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Nephrotic syndrome - proteinemia (help is needed!)

Commented on February 06, 2014
Created June 07, 2013 at 7:47 AM

I was recently diagnosed with nephrotic syndrome (low blood protein levels + protein in urine + elevated lipid levels + edemas on face/legs).

The underlying cause hasn't been clarified yet, but doctor suggested that I spend time in hospital to do it.

So, it could be anything, from Minimal change disease, Focal segmental glomerulosclerosis, Membranous nephropathy to even some potentially more serious conditions.

Bur regardless of this, I wanted to ask if you have any ideas on potential triggers or potential things to try to manage it naturally.

I guess if an underlying condition turns out to be of an autoimmune nature, it could be helpful to try autoimmune protocol? If you have any experience with the same problem, please, share what worked best for you! Also, what are the most important things to ommit during autoimmune protocol (nuts? eggs? nightshades?). I mostly eat paleo with an exception for dairy (which I seem to tolerate well) and potatoes, white rice and buckwheat. I also used to supplement with creatine, whey and glutamine, but now stopped it.

Any ideas are highly welcome!

Thank you very, very much!

Be157308a0438e382b88d9db4c12ab30

on February 06, 2014
at 06:56 PM

Do you have diabetes?

B121fdbc1aaa6130f5bda3bf84e3ba2d

(952)

on July 25, 2013
at 12:00 PM

In my case, it turned out to be FSGS. Unofrtunately, there are not many options to chose from in terms of treatment... But as it is autoimmune, probably it is also helpful to support it with autoimmune protocol. Altough, I'm afraid that there is no clear evidence of its effectiveness in such cases..

  • B121fdbc1aaa6130f5bda3bf84e3ba2d

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3 Answers

0
29ae23ccd055da12b58665f1bcdbfb3b

on February 06, 2014
at 03:25 PM

I have had Membranous Glomerulonephritis for 16 years with minimal change and it's just starting to progress. My nephrologist wants to start me on immunosuppressants. I have zero desire to take them, as I'm worried about the long term effects of them. I have been 80/20 paleo for the last year but now considering the autoimmune protocol. Did you try this for your kidneys? Did you have any results you could share? @john11

0
29ae23ccd055da12b58665f1bcdbfb3b

on February 06, 2014
at 03:25 PM

I have had Membranous Glomerulonephritis for 16 years with minimal change and it's just starting to progress. My nephrologist wants to start me on immunosuppressants. I have zero desire to take them, as I'm worried about the long term effects of them. I have been 80/20 paleo for the last year but now considering the autoimmune protocol. Did you try this for your kidneys? Did you have any results you could share? @john11

0
329da96266cc89ea720d54d5b976a427

(0)

on July 24, 2013
at 06:13 AM

Have you received any info from anyone. I have a 6 yr old with minimal change.

B121fdbc1aaa6130f5bda3bf84e3ba2d

(952)

on July 25, 2013
at 12:00 PM

In my case, it turned out to be FSGS. Unofrtunately, there are not many options to chose from in terms of treatment... But as it is autoimmune, probably it is also helpful to support it with autoimmune protocol. Altough, I'm afraid that there is no clear evidence of its effectiveness in such cases..

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