After being treated for may years for a combination of arthritis, Chronic Fatigue and/or fibromyalgia and none of those treatment helping even a little (all sorts of SSRIs and pain killers that did nothing) and trying yoga and whatever other stretching work I could find I come to finally discover that I have JHS. I discovered it a couple of years ago and had it confirmed by my doctors (several since I was going to a bunch of specialists).
Basically it is a collagen deficiency that causes little to no stability in the joints. The ligaments become quite stretchy and dislocations are very common. My shoulders are so mobile that I can move them in and out of their sockets using just my shoulder muscles with no pain whatsoever. The problem is that the muscles have to take over the work of the ligaments and so you are basically doing an isometric exercise every waking moment in almost every joint, and this causes rather severe fatigue as you may imagine.
Paleo has helped me a ton as I am, through increase fat and reduce simple carbs, increasing my day to day energy. The lack of inflammatory response reduced the joint pain a ton too.
My question, after such a long winded intro, would be: Is anyone else working through JHS? What are you doing to deal with it? I have been doing power lifting and Pilates, both have helped a ton. Are there any supplements or foods that you would recommend?
asked byThrak (1230)
Get FREE instant access to our Paleo For Beginners Guide & 15 FREE Recipes!
on July 19, 2012
at 11:21 PM
Ive been told that I have some hypermobile joints. Seems that stretching doesn't really work at the end of exercises. I can never feel them...
Anyway, one of my favourite bloggers: http://www.alignedandwell.com/katysays/hypermobility/
She's a Biomechanic and looks at the body holistically :-)
on July 19, 2012
at 08:55 PM
I don't believe I have this to quite the same extent, but I have been told that I have hypermobility (or that I am "loosey-goosey" as my surgeon so eloquently put it). I have had numerous subluxation and dislocations of one of my kneecaps and I have also subluxed my shoulder once. I have had surgery on my knee to replace the worn out/damaged/too loose ligament and have undergone a lot of physical therapy.
I have always liked lifting so this is my main form of exercise. I have not considered that it could be helped through diet (don't know why this has never dawned on me), but I imagine that bone broth couldn't hurt.
on October 28, 2013
at 01:32 AM
I also have been diagnosed with severe JHS that has lead to early onset osteo arthritis, after being misdiagnosed with Rheumatoid Arthritis. I have been trying a paleo diet to help and have seen some good results, and have found working with a physical therapist to be helpful also. I have noticed mainly a decrease in my fatigue levels after the diet change.