I was curious how accurate people found Enterolab, how many used it, and how helpful it was?
My husband and I did the testing for different reasons. I was barely symptomatic but some occasional constipation IBS type issues.
My husband had celiac like symptoms and more: brain fog, allergies, snoring, nasal congestion,fatigue, diarrhea, belching, gas, bloating, abdominal distention, abdominal pain, hives,back rash (suspected dermatitis herpetiformis).
We had just started Paleo and he argued with me that he didn't have gluten issues. We spent $6000 on medical bills that revealed no diagnosis except "food intolerance." and hubbie was sick of testing and refused endoscopy. His blood TTG was normal.
The Enterolab results sealed the deal for us to go Paleo (but with dairy) for life. It was an objective measurement.
The hubby had some eye-opening stool results: normal casein results- no issues with dairy
no celiac genes BUT
very elevated fecal antigliadin Ig A, barely elevated TTG, and high fat malabsorption response to soy and yeast
The recommendation was a strict and permanent gluten-free diet due to an autoimmune response.
He used to have cross-contamination gluten and nightshade symptoms for about a year on Paleo (experimenting with LC, VLC, finally settled on PHD with raw dairy) but now he's fine with cross-contaminated gluten and nightshades. We never consume open sources of gluten like bread, pasta, etc. so it makes it much easier when traveling/eating out.
My understanding is that if he was a true celiac he'd never be able to tolerate cross-contamination, but when were at Rob Wolf's last seminar in Boston he said there were like 8-9 types of TTG, and conventional testing only tests 2-3 types. There are a lot people with severe gluten issues then conventional (including celiac) testing would never reveal, so many types of unnamed gluten diseases.
We believe my hubby had some celiac-like gluten response for which there is no proper name yet.
The Enterolab results make sense and we don't believe it was a false result. I was carrying gluten sensitivity and celiac genes and just recommended to be gluten-free. My stool testing and casein was all normal.
When we did the testing they didn't have options for testing rice, corn, oats, potato which they now have - would have loved to do that at the time!
We're just grateful that Enterolab and Paleo we did at the same time. I was sort of a control but the results convinced him going Paleo was the only way during holiday season last year!
asked byLady_Arwen (6244)
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on June 27, 2012
at 11:13 PM
I found Enterolab testing helpful to determine a gluten intolerance.
My mother has Celiac disease (verified by blood test and biopsy). A few years ago I started to develop symptoms of gas, bloating, fatigue, and diarrhea. Because of my mother, I requested a blood test for Celiac disease, but it was negative. I went through multiple doctors, and the only diagnosis I ever got was IBS. The only treatment suggestion I received was stress reduction and Immodium.
I found Enterolab through Celiac.com and ordered testing. Genetic tests indicated I was high risk for Celiac disease and gluten sensitivity, stool test results indicated I was reactive to gluten and soy. A year and a half later on a gluten, dairy, and soy free diet, my health is dramatically better.
on September 15, 2013
at 12:06 AM
I recently completed the full gluten sensitivity and other food sensitivity panel from EnteroLab and came out with immunological reactions to absolutely everything they tested (gluten, chicken eggs, milk (casein), soy, corn, oats, almond, cashews, white potato, tuna, beef, rice, pork and chicken - and the last three being some of the worst reactions). I have had 3 negative blood panels for celiac disease over the last 5 years and "normal" colonoscopies.
10 years ago I was diagnosed with IBS-A and lactose intolerance and was oblivious to the Paleo lifestyle until my sister started down this journey 3-4 years ago. Like many, I was highly skeptical and critically observed from a distance to see how she might benefit from this "crazy new diet". Meanwhile I was eating a "healthy" vegetarian lifestyle and suffering from constant stomach cramps, bloating, alternating diarrhoea and constipation, gas and bleching, extreme blood sugar disregulation, constant headache/brain fog and memory issues. While still at the upper end of the healthy weight range for my 5'6" stature (155lb or about 70kg), I had also always carried a spare tyre around the middle.
Fast forward 2 years later after swapping wheat for meat and I am miles ahead of where I was. BUT, still struggling with the same raft of GI issues and somewhat lessened headache/brain fog issues. The EnteroLab testing confirmed nothing specific for me - other than my GI tract was still in a world of trouble and my list of foods to avoid was growing ever larger.
So what to eat in the meantime if easily obtainable sources of protein and fat are out of the mix: all grains and dairy anyway, but now also chicken, pork and eggs? What I was hoping my results would tell me is to avoid a few specific foods, not their entire testing panel of easily obtainable foods. As you can probably imagine I am at a loss of direction.