10

votes

Seriously, what should I do for my autoimmune condition??

Answered on August 19, 2014
Created December 30, 2011 at 2:47 AM

As a diagnosed lupus, TMJ disorder, RA, thyroditis, celiac (all by in-hospital doctors) , I've tried about every variation of diet out there in hope to help my autoimmune condition. Paleo diet has put some of the most severe symptoms under control. Yet, my autoimmune condition is still on going and I still suffer daily. I still have "relapses" occasionally. To make matters worse, neurological symptoms are emerging recently.

I've tried strict Paleo with no starch, less strict paleo with starches, blueprint, robb's autoimmune protocol, Rosedale, specific carb diet. I realized I cannot fast or IF, because I literally can't walk straight on the street with serious head and vision spinning. For recent several weeks, I've been on ketogenic diet, which helped with my fatigue and headache. It also helped my gut issue somewhat. But it didn't get rid of muscle twitching, temple swelling, pins and needle sensation etc. (I'm still learning about ketogenic diet so I'm making a lot of mistake.. like eating too much protein.. )

So far, I felt better on eating strict 3 meals, no snack, paleo, but again, it does not help me enough for me to rely on it for any longer. The reason why I'm still on one of these paleo category diets- meal planning based on low carb, high fat is because it is really the only diet my body barely can process. I feel so sick cheating on a small potato or if I eat anything(including saturated fat) "a lot" at once. I can't eat anything a lot. even the "good" foods. I get dizzy, foggy brain, visible joint swelling, fluid retention etc. So, the issue is that, no matter what I tried, I haven't gotten better enough, far from the optimal level :(

I have several abnormal antibodies including thyroid related, gut related, ...(by repeated blood work)

In summary, my question is that long time Paleo diet helps my autoimmune condition somewhat, but not enough. What do I need to try/add/consider now??

I hope that there must be something that's going to make me to get better. It could be really anything that's not being addressed right now. It's just that I have no idea what it would be, at this point.

Any advice, suggestion or sharing your own experience with autoimmune condition are greatly appreciated.

D31a2a2d43191b15ca4a1c7ec7d03038

(4134)

on February 24, 2012
at 07:24 PM

Hanne, thanks for your kind thoughts. I hope you are doing well. :)

0bd9775b305d2a602d496649982bc614

(252)

on January 10, 2012
at 09:49 PM

thanks much cliff. i will update with you how I'm doing on rp diet.

E5c7f14800c5992831f5c70fa746dc5c

(12857)

on January 06, 2012
at 01:23 PM

but if you are*

E5c7f14800c5992831f5c70fa746dc5c

(12857)

on January 06, 2012
at 01:22 PM

I just started experimenting with coffee, before and after surfing. I take 10000iu retinol gelcaps from whole foods. High vit A intake is good if you have a fast metabolism but you are somewhat hypothyroid you want to start out slow like 5000iu as vit A can be anti thyroid.

0bd9775b305d2a602d496649982bc614

(252)

on January 04, 2012
at 04:13 AM

Also Senneth, what do you eat daily? if you don't mind sharing it.

De267f213b375efca5da07890e5efc25

(3747)

on January 03, 2012
at 11:35 PM

Have you considered food intolerance testings? http://www.ibsgroup.org/forums/index.php?showtopic=147182&view=getnewpost

De267f213b375efca5da07890e5efc25

(3747)

on January 03, 2012
at 11:32 PM

I would say definitely yes to veggies. Fruits are not so clear. Aim for 200 or a bit more calories from carbs a day. Fruits, especially berries, are a great candidate for those calories. At least try to avoid high glycemic fruits, like dates and bananas. Ketogenic fasting is probably good enough.

0bd9775b305d2a602d496649982bc614

(252)

on January 03, 2012
at 10:17 PM

Why do we need Vit A for milk intake?

F1b39d4f620876330312f4925bd51900

(4090)

on January 03, 2012
at 07:42 PM

Hanne, I am also on the RP diet protocols. The milk made me gain weight 5 lbs, which went away when I stopped drinking the milk (I still eat a ton of cheese, and all the fruit juice stuff). I bet that wouldn't have happened if I had made sure to keep my Vit A up with liver or supplements.

0bd9775b305d2a602d496649982bc614

(252)

on January 03, 2012
at 04:31 PM

all gluten free. I'm very strict with gluten.

0bd9775b305d2a602d496649982bc614

(252)

on January 03, 2012
at 04:29 PM

cliff, thanks for sharing. you eat about 3 times more than I do. that's quite amazing. what kind of Vit A do you take? do you drink coffee?

E5c7f14800c5992831f5c70fa746dc5c

(12857)

on January 03, 2012
at 01:25 PM

also take 5mg vit k2 every 2-3 days

E5c7f14800c5992831f5c70fa746dc5c

(12857)

on January 03, 2012
at 01:24 PM

..stick to liver 2-4 times a month or smaller amounts like 5000iu if you decide to experiment with that)

E5c7f14800c5992831f5c70fa746dc5c

(12857)

on January 03, 2012
at 01:23 PM

I usually drink about a gallon of milk(I drink whole but ray says this should be 1% milk if you don't want to gain weight as the amount of milk he recommends is usually fattening if you drink whole), 10-16 cups of juice(usually a mixture of pulp free not from concentrate orange and pineapple), 1-2 potatoes with butter, some flourless brownies(cocoa powder, eggs, butter, sugar), maybe some cheese and other random items. I eat like 4-5 times a day and do about a tsp of salt each meal, I also take ~1g of aspirin and 40-60k iu vit A(I take so much vit A because I have a very high metabolism...

0bd9775b305d2a602d496649982bc614

(252)

on January 03, 2012
at 04:43 AM

haha, I bet she's actually gaining some weight, since my scale is screaming the very fact in my case. btw, are you eating this RP too? What's your daily menu look like? curious.

E5c7f14800c5992831f5c70fa746dc5c

(12857)

on January 03, 2012
at 12:21 AM

she complains about being so fat since eating like this but its all in her head, she doesn't use a scale so I have no idea if shes actually gaining weight but she looks the same. If your increasing your carbs or salt than water weight can probably account for all of the weight gain.

0bd9775b305d2a602d496649982bc614

(252)

on January 02, 2012
at 07:37 PM

cliff-did your mom gain weight by doing ray peat?? last two days on RP, I gained 6 pounds! outrageous! I'm already heavier than "normal" weight by chart, which makes the 6 pounds in 2 days obviously problematic.

0bd9775b305d2a602d496649982bc614

(252)

on January 02, 2012
at 04:42 PM

all gluten free. I'm super strict with gluten..

0bd9775b305d2a602d496649982bc614

(252)

on January 02, 2012
at 04:40 PM

applegate turkey bacon, camomile tea mostly.

13c5a9f1678d75b93f269cdcf69f14d5

(2339)

on January 01, 2012
at 02:51 AM

are your supplements gluten free?

13c5a9f1678d75b93f269cdcf69f14d5

(2339)

on January 01, 2012
at 02:48 AM

what kind of tea?

13c5a9f1678d75b93f269cdcf69f14d5

(2339)

on January 01, 2012
at 02:47 AM

the brand of turkey bacon, please?

13c5a9f1678d75b93f269cdcf69f14d5

(2339)

on January 01, 2012
at 02:47 AM

ghee instead of butter would completely eliminate casein, probably worth doing

13c5a9f1678d75b93f269cdcf69f14d5

(2339)

on January 01, 2012
at 02:46 AM

is the vegetable intolerance a form of salicylate sensitivity?

0bd9775b305d2a602d496649982bc614

(252)

on December 31, 2011
at 04:49 AM

thanks dragonfly!

Ce41c230e8c2a4295db31aec3ef4b2ab

(32564)

on December 31, 2011
at 02:16 AM

Most Paleo diets have plenty of Vit. A--so *don't* supplement unnecessarily or you will diminish the effects of your D supplementation.

0bd9775b305d2a602d496649982bc614

(252)

on December 31, 2011
at 02:15 AM

Thanks tracy!!!

0bd9775b305d2a602d496649982bc614

(252)

on December 31, 2011
at 02:14 AM

thanks much, cliff. I just researched briefly about ray peat protocol, it's quite interesting. Different from any other diets I've tried.

0bd9775b305d2a602d496649982bc614

(252)

on December 31, 2011
at 02:12 AM

thanks Snufkin.

0bd9775b305d2a602d496649982bc614

(252)

on December 31, 2011
at 02:04 AM

Annie, thanks for the recommendation.

0bd9775b305d2a602d496649982bc614

(252)

on December 31, 2011
at 02:00 AM

PaleoGran, Thanks for the kind words. I eat a very little vegetables these days(ketogenic diet) still, every time I eat vegetables, my knee/leg pain comes. I decided that I am going to completely eliminate vegetables starting tomorrow. I hope you feel better soon too. My best,

32f5749fa6cf7adbeb0b0b031ba82b46

(41747)

on December 30, 2011
at 10:45 PM

Certainly keep trying whatever, but you might consider that this might be as close to "normal" as you'll get. Damage done, you might not be able to heal yourself to 100%.

D45e43b08cd99a04f5d4294a871e1078

(1010)

on December 30, 2011
at 10:29 PM

she doesn't say that raw veggies made her worse. You gotta go by empirical evidence, not what you read.

3c6b4eed18dc57f746755b698426e7c8

(5152)

on December 30, 2011
at 08:00 PM

Also, raw cruciferous veggies may not be easy to digest if you have IBD or IBS. That's according to Constantyn of GutSense.

77877f762c40637911396daa19b53094

(78467)

on December 30, 2011
at 07:57 PM

Raw paleo? Actually, raw veggies may make her condition worse!!! If you mean raw meat? Maybe.

77877f762c40637911396daa19b53094

(78467)

on December 30, 2011
at 07:55 PM

Plenty of Vitamin K2 and Vitamin A are need along with the Vitamin D.

48f88cfbc4d95abdaf0fd4e1acdcba83

(358)

on December 30, 2011
at 07:36 PM

Hi Annie- can you tell me about your experience with Bio-Kult? I just got started on them, and would like to know how they improved your health. Thanks.

3c6b4eed18dc57f746755b698426e7c8

(5152)

on December 30, 2011
at 06:45 PM

Yah, I used to take 3g of Vit C until it started messing with my BG readings.

D31a2a2d43191b15ca4a1c7ec7d03038

(4134)

on December 30, 2011
at 04:58 PM

Hanne, I am praying for you to be completely healed. Someone at dirty carnivores posted that she had no joint pain after eliminating vegetables. PFW's blog about his experience w/ Crohns gave me the inspiration to get my carbs from Lactaid milk. The last few weeks, not eating veggies, and using the Lactaid for carbs, my joints are happier. My flexibility is better, have less pain. I also greatly restricted my tea drinking, which helped, as well. Am sending you all best thoughts.

3aea514b680d01bfd7573d74517946a7

(11996)

on December 30, 2011
at 04:05 PM

There's some conflicting data on the value of fruits/veggies in RA, but the benefits of fasting (which ketosis mimics w/o the calorie deficit) are clear. See these two studies: http://informahealthcare.com/doi/abs/10.3109/03009747909114631 and http://informahealthcare.com/doi/abs/10.3109/03009747909114631

6670b38baf0aae7f4d8ac2463ddc37c0

(3946)

on December 30, 2011
at 03:04 PM

Agreed. Strict Paleo did not cure my asthma and auto-immune condition. However, I have noticed a huge improvement with Bio-Kult.

6670b38baf0aae7f4d8ac2463ddc37c0

(3946)

on December 30, 2011
at 03:02 PM

Bio-Kult to improve your gut bacteria will almost certainly help.

Ce41c230e8c2a4295db31aec3ef4b2ab

(32564)

on December 30, 2011
at 02:55 PM

I needed 8,000 IUs *per day* to get me up to 91 ng/ml. (I go for the higher number due to my asthma--which is completely gone at this level of D.)

Ce41c230e8c2a4295db31aec3ef4b2ab

(32564)

on December 30, 2011
at 02:54 PM

Also make sure you are taking 200-600 mg Magnesium in whatever form you tolerate. You absolutely need it with those higher D levels.

Ce41c230e8c2a4295db31aec3ef4b2ab

(32564)

on December 30, 2011
at 02:54 PM

Agreed with Ashley! Make sure it's oil-based. If you can deal with a bit of fish oil, Carlsons Solar D Gems are the best, IMO.

77877f762c40637911396daa19b53094

(78467)

on December 30, 2011
at 12:52 PM

2000 C is not considered a magadose, it still falls under UL. Its use is as antihistaminic (http://goo.gl/vu2kR) in this case, I guess. From Adnrew Saul : "At the proper (high) level, vitamin C has *antihistamine*, antitoxin, antibiotic, and antiviral properties.... if your body wants 35,000 mg of vitamin C to fight an infection, 7,000 mg won't do. The key is to take enough C, take it often enough, and take it long enough."

3c6b4eed18dc57f746755b698426e7c8

(5152)

on December 30, 2011
at 06:18 AM

Ok, i c. So that's a pretty strict diet. For connective tissue autoimmune conditions, dairy seems to be hair-trigger sensitive, especially milk, cream. Butter, it might depend. Why Vit C megadose?

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 06:12 AM

by the way, I'm not hashimoto. it's Grave's tiyroditis!

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 06:08 AM

omega 3- 2000-3000 daily, Vit D 50,000 weekly, Vit C 2000 daily

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 06:06 AM

thanks ashley. that's the answer I wanted to hear!

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 06:04 AM

I'm strictly gluten/nightshade/nut/soy free. I added butter and egg when I switched to keto diet from wolf' al protocol. I was diagnosed with markers and symptoms. long, extensive tests, second opinion.. Especially Once celiac was diagnosed and on gluten free diet, many of the "insane" GI symptoms disappeared. In fact, it was quite a magic. If you are celiac, you will know what I'm talking about. Still, many of the symptoms remained. and that's what I search answers for. yes,I have a team of doctors. steroid and non steroid meds that was tapered down recently. when in relapse, IV steroids.

1da74185531d6d4c7182fb9ee417f97f

(10904)

on December 30, 2011
at 05:39 AM

Stop using the prescription and take 5-10k of d3 instead. d2 is crap. Take it with some k2 (mk-4 version) to help.

Cf4576cbcc44fc7f2294135609bce9e5

(3125)

on December 30, 2011
at 05:27 AM

you didnt mention any medications that you surely must be taking.

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 05:17 AM

Thanks balor123. do you think that fruits/veggies is more beneficial to autoimmune conditions compare to ketogenic diet? I've been always curious about this. You know, some say antioxidant in fruits/veggies helps autoimmune, others say you gotta get rid of carbs..

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 04:55 AM

My vit D started out way below normal. Since taking the prescribed 50,000 vit d every other day for 3 rounds, I barely made it to about 20. So yes, I still have a long way to go. now 50,000 once a week for the 4th round. Question-What is the difference between those prescription vitamin and health store vitamins? anyone? I would prefer to take smaller dosage daily instead, after this round of 50,000 weekly one, if it's the same thing.

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 04:54 AM

My vit D started out way below normal. Since taking the prescribed 50,000 vit d every other day for 3 rounds, I barely made it to about 20. So yes, I still have a long way to go. now 50,000 once a week for the 4th round. Question-What is the difference between those prescription vitamin and health store vitamins? anyone? I would take smaller dosage daily instead, after this round of 50,000 weekly one.

124d8a1bdd651afd9445556de3358809

(8)

on December 30, 2011
at 04:27 AM

Look into Cranialrelease.com. It's amazing work that can help with all of your symptoms. I am a practioner in Chandler AZ, not sure where you are. I treat people of all sorts of severities. Website will give you more information and if your interested there is a fina practioner button. Good luck, sarah

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 04:22 AM

thanks a lot rose.

3aea514b680d01bfd7573d74517946a7

(11996)

on December 30, 2011
at 04:12 AM

Hanne, here's what my usual day looks like: http://paleohacks.com/questions/41021/zero-carb-folks-what-do-you-eat-in-a-typical-day/41054#41054

3e3b1b75cb414c5c3dbed53e3c42edfa

(220)

on December 30, 2011
at 03:58 AM

How were you exposed to cadmium? My dentist replaced my amalgams with no precautions and my mother had a mouthful of amalgams. I was raised a vegetarian which I think left me with nutritional deficiencies that made me more susceptible to heavy metal poisoning. Now a full fledged carnivore and have never felt better!!

3e3b1b75cb414c5c3dbed53e3c42edfa

(220)

on December 30, 2011
at 03:56 AM

Because my adrenals were so weak, I had to start slowly and did humivirate, cilantrogen, sodium alginate, and then DMSA. First three were daily and DMSA is 200 mg every three days. My adrenals got stronger about halfway through and I stopped taking the licorice. I am also almost off of my thyroid medication.

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 03:38 AM

thank you so much becky. I'm very likely heavy metal poisoning actually, especially cadmium (I was exposed to it repeatedly over years).. do you take ALA or EDTA? what is your chelation therapy consist of?

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 03:36 AM

thank you so much becky.. what do you do for chelation therapy? I'm very likely heavy metal poisoning especially cadmium (exposed to it repeatedly)

3e3b1b75cb414c5c3dbed53e3c42edfa

(220)

on December 30, 2011
at 03:34 AM

Chelation therapy is taking supplements to attach to the heavy metals in your body and excrete them. Your adrenals need to be in fair shape to tolerate this well. I have gotten soooo much better from doing this. I had high levels of mercury, cadmium, and lead. I finally have my life back thanks to the naturopathic doctor who created this treatment plan. Hang in there, as long as you keep seeking answers, you WILL get better!

3e3b1b75cb414c5c3dbed53e3c42edfa

(220)

on December 30, 2011
at 03:32 AM

and I made sure to eat every 2 hours b/c with weak adrenals your body can't maintain steady blood sugar. Also take 4K mg vitamin c with bioflavenoids to help cortisol production. Saturated fat like lard, ghee, and tallow is good to help your body create cortisol and B complex helps to support your adrenals also. Lifestyle changes: stop contact w/ toxic people and rest when you're tired, limited exercise depending on how you feel, it can deplete adrenals. I do gentle yoga and walking. I also use bioidentical progesterone to support my adrenals.

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 03:31 AM

rose, will you be able to share how your regular day meal plan looks like?

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 03:28 AM

hi rose, so how are you doing with vegetables now? are you eating them now or still no?

3e3b1b75cb414c5c3dbed53e3c42edfa

(220)

on December 30, 2011
at 03:27 AM

The best thing to do to find out about your adrenals is to take a saliva test. You should collect your saliva 4xday to get an idea of what your cortisol is doing throughout the day. You shouldn't supplement without doing this first because you need to know what your baseline is, your choice of supplements will vary based on if you have low or high cortisol. Mine was low in the AM and high in the PM. For adrenal support, I took ashwaghanda w/ breakfast and lunch, cod liver oil, solid licorice extract 3x throughout the morning to mimic a steady supply of cortisol. (cont)

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 03:21 AM

and the salad greens and cucumber killed me today. perhaps i had too much(?) compare to other days? right now, any carb makes me hurt.

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 03:20 AM

Hi becky, can you please give me detail on what i can do for weak adrenals? or what you did for yourself? also, what is chelation therapy you are talking about?

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 03:17 AM

the other day I had something like a salmon steak, celery, cauliflowers in ghee, 3 egg omelet with basil, scallion, broiled turkey breast, turkey bacon

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 03:15 AM

I eat coconut oil occasionally. my major fat is from olive oil, ghee, butter(the only dairy I eat). I used to eat heavy whipped cream a lot too but not anymore. I also eat fermented cabbage(lacto fermented) regularly once a week. Is daily fermented cabbage going to help? right now, I'm moved on to the ketogenic diet from the autoimmune protocol: Today, I ate 1/3 pound ground turkey cooked in butter, 3 strips turkey bacon, onion cooked in butter, 1 cups of salad greens+ olive oil, cucumbers,1 egg in butter, 1/2 pound salmon broiled with lemon and salt. 2 of the asparagus with butter, tea.

3aea514b680d01bfd7573d74517946a7

(11996)

on December 30, 2011
at 03:02 AM

Hanne, I sure wish I had some advice for you. However, I just want you to know that your food sensitivity is not just you -- the first symptom I get when I try to add vegetables back to my (usually) ZC diet is joint pain. Long before any weight gain. I hope you get some good answers to this.

  • 0bd9775b305d2a602d496649982bc614

    asked by

    (252)
  • Views
    11.7K
  • Last Activity
    1431D AGO
Frontpage book

Get FREE instant access to our Paleo For Beginners Guide & 15 FREE Recipes!

17 Answers

best answer

10
Medium avatar

(291)

on December 30, 2011
at 10:48 AM

Have you tried focusing more on gut health? Eating probiotic foods, drinking bone broth etc. I also have an autoimmune disease and after reading up a lot on it, i'm convinced my poor gut health is to blame. I went on antibiotics at a very young age and have been on and off them for most of my life it seems. I think this, along with other factors, has really messed up my gut flora and immune system. I developed eczema and allergies when I was a young child, and food intolerances as a teenager and now an autoimmune condition. Have you always had symptoms of an overactive immune system too? You could try reading up on the GAPS diet and try adding more gut healing foods to your diet. Hope you can find something that works for you!

6670b38baf0aae7f4d8ac2463ddc37c0

(3946)

on December 30, 2011
at 03:04 PM

Agreed. Strict Paleo did not cure my asthma and auto-immune condition. However, I have noticed a huge improvement with Bio-Kult.

48f88cfbc4d95abdaf0fd4e1acdcba83

(358)

on December 30, 2011
at 07:36 PM

Hi Annie- can you tell me about your experience with Bio-Kult? I just got started on them, and would like to know how they improved your health. Thanks.

0bd9775b305d2a602d496649982bc614

(252)

on December 31, 2011
at 02:12 AM

thanks Snufkin.

0bd9775b305d2a602d496649982bc614

(252)

on December 31, 2011
at 02:04 AM

Annie, thanks for the recommendation.

best answer

5
E5c7f14800c5992831f5c70fa746dc5c

(12857)

on December 30, 2011
at 02:05 PM

My mom cured an autoimmune eye disease using a ray peat style protocol, she literally cured herself overnight by just eating some basic pro-thyroid foods and removing the anti-thyroid foods. She also uses progesterone and vit A(I think).

0bd9775b305d2a602d496649982bc614

(252)

on January 03, 2012
at 10:17 PM

Why do we need Vit A for milk intake?

0bd9775b305d2a602d496649982bc614

(252)

on December 31, 2011
at 02:14 AM

thanks much, cliff. I just researched briefly about ray peat protocol, it's quite interesting. Different from any other diets I've tried.

0bd9775b305d2a602d496649982bc614

(252)

on January 02, 2012
at 07:37 PM

cliff-did your mom gain weight by doing ray peat?? last two days on RP, I gained 6 pounds! outrageous! I'm already heavier than "normal" weight by chart, which makes the 6 pounds in 2 days obviously problematic.

E5c7f14800c5992831f5c70fa746dc5c

(12857)

on January 03, 2012
at 01:25 PM

also take 5mg vit k2 every 2-3 days

E5c7f14800c5992831f5c70fa746dc5c

(12857)

on January 03, 2012
at 01:24 PM

..stick to liver 2-4 times a month or smaller amounts like 5000iu if you decide to experiment with that)

0bd9775b305d2a602d496649982bc614

(252)

on January 03, 2012
at 04:43 AM

haha, I bet she's actually gaining some weight, since my scale is screaming the very fact in my case. btw, are you eating this RP too? What's your daily menu look like? curious.

0bd9775b305d2a602d496649982bc614

(252)

on January 03, 2012
at 04:29 PM

cliff, thanks for sharing. you eat about 3 times more than I do. that's quite amazing. what kind of Vit A do you take? do you drink coffee?

E5c7f14800c5992831f5c70fa746dc5c

(12857)

on January 03, 2012
at 12:21 AM

she complains about being so fat since eating like this but its all in her head, she doesn't use a scale so I have no idea if shes actually gaining weight but she looks the same. If your increasing your carbs or salt than water weight can probably account for all of the weight gain.

E5c7f14800c5992831f5c70fa746dc5c

(12857)

on January 03, 2012
at 01:23 PM

I usually drink about a gallon of milk(I drink whole but ray says this should be 1% milk if you don't want to gain weight as the amount of milk he recommends is usually fattening if you drink whole), 10-16 cups of juice(usually a mixture of pulp free not from concentrate orange and pineapple), 1-2 potatoes with butter, some flourless brownies(cocoa powder, eggs, butter, sugar), maybe some cheese and other random items. I eat like 4-5 times a day and do about a tsp of salt each meal, I also take ~1g of aspirin and 40-60k iu vit A(I take so much vit A because I have a very high metabolism...

0bd9775b305d2a602d496649982bc614

(252)

on January 04, 2012
at 04:13 AM

Also Senneth, what do you eat daily? if you don't mind sharing it.

F1b39d4f620876330312f4925bd51900

(4090)

on January 03, 2012
at 07:42 PM

Hanne, I am also on the RP diet protocols. The milk made me gain weight 5 lbs, which went away when I stopped drinking the milk (I still eat a ton of cheese, and all the fruit juice stuff). I bet that wouldn't have happened if I had made sure to keep my Vit A up with liver or supplements.

E5c7f14800c5992831f5c70fa746dc5c

(12857)

on January 06, 2012
at 01:22 PM

I just started experimenting with coffee, before and after surfing. I take 10000iu retinol gelcaps from whole foods. High vit A intake is good if you have a fast metabolism but you are somewhat hypothyroid you want to start out slow like 5000iu as vit A can be anti thyroid.

E5c7f14800c5992831f5c70fa746dc5c

(12857)

on January 06, 2012
at 01:23 PM

but if you are*

0bd9775b305d2a602d496649982bc614

(252)

on January 10, 2012
at 09:49 PM

thanks much cliff. i will update with you how I'm doing on rp diet.

5
De267f213b375efca5da07890e5efc25

(3747)

on December 30, 2011
at 04:38 AM

Eliminate the dairy and nuts completely. Same for gluten - not even tiny amounts. Increase the amount of fruits and veggies - 6 cups a day. Select crucifers and leafy greens with only 1 cup low glycemic choices. No sprouted plants of course and get vit d from supplements since you have lupus. Nuts should be avoided. Stick with it strictly dor at least one year. Those antibodies dont disappear overnight. Non paleo options include immunomodulators. Sesame seeds and hemp (dranobil if available near you) are reported to have this effect. You might also try LDN. Large quantities of green tea extracts seem to cure just about everything these days but you risk liver damage. I also recall hearing recently about a drug trial starting for a cure but dont recall where. Subscribe to pubmed feeds on these diseases to get an idea of what else.

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 05:17 AM

Thanks balor123. do you think that fruits/veggies is more beneficial to autoimmune conditions compare to ketogenic diet? I've been always curious about this. You know, some say antioxidant in fruits/veggies helps autoimmune, others say you gotta get rid of carbs..

3aea514b680d01bfd7573d74517946a7

(11996)

on December 30, 2011
at 04:05 PM

There's some conflicting data on the value of fruits/veggies in RA, but the benefits of fasting (which ketosis mimics w/o the calorie deficit) are clear. See these two studies: http://informahealthcare.com/doi/abs/10.3109/03009747909114631 and http://informahealthcare.com/doi/abs/10.3109/03009747909114631

De267f213b375efca5da07890e5efc25

(3747)

on January 03, 2012
at 11:32 PM

I would say definitely yes to veggies. Fruits are not so clear. Aim for 200 or a bit more calories from carbs a day. Fruits, especially berries, are a great candidate for those calories. At least try to avoid high glycemic fruits, like dates and bananas. Ketogenic fasting is probably good enough.

4
1aef1777cbac720e48e836f5cef98281

on December 30, 2011
at 07:48 PM

I would switch to grass fed beef instead of turkey. Better 3/6 ratio. And I'd really recommend trying GAPS. That or Chris Kresser just outlined the gut healing protocol he uses for autoimmune in one of his most recent podcasts: http://chriskresser.com/naturally-get-rid-of-acne-by-fixing-your-gut The focus of the episode is curing acne but healing the gut is healing the gut. Leaky gut is a huge problem with autoimmune.

4
3e3b1b75cb414c5c3dbed53e3c42edfa

(220)

on December 30, 2011
at 03:14 AM

Have you been tested for heavy metal poisoning and do you know the status of your adrenals? I was very sick, not quite as bad as you and am recovering well with chelation therapy to remove the heavy metals. They can shut down your body. Weak adrenals result in multiple food sensitivities and blood sugar imbalances and there is a lot you can do to help your adrenals recover.

3e3b1b75cb414c5c3dbed53e3c42edfa

(220)

on December 30, 2011
at 03:27 AM

The best thing to do to find out about your adrenals is to take a saliva test. You should collect your saliva 4xday to get an idea of what your cortisol is doing throughout the day. You shouldn't supplement without doing this first because you need to know what your baseline is, your choice of supplements will vary based on if you have low or high cortisol. Mine was low in the AM and high in the PM. For adrenal support, I took ashwaghanda w/ breakfast and lunch, cod liver oil, solid licorice extract 3x throughout the morning to mimic a steady supply of cortisol. (cont)

3e3b1b75cb414c5c3dbed53e3c42edfa

(220)

on December 30, 2011
at 03:56 AM

Because my adrenals were so weak, I had to start slowly and did humivirate, cilantrogen, sodium alginate, and then DMSA. First three were daily and DMSA is 200 mg every three days. My adrenals got stronger about halfway through and I stopped taking the licorice. I am also almost off of my thyroid medication.

3e3b1b75cb414c5c3dbed53e3c42edfa

(220)

on December 30, 2011
at 03:32 AM

and I made sure to eat every 2 hours b/c with weak adrenals your body can't maintain steady blood sugar. Also take 4K mg vitamin c with bioflavenoids to help cortisol production. Saturated fat like lard, ghee, and tallow is good to help your body create cortisol and B complex helps to support your adrenals also. Lifestyle changes: stop contact w/ toxic people and rest when you're tired, limited exercise depending on how you feel, it can deplete adrenals. I do gentle yoga and walking. I also use bioidentical progesterone to support my adrenals.

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 03:36 AM

thank you so much becky.. what do you do for chelation therapy? I'm very likely heavy metal poisoning especially cadmium (exposed to it repeatedly)

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 03:20 AM

Hi becky, can you please give me detail on what i can do for weak adrenals? or what you did for yourself? also, what is chelation therapy you are talking about?

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 03:38 AM

thank you so much becky. I'm very likely heavy metal poisoning actually, especially cadmium (I was exposed to it repeatedly over years).. do you take ALA or EDTA? what is your chelation therapy consist of?

3e3b1b75cb414c5c3dbed53e3c42edfa

(220)

on December 30, 2011
at 03:34 AM

Chelation therapy is taking supplements to attach to the heavy metals in your body and excrete them. Your adrenals need to be in fair shape to tolerate this well. I have gotten soooo much better from doing this. I had high levels of mercury, cadmium, and lead. I finally have my life back thanks to the naturopathic doctor who created this treatment plan. Hang in there, as long as you keep seeking answers, you WILL get better!

3e3b1b75cb414c5c3dbed53e3c42edfa

(220)

on December 30, 2011
at 03:58 AM

How were you exposed to cadmium? My dentist replaced my amalgams with no precautions and my mother had a mouthful of amalgams. I was raised a vegetarian which I think left me with nutritional deficiencies that made me more susceptible to heavy metal poisoning. Now a full fledged carnivore and have never felt better!!

3
3fe2bf1367970868757ddf7ed7c62531

(817)

on December 30, 2011
at 01:32 PM

look into the leptin reset by Jack Kruse. It goes right along with Paleo

3
Ce41c230e8c2a4295db31aec3ef4b2ab

(32564)

on December 30, 2011
at 04:44 AM

What's your Vitamin D level?

You need to get it up around 80 ng/ml or slightly higher to help with autoimmune issues.

1da74185531d6d4c7182fb9ee417f97f

(10904)

on December 30, 2011
at 05:39 AM

Stop using the prescription and take 5-10k of d3 instead. d2 is crap. Take it with some k2 (mk-4 version) to help.

Ce41c230e8c2a4295db31aec3ef4b2ab

(32564)

on December 30, 2011
at 02:55 PM

I needed 8,000 IUs *per day* to get me up to 91 ng/ml. (I go for the higher number due to my asthma--which is completely gone at this level of D.)

Ce41c230e8c2a4295db31aec3ef4b2ab

(32564)

on December 30, 2011
at 02:54 PM

Also make sure you are taking 200-600 mg Magnesium in whatever form you tolerate. You absolutely need it with those higher D levels.

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 04:55 AM

My vit D started out way below normal. Since taking the prescribed 50,000 vit d every other day for 3 rounds, I barely made it to about 20. So yes, I still have a long way to go. now 50,000 once a week for the 4th round. Question-What is the difference between those prescription vitamin and health store vitamins? anyone? I would prefer to take smaller dosage daily instead, after this round of 50,000 weekly one, if it's the same thing.

Ce41c230e8c2a4295db31aec3ef4b2ab

(32564)

on December 31, 2011
at 02:16 AM

Most Paleo diets have plenty of Vit. A--so *don't* supplement unnecessarily or you will diminish the effects of your D supplementation.

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 04:54 AM

My vit D started out way below normal. Since taking the prescribed 50,000 vit d every other day for 3 rounds, I barely made it to about 20. So yes, I still have a long way to go. now 50,000 once a week for the 4th round. Question-What is the difference between those prescription vitamin and health store vitamins? anyone? I would take smaller dosage daily instead, after this round of 50,000 weekly one.

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 06:06 AM

thanks ashley. that's the answer I wanted to hear!

Ce41c230e8c2a4295db31aec3ef4b2ab

(32564)

on December 30, 2011
at 02:54 PM

Agreed with Ashley! Make sure it's oil-based. If you can deal with a bit of fish oil, Carlsons Solar D Gems are the best, IMO.

77877f762c40637911396daa19b53094

(78467)

on December 30, 2011
at 07:55 PM

Plenty of Vitamin K2 and Vitamin A are need along with the Vitamin D.

0bd9775b305d2a602d496649982bc614

(252)

on December 31, 2011
at 04:49 AM

thanks dragonfly!

3
3eca93d2e56dfcd768197dc5a50944f2

(11697)

on December 30, 2011
at 03:01 AM

You need to give us more info about what exactly you eat. For example, do you use coconut oil to cook? Do you use fermented foods?

Cf4576cbcc44fc7f2294135609bce9e5

(3125)

on December 30, 2011
at 05:27 AM

you didnt mention any medications that you surely must be taking.

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 03:17 AM

the other day I had something like a salmon steak, celery, cauliflowers in ghee, 3 egg omelet with basil, scallion, broiled turkey breast, turkey bacon

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 03:21 AM

and the salad greens and cucumber killed me today. perhaps i had too much(?) compare to other days? right now, any carb makes me hurt.

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 03:15 AM

I eat coconut oil occasionally. my major fat is from olive oil, ghee, butter(the only dairy I eat). I used to eat heavy whipped cream a lot too but not anymore. I also eat fermented cabbage(lacto fermented) regularly once a week. Is daily fermented cabbage going to help? right now, I'm moved on to the ketogenic diet from the autoimmune protocol: Today, I ate 1/3 pound ground turkey cooked in butter, 3 strips turkey bacon, onion cooked in butter, 1 cups of salad greens+ olive oil, cucumbers,1 egg in butter, 1/2 pound salmon broiled with lemon and salt. 2 of the asparagus with butter, tea.

13c5a9f1678d75b93f269cdcf69f14d5

(2339)

on January 01, 2012
at 02:47 AM

ghee instead of butter would completely eliminate casein, probably worth doing

0bd9775b305d2a602d496649982bc614

(252)

on January 02, 2012
at 04:40 PM

applegate turkey bacon, camomile tea mostly.

13c5a9f1678d75b93f269cdcf69f14d5

(2339)

on January 01, 2012
at 02:47 AM

the brand of turkey bacon, please?

13c5a9f1678d75b93f269cdcf69f14d5

(2339)

on January 01, 2012
at 02:48 AM

what kind of tea?

2
821fadc1e64627eea5131affd305e114

on December 30, 2011
at 04:24 PM

Check out The Wahls Foundation (on Facebook). Terry Wahls, MD is an amazing physician who reversed her advanced multiple sclerosis with diet. You can find details about her recommendations on the best diet for AI.
She is now doing serious medical research on this topic.

0bd9775b305d2a602d496649982bc614

(252)

on December 31, 2011
at 02:15 AM

Thanks tracy!!!

2
A124f3fe721369a69020d7702dc36ab9

(110)

on December 30, 2011
at 03:59 AM

I've been taking an ionic magnesium supplement and have improved quite a lot. Here's a link to an article about magnesium and autoimmune diseases: http://www.nutritionalmagnesium.org/articles/magnesium-deficiency/180-magnesium-deficiency-in-autoimmune-disease.html

1
13c5a9f1678d75b93f269cdcf69f14d5

(2339)

on January 01, 2012
at 02:52 AM

I thought that it could take 2 years to get an autoimmune fire to burn down. But where did I read that? Robb Wolf?

1
3c6b4eed18dc57f746755b698426e7c8

on December 30, 2011
at 08:04 PM

The other missing piece might be acid-base imbalance. Like I posted elsewhere, you might wanna look into Dr. Richard Ash's podcast archive, who practices in NY and is an alternative/integrative practitioner (naturopath) and MD. His specialty is IBD (including Crohn's, UC), osteoporosis, and food allergies, and he in fact wrote a book on IBS a while ago. Among his recommendations are keeping the acid-base balance by eating 80% of your food from alkaline sources and checking your body's pH (urine and saliva). This is fairly controversial.

However, I can tell you I've been able to keep my gout under control using his method: I drink a glass of water with a half tsp of dissolved baking soda morning and night. This keeps me consistently alkaline at a pH of 7. Also, four weeks into this protocol, my FBG fell to the low 80s consistently and my autoimmune symptoms have been reduced. I'm not sure if that's entirely due to keeping my body alkaline but so far it's working and I'm watching things closely.

I'd go to his archived podcasts which present very useful information from a clinician's perspective. Most people who call in suffer from autoimmune diseases like lupus, MS, IBD, RA, etc.

0
A980a13555ef30d83a0da52761606039

on June 16, 2012
at 01:12 AM

Along with paleo, add LDN, bring vitamin D levels to 80, add curcumin/bcm95, and boswellia/5loxin.

0
Medium avatar

(3029)

on December 30, 2011
at 08:55 AM

Your problems are more complex than most. For you, I think it would be worthwhile to find a really excellent practitioner in your area who understands paleo and who can take some of the guesswork out of it.

Whatever you do, I hope you have success with it.

0
3c6b4eed18dc57f746755b698426e7c8

on December 30, 2011
at 05:28 AM

Like Eugenia says, you need to provide more details on what your diet is like right now. U say u've tried Robb Wolf's AI protocol. How long were you on it. Ur eating butter now so you're not completely dairy-free. You're a celiac, so ru gluten-free? In short, are you gluten-/dairy-/nightshade-/nut-/egg- and soy-free?

Secondly, were you actually diagnosed with all of the above cluster of autoimmune diseases by autoimmune markers or by symptoms? For example, Hashimoto's thyroiditis via TPO or TG Ab. RA via CCP. SLE via Double Strand. You also claim GI-related distress: do you have IBS-related (or god forbid IBD-related) symptoms? To treat all those diseases, are you currently seeing a rheumy, neuro, endo and a GI? At minimum, you should be seeing a rheumatologist and endocrinologist.

If so, what prescription or OTC medication and supplements are you taking? There is a ton that will be offered to you, if you're confirmed for all those. You have a lot going on and there is simply not enough info to go by.

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 06:08 AM

omega 3- 2000-3000 daily, Vit D 50,000 weekly, Vit C 2000 daily

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 06:12 AM

by the way, I'm not hashimoto. it's Grave's tiyroditis!

3c6b4eed18dc57f746755b698426e7c8

(5152)

on December 30, 2011
at 06:45 PM

Yah, I used to take 3g of Vit C until it started messing with my BG readings.

3c6b4eed18dc57f746755b698426e7c8

(5152)

on December 30, 2011
at 06:18 AM

Ok, i c. So that's a pretty strict diet. For connective tissue autoimmune conditions, dairy seems to be hair-trigger sensitive, especially milk, cream. Butter, it might depend. Why Vit C megadose?

77877f762c40637911396daa19b53094

(78467)

on December 30, 2011
at 12:52 PM

2000 C is not considered a magadose, it still falls under UL. Its use is as antihistaminic (http://goo.gl/vu2kR) in this case, I guess. From Adnrew Saul : "At the proper (high) level, vitamin C has *antihistamine*, antitoxin, antibiotic, and antiviral properties.... if your body wants 35,000 mg of vitamin C to fight an infection, 7,000 mg won't do. The key is to take enough C, take it often enough, and take it long enough."

0bd9775b305d2a602d496649982bc614

(252)

on December 30, 2011
at 06:04 AM

I'm strictly gluten/nightshade/nut/soy free. I added butter and egg when I switched to keto diet from wolf' al protocol. I was diagnosed with markers and symptoms. long, extensive tests, second opinion.. Especially Once celiac was diagnosed and on gluten free diet, many of the "insane" GI symptoms disappeared. In fact, it was quite a magic. If you are celiac, you will know what I'm talking about. Still, many of the symptoms remained. and that's what I search answers for. yes,I have a team of doctors. steroid and non steroid meds that was tapered down recently. when in relapse, IV steroids.

13c5a9f1678d75b93f269cdcf69f14d5

(2339)

on January 01, 2012
at 02:51 AM

are your supplements gluten free?

0bd9775b305d2a602d496649982bc614

(252)

on January 02, 2012
at 04:42 PM

all gluten free. I'm super strict with gluten..

0bd9775b305d2a602d496649982bc614

(252)

on January 03, 2012
at 04:31 PM

all gluten free. I'm very strict with gluten.

0
5294cf643205004fc805ccf41dd4e58a

on December 30, 2011
at 05:20 AM

I don't have answers/advice (it seems you got some already so that's good), but I wanted to tell you you aren't alone. I have multiple immune issues that plague me constantly and have responded somewhat but not completely to a paleo diet. However I stay with paleo because I know when I was off of it, I was a lot worse. It's a lot of effort and it's restrictive, but I'd be in such worse shape off it. I think the next step for me is adrenal testing, and probably more diet tweaks. I hope you find some relief.

-2
D45e43b08cd99a04f5d4294a871e1078

(1010)

on December 30, 2011
at 05:52 PM

A much simple answer for you, go raw paleo.

3c6b4eed18dc57f746755b698426e7c8

(5152)

on December 30, 2011
at 08:00 PM

Also, raw cruciferous veggies may not be easy to digest if you have IBD or IBS. That's according to Constantyn of GutSense.

77877f762c40637911396daa19b53094

(78467)

on December 30, 2011
at 07:57 PM

Raw paleo? Actually, raw veggies may make her condition worse!!! If you mean raw meat? Maybe.

D45e43b08cd99a04f5d4294a871e1078

(1010)

on December 30, 2011
at 10:29 PM

she doesn't say that raw veggies made her worse. You gotta go by empirical evidence, not what you read.

Answer Question


Get FREE instant access to our
Paleo For Beginners Guide & 15 FREE Recipes!