Edit: It's been some time since this original post and I've gone around with my doctor who has now, unfortunately, thrown her hands up in the air. She immediately dismissed the IgE allergy tests as being useless and told me not to pay attention to them. After hearing my symptoms she immmediately treated me for SIBO without a breath test. My first course of abx was with Xifaxan - provided some relief but not entirely, and shortly after I took doxycycline - no relief. I went for a gastric emptying study and a breath test which both came back normal.
Is there ANYONE who has gone through anything similar as this? I cannot consume anything without digestive issues, even just liquids. I generally wake up feeling good but as soon as I eat, irregardless of what it is or how much, I feel like there's a giant rock in my stomach which eventually turns into gas and bloats up my entire abdomen, and it just becomes progressively worse and more uncomfortable thorughout the day. If I go a day without eating I feel totally perfect and normal, but this is not ideal. I'm out of ideas because even when I religiously followed SCD for a while it didn't make a difference and I couldn't move beyond phase 1.. and I've tested eliminating every possible problem food I know of. Is there something else that could be causing this that my doctor nor I have realized? This doctor is out of a very well respected hospital that is known for their medical advancements and I was referred there, so if they are unable to help me I don't know who can.
I went to see a GI doctor for digestive distress and did not receive a diagnosis, but a referral to different MD who can provide a breath test. For the past 6 months I've been having digestive issues with each meal, regardless of the meal. Despite being strict paleo (100% gluten free and dairy free), nut free, low fodmaps, and following SCD I have only found mild relief following SCD and eating VERY low carbohydrates. I have also been trying to treat suspected leaky gut with bone broth and a few supplements, but run into issues whenever I try to incorporate probiotics or fermented foods.
Before I left the office the doctor decided to test me for food allergies just to see if there was anything else he could narrow it down to. The test came back, and I am about 3 foods away from being "allergic to everything", and my IgE levels are quite elevated. Everything from pets, all grasses and trees, egg whites (I did a complete egg elimination in the past and did not experience any relief) to carrots, almonds, lemon, banana, lettuce, cabbage, ginger, sesame seeds, and parsley, just to name a small fraction. Their advice: eliminate all these foods for good (what is left to eat..?) and see an allergist. For the record, all I have had is mild seasonal allergies in the spring. Love playing with animals, and only some mild localized allergic reactions to raw fruits. Otherwise, I have spent my entire life devouring peanut and/or almond butter, putting hummus on everything, tons of stuffed cabbage, and using ginger to cure an upset stomach. No history of any of these allergies, since going paleo a few years ago I feel like I'm running at 150%.
Dear paleohackers: what do I do now? Should I attempt to eliminate all these foods to see if it helps? Is this test even worth listening to? Is this leaky gut? Is there a benefit in seeing an allergist right now or should I go forth with the breath tests first? Despite my symptoms sounding similar to SIBO, my doctor said it's nearly impossible to have it without a history of diverticulitis or abdominal surgery. It will unfortunately be several weeks until I can see the doctor to provide me with the breath test.
Someone who misses eating :(
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"a referral to different MD who can provide a breath test"
Please go to the second MD and get this breath test done before you make any changes. It is probably a methane or hydrogen breath test which is non invasive and quickly done as an outpatient.
It will tell you if you have SIBO (small intestinal bacterial overgrowth), which can be treated. If you don't get rid of the SIBO first, adding or modifying your diet with various foods and supplements can make the SIBO worse by encouraging the growth of bacteria in the wrong part of your intestines, thus making you even sicker.
My wife has a serious AI disease that was poorly diagnosed & treated for YEARS. Eventually she wound up on steroids... side effects were terrible.
She dumped that MD & went with a real MD into alternative methods; supplements (esp fish oil) & an elimination diet.
No dairy, no eggs, no wheat, no grains, no nuts, no peanuts, no fruit, no refined / foods, no nightshades, no wine.... what did she eat?
Wild salmon & spinach (or other green leafy veggies), yams & sweet potatoes and baby green beans. She did this for more than 6 months probably close to a year. She went from 160 to 125 in about 18 months or so.
ime the most reactive foods are wheat, eggs, dairy, nuts.. start with those?
Hopefully you don't have an allergy to salmon.
What Paleogod said. I'd add bone and meat broths, and slowly introduce any foods you're not allergic or sensitive to. It sounds like these were caused by leaky gut, once the intestinal barrier is compromised, large food particles get into the blood stream and you build antibodies.
Once you heal the gut lining fully, the large particles won't get in anymore, and large proteins will be broken down and absorbed properly without immune side effects. The biggest danger is autoimmune disease.
Since the blood brain barrier and intestinal barrier are made of similar cells, one test you could do is the GABA test. GABA is a molecule that should be too large to make it past the BBB, so if you take it by itself and feel calm within 30 minutes, you've got a leaky brain barrier, and very likely leaky gut. So in that case, try to do the GABA test once a week until it no longer has an effect.
Usually most of the antibodies will go away within 6 months to a year, but sadly some will not, so you have to be very careful with your diet and get zero, yes zero, exposure to things that can potentially cause autoimmune disease (grains, dairy). Some people can react to even the wheat in shampoo or cosmetics for example, and will keep producing antibodies if exposed.
It's very possible you might have developed an autoimmune disease and not know it, as the symptoms may not show up for a few years. :( Be very careful and strict with your diet until at least the leaky gut goes away, at best 6 months.
It's very possible to have SIBO without diverticulitis or surgery if gut motility isn't working properly, or you're low on stomach acid (usually H. Pylori contributes to this.)
Try to eliminate foods for now. I don't believe you actually have a food allergy but rather you have food intolerances. The best way to get rid of food intolerances is to heal your gut and slowly reintroduce foods into your diet again. First get a stool test done to see whether or not you have any infections then address those infections. Then attempt to heal the lining of your digestive tract with supplements and foods. Some supplements include L-Glutamine, DGL, Marshmallow Root, Slippery Elm. Bone broth is also a great food to include. Then slowly reintroduce bacteria into your intestines with probiotic supplements and fermented foods.
I am going to give a different answer (as always). But I hope you hear me out.
The fact that you are allergic to everything might suggest that your liver is not functioning properly. Even if all the tests come back okay, it could still be the issue.
Please do the following to test for it:
One day try to eat only easily digestible Paleo foods (blended, boiled, steamed, pureed, chopped). The KEY though is to eat them in very small amounts, like no more than one cup per meal. Have your meals frequently. Use the combination of some vegetables, 2 oz or less protein, 1 teaspoon of virgin olive oil. Try it for one day.
If this helps, it might be the liver.