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Help me cure/aid my younger brother...PLEASE!!

Answered on August 19, 2014
Created January 04, 2013 at 10:54 PM

Hey all, hopefully not an annoyance with my influx of questions, but I seriously need some help. This is regarding my younger, 14yr old brother. He has been out of school for the past couple years due to some physiological ailments, very rarely leaves the house, and needs help showering/getting dressed. He's on many medications: 6MP, Famotidine, Norco's for pain, and MetraGel for his gawes(?? not sure on the spelling. not gauges, it's a wrap almost thats for containing his blood/pus/etc.)

He has Advanced Crohn's disease, Perianal/Perirectal diseas, fistula's, and possible a third disease. He has been going to various doctors/specialists all his life, he's had plenty of surgeries. He's had fistula's removed, wholes cut into his anus, and he has had tubes in his anus multiple times (and currently does again). He has been on and off antibiotics plenty of times as well.

Unfortunately he eats a full-scale SAD diet; I've continually tried getting him and my mom to eliminate all gluten/grains from his diet, but they simply don't do it. I've heard of a man Ari on the Bulletproof Exec Podcast who cured his Crohn's, and considering the astonishing reversals of other diseases from GAPS protocol, coconut oil/mct's for Alzheimer's etc. I'm sure he can reverse the damage done to him.

Is there ANYTHING, ANYTHING AT ALL any of you can recommend? Any dietary changes/additions, supplements/vitamins/herbs/detoxes? Any holistic/integrative physician's help, or any paleoish kind of health practitioners? I really want to help him and unfortunately my word isn't good enough as of right now, so maybe if I have a bunch of input from the members of this board, my mother/brother will listen.

As of right now all I've been thinking is elimination of gluten/legumes, possibly dairy (at least for awhile) and the inclusion of a high-grade Probiotic, maybe Bio-Kult from GAPS. I haven't delved into researching digestive enzymes, but maybe that as well? BTW he has plenty of DEATHLY allergies, such as fish (all fish besides shell fish), all TREE NUTS (not peanuts), some seeds, and I believe he is allergic to soy. My mother and him don't believe so but as an infant they put him on a soy formula and he became extremely ill so they had to switch it. He's also had some minor reactions, although they may have been psychosomatic and due to anxiety, to various grain products that when I look at the ingredients, contain soy as well.

Please...PLEASE any information would be immensely helpful.

C657d176db6f11f98aeb2a89071e3281

(842)

on January 06, 2013
at 04:53 AM

Oh! I should have caught the grapefruit thing. Sorry. I am not on meds so I forget that factor. Lemons and limes then? Lemons are more alkaline but both are great.

443d09cb00d7c8ba7c28fdfe7bed3f5e

on January 05, 2013
at 11:22 PM

I have started cooking, not sure if your familiar with Timothy Ferriss but recently got his book the 4-hour chef, lol. Hoping to sharpen up my cooking skills, so that would be a good idea, maybe I can make a paleo chilli or something.

089dd41b18fbb95ebb5347cded708d98

(5635)

on January 05, 2013
at 07:00 PM

also, do you cook? i was thinking you could make some paleo versions of your brother's favorite foods so he could see how it's not such a big deal and that it can be enjoyable.

089dd41b18fbb95ebb5347cded708d98

(5635)

on January 05, 2013
at 07:00 PM

yeah, i know all about GAPS. it's like SCD so either one you pick would be good. SCD is just a little less strict than GAPS so it would probably be a lot easier for your brother. you'd probably know if he has tried biologics- they are either IV infusions or self administered shots. i actually don't even know if humira is approved for kids, but remicade is. they are definitely scary drugs for sure. your brother is actually lucky to keep on more weight. it's good for when things get bad.

443d09cb00d7c8ba7c28fdfe7bed3f5e

on January 05, 2013
at 06:21 AM

Yes that's what I've thought for a long time. I'm gonna show him all the comments on this post (which I can't express how grateful I'am) and convince him to at least go gluten/grain free. He was seemingly partially interested when I told him I created this post. Hopefully he'll just give it a shot for 30days and will have SOME improvement and will just stay that way until we can make further adjustments

443d09cb00d7c8ba7c28fdfe7bed3f5e

on January 05, 2013
at 06:15 AM

Thanks for the input and personal experience. I'm tremendously sorry to hear about your problems and wish the best of luck, truly do. My brother is sort of the opposite, he is overweight (not to poke fun). I'm thinking about purchasing the SCD book as well as GAPS; have you heard of GAPS? I've only listened to Dr. NCM's interviews(author of the book; neurosurgeon/neuroscientist, as well as nutritionist i believe, reversed many symptoms of her childs Autism). I don't know if he's tried Remicade or Humira, but both sound familiar, so maybe, I'll ask him and my mother.

3327924660b1e2f8f8fc4ca27fedf2b2

(2919)

on January 05, 2013
at 03:33 AM

Yes, cutting out hard to digest food like grains is the most obvious first resort. You need to do that immediately.

443d09cb00d7c8ba7c28fdfe7bed3f5e

on January 05, 2013
at 02:54 AM

If only I was in UK lol. I really unfortunately can't get the GAPS book right now, money is that tight. Only really goes to food and gas, my brother's illness has taken a toll on my parent's capabilities to work, and I'm currently trying to "heal" myself as well and thinking of the GAPS diet. Would taking just VSL#3 or Bio-Kult and eliminating grains/legumes/gluten at least do enough good for improvement until purchasing the book is possible? thanks for the info man.

3327924660b1e2f8f8fc4ca27fedf2b2

(2919)

on January 05, 2013
at 02:17 AM

GAPS is used for digestive disorders because GAPS is basically SCD with some fine tuning. Dr. NCM has a clinic in Cambridge if you're in the UK. If you don't already have the GAPS book, you honestly should get it.

3327924660b1e2f8f8fc4ca27fedf2b2

(2919)

on January 05, 2013
at 02:08 AM

Not just grapefruit, but pretty much all citrus fruits. I think limes are the least offensive and I've read limes are pretty much hypoallergenic too, even though they're citrus.

443d09cb00d7c8ba7c28fdfe7bed3f5e

on January 05, 2013
at 01:03 AM

I have heard of it, but haven't researched it in the least bit. Will do that right now, thanks!

443d09cb00d7c8ba7c28fdfe7bed3f5e

on January 05, 2013
at 01:02 AM

Will look into VSL#3, haven't yet heard of it. Unfortunately no one in the family is doing the GAPS protocol, although I may start it in a couple of months if eliminating ALL legumes/grains/gluten/dairy and Earthing/Bio-feedback does not eliminate my current symptoms. I agree maybe my brother should try it as well. Is it not for only Psychological/Mental illnesses though? it would make sense in helping my brother with healing his gut and inflammation, but I've heard of the author speaking about a difference in Gut and Physiology Syndrome and Gut and Psychology Syndrome.

443d09cb00d7c8ba7c28fdfe7bed3f5e

on January 05, 2013
at 01:00 AM

And, Roth, didn't think about that. I know Grapefruit increases the concentrations of meds by a large amounts.

443d09cb00d7c8ba7c28fdfe7bed3f5e

on January 05, 2013
at 12:59 AM

hmm, this is really interesting. Haven't yet come across the PHMiracle, but seems intriguing. I'll give it a good look. And yes, I've heard sometimes a complete elimination diet is what's needed until healing occurs, as Dr.Natasha-Campbell McBride calls "heal and seal", eventually able to add back in other foods. For right now I'm going to just work on him eliminating grains/gluten until I have further researched the PHMiracle, potentially read the recommended books.

3327924660b1e2f8f8fc4ca27fedf2b2

(2919)

on January 05, 2013
at 12:55 AM

Angelina, he's on medication. He should NOT be drinking grapefruit anything.

C657d176db6f11f98aeb2a89071e3281

(842)

on January 05, 2013
at 12:51 AM

Pay attention to the healing shakes on the ph miracle website. Combinations in the blender of a bunch of spinach, an avocado, a grapefruit, lemon, parsley, cilantro, coconut water, (mint leaves, stevia?) can be drank all day and extremely nutritious. If he doesn't like the taste of one item, leave it out for a while. Be sure to keep the avocado in if he is not allergic.

532cfd279d793e8fcc23b9f6d91dde5c

(1981)

on January 05, 2013
at 12:47 AM

I can't give you the names, but I have definitely read two. They are all filed on a single page, should be easy enough to locate

443d09cb00d7c8ba7c28fdfe7bed3f5e

on January 05, 2013
at 12:30 AM

I would totally agree with you, but as I said my brother is DEATHLY allergic to all forms of fish besides shell fish; do you know of any n3 supplements derived from some shellfish? Would Krill cause the same allergic reaction? The funny thing is he used to be able to eat tuna, and would eat lots. Then when he got tested again for allergies recently he developed an extreme allergy to it. I've heard of probiotics helping with allergies, maybe if he heals his gut he can cure some allergies and begin to add more to his die?

443d09cb00d7c8ba7c28fdfe7bed3f5e

on January 05, 2013
at 12:24 AM

True dat, haha. About to do that once he's got some time. Have you seen any rather incredible turnarounds with Crohn's patients, or at least some patients with Inflammatory induced diseases?

532cfd279d793e8fcc23b9f6d91dde5c

(1981)

on January 05, 2013
at 12:09 AM

You could show him some before-and-after health turnarounds, like the primal success stories on MDA. What's more convincing than a pile of success stories from formerly-sick people?

443d09cb00d7c8ba7c28fdfe7bed3f5e

on January 05, 2013
at 12:07 AM

Thanks for the input, and I know, I'm not bashing my mother but she definitely isn't helping by allowing him maintain this terrible state. Is there anything, though, you could recommend?

443d09cb00d7c8ba7c28fdfe7bed3f5e

on January 05, 2013
at 12:06 AM

Thanks, and yeah I agree I can't force him. But I'm just saying with the additional support of PH'ers on this board, knowing him he will cave in and at least try some things.

532cfd279d793e8fcc23b9f6d91dde5c

(1981)

on January 04, 2013
at 11:35 PM

I don't want to discourage you from trying to help your brother, but remember, you can't force him to save himself. Maybe ask him to just try it your way, as a gift/favour to you, for a predetermined time period, say 30 days.

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6 Answers

2
5bdb4865b3bed201e688a69d90a6456e

(20)

on January 05, 2013
at 12:40 AM

Have you heard of low dose naltrexone? Google it for Crohn's disease

443d09cb00d7c8ba7c28fdfe7bed3f5e

on January 05, 2013
at 01:03 AM

I have heard of it, but haven't researched it in the least bit. Will do that right now, thanks!

1
089dd41b18fbb95ebb5347cded708d98

(5635)

on January 05, 2013
at 05:11 AM

I am really surprised they are so resistant to you. Usually when someone is that sick he will try anything to get better. At least that's how I am. I also have IBD (UC) and it's very severe- rarely leave the house, get blood transfusions, you know the drill. I know it really hurts my sister to see me like this as I'm sure that's how you feel, too. She always says she wishes it was her that was suffering.

I tried 6mp for a while but it just wasnt helping- made my liver sick. Has he tried Remicade or Humira? I am starting Humira next week because I just can't get well doing paleo/SCD on its own. Granted, I feel a little better than before I started, but I'm still very underweight (87 lbs at 5'4") and have diarrhea, urgency, bleeding, pain.

I was a vegan for 5 years prior to paleo/SCD but was just so ill that I figured I'd give up my morals and do paleo. I don't regret it now just because I'm used to it, but I think if your brother is in a lot of pain, he should try it.

I'd get the SCD book and try that.

089dd41b18fbb95ebb5347cded708d98

(5635)

on January 05, 2013
at 07:00 PM

also, do you cook? i was thinking you could make some paleo versions of your brother's favorite foods so he could see how it's not such a big deal and that it can be enjoyable.

089dd41b18fbb95ebb5347cded708d98

(5635)

on January 05, 2013
at 07:00 PM

yeah, i know all about GAPS. it's like SCD so either one you pick would be good. SCD is just a little less strict than GAPS so it would probably be a lot easier for your brother. you'd probably know if he has tried biologics- they are either IV infusions or self administered shots. i actually don't even know if humira is approved for kids, but remicade is. they are definitely scary drugs for sure. your brother is actually lucky to keep on more weight. it's good for when things get bad.

443d09cb00d7c8ba7c28fdfe7bed3f5e

on January 05, 2013
at 11:22 PM

I have started cooking, not sure if your familiar with Timothy Ferriss but recently got his book the 4-hour chef, lol. Hoping to sharpen up my cooking skills, so that would be a good idea, maybe I can make a paleo chilli or something.

443d09cb00d7c8ba7c28fdfe7bed3f5e

on January 05, 2013
at 06:15 AM

Thanks for the input and personal experience. I'm tremendously sorry to hear about your problems and wish the best of luck, truly do. My brother is sort of the opposite, he is overweight (not to poke fun). I'm thinking about purchasing the SCD book as well as GAPS; have you heard of GAPS? I've only listened to Dr. NCM's interviews(author of the book; neurosurgeon/neuroscientist, as well as nutritionist i believe, reversed many symptoms of her childs Autism). I don't know if he's tried Remicade or Humira, but both sound familiar, so maybe, I'll ask him and my mother.

1
3327924660b1e2f8f8fc4ca27fedf2b2

(2919)

on January 05, 2013
at 12:55 AM

If you're doing the GAPS protocol, you're doing everything right.

The best probiotic on the market right now is VSL#3.

3327924660b1e2f8f8fc4ca27fedf2b2

(2919)

on January 05, 2013
at 02:17 AM

GAPS is used for digestive disorders because GAPS is basically SCD with some fine tuning. Dr. NCM has a clinic in Cambridge if you're in the UK. If you don't already have the GAPS book, you honestly should get it.

443d09cb00d7c8ba7c28fdfe7bed3f5e

on January 05, 2013
at 06:21 AM

Yes that's what I've thought for a long time. I'm gonna show him all the comments on this post (which I can't express how grateful I'am) and convince him to at least go gluten/grain free. He was seemingly partially interested when I told him I created this post. Hopefully he'll just give it a shot for 30days and will have SOME improvement and will just stay that way until we can make further adjustments

443d09cb00d7c8ba7c28fdfe7bed3f5e

on January 05, 2013
at 01:02 AM

Will look into VSL#3, haven't yet heard of it. Unfortunately no one in the family is doing the GAPS protocol, although I may start it in a couple of months if eliminating ALL legumes/grains/gluten/dairy and Earthing/Bio-feedback does not eliminate my current symptoms. I agree maybe my brother should try it as well. Is it not for only Psychological/Mental illnesses though? it would make sense in helping my brother with healing his gut and inflammation, but I've heard of the author speaking about a difference in Gut and Physiology Syndrome and Gut and Psychology Syndrome.

443d09cb00d7c8ba7c28fdfe7bed3f5e

on January 05, 2013
at 02:54 AM

If only I was in UK lol. I really unfortunately can't get the GAPS book right now, money is that tight. Only really goes to food and gas, my brother's illness has taken a toll on my parent's capabilities to work, and I'm currently trying to "heal" myself as well and thinking of the GAPS diet. Would taking just VSL#3 or Bio-Kult and eliminating grains/legumes/gluten at least do enough good for improvement until purchasing the book is possible? thanks for the info man.

3327924660b1e2f8f8fc4ca27fedf2b2

(2919)

on January 05, 2013
at 03:33 AM

Yes, cutting out hard to digest food like grains is the most obvious first resort. You need to do that immediately.

0
C657d176db6f11f98aeb2a89071e3281

on January 05, 2013
at 12:48 AM

I want to give you kuddos for loving your brother so much that you want him well.There are many threads to read on this site and on MDA. There is a book called "The Ph Miracle" by Robert O. Young available at www.phmiracleliving.com It may help you with what you are seeking. Some people cannot stomach meat when they are as sick as your brother seems to be. Sometimes a healing process needs to take place before one can live paleo. The phmiracleliving website, while basically set up to sell product, also has a lot of good information. They actually have a healing center where people like your brother go to live for a while to heal their bodies. It is super expensive. Another book is "There are no incurable diseases" by Dr. Richard Schultze available to read online at www.herbdoc.com He cures through herbs. He also recommends a veggie type diet until the healing takes place in the gut. I do not believe in his super food though, his herbs are great. He has algae in his super food which is a type of fungus and I don't believe we need to add fungus when we are sick. Educating yourself by reading as much as you can is what will work the most. At the same time, it is your brother's illness, and I do understand you want him well, so it is he who needs to make the decision of what way he wants to proceed. It may help to point out that the way that he is going doesn't seem to be helping much. Knowledge is a blessing. Good luck finding what works and let us know how you are doing while going through all of this. Ask as many questions as you need.

443d09cb00d7c8ba7c28fdfe7bed3f5e

on January 05, 2013
at 12:59 AM

hmm, this is really interesting. Haven't yet come across the PHMiracle, but seems intriguing. I'll give it a good look. And yes, I've heard sometimes a complete elimination diet is what's needed until healing occurs, as Dr.Natasha-Campbell McBride calls "heal and seal", eventually able to add back in other foods. For right now I'm going to just work on him eliminating grains/gluten until I have further researched the PHMiracle, potentially read the recommended books.

3327924660b1e2f8f8fc4ca27fedf2b2

(2919)

on January 05, 2013
at 02:08 AM

Not just grapefruit, but pretty much all citrus fruits. I think limes are the least offensive and I've read limes are pretty much hypoallergenic too, even though they're citrus.

C657d176db6f11f98aeb2a89071e3281

(842)

on January 05, 2013
at 12:51 AM

Pay attention to the healing shakes on the ph miracle website. Combinations in the blender of a bunch of spinach, an avocado, a grapefruit, lemon, parsley, cilantro, coconut water, (mint leaves, stevia?) can be drank all day and extremely nutritious. If he doesn't like the taste of one item, leave it out for a while. Be sure to keep the avocado in if he is not allergic.

C657d176db6f11f98aeb2a89071e3281

(842)

on January 06, 2013
at 04:53 AM

Oh! I should have caught the grapefruit thing. Sorry. I am not on meds so I forget that factor. Lemons and limes then? Lemons are more alkaline but both are great.

443d09cb00d7c8ba7c28fdfe7bed3f5e

on January 05, 2013
at 01:00 AM

And, Roth, didn't think about that. I know Grapefruit increases the concentrations of meds by a large amounts.

3327924660b1e2f8f8fc4ca27fedf2b2

(2919)

on January 05, 2013
at 12:55 AM

Angelina, he's on medication. He should NOT be drinking grapefruit anything.

0
56046474e7622a04057c579470482133

on January 05, 2013
at 12:25 AM

Fish oil, fish oil, and more fish oil. It is better then nothing, easy to take, and could help with his inflamitory issues. Only 1 in 10 people when given the choice of change or die choose change. An old factoid from cardiology patients.

443d09cb00d7c8ba7c28fdfe7bed3f5e

on January 05, 2013
at 12:30 AM

I would totally agree with you, but as I said my brother is DEATHLY allergic to all forms of fish besides shell fish; do you know of any n3 supplements derived from some shellfish? Would Krill cause the same allergic reaction? The funny thing is he used to be able to eat tuna, and would eat lots. Then when he got tested again for allergies recently he developed an extreme allergy to it. I've heard of probiotics helping with allergies, maybe if he heals his gut he can cure some allergies and begin to add more to his die?

0
744342f7ec832d8be55df79dbc067ebd

(76)

on January 04, 2013
at 11:58 PM

Your mom is probably the biggest roadblock to your brother changing. If she supplies the stuff he eats then there is not much you can do. Don't give up. There are plenty of success stories of people curing health issues such as your brother's out there. Ultimately he will need to decide for himself what and how he wants to live his life. Accept he may not change until he is ready and you can't do much until he asks for help.

443d09cb00d7c8ba7c28fdfe7bed3f5e

on January 05, 2013
at 12:07 AM

Thanks for the input, and I know, I'm not bashing my mother but she definitely isn't helping by allowing him maintain this terrible state. Is there anything, though, you could recommend?

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