4

votes

Aside from gluten what do the people here diagnosed with Celiac absolutely avoid?

Answered on August 19, 2014
Created June 19, 2012 at 11:04 PM

Aside from the obvious gluten, and usually dairy as well, what foods (both paleo and non) do those of you who are diagnosed with Celiac absolutely avoid in your diet and why?

E68bdbd83e45fd5be130e393ace9c9a9

(2063)

on June 20, 2012
at 03:50 PM

Interesting, thanks.

E68bdbd83e45fd5be130e393ace9c9a9

(2063)

on June 20, 2012
at 03:49 PM

That being said, there's nothing wrong with avoiding something like soy... It doesn't have many benefits to recommend it.

E68bdbd83e45fd5be130e393ace9c9a9

(2063)

on June 20, 2012
at 03:48 PM

I got hormonal problems after consuming a lot of soy too, years ago when I was vegan. I had a tablespoon of soymilk in my coffee yesterday and I'm curious to see if it will have any effect on me. Haven't really noticed anything yet (and yes, it was a tiny amount, but a tablespoon of dairy is enough to give me cysts.) I wonder if soy has to be so strictly avoided if you don't have any allergy? I don't like it that much, so I'm not exactly looking for an excuse to start eating it again, but I wonder if I've been too paranoid about traces of soy here and there.

91882203467f64f68f25f58f1caeee68

(1017)

on June 20, 2012
at 10:56 AM

Me too. I convinced myself it was ok to eat a few gluten free cookies last week and for the next few hours after I felt like I was a little high, very impatient/irritated. I tried again a few days later and same thing happened, as it does if I eat other high sugar foods (except high sugar fruit for some reason, I can eat 5 bananas a day without issues).

61844af1187e745e09bb394cbd28cf23

(11058)

on June 20, 2012
at 01:34 AM

Is it actually the coffee or possible cross-contamination? I know the Bulletproof guy claims he sells "clean" coffee, but do you react differently to different brands of coffee? I don't have celiac and have can't even begin to imagine the pain and discomfort you deal with. I do know that different brands affect my stomach differently and I always assumed it was different acidity levels.

4929a87e3f7438f18a0afbdde291ed5e

(752)

on June 20, 2012
at 01:12 AM

I can't do decaf coffee, either, unfortunately. And boy, did I love my coffee. :( But it's better than feeling anxious and/or passing out in my boss's office. :) I do love roasted chicory root "coffee" (though it's more like tea, I think). It's not the same as coffee, but it tastes close (like pureed cauliflower tastes "kind of" like mashed potatoes).

91882203467f64f68f25f58f1caeee68

(1017)

on June 19, 2012
at 11:48 PM

Actually I misread that, looks like decaf is not ok either?

91882203467f64f68f25f58f1caeee68

(1017)

on June 19, 2012
at 11:46 PM

Good to know. Coffee always made me feel weird (anxious/moody/etc) so I've avoided it and always blamed the caffeine for that effect. Maybe it's more related to the Celiac/reaction. Interesting to know decaf would be fine because I do enjoy the taste/smell of coffee. I guess the only issue there is that they probably mix the pots around and who knows if it's been contaminated.

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5 Answers

5
E2b72f1912f777917d8ee6b7fba43c26

(2384)

on June 20, 2012
at 06:27 AM

I avoid every kind of seed/kernel/nut, such as nuts, coconut products, soy, raspberries (->seeds), mustard, cumin, sesam seeds and so on...

Why that much? Because gliadin/gluten can be considered a storage protein and every kind of seed has similar storage proteins. Due to their similar function they are also very related in structure. Therefore it's quite likely for the immune system to recongnise them as well. This is called 'cross reactivity' and one of the main reasons why most celiacs do not fully heal on a gluten free diet. So unfortunately it takes a lot more effort for most of us.

You may also want to watch out for soy/grain-fed eggs or meat in general.

EDIT: Read this especially the 'storage protein' section: http://www.alergia.bielsko.pl/52-5108-49%20%20Cross-reactivity%20in%20plant%20food%20allergy_ver9_FINAL.pdf

E68bdbd83e45fd5be130e393ace9c9a9

(2063)

on June 20, 2012
at 03:50 PM

Interesting, thanks.

4
03a4ec34751186201a56da298ac843ce

on June 20, 2012
at 04:30 AM

Sugar. Sugar makes me crazy, nervous, anxious, hungry, depressed, suicidal, homicidal, sociopathic, psychopathic and tired.

91882203467f64f68f25f58f1caeee68

(1017)

on June 20, 2012
at 10:56 AM

Me too. I convinced myself it was ok to eat a few gluten free cookies last week and for the next few hours after I felt like I was a little high, very impatient/irritated. I tried again a few days later and same thing happened, as it does if I eat other high sugar foods (except high sugar fruit for some reason, I can eat 5 bananas a day without issues).

4
65bf1ca7071028018c6d8305d0ddcd76

(3049)

on June 20, 2012
at 02:49 AM

Dairy in all forms and soy are the other 2 things I avoid.

Dairy: it causes me major gastrointestinal distress and bloating

Soy: wreaks havoc on my hormones/system- when I was consuming a lot of soy I developed breast lumps which had to be biopsied. It completely disappeared after cutting all soy out....

E68bdbd83e45fd5be130e393ace9c9a9

(2063)

on June 20, 2012
at 03:49 PM

That being said, there's nothing wrong with avoiding something like soy... It doesn't have many benefits to recommend it.

E68bdbd83e45fd5be130e393ace9c9a9

(2063)

on June 20, 2012
at 03:48 PM

I got hormonal problems after consuming a lot of soy too, years ago when I was vegan. I had a tablespoon of soymilk in my coffee yesterday and I'm curious to see if it will have any effect on me. Haven't really noticed anything yet (and yes, it was a tiny amount, but a tablespoon of dairy is enough to give me cysts.) I wonder if soy has to be so strictly avoided if you don't have any allergy? I don't like it that much, so I'm not exactly looking for an excuse to start eating it again, but I wonder if I've been too paranoid about traces of soy here and there.

4
Ae8946707ddebf0f0bfbcfc63276d823

(9402)

on June 19, 2012
at 11:32 PM

61844af1187e745e09bb394cbd28cf23

(11058)

on June 20, 2012
at 01:34 AM

Is it actually the coffee or possible cross-contamination? I know the Bulletproof guy claims he sells "clean" coffee, but do you react differently to different brands of coffee? I don't have celiac and have can't even begin to imagine the pain and discomfort you deal with. I do know that different brands affect my stomach differently and I always assumed it was different acidity levels.

4929a87e3f7438f18a0afbdde291ed5e

(752)

on June 20, 2012
at 01:12 AM

I can't do decaf coffee, either, unfortunately. And boy, did I love my coffee. :( But it's better than feeling anxious and/or passing out in my boss's office. :) I do love roasted chicory root "coffee" (though it's more like tea, I think). It's not the same as coffee, but it tastes close (like pureed cauliflower tastes "kind of" like mashed potatoes).

91882203467f64f68f25f58f1caeee68

(1017)

on June 19, 2012
at 11:48 PM

Actually I misread that, looks like decaf is not ok either?

91882203467f64f68f25f58f1caeee68

(1017)

on June 19, 2012
at 11:46 PM

Good to know. Coffee always made me feel weird (anxious/moody/etc) so I've avoided it and always blamed the caffeine for that effect. Maybe it's more related to the Celiac/reaction. Interesting to know decaf would be fine because I do enjoy the taste/smell of coffee. I guess the only issue there is that they probably mix the pots around and who knows if it's been contaminated.

1
94480caec9fbbaacc386d86a45efa720

(1007)

on June 20, 2012
at 01:49 PM

I can't drink any coffee because of the cross-reactivity problem. I avoid many things: dairy (casein allergy, not lactose intolerance), excess sugar, all other grains, and legumes unless I soak them with yogurt for 36 hours before cooking. I have to limit my nightshade intake, particularly tomatoes give me hives, potato is not too bad, green peppers and eggplant I tolerate in modest amounts.

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