1

votes

So, do these pictures suggest Celiac or what?

Answered on August 19, 2014
Created November 12, 2012 at 11:39 PM

Photos of my 4-year-old son here.

My aunt is diagnosed with Celiac, I am unofficially self-diagnosed with Celiac (after a year of eating self-experimentation with Paleo eating), and the pictures are of my son who is about to go in for his 4-year checkup. We do have a prescription for the Celiac blood panel that we're about to take him to the lab for. I've seen a lot of pictures online of kids with Celiac, I just wondered what some real people thought, especially those of you who have kids with Celiac.

Thanks in advance for your feedback!

0df0b1c6ae16bbb75b4a5efa3d876765

(2240)

on November 15, 2012
at 04:04 AM

It is the complete panel and he's having it done Friday morning. I will update my post next week when we have the results. Thanks for the links, I've added them to my growing CELIAC/GLUTEN bookmarks folder.

0df0b1c6ae16bbb75b4a5efa3d876765

(2240)

on November 15, 2012
at 04:01 AM

Thank you I will look into the genetic counseling thing, I hadn't heard of it before. I'm actually pushing to get the celiac panel test so that if he does have it there will be a more definitive reason to keep him off gluten as far as the other people involved in his care are concerned. He's gluten-free when he's with me ever since I have been, over a year now.

61844af1187e745e09bb394cbd28cf23

(11058)

on November 13, 2012
at 04:12 PM

The test can be meaningless, too. I recommend cutting out gluten after the test and see what happens. It cleared my son's digestive issue up immediately. I'm not Celiac, but very gluten sensitive and I suspect he is, too.

0df0b1c6ae16bbb75b4a5efa3d876765

(2240)

on November 13, 2012
at 04:26 AM

I'm planning on it, but not everyone is exactly on the same page here on my end so it's unfortunately not that simple. I am not, however, asking for a diagnosis via pictures on an internet forum, which is why I used the word "suggest". Just curious what others who may have experience with celiac kids might think.

0df0b1c6ae16bbb75b4a5efa3d876765

(2240)

on November 13, 2012
at 01:34 AM

Thanks mM, that's the thing though...he always looks like this. When you say "hope he gets better" it's like, yeah...this kid doesn't look like he is well.

0df0b1c6ae16bbb75b4a5efa3d876765

(2240)

on November 13, 2012
at 01:30 AM

weight gain, depression, etc. Since I started Paleo just over a year ago I've seen major improvements in my health including weight decreasing from 255 pounds to 185 pounds, improved digestion, skin, no more GERD and IBS-like symptoms, etc. and I've been doing my best to educate my kids and help influence their dietary choices beyond Dad's house. It can be a bit difficult at times, though, which is why getting the dx would be helpful.

0df0b1c6ae16bbb75b4a5efa3d876765

(2240)

on November 13, 2012
at 01:27 AM

Well, he always looks like this ever since he was a year old. Big belly, weak arms and legs, sunken eyes and pale complexion, constantly sniffly...the issue is I share joint custody but only have him every other weekend. That means he's gluten-free (and generally eats paleo) about 4-5 days per month. His mother actually first mentioned the word celiac when he was a year old and his belly seemed to become really distended all of the sudden. Unfortunately, I was oblivious back then and unhealthy myself (possibly partially due to undiagnosed celiac that had caused a lot of inflammation, (cont'd)

361e96d70d6d3b91d63f6ad975e60ab6

(840)

on November 13, 2012
at 12:47 AM

Looks like me growing up... oh gosh.

153c4e4a22734ded15bf4eb35b448e85

(762)

on November 13, 2012
at 12:28 AM

I've seen photos of celiac kids in some med. stuff, and that is what their belly looks like, they also usually have a loss muscle mass in their glutes. They are also (often times) paler than other kids. Not saying that a stomach like that means that someone is 100% celiac, it could be just sibo, dairy allergy etc. Hope he gets better soon, and the reason is found out.

  • 0df0b1c6ae16bbb75b4a5efa3d876765

    asked by

    (2240)
  • Views
    1.7K
  • Last Activity
    1279D AGO
Frontpage book

Get FREE instant access to our Paleo For Beginners Guide & 15 FREE Recipes!

4 Answers

1
F15e0bae42dbf0b8cfc71e62902497b4

on November 13, 2012
at 03:05 AM

just get the test. pictures mean very little when it comes to celiac.

61844af1187e745e09bb394cbd28cf23

(11058)

on November 13, 2012
at 04:12 PM

The test can be meaningless, too. I recommend cutting out gluten after the test and see what happens. It cleared my son's digestive issue up immediately. I'm not Celiac, but very gluten sensitive and I suspect he is, too.

0df0b1c6ae16bbb75b4a5efa3d876765

(2240)

on November 13, 2012
at 04:26 AM

I'm planning on it, but not everyone is exactly on the same page here on my end so it's unfortunately not that simple. I am not, however, asking for a diagnosis via pictures on an internet forum, which is why I used the word "suggest". Just curious what others who may have experience with celiac kids might think.

1
089dd41b18fbb95ebb5347cded708d98

(5635)

on November 13, 2012
at 12:24 AM

what kind of symptoms does he have? i know people can test negative for celiac, like myself, but still be very intolerant to gluten. have you tried diet modification with him?

0df0b1c6ae16bbb75b4a5efa3d876765

(2240)

on November 13, 2012
at 01:30 AM

weight gain, depression, etc. Since I started Paleo just over a year ago I've seen major improvements in my health including weight decreasing from 255 pounds to 185 pounds, improved digestion, skin, no more GERD and IBS-like symptoms, etc. and I've been doing my best to educate my kids and help influence their dietary choices beyond Dad's house. It can be a bit difficult at times, though, which is why getting the dx would be helpful.

0df0b1c6ae16bbb75b4a5efa3d876765

(2240)

on November 13, 2012
at 01:27 AM

Well, he always looks like this ever since he was a year old. Big belly, weak arms and legs, sunken eyes and pale complexion, constantly sniffly...the issue is I share joint custody but only have him every other weekend. That means he's gluten-free (and generally eats paleo) about 4-5 days per month. His mother actually first mentioned the word celiac when he was a year old and his belly seemed to become really distended all of the sudden. Unfortunately, I was oblivious back then and unhealthy myself (possibly partially due to undiagnosed celiac that had caused a lot of inflammation, (cont'd)

0
94480caec9fbbaacc386d86a45efa720

(1007)

on November 13, 2012
at 09:56 PM

Well, that's about what my celiac son's belly looked like pre-diagnosis. I understand the need for definitive diagnosis. Know that Dr. Green out of Columbia is recommending continuing to use the EMA test in a celiac panel for its predictive value. So as a parent I would ask for a complete celiac panel including both EMA and tTg and there should be a few other too. I can't connect to my usual source for this info but there's a test to check for iga deficiency and I forget what else. sorry... wait... This looks like a good overview of the bloodtests Also, non-celiac gluten sensitivity has been identified as a clinical entity but there's not quite a consensus or standard for testing. Consider perusing info on NCGS testing as auxilary to celiac testing and info on genes giving various risk for celiac or NCGS or gluten ataxia, etc... Good luck in your search.

0df0b1c6ae16bbb75b4a5efa3d876765

(2240)

on November 15, 2012
at 04:04 AM

It is the complete panel and he's having it done Friday morning. I will update my post next week when we have the results. Thanks for the links, I've added them to my growing CELIAC/GLUTEN bookmarks folder.

0
3491e51730101b18724dc57c86601173

(8395)

on November 13, 2012
at 08:05 PM

If there is a second degree relative diagnosed with Celiac, you may be eligible for genetic counseling for your son. Ask your doctor about it, or contact a genetic clinic and see if they can see him. When there is a genetic disorder, it's often helpful to have a genetic counselor, because they know all the manifestations of the genetic disease and in some ways may act as a case manager for you, helping you access all the care needed.

If your son is going to be tested, know that the test may be negative if you've already eliminated gluten from his diet. I'd rather have him well than add gluten back in to try to get a positive test, though.

0df0b1c6ae16bbb75b4a5efa3d876765

(2240)

on November 15, 2012
at 04:01 AM

Thank you I will look into the genetic counseling thing, I hadn't heard of it before. I'm actually pushing to get the celiac panel test so that if he does have it there will be a more definitive reason to keep him off gluten as far as the other people involved in his care are concerned. He's gluten-free when he's with me ever since I have been, over a year now.

Answer Question


Get FREE instant access to our
Paleo For Beginners Guide & 15 FREE Recipes!