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Carrier of Celiac disease question

Answered on August 19, 2014
Created March 24, 2012 at 1:06 AM

Hi!

Because of constipation, which is now better, my G.I specialist got me to take a blood test to see if I have celiac or not.

The results were that I'm a carrier for Celiac disease but it came back negative.

My aunt didnt develop properly till 16 until the doctor had to give her hormones, she had lots of trouble keeping weight on when she was younger, so her and her son, which has had eczema all his life, are going to take the test too, because of my results.

I'm just curious, I heard that, if you eat gluten free ( Which I did) while they took the blood test, do the results come back as negative? or no matter what the diet it doesn't affect the results?

Also, does this mean that in the future if I decide to have kids, they have a higher chance of being a Celiac?

Thank-you!

3c47729e08e1c5022cd20af43d90137f

on March 29, 2012
at 04:47 PM

My son, who has all the genetic markers for celiac, could not tolerate me eating any gluten, when breast feeding. He had chronic diarrhea until we figured out what was causing it when he was a month old. I just read about a study "proving" that gliadin is in breastmilk, when gluten is consumed. Yes, I believe my son had celiac since he was born.

5f6acaa2591c41cc091fffd6e453c518

(203)

on March 24, 2012
at 02:00 AM

Thank-you very much! =)

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5 Answers

3
A2c38be4c54c91a15071f82f14cac0b3

(12682)

on March 24, 2012
at 03:07 AM

If you haven't been eating gluten leading up to the blood test the ability of the test to identify celiac disease drops considerably. I know someone who stopped eating gluten, felt much much better, then went to the doctor a few weeks later to be tested for celiac disease. She was told that for the test to be accurate she would have to return to eating gluten (and presumably go back to feeling crappy) before the test should be taken.

And yes, that does mean that your future kids will likely be more at risk for developing celiac disease, though as Melissa pointed out that is dependent on many factors. And the elevated risk your future children have of being celiac varies depending on your genotype, whatever it was that designates you as as carrier.

3
9d43f6873107e17ca4d1a5055aa7a2ad

on March 24, 2012
at 01:39 AM

Only the biopsy can conclusively rule out celiac disease. If you still have symptoms, it is worth it, though it is invasive. If that is negative, taking care of yourself and eating well may help prevent you from developing it, as it may be triggered by infection or other stress.

Whether or not it affects your kids depends on who you have kids with. And luck. I would see a genetic counselor if it concerns you, but it is quite common in many populations and most people do not develop celiac. THere is some evidence that breastfeeding can prevent development of it.

5f6acaa2591c41cc091fffd6e453c518

(203)

on March 24, 2012
at 02:00 AM

Thank-you very much! =)

2
8292546789ca48c32ead34c6e884d059

on March 24, 2012
at 03:37 AM

Frankly, I'm of the camp "if you feel better with out it, don't eat it". This goes for psychosomatic response too.

As far as the blood test is concerned, I've read that gluten issues will show up for a couple of weeks.

I've considered getting the test myself, but I've been GF so long I'm not sure I want to endure eating enough to show on a test.

1
3c47729e08e1c5022cd20af43d90137f

on March 27, 2012
at 03:28 AM

Also, if you are a carrier for celiac, the gene can turn on at any time. You should be retested every 3-5 years.

1
380e32d09ae87869caa2a3251d1396c6

on March 24, 2012
at 03:39 AM

I was finally diagnosed with Celiac Disease in 2007, but I also took a blood test initially and it came back negative because I had started a gluten-free diet 6 months before hand. I eat Paleo ( with the occasional cheat meal that is always gluten free). I just had my first child 3 months ago, and he exclusively nurses on a Paleo diet. I accidentally ate gluten for the first time in ages last week at a restaurant, and both of us had very adverse digestive reactions to the meal. Does he have Celiac? Who knows for sure this early in his life. But there is something to be said for the genetic factor the disease holds. I have also read about some evidence of nursing over 6 months in length can prevent development of Celiac in babies.

3c47729e08e1c5022cd20af43d90137f

on March 29, 2012
at 04:47 PM

My son, who has all the genetic markers for celiac, could not tolerate me eating any gluten, when breast feeding. He had chronic diarrhea until we figured out what was causing it when he was a month old. I just read about a study "proving" that gliadin is in breastmilk, when gluten is consumed. Yes, I believe my son had celiac since he was born.

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