Gluten, wheat, rye, barley problems so bad I had to stay in bed!!

Answered on August 19, 2014
Created May 22, 2013 at 1:34 PM

Ok I have had probs with joint pain, headaches, feeling ill, lots of going to the bathroom with alternating constipation and the 'other' which looks oily, smells awful and loads of flatulence.... This has all become worse over the last three years, much worse. I had barley in soup, threw up after about 3 mins of eating it, projectile!! Then nausea with rye and threw up again after eating spaghetti again within minutes! Rash appeared on my arms, little blisters on my legs, the joint pain was so bad I couldn't walk on my feet. Foggy couldn't think straight, this went on for ages until I decided to stop eating any wheat, rye or barley. Tried oats, no go, tried spelt, ohmigod! No go. So stopped it all, was losing weight rapidly after trying to lose weight from what I thought was fat, but I was truly bloated. Felt unbelievable!!! Couldn't believe it!!! Then I had beef jerky, didn't think that it would have anything in it but beef- wrong! I got so sick again it was awful! I think I have a problem with all of the above grains! I refuse to go back on it to have testing because this last time my throat got all sort of scratchy??? I had a really runny nose on top of this all- now within 24hrs I am starting to feel better but I had to go to bed again. I felt like I had a really bad case of flu which I didn't so weird!!!

Any thoughts anyone??? I am going to stay away from all those offending grains.



on May 22, 2013
at 01:53 PM

Sound like celiac disease.

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2 Answers



on May 22, 2013
at 02:30 PM

Commercially made beef jerky is almost 100% guaranteed to contain both wheat and soy.

I'm not a doctor, but it really sounds like you have full-blown celiac disease - I would talk to your doctor immediately to confirm.

In the meantime, if you eat packaged food: you have to read the label carefully. Wheat lurks in many forms on the ingredients list, so study up. While some alternative grains like oats are technically gluten/gliadin free, they are almost always processed in facilities that use the same equipment to process wheat - i.e. they are contaminated with wheat. The easiest solution is to avoid all grains.

On the positive side, beef jerky is pretty darn easy to make at home, and you can avoid the additives you are responding poorly to.


on May 22, 2013
at 08:32 PM

Sounds like either celiac disease or a severe case of gluten intolerance. Get tested right away so you know which it is then cut out all grains and packaged/ pre-made foods. Start cooking everything at home for now, just meat and veggies. If you crave grains, a small amount of rice is okay. I was there just a year ago. Been off gluten for 1 yr, low grain( Paleo) for 9 mos or so. I feel better than I have in years and lost 4 inches off my belly! Good luck.

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