safe food for me in restaurants.
I eat fish, chicken mostly some pork, egg whites, crave veggies but have to be careful as they set my digestion off, very limited fruit. Occasional soaked dried nuts. White wine only 1-2 glasses on weekend, red bothers me.
I do not/have never been able to take any kinds of pills/meds well, including vitamins, I prefer to eat healthy instead (also because I have to import things to get 'pure' pills). DE haven't bothered me in any way. I take 2 after every meal, never felt a burn, but definite digestive improvement.
I do have terrible ezcema on my hands lately, had previous ezcema before but never this bad. I believe its a lack of sun, always raining or cloudy here, I'm talking the last 3 years pretty much all the time. El nino or la nina is hitting us hard here. I have Sissons Vit D just afraid it might bother my tummy.
My questions are: What can I do to help my system keep improving?** I've considered GAPS but since I'm seeing some results now I'm wondering if I should just keep on this path. (also because we are moving again soon and would be hard to do GAPS from a hotel until we get our apartment set up, months later)
Additional digestive issues could be improved by?
Is it possible that i might have liver lack bile issues? lack of enzymes or what not? (I'm not too informed about this area so hack me here too!!)
My goals are to be off Imodium completely, heal my gut and hopefully eventually be able to eat those things that I can not tolerate right now. Go to the bathroom like a normal person, once a day or whatever is normal for me, certainly not 4-6 times; I would like to get a morning life again....
I will continue on primal/paleo to the end of days!!!
asked byKelly_3 (8767)
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on July 14, 2011
at 04:16 PM
Geltain/bone broth is said to be healing for the gut. I think it is because it is high in glycine.
Also, coconut oil is purported to help heal inflamed intestinal tissue.
I have a friend who swears by taking a tbs of coconut oil per day - she used to never leave the house and now we can actually go out together!
on July 20, 2015
at 10:34 PM
Are you eating any dairy products? If you do that might be what you are oversensitive to. I can't even have ghee. My eczemas vanished when i cut them all out. I even cut out all meds that contained lactose monohydrate and I felt like my asthma got better too. (but that might be something I just believed in)
Also, check out resistant starch which I'm trying out right now. It seem to work very well for me at least
on July 14, 2011
at 03:56 PM
Not a medical professional here, but before I even got to your question about liver enzymes, I thought gallbladder, maybe? Find it unreal that none of the docs you've seen (from your post) checked into the possibility of blocked bile ducts or something. Just a thought. Your story truly sounds awful -- I hope it gets better. Glad to hear you've found some improvement.